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So my Luous & Lupus
Nephritis
are both reasonably stable and settled at the moment....
So my Luous & Lupus
Nephritis
are both reasonably stable and settled at the moment....
MOOG144
in
LUPUS UK
3 years ago
Egfr 71, slightly raised creatinine, stage 2 ckd or not?
Also, I have recently tested positive for C1q antibodies that appears to be linked to lupus
nephritis
. Am I worrying over nothing or should I be pursuing other tests etc? Any help is appreciated ☺️
Also, I have recently tested positive for C1q antibodies that appears to be linked to lupus
nephritis
. Am I worrying over nothing or should I be pursuing other tests etc? Any help is appreciated ☺️
EllaRuby
in
Kidney Disease
3 years ago
eGFR 71 and Creatinine slightly raised - Stage 2 CKD or not?
Also, I have recently tested positive for C1q antibodies that appears to be linked to lupus
nephritis
. Am I worrying over nothing or should I be pursuing other tests etc? Any help is appreciated ☺️
Also, I have recently tested positive for C1q antibodies that appears to be linked to lupus
nephritis
. Am I worrying over nothing or should I be pursuing other tests etc? Any help is appreciated ☺️
EllaRuby
in
Early CKD Support
3 years ago
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Second Dose of Pfizer
I don't know if it makes a difference to how people react, but for comparison I take 2g Mycophenolate and 400mg hydroxychloroquine and have longstanding SLE with class IV
nephritis
.
I don't know if it makes a difference to how people react, but for comparison I take 2g Mycophenolate and 400mg hydroxychloroquine and have longstanding SLE with class IV
nephritis
.
WinterSwimmer
in
LUPUS UK
3 years ago
Lupus nephritis - fluid retention?
Hello I'm on 3000mg Mycophenolate daily (along with other medication for SLE) and have an appointment with Nephrology towards the end of April. I appear to have quite a bit of fluid retention which seems to be changing my lower body shape especially around my hips, buttocks and thighs, something I have
Hello I'm on 3000mg Mycophenolate daily (along with other medication for SLE) and have an appointment with Nephrology towards the end of April. I appear to have quite a bit of fluid retention which seems to be changing my lower body shape especially around my hips, buttocks and thighs, something I have
Laurajoy
in
LUPUS UK
3 years ago
Mood changes from medication reduction
Hello, My girlfriend has pretty severe Lupus
Nephritis
doubled up with some other things. She’s recently reduced her Mycophenolate to 250mg a day (from 500mg which she’s been on for 2 months, which was down from the 1000mg she was on at the start of the year).
Hello, My girlfriend has pretty severe Lupus
Nephritis
doubled up with some other things. She’s recently reduced her Mycophenolate to 250mg a day (from 500mg which she’s been on for 2 months, which was down from the 1000mg she was on at the start of the year).
BlueDandruff
in
LUPUS UK
3 years ago
How do you keep going?!
Diagnosed Aug 2018 Lupus (SLE)
Nephritis
(stage 4 KD) and then Dec 2020 diagnosed with Scleroderma. I’ve had Raynauds since 2017. I currently work 40 hours a week and I can’t do anything else I’ve even struggled to take my meds for a weeks.
Diagnosed Aug 2018 Lupus (SLE)
Nephritis
(stage 4 KD) and then Dec 2020 diagnosed with Scleroderma. I’ve had Raynauds since 2017. I currently work 40 hours a week and I can’t do anything else I’ve even struggled to take my meds for a weeks.
Purple_Labyrint
in
LUPUS UK
3 years ago
Vaccine + SLE
Hello, I was wondering if anyone with SLE and or Lupus
Nephritis
taken the covid vaccine? Any thing to prepare for would be helpful
Hello, I was wondering if anyone with SLE and or Lupus
Nephritis
taken the covid vaccine? Any thing to prepare for would be helpful
HappyVibes21
in
LUPUS UK
3 years ago
I'm Vaxxed!
Info for the curious or doubtful: I'm 61, have SLE and lupus
nephritis
and take mycophenolate and hydroxychloroquine. I had the Pfizer vaccine, which was painless.
Info for the curious or doubtful: I'm 61, have SLE and lupus
nephritis
and take mycophenolate and hydroxychloroquine. I had the Pfizer vaccine, which was painless.
WinterSwimmer
in
LUPUS UK
3 years ago
Vaccine
Hi I work in the NHS and have had SLE lupus
nephritis
since 2015. I'm on steroids and hydroxy I'm very confused about which vaccine to have as I have read so many different opinions. My GP has no idea so I'm turning to the lupus community Thank you
Hi I work in the NHS and have had SLE lupus
nephritis
since 2015. I'm on steroids and hydroxy I'm very confused about which vaccine to have as I have read so many different opinions. My GP has no idea so I'm turning to the lupus community Thank you
ajanjua
in
LUPUS UK
3 years ago
HPV Vaccination
My 12 year old daughter has SLE
Nephritis
. Her school are facilitating the HPV Vaccinations for Year 8 children. I'm feeling a little anxious that as my daughter has LUPUS, if there will be any side effects of her taking HPV vaccination? Would welcome feedback. Thanks.
My 12 year old daughter has SLE
Nephritis
. Her school are facilitating the HPV Vaccinations for Year 8 children. I'm feeling a little anxious that as my daughter has LUPUS, if there will be any side effects of her taking HPV vaccination? Would welcome feedback. Thanks.
Nini2020
in
LUPUS UK
3 years ago
Lupus nephritis and infections/fever
he never had common lupus symptoms before the
nephritis
.. maybe the
nephritis
was just his first symptom? reaction to MMF? Fevers come with shaking chills, as high as 103 at times....
he never had common lupus symptoms before the
nephritis
.. maybe the
nephritis
was just his first symptom? reaction to MMF? Fevers come with shaking chills, as high as 103 at times....
katelyndsauls
in
Kidney Disease
3 years ago
Newly diagnosed
In the process of being diagnosed with likely lupus
nephritis
,having a tough time time getting my head around it
In the process of being diagnosed with likely lupus
nephritis
,having a tough time time getting my head around it
Lupuslost
in
LUPUS UK
4 years ago
Painful feet with Lupus?
I was diagnosed with lupus
nephritis
last week and started cyclophosphamide yesterday. I have noticed this week that when I have a bath it is really painful on my feet, like it is when you submerge a burnt body part in hot water.
I was diagnosed with lupus
nephritis
last week and started cyclophosphamide yesterday. I have noticed this week that when I have a bath it is really painful on my feet, like it is when you submerge a burnt body part in hot water.
Lupuslost
in
LUPUS UK
4 years ago
How to pee in a pot!
I have to do regular urine tests as I developed class 4 lupus
nephritis
during lockdown. But my tests have gone missing / not worked 4 times out of about 10 tests. I leave them in the dedicated place in the hospital but no result! Is it me? What am I doing wrong?
I have to do regular urine tests as I developed class 4 lupus
nephritis
during lockdown. But my tests have gone missing / not worked 4 times out of about 10 tests. I leave them in the dedicated place in the hospital but no result! Is it me? What am I doing wrong?
Andfiona
in
LUPUS UK
4 years ago
Frequent urination and kidney failure.
I live in New Zealand and I have stage 4 kidney disease- IGA
nephritis
.- GFR 25 I was wondering if anyone has the same experience as me? I have to urinate constantly and it’s really getting me down.
I live in New Zealand and I have stage 4 kidney disease- IGA
nephritis
.- GFR 25 I was wondering if anyone has the same experience as me? I have to urinate constantly and it’s really getting me down.
Kiwikidney
in
Kidney Disease
4 years ago
Pausing of Sheilding - Renal Letter
It essentially states that if you have Kidney disease (I have Lupus
Nephritis
) that you are extremely vulnerable to Covid 19. That prior to returning to work my Employer should complete a risk assessment and they I can request a Risk assessment from my Renal consultant.
It essentially states that if you have Kidney disease (I have Lupus
Nephritis
) that you are extremely vulnerable to Covid 19. That prior to returning to work my Employer should complete a risk assessment and they I can request a Risk assessment from my Renal consultant.
MOOG144
in
LUPUS UK
4 years ago
Regaining my life, how??
I hv been spending last 2 years of my life in regaining my strength after the execive protein loss (diagnosed with SLE
nephritis
-feb'19) and then undergoing gallstones and overian cyst(jan'20).
I hv been spending last 2 years of my life in regaining my strength after the execive protein loss (diagnosed with SLE
nephritis
-feb'19) and then undergoing gallstones and overian cyst(jan'20).
Putloo
in
LUPUS UK
4 years ago
Creatinine of 18, but kidney function returning.
The diagnosis was interstitial
nephritis
“without proof.” Most likely caused by an allergic reaction to medication(s). I have been home for two weeks, and my creatinine level is now 1.29.
The diagnosis was interstitial
nephritis
“without proof.” Most likely caused by an allergic reaction to medication(s). I have been home for two weeks, and my creatinine level is now 1.29.
Shazz53
in
Kidney Disease
4 years ago
Just got diagnosed with Lupus nephritis
Summary: Just recently got diagnosed with Lupus
nephritis
after a biopsy. My life has changed. I'm constantly tired. And my body just feels different. I need to put much more effort into anything I do and even simple tasks are harder than usual. And my concentration is kind of.
Summary: Just recently got diagnosed with Lupus
nephritis
after a biopsy. My life has changed. I'm constantly tired. And my body just feels different. I need to put much more effort into anything I do and even simple tasks are harder than usual. And my concentration is kind of.
Panda895
in
LUPUS UK
4 years ago
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