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Short online survey for people with lupus nephritis about a clinical trial proposal (link now working)
Hi everyone, I have another short online survey for people with a diagnosis of lupus
nephritis
(lupus affecting the kidneys). The link is working now. The results of the anonymous survey will be used to shape future research. https://www.surveymonkey.co.uk/r/JLXCFFC
Hi everyone, I have another short online survey for people with a diagnosis of lupus
nephritis
(lupus affecting the kidneys). The link is working now. The results of the anonymous survey will be used to shape future research. https://www.surveymonkey.co.uk/r/JLXCFFC
Paul_Howard
LUPUS UK
in
LUPUS UK
4 years ago
Renal biopsy reaction
Hi Everyone, I have lupus
nephritis
and had a renal biopsy some 12 days ago, to investigate possible increase in lupus activity. I have since developed a new, persistent middle back ache, which radiates round to the hips.
Hi Everyone, I have lupus
nephritis
and had a renal biopsy some 12 days ago, to investigate possible increase in lupus activity. I have since developed a new, persistent middle back ache, which radiates round to the hips.
Neriah
in
LUPUS UK
4 years ago
Can VLPD help improve GFR for person with Type 2 Diabetes?
Do any of you know of people with diabetes and
nephritis
(glomerulonephritis) that improve significantly with the very low protein diet and exercise?
Do any of you know of people with diabetes and
nephritis
(glomerulonephritis) that improve significantly with the very low protein diet and exercise?
bravo10
in
Kidney Disease
4 years ago
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Tacrolimus side effects - nausea
Hi everyone, I started Tacrolimus (Oral) Prograf last week to help tackle my
nephritis
. Just wondering what side effect people found and if they carry on for the whole time or if it settles down?
Hi everyone, I started Tacrolimus (Oral) Prograf last week to help tackle my
nephritis
. Just wondering what side effect people found and if they carry on for the whole time or if it settles down?
PositivelyLupus
in
LUPUS UK
4 years ago
Short online survey for people with lupus nephritis
If you have a diagnosis of lupus
nephritis
(lupus affecting the kidneys), please complete this very quick online survey about medication adherence. The results of the anonymous survey will be used to develop a research study proposal. https://www.surveymonkey.co.uk/r/J7Q5S8P
If you have a diagnosis of lupus
nephritis
(lupus affecting the kidneys), please complete this very quick online survey about medication adherence. The results of the anonymous survey will be used to develop a research study proposal. https://www.surveymonkey.co.uk/r/J7Q5S8P
Paul_Howard
LUPUS UK
in
LUPUS UK
4 years ago
Renal limited lupus nephritis.
I am under huge dose of medications which includes Prednisolone and immuno suppressant drugs for my renal limited lupus
nephritis
kidney disease, But my serum albumin and total protein level is now well below the normal range.
I am under huge dose of medications which includes Prednisolone and immuno suppressant drugs for my renal limited lupus
nephritis
kidney disease, But my serum albumin and total protein level is now well below the normal range.
Drakula
in
LUPUS UK
4 years ago
IVF, SLE & Lupus Nephritis
Hi New on here & was hoping there was someone in the same position as me... my OH & I are just starting our 1st journey with IVF but with the added complications that I have SLE & Lupus
Nephritis
. Just wondered if anyone else had any experience of this & if they had any advice TIA
Hi New on here & was hoping there was someone in the same position as me... my OH & I are just starting our 1st journey with IVF but with the added complications that I have SLE & Lupus
Nephritis
. Just wondered if anyone else had any experience of this & if they had any advice TIA
MOOG144
in
Fertility Network UK
4 years ago
CKD gfr 25-32
I am diagnosed with only renal limited lupus
nephritis
class IV ( ANA, ANCA, Anti DS DNA all negative) Lupus only limited to kidneys.
I am diagnosed with only renal limited lupus
nephritis
class IV ( ANA, ANCA, Anti DS DNA all negative) Lupus only limited to kidneys.
Drakula
in
Early CKD Support
4 years ago
Lupus nephritis, Presnisolone, Cyclophasimide
Kindly explain the Low serum protein level in blood and it's relation with CKD . Please see the attached image
Kindly explain the Low serum protein level in blood and it's relation with CKD . Please see the attached image
Drakula
in
Early CKD Support
4 years ago
Lupus nephritis, Presnisolone, Cyclophasimide
Please read .
Please read .
Drakula
in
LUPUS UK
4 years ago
Rare case of renal limited lupus nephritis class IV
In 2012, after kind biopsy, the diagnosis was of lupus
nephritis
class 1V. But all the blood reports ANA, ANCA, Anti DNA are persistently negative till date.
In 2012, after kind biopsy, the diagnosis was of lupus
nephritis
class 1V. But all the blood reports ANA, ANCA, Anti DNA are persistently negative till date.
Drakula
in
LUPUS UK
4 years ago
Hi I have lupus nephritis but have no more prednisolone, anyone?
I recently got diangosed with lupus
nephritis
, due to contracting Hepatitis C in September, which I am now cured from. I saw a doctor privately who was able to diagnose me and I started prednisolone at 40mg a day for 3 weeks to see if it had an affect. My kidney pain went away.
I recently got diangosed with lupus
nephritis
, due to contracting Hepatitis C in September, which I am now cured from. I saw a doctor privately who was able to diagnose me and I started prednisolone at 40mg a day for 3 weeks to see if it had an affect. My kidney pain went away.
biowarrior
in
LUPUS UK
4 years ago
Stage 2 CKD
I have had lupus for over 30 years, so I guess it may be lupus
nephritis
. In addition, I have history of DVT and I’m on blood thinners, and, finally, I have low thyroid and high cholesterol. I exercise 5-6 days per week and eat well. This kidney disease came as a shock, to say the least.
I have had lupus for over 30 years, so I guess it may be lupus
nephritis
. In addition, I have history of DVT and I’m on blood thinners, and, finally, I have low thyroid and high cholesterol. I exercise 5-6 days per week and eat well. This kidney disease came as a shock, to say the least.
Jojoteacher
in
Kidney Disease
4 years ago
Mycophenolate Mofetil experience with lupus nephritis.
Hi all, I have recently been diagnosed with Lupus
Nephritis
and unfortunately the steroids i was on have damaged my kidneys. They have put me onto Mycophenolate Mofetil just wondering if anyone could give me their experiences with Lupus N or the Myco drug. lifestyle change?/work?/mood?
Hi all, I have recently been diagnosed with Lupus
Nephritis
and unfortunately the steroids i was on have damaged my kidneys. They have put me onto Mycophenolate Mofetil just wondering if anyone could give me their experiences with Lupus N or the Myco drug. lifestyle change?/work?/mood?
Ralby1
in
LUPUS UK
4 years ago
Mattress choice
Hi all, I have fibromyalgia and lupus
nephritis
and just wondering if anyone can help me in choosing a mattress that will give me relief, thanks
Hi all, I have fibromyalgia and lupus
nephritis
and just wondering if anyone can help me in choosing a mattress that will give me relief, thanks
hinegan
in
LUPUS UK
4 years ago
Feeling Deflated
When she was first diagnosed (Lupus SLE and
Nephritis
) it attacked her brain and her kidneys but as I say her brain seems to be just fine so it is either her kidneys or somewhere new.
When she was first diagnosed (Lupus SLE and
Nephritis
) it attacked her brain and her kidneys but as I say her brain seems to be just fine so it is either her kidneys or somewhere new.
chezevo
in
LUPUS UK
4 years ago
Fluctuating Thyroid Profile and CKD
When I was diagnosed with ckd in 2012, then biopsy reports indicated it as proliferative Glomerulonephritis i.e lupus
nephritis
but my doctor is rigid that it in not lupus. And therefore he is not providing me any standard treatment of lupus
nephritis
.
When I was diagnosed with ckd in 2012, then biopsy reports indicated it as proliferative Glomerulonephritis i.e lupus
nephritis
but my doctor is rigid that it in not lupus. And therefore he is not providing me any standard treatment of lupus
nephritis
.
Drakula
in
Early CKD Support
4 years ago
mom has been in the ICU for 6 weeks...doctors are discouraging.
After several blood tests and a kidney biopsy, she was diagnosed with Class 4 Lupus
Nephritis
. The lupus was causing her kidneys to fail (hence the edema). About a week after being at the hospital, my family had her transferred to another hospital a couple of hours from our town.
After several blood tests and a kidney biopsy, she was diagnosed with Class 4 Lupus
Nephritis
. The lupus was causing her kidneys to fail (hence the edema). About a week after being at the hospital, my family had her transferred to another hospital a couple of hours from our town.
ChrissyJames
in
ICUsteps
4 years ago
Do something or not?
I have lupus
nephritis
and am at home self isolating. I take 200 mgs hydroxychloroquine and 50 mgs losartan a day and I have had several Rituximab infusions, the last being a couple of years ago.
I have lupus
nephritis
and am at home self isolating. I take 200 mgs hydroxychloroquine and 50 mgs losartan a day and I have had several Rituximab infusions, the last being a couple of years ago.
Neriah
in
LUPUS UK
4 years ago
Sick with worry
I am feeling really anxious right now, I am trying to keep calm, but having Lupus
nephritis
, although it is at present under control. How are all you Lupies managing with the worry?.. 😞X
I am feeling really anxious right now, I am trying to keep calm, but having Lupus
nephritis
, although it is at present under control. How are all you Lupies managing with the worry?.. 😞X
butterfly1964
in
LUPUS UK
4 years ago
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