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Experiences with
Natural desiccated thyroid (NDT)
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Pain post SBRT
I'm 59 w/ aPC (4+5) and 7 mets - all bone mets. Started on ADT (Firmagon and Nubeqa) in October 2023. Completed 6 cycles of docetaxel 4 wks ago. Started SBRT yesterday. My side effects thus far were all expected and I was prepared for them. Last night had severe back pain (8 out of 10) which lasted
I'm 59 w/ aPC (4+5) and 7 mets - all bone mets. Started on ADT (Firmagon and Nubeqa) in October 2023. Completed 6 cycles of docetaxel 4 wks ago. Started SBRT yesterday. My side effects thus far were all expected and I was prepared for them. Last night had severe back pain (8 out of 10) which lasted
Eggdoc
in
Advanced Prostate Cancer
6 months ago
ADT IS DONE. NEXT?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
rfgh20
in
Advanced Prostate Cancer
6 months ago
Had Davinci RP w/ LNR 8 Reoccurrence in Bed, PSA Rising 0.77 CANNOT Do Radiation active Crohn Disease / Colitis, What about Cryotherapy?
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Please Help Me Out, What Can I Do? After resolving incontinence after RP w/ PLNR (8) on 03/14/2033 Had Davinci Radical Prostatectomy with Lymph Node Removal on 03/14/2023 Only 8 Lymph Nodes Removed, according to operating urologist surgeon that is what he saw to remove I brought onto my team
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
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Update #3 Self-Treating
I took - Waking: 1 grain
NDT
After b’fast: 10mg HC Noon: 1.5ml HC cream on thighs + 1/2 grain
NDT
PM: 1ml HC cream on stomach Evening: 0.5ml HC cream on lower back Noticed effects: Spaced out feeling and headache initially.
I took - Waking: 1 grain
NDT
After b’fast: 10mg HC Noon: 1.5ml HC cream on thighs + 1/2 grain
NDT
PM: 1ml HC cream on stomach Evening: 0.5ml HC cream on lower back Noticed effects: Spaced out feeling and headache initially.
Hidden
in
Thyroid UK
2 years ago
Constipation is a known issue with the Orgovyx
I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable and my PSA is stable at <0.02. But I'm now on 4 types of laxatives and next am planning on getting an enema and trying that. I have an appt with
I've been on Orgovyx (Relugolix) for around 2.5 years now. and find myself getting increasingly constipated. It's the most tenacious SE. My labs are all stable and my PSA is stable at <0.02. But I'm now on 4 types of laxatives and next am planning on getting an enema and trying that. I have an appt with
NewPotatoCaboose
in
Advanced Prostate Cancer
6 months ago
How do you know if you're developing cysts?
I've just been diagnosed with PCOS with a low SHBG, <12 follicles in both ovaries, normal FAI and ovaries are normal size and volume.I just had a few questions... What does the amount of follicles mean? Are this mini cysts? How do you know if a cyst is growing? Is painful and is there any way of reducing
I've just been diagnosed with PCOS with a low SHBG, <12 follicles in both ovaries, normal FAI and ovaries are normal size and volume.I just had a few questions... What does the amount of follicles mean? Are this mini cysts? How do you know if a cyst is growing? Is painful and is there any way of reducing
hani0902
in
PCOS UK (Verity)
6 months ago
Does this mark the beginning of castration resistance?
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Hi all, I have been quietly reading all of your posts and comments in the background since my dad's diagnosis with Stage IV adenocarcinoma (Gleason 9 (4+5)) with distal bone metastases in September 2022. My dad's PSA at diagnosis was 150. He is 64. Since May 2023, dad has been on monthly Degarelix
Agh-2022
in
Advanced Prostate Cancer
6 months ago
Diet for ADT
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
(Duplicate post from Advanced Prostate Cancer). What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9
Worked_the_World
in
Prostate Cancer Network
6 months ago
Diet for duration of ADT?
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
What diet should I be following while on ADT for the next two years? Guidelines from handout sheets are contradictary and unclear. I have been on Orgovyx for almost three months, starting on February 27, 2024. My PSA has dropped from 9.2 to 1.2 to 0.9. My Gleason Score is 9 in six cores and 6 in one
Worked_the_World
in
Advanced Prostate Cancer
6 months ago
Are endocrinologists of any help after ADT?
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
After ADT, my MO told me that handling things like Prolia management won't be in her bailiwick. I didn't ask about post-ADT SE's and recovery from same. Hot flashes, low T, BMD loss, and last not least sarcopenia. What is the community's experience with how post-treatment SE's are best handled? Are
Derf4223
in
Advanced Prostate Cancer
6 months ago
Thoughts and suggestions please
83 YO male with complex medical history detailed in previous posts including hormone abnormalities of hypothyroid, marked elevation of FSH and LH, mild elevation of PRL, markedly low free testosterone, osteopenia/osteoporosis, and statin intolerance. RARP Oct 2016 for 3+4 PCa. Gland 78 gm. SV negative
83 YO male with complex medical history detailed in previous posts including hormone abnormalities of hypothyroid, marked elevation of FSH and LH, mild elevation of PRL, markedly low free testosterone, osteopenia/osteoporosis, and statin intolerance. RARP Oct 2016 for 3+4 PCa. Gland 78 gm. SV negative
LowT
in
Advanced Prostate Cancer
6 months ago
How long does ADT affect mood swings and anger after stopping treatment ?
Hello, Usually ok but a few outbursts recently.. anger issues upset .. but generally easy going nice person. It’s almost been 2 months since last and final shot and had irrational incident. Anybody else experience challenges after therapy and was wonder when you reached a normal feeling. I generally
Hello, Usually ok but a few outbursts recently.. anger issues upset .. but generally easy going nice person. It’s almost been 2 months since last and final shot and had irrational incident. Anybody else experience challenges after therapy and was wonder when you reached a normal feeling. I generally
Yokohama2023
in
Prostate Cancer Network
6 months ago
*rant* Treatment Options before surgery?
Hi there, i have recently been admitted into my local hospital due to a major pain flare. After speaking with the on call Gynecology doctor, he wanted me to go onto norethisterone indefinitely and he did not want to discuss any other options. so far i have refused to take that medication. the only reason
Hi there, i have recently been admitted into my local hospital due to a major pain flare. After speaking with the on call Gynecology doctor, he wanted me to go onto norethisterone indefinitely and he did not want to discuss any other options. so far i have refused to take that medication. the only reason
L4ndoluver
in
Endometriosis UK
6 months ago
ADT duration for high risk with Cribriform
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Hi all, Age 72. In good health. I'd like to get some advice on my case. Should I stop ADT after 12 months? https://bmcurol.biomedcentral.com/articles/10.1186/s12894-022-01145-x I just consulted with my RO. I’ve done 11 of 18 months on Eligard. He wants me to stay the course. He spoke about the possibility
Miko710
in
Prostate Cancer Network
6 months ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
6 months ago
Pluvicto damaging salivary glands?
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Finished 6 rounds of Pluvicto 9-1-23. Now on ADT holiday since 1-1-24, psa unmeasurable so far. During the treatment, had increasingly serious drymouth and nasal congestion and irritation with bleeding, which I attributed to radiation damage. Since then, there has been some, slow improvement, but still
Kayakbob
in
Advanced Prostate Cancer
6 months ago
Rectitis caring
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Diagnosed in may 2019...T3M1N0...GL 8 started ADT and had RT20 session nov 2019 Stopped ADT in march 2023....PSA < 0.02 since july 2020 In end 2020 started having stool blood ..occasionally then more frequent Consulted Gastro ...nothing to do and it will get worse he says with a smile Suggested
Karmaji
in
Advanced Prostate Cancer
6 months ago
Difference in T3
After being on
NDT
for years the fast acting T3 never works on me, is it because I have not gut problems and so it acts too fast. Even if I take 1/8 it still does the same, it never stays in my body for more than a few minutes. I am not allergic to anything either. No Hasimotos.
After being on
NDT
for years the fast acting T3 never works on me, is it because I have not gut problems and so it acts too fast. Even if I take 1/8 it still does the same, it never stays in my body for more than a few minutes. I am not allergic to anything either. No Hasimotos.
Brightness14
in
Thyroid UK
1 year ago
Did you use Orgovyx with radiation, and did your Medicare Part D or Advantage plan cover it ?
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the $2700
I'm hoping to learn what roadblocks anyone encountered in asking to use Orgovyx instead of Lupron, etc as part of radiation treatment. Resistance from prescribing ROs? Problems with Part D drug coverage ? Advantage plans...Kaiser , etc............that would and wouldn't cover at least some of the $2700
maley2711
in
Prostate Cancer Network
6 months ago
Asking for my dad!!
Hi all - I am new here. My dad was diagnosed with stage 4 prostate cancer with mets in his bones and lymph nodes in February 2024. He was diagnosed with adenocarcinoma with Gleason 8. He was started on hormone therapy and had bilateral orchiectomy as well. He is in great health apart - mentally and
Hi all - I am new here. My dad was diagnosed with stage 4 prostate cancer with mets in his bones and lymph nodes in February 2024. He was diagnosed with adenocarcinoma with Gleason 8. He was started on hormone therapy and had bilateral orchiectomy as well. He is in great health apart - mentally and
Justgettingitright
in
Advanced Prostate Cancer
6 months ago
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