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How to avoid flares??
Hi friends, my lupus with
nephritis
is a year old. No flares since I have started with the medication. Am going to start my job very soon. So, Want to seek your suggestions and advices on how to avoid flares so that I could manage myself better. Thank you..
Hi friends, my lupus with
nephritis
is a year old. No flares since I have started with the medication. Am going to start my job very soon. So, Want to seek your suggestions and advices on how to avoid flares so that I could manage myself better. Thank you..
Putloo
in
LUPUS UK
4 years ago
Newly diagnosed SLE
I also have lupus
nephritis
(LN) class 3 and now on MMF, steroid and anti malarial drug. Has anyone here had LN before? I am worried, physically and mentally tired and scared. I am trying to be calm but it’s taking time. Need advice from you. Thank you
I also have lupus
nephritis
(LN) class 3 and now on MMF, steroid and anti malarial drug. Has anyone here had LN before? I am worried, physically and mentally tired and scared. I am trying to be calm but it’s taking time. Need advice from you. Thank you
new_panda
in
LUPUS UK
4 years ago
I had my kidney biopsy reaults and told I have lupus nephritis as well as (SLE). Stage 4 is this bad ? Any good food recommendations?
Lupus
nephritis
Lupus
nephritis
Cherry14
in
LUPUS UK
4 years ago
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acute nephritis questions frustrated
November 2019, i had a biopsy which confirmed Acute
Nephritis
no signs of scarring or permanent damage.
November 2019, i had a biopsy which confirmed Acute
Nephritis
no signs of scarring or permanent damage.
scoots4491
in
Kidney Disease
4 years ago
Night sweats!!!
Hello guys, I’m very new to the site and also newly diagnosed with SLE and type 3
nephritis
(December 2019). This site has been is what is keeping my sanity together reading people story,advice and questions has really helped me feel like I’m not alone and understand my condition.
Hello guys, I’m very new to the site and also newly diagnosed with SLE and type 3
nephritis
(December 2019). This site has been is what is keeping my sanity together reading people story,advice and questions has really helped me feel like I’m not alone and understand my condition.
GraceXNichole
in
LUPUS UK
4 years ago
SLE, Lupus Nephritis and IVF
Whilst I cannot prove the link my Rheumatologist believes these high dose hormones are what triggered my Lupus
Nephritis
.
Whilst I cannot prove the link my Rheumatologist believes these high dose hormones are what triggered my Lupus
Nephritis
.
MOOG144
in
LUPUS UK
4 years ago
LRA Shares Excitement For What’s Ahead in Lupus Nephritis
Two potential lupus
nephritis
treatments – Gazyva and itolizumab – are on an accelerated track for development thanks to special designations by the FDA. Plus two Phase III trials and several Phase 2 trials for lupus
nephritis
are already underway.
Two potential lupus
nephritis
treatments – Gazyva and itolizumab – are on an accelerated track for development thanks to special designations by the FDA. Plus two Phase III trials and several Phase 2 trials for lupus
nephritis
are already underway.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
New Phase 3 Study Shows Positive Results for Benlysta® in Lupus Nephritis
Read Announcement from GSK https://www.lupusresearch.org/new-phase-3-study-shows-positive-results-for-benlysta-in-lupus-
nephritis
/
LUpus Patients Understanding & Support (LUPUS)
: https://www.lupus-support.org/topic/3163-new-phase-3-study-shows-positive-results-for-benlysta%C2%AE-in-lupus-
nephritis
Read Announcement from GSK https://www.lupusresearch.org/new-phase-3-study-shows-positive-results-for-benlysta-in-lupus-
nephritis
/
LUpus Patients Understanding & Support (LUPUS)
: https://www.lupus-support.org/topic/3163-new-phase-3-study-shows-positive-results-for-benlysta%C2%AE-in-lupus-
nephritis
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Itolizumab Granted FDA Fast Track Designation as Potential Treatment for Lupus Nephritis
Urinary levels of ALCAM were significantly higher in active lupus
nephritis
— showing potential to be used to discriminate the active disease from inactive SLE or active SLE without lupus
nephritis
.
Urinary levels of ALCAM were significantly higher in active lupus
nephritis
— showing potential to be used to discriminate the active disease from inactive SLE or active SLE without lupus
nephritis
.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
LRA Uncovering What Causes Lupus Nephritis to Improve Treatment
& Support (LUPUS): https://www.lupus-support.org/topic/3165-lra-uncovering-what-causes-lupus-
nephritis
-to-improve-treatment/
& Support (LUPUS): https://www.lupus-support.org/topic/3165-lra-uncovering-what-causes-lupus-
nephritis
-to-improve-treatment/
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Recurrent UTIs
All that has been found so far is some calcification on my kidneys, most likely due to lupus
nephritis
when I was 21 or the infections themselves. Theres no abscesses or obvious causes for these recurrent infections. Has anyone got experience of this? If so, what was the next step for you?
All that has been found so far is some calcification on my kidneys, most likely due to lupus
nephritis
when I was 21 or the infections themselves. Theres no abscesses or obvious causes for these recurrent infections. Has anyone got experience of this? If so, what was the next step for you?
heatherevans28
in
LUPUS UK
4 years ago
LRA Celebrates Major Research Breakthroughs in 2019
mofetil in treating proliferative lupus
nephritis
, the most severe form of lupus
nephritis
that affects the kidneys.
mofetil in treating proliferative lupus
nephritis
, the most severe form of lupus
nephritis
that affects the kidneys.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
LRA Celebrates Major Research Breakthroughs in 2019
mycophenyolate mofetil in treating proliferative lupus
nephritis
, the most severe form of lupus
nephritis
that affects the kidneys.
mycophenyolate mofetil in treating proliferative lupus
nephritis
, the most severe form of lupus
nephritis
that affects the kidneys.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
Inconsistent and Confusing Advice about Isolation, Social Distance and Shielding and WHY this is REALLY IMPORTANT.
With Lupus and Class IV
nephritis
(at stage CKD3b), and on only one immune suppressing medication (plus hydroxychloroquine etc), I should use my discretion about isolation versus social distance.
With Lupus and Class IV
nephritis
(at stage CKD3b), and on only one immune suppressing medication (plus hydroxychloroquine etc), I should use my discretion about isolation versus social distance.
WinterSwimmer
in
LUPUS UK
4 years ago
Happy 2020!!
I had strep throat when I was 9, followed by
nephritis
and high BP a couple months later. It was 1959. I couldn't believe that 30 some years later, I would be in kidney failure. I am not diabetic and never had any other health problems. - You need to be your own advocate. Speak up for yourself.
I had strep throat when I was 9, followed by
nephritis
and high BP a couple months later. It was 1959. I couldn't believe that 30 some years later, I would be in kidney failure. I am not diabetic and never had any other health problems. - You need to be your own advocate. Speak up for yourself.
WYOAnne
NKF Ambassador
in
Kidney Transplant
4 years ago
Tacrolimus for lupus nephritis Class V? Cellcept isnt working.
Hello, Does anyone have experience with adding Tacrolimus for
nephritis
? Quick summary-At 22 dg with lupus, was on plaquenil, then age 44 ie this year out of the blue dg with lupus
nephritis
-biopsy showed Class 5-membranous nephropathy. May 19 put on cellcept and enalapril.
Hello, Does anyone have experience with adding Tacrolimus for
nephritis
? Quick summary-At 22 dg with lupus, was on plaquenil, then age 44 ie this year out of the blue dg with lupus
nephritis
-biopsy showed Class 5-membranous nephropathy. May 19 put on cellcept and enalapril.
NewEngland3
in
LUPUS UK
5 years ago
Swollen sore ears after starting mycophenolate
Hello everyone I've recently finished cyclophosphamide intravenous treatment for my lupus
nephritis
, I am now on mycophenolate 4 tablets twice a day. I have noticed this morning my ears are swollen and very tender has anyone else experienced this?
Hello everyone I've recently finished cyclophosphamide intravenous treatment for my lupus
nephritis
, I am now on mycophenolate 4 tablets twice a day. I have noticed this morning my ears are swollen and very tender has anyone else experienced this?
Northernd
in
LUPUS UK
5 years ago
Study Confirms Urgent, Unmet Needs in Childhood-Onset Lupus
Inflammation of the Kidneys
Nephritis
(inflammation of the kidneys) was identified as the number one research priority. Up to 80% of children with lupus develop
nephritis
, which increases risk of kidney failure, cardiovascular disease and death.
Inflammation of the Kidneys
Nephritis
(inflammation of the kidneys) was identified as the number one research priority. Up to 80% of children with lupus develop
nephritis
, which increases risk of kidney failure, cardiovascular disease and death.
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
5 years ago
Panicking about blood in urine - lupus nephritis
Background: I was diagnosed with lupus
nephritis
in the early summer, for which I've been on MPA. Recent blood tests were okay. This evening I've been needing to pee a lot (but no pain or anything), as in, every half an hour or so.
Background: I was diagnosed with lupus
nephritis
in the early summer, for which I've been on MPA. Recent blood tests were okay. This evening I've been needing to pee a lot (but no pain or anything), as in, every half an hour or so.
November90
in
LUPUS UK
5 years ago
Cellcept side effects
I am on day 2 of Cellcept for lupus
nephritis
and I haven't been feeling so good today. I won't go into too many details, but my stomach is very upset and I've been feeling very nauseous and vomiting a lot.
I am on day 2 of Cellcept for lupus
nephritis
and I haven't been feeling so good today. I won't go into too many details, but my stomach is very upset and I've been feeling very nauseous and vomiting a lot.
November90
in
LUPUS UK
5 years ago
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