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My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
9 months ago
Update on PSA
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Yzinger
in
Advanced Prostate Cancer
9 months ago
Research Trial
My father was involved in a research trial almost 10 years ago. He was commenced on both injection and oral Casodex . A part of the trial he There are links with early stage dementia and cognitive issues with Casodex. He had to discontinue same as he became psychotic. He was never the same man again.I
My father was involved in a research trial almost 10 years ago. He was commenced on both injection and oral Casodex . A part of the trial he There are links with early stage dementia and cognitive issues with Casodex. He had to discontinue same as he became psychotic. He was never the same man again.I
missdiaz
in
Advanced Prostate Cancer
10 months ago
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Now my cancer is now under control, my wife no longer wants to be with me.
I was diagnosed with stage IV prostate cancer, bladder and pelvis in late 2019. I went straight on Casodex and 2 years of Eligard shots. 9 rounds of Docetaxel, kidney stents and VMAT radiation therapy. Following my last PET scan, no new growth was evident and my PSA has been under 1.0 for the last
I was diagnosed with stage IV prostate cancer, bladder and pelvis in late 2019. I went straight on Casodex and 2 years of Eligard shots. 9 rounds of Docetaxel, kidney stents and VMAT radiation therapy. Following my last PET scan, no new growth was evident and my PSA has been under 1.0 for the last
Doseydoe
in
Advanced Prostate Cancer
10 months ago
Little Update
Hi all - latest CT scan showed organs were clear which is good. My mets though have increased in size and there is also a new one. 3 in total that are seen. 2 on L5, 1 on pubic bone I think it is called. Doctor thought that isn't too surprising as I am only about 40days into treatment. Did Casodex
Hi all - latest CT scan showed organs were clear which is good. My mets though have increased in size and there is also a new one. 3 in total that are seen. 2 on L5, 1 on pubic bone I think it is called. Doctor thought that isn't too surprising as I am only about 40days into treatment. Did Casodex
Yzinger
in
Advanced Prostate Cancer
10 months ago
73, RP 2021, BCR peaked PSA 2.2 2023, scrambling
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
jackwfrench
in
Advanced Prostate Cancer
10 months ago
11 days after 1st Lupron jab-no side effects
It's been 11 days since my first Lupron jab, (1-month dosage) and I am not feeling a single side effect. Not only that, I didn't feel the injection in my hip, nor any soreness afterwards. Nothing. No Casodex. No flare. When I went for the jab my PSA was 10.6 and my T-level was 354. I'm wondering if
It's been 11 days since my first Lupron jab, (1-month dosage) and I am not feeling a single side effect. Not only that, I didn't feel the injection in my hip, nor any soreness afterwards. Nothing. No Casodex. No flare. When I went for the jab my PSA was 10.6 and my T-level was 354. I'm wondering if
Hidden
in
Advanced Prostate Cancer
10 months ago
confused
I was diagnosed with pc in 2020. Psa was 4.5 and Gleason 9 disease. MRI said no worrisome bone signalling whatever that means. Had surgery but psa persisted at 1.7. Path. Report showed regional spread but 3 lymph nones removed were clear. Eligard shot, Casodex for a month and 33 EBRT treatments
I was diagnosed with pc in 2020. Psa was 4.5 and Gleason 9 disease. MRI said no worrisome bone signalling whatever that means. Had surgery but psa persisted at 1.7. Path. Report showed regional spread but 3 lymph nones removed were clear. Eligard shot, Casodex for a month and 33 EBRT treatments
Izzysdad
in
Advanced Prostate Cancer
10 months ago
What’s the pros and cons of Casodex and Lupron as the only treatment for Gleason 4+5 (9).
I was diagnosed with PC, March 2022. Gleason 4+5 (9). Urologist wanted to do a radical prostatectomy. I chose to change my diet, exercise and lifestyle to a plant-based detox from chemicals in my food and in my house. My PSA went from 13.7 to 100 in one year. It metastasized to my pelvic area and seminal
I was diagnosed with PC, March 2022. Gleason 4+5 (9). Urologist wanted to do a radical prostatectomy. I chose to change my diet, exercise and lifestyle to a plant-based detox from chemicals in my food and in my house. My PSA went from 13.7 to 100 in one year. It metastasized to my pelvic area and seminal
RealtorDude
in
Advanced Prostate Cancer
10 months ago
puzzled with Orgovyx
First of all my score was 7(3+4) 6.5 to 7 years ago. I was taking nutrients and vitamins to fight the cancer which was working great until I had kidney stone surgery. Psa shot up to 101 which is when I stopped my self medication and then started the casadex which then brought my PSA down to 3. I was
First of all my score was 7(3+4) 6.5 to 7 years ago. I was taking nutrients and vitamins to fight the cancer which was working great until I had kidney stone surgery. Psa shot up to 101 which is when I stopped my self medication and then started the casadex which then brought my PSA down to 3. I was
woppaginny
in
Advanced Prostate Cancer
11 months ago
8/4/23 Update questions for MO
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
11 months ago
Questions about ADT drugs and insurance
Will Medicare cover Lupron injections under part B as it is not self administered (as opposed to pills)? If so how much will they cover (with a supplement plan). Regarding Orgovyx, since it is a pill and not an injection will it be covered under Medicare part D drug coverage? and if so do all of the
Will Medicare cover Lupron injections under part B as it is not self administered (as opposed to pills)? If so how much will they cover (with a supplement plan). Regarding Orgovyx, since it is a pill and not an injection will it be covered under Medicare part D drug coverage? and if so do all of the
SilverSeppi
in
Advanced Prostate Cancer
11 months ago
Update on my daddy- 8 years stage four
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Lynsi13
in
Advanced Prostate Cancer
11 months ago
MRI guided radiation
been watching my Prostate cancer since 2010. Performed local focal ablation 3 times with no success. 2022 had divinci robic surgery, after 1 year PSA 0.8. They are recommending radiation MRI guided. (View Ray)Our US Prostate leader is recommending Avodart to keep the PSA down for as long as possible
been watching my Prostate cancer since 2010. Performed local focal ablation 3 times with no success. 2022 had divinci robic surgery, after 1 year PSA 0.8. They are recommending radiation MRI guided. (View Ray)Our US Prostate leader is recommending Avodart to keep the PSA down for as long as possible
Mark090
in
Advanced Prostate Cancer
1 year ago
PSA reading
My RP was done on jan 31, ( 5months and two weeks ago). I had PSA resistence so I have been on ADT since April 15. I have my PSA checked last week and the report came out yesterday with two results: < 0.006 ( by medical lab with the examination of serum) and < 0.058 ( by nulcear medical check). I asked
My RP was done on jan 31, ( 5months and two weeks ago). I had PSA resistence so I have been on ADT since April 15. I have my PSA checked last week and the report came out yesterday with two results: < 0.006 ( by medical lab with the examination of serum) and < 0.058 ( by nulcear medical check). I asked
Formosan
in
Advanced Prostate Cancer
1 year ago
after radium 223
hi, husband diagnosed 2017, lots of different treatments, none lasted very long. Including 2 different chemos, xtandi, casodex, etc radium 223 last year. We are in the UK, have now been told we have exhausted treatments under NICE guidelines and he’ll be offered pain relief under palliative care. He
hi, husband diagnosed 2017, lots of different treatments, none lasted very long. Including 2 different chemos, xtandi, casodex, etc radium 223 last year. We are in the UK, have now been told we have exhausted treatments under NICE guidelines and he’ll be offered pain relief under palliative care. He
Jojoberries
in
Advanced Prostate Cancer
1 year ago
My story so far.....Steely_Dan
Born in central Harlem, 1950. Spent the first 17 years of my life in foster homes . At age 17 a judge granted my request to join the U.S. Army. Fast forward 4 years. With discharge papers and a GED in hand, I managed to find a basement flat in my old neighborhood. An older fellow in the building told
Born in central Harlem, 1950. Spent the first 17 years of my life in foster homes . At age 17 a judge granted my request to join the U.S. Army. Fast forward 4 years. With discharge papers and a GED in hand, I managed to find a basement flat in my old neighborhood. An older fellow in the building told
Hidden
in
Advanced Prostate Cancer
1 year ago
Blood work on radiation and Lupron
I am sure this has probably been discussed before but I could not find an answer. How long after initial radiation should you wait to get a valid PSA test? Background Started Lupron 6 weeks prior to radiation and Casodex one week before that to reduce the spike of testosterone. Next week will be my
I am sure this has probably been discussed before but I could not find an answer. How long after initial radiation should you wait to get a valid PSA test? Background Started Lupron 6 weeks prior to radiation and Casodex one week before that to reduce the spike of testosterone. Next week will be my
Mgtd
in
Advanced Prostate Cancer
1 year ago
Requesting Help to Develop Bespoke BAT
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Fight Prostate Cancer
1 year ago
Requesting Help to Develop Bespoke BAT Protocol
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Advanced Prostate Cancer
1 year ago
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