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History of my cancer becoming castrate resistant
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
dac500
in
Advanced Prostate Cancer
6 months ago
Side effects experienced once you add Zytiga to Orgovyx
My husband, age 73, is diagnosed with very high risk prostate cancer, Gleason 9, PSA 46.6 and being treated ay Mayo, Phoenix. He is almost done with 28 Proton Radiation treatments, was on Casodex a few weeks then started Orgovyx.( at least two years recommended) He is considering adding Zytiga. He
My husband, age 73, is diagnosed with very high risk prostate cancer, Gleason 9, PSA 46.6 and being treated ay Mayo, Phoenix. He is almost done with 28 Proton Radiation treatments, was on Casodex a few weeks then started Orgovyx.( at least two years recommended) He is considering adding Zytiga. He
CancerConcierge
in
Advanced Prostate Cancer
6 months ago
Mental health and MS
I was diagnosed with MS on 2003 which started with numbness in my legs, abdomen and fingers. After a year of Avonex, I stopped taking the medicine and have been symptom free until recently.I had experienced a panic attack and now going thru mental health issues. I experience brain fog, random numbness
I was diagnosed with MS on 2003 which started with numbness in my legs, abdomen and fingers. After a year of Avonex, I stopped taking the medicine and have been symptom free until recently.I had experienced a panic attack and now going thru mental health issues. I experience brain fog, random numbness
Jenjus
in
My MSAA Community
5 months ago
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Thunking of getting an orchiectomy insted od radiation
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
woppaginny
in
Advanced Prostate Cancer
7 months ago
Just joined the club no one wants to be a member of in April 2023 - can Gleason 9 be cured ?
Doc says that our goal is a cure despite the fact that I am a Gleason 9 with Decipher score of 1 , the highest for metatastic spread. (PSMA PET was negative.) The highest my PSA has ever been was 5.48 in December 2022 and it dropped to .09 with Testosterone of 14 in August two months after a shot of
Doc says that our goal is a cure despite the fact that I am a Gleason 9 with Decipher score of 1 , the highest for metatastic spread. (PSMA PET was negative.) The highest my PSA has ever been was 5.48 in December 2022 and it dropped to .09 with Testosterone of 14 in August two months after a shot of
68Guitar
in
Advanced Prostate Cancer
7 months ago
My story of my 23 year battle with Pca.
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
I have decided to share this with the group because yesterday a guy shared his fear. In no way should you take any of this as a suggestion for treatment or refusal of treatment. I was diagnosed with Pca Gleason 3+3 July 13 2000 ar the age of 49. When the Dr. gave me the results I started sweating profusely
Professorgary
in
Advanced Prostate Cancer
7 months ago
Coming off DMTS
Good morning Everyone! My Neuro has been talking to me about coming off my DMT (Avonex) I'm 63 and studies show that efficacy /new flares lessen as you get older. I have been on Avonex for 12 years. I know a lot of older folks are coming off their DMTs - does anyone have stories? Also, my doctor
Good morning Everyone! My Neuro has been talking to me about coming off my DMT (Avonex) I'm 63 and studies show that efficacy /new flares lessen as you get older. I have been on Avonex for 12 years. I know a lot of older folks are coming off their DMTs - does anyone have stories? Also, my doctor
scoutman
in
My MSAA Community
6 months ago
Update on PSA
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Yzinger
in
Advanced Prostate Cancer
7 months ago
Research Trial
My father was involved in a research trial almost 10 years ago. He was commenced on both injection and oral Casodex . A part of the trial he There are links with early stage dementia and cognitive issues with Casodex. He had to discontinue same as he became psychotic. He was never the same man again.I
My father was involved in a research trial almost 10 years ago. He was commenced on both injection and oral Casodex . A part of the trial he There are links with early stage dementia and cognitive issues with Casodex. He had to discontinue same as he became psychotic. He was never the same man again.I
missdiaz
in
Advanced Prostate Cancer
8 months ago
Now my cancer is now under control, my wife no longer wants to be with me.
I was diagnosed with stage IV prostate cancer, bladder and pelvis in late 2019. I went straight on Casodex and 2 years of Eligard shots. 9 rounds of Docetaxel, kidney stents and VMAT radiation therapy. Following my last PET scan, no new growth was evident and my PSA has been under 1.0 for the last
I was diagnosed with stage IV prostate cancer, bladder and pelvis in late 2019. I went straight on Casodex and 2 years of Eligard shots. 9 rounds of Docetaxel, kidney stents and VMAT radiation therapy. Following my last PET scan, no new growth was evident and my PSA has been under 1.0 for the last
Doseydoe
in
Advanced Prostate Cancer
8 months ago
Little Update
Hi all - latest CT scan showed organs were clear which is good. My mets though have increased in size and there is also a new one. 3 in total that are seen. 2 on L5, 1 on pubic bone I think it is called. Doctor thought that isn't too surprising as I am only about 40days into treatment. Did Casodex
Hi all - latest CT scan showed organs were clear which is good. My mets though have increased in size and there is also a new one. 3 in total that are seen. 2 on L5, 1 on pubic bone I think it is called. Doctor thought that isn't too surprising as I am only about 40days into treatment. Did Casodex
Yzinger
in
Advanced Prostate Cancer
8 months ago
73, RP 2021, BCR peaked PSA 2.2 2023, scrambling
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
Hello writing you as you are very active, knowledgeable and experienced. Just respond if you like- PSMA 4/18 showed T10 lesion and right iliac lesion, low volume. MRI 5/28 confirmed, plus showed some probable spots lower left sacrum. Rad oncs I went to deferred to med oncs for systemic treatment
jackwfrench
in
Advanced Prostate Cancer
8 months ago
11 days after 1st Lupron jab-no side effects
It's been 11 days since my first Lupron jab, (1-month dosage) and I am not feeling a single side effect. Not only that, I didn't feel the injection in my hip, nor any soreness afterwards. Nothing. No Casodex. No flare. When I went for the jab my PSA was 10.6 and my T-level was 354. I'm wondering if
It's been 11 days since my first Lupron jab, (1-month dosage) and I am not feeling a single side effect. Not only that, I didn't feel the injection in my hip, nor any soreness afterwards. Nothing. No Casodex. No flare. When I went for the jab my PSA was 10.6 and my T-level was 354. I'm wondering if
Hidden
in
Advanced Prostate Cancer
8 months ago
confused
I was diagnosed with pc in 2020. Psa was 4.5 and Gleason 9 disease. MRI said no worrisome bone signalling whatever that means. Had surgery but psa persisted at 1.7. Path. Report showed regional spread but 3 lymph nones removed were clear. Eligard shot, Casodex for a month and 33 EBRT treatments
I was diagnosed with pc in 2020. Psa was 4.5 and Gleason 9 disease. MRI said no worrisome bone signalling whatever that means. Had surgery but psa persisted at 1.7. Path. Report showed regional spread but 3 lymph nones removed were clear. Eligard shot, Casodex for a month and 33 EBRT treatments
Izzysdad
in
Advanced Prostate Cancer
8 months ago
What’s the pros and cons of Casodex and Lupron as the only treatment for Gleason 4+5 (9).
I was diagnosed with PC, March 2022. Gleason 4+5 (9). Urologist wanted to do a radical prostatectomy. I chose to change my diet, exercise and lifestyle to a plant-based detox from chemicals in my food and in my house. My PSA went from 13.7 to 100 in one year. It metastasized to my pelvic area and seminal
I was diagnosed with PC, March 2022. Gleason 4+5 (9). Urologist wanted to do a radical prostatectomy. I chose to change my diet, exercise and lifestyle to a plant-based detox from chemicals in my food and in my house. My PSA went from 13.7 to 100 in one year. It metastasized to my pelvic area and seminal
RealtorDude
in
Advanced Prostate Cancer
8 months ago
puzzled with Orgovyx
First of all my score was 7(3+4) 6.5 to 7 years ago. I was taking nutrients and vitamins to fight the cancer which was working great until I had kidney stone surgery. Psa shot up to 101 which is when I stopped my self medication and then started the casadex which then brought my PSA down to 3. I was
First of all my score was 7(3+4) 6.5 to 7 years ago. I was taking nutrients and vitamins to fight the cancer which was working great until I had kidney stone surgery. Psa shot up to 101 which is when I stopped my self medication and then started the casadex which then brought my PSA down to 3. I was
woppaginny
in
Advanced Prostate Cancer
9 months ago
8/4/23 Update questions for MO
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
9 months ago
Questions about ADT drugs and insurance
Will Medicare cover Lupron injections under part B as it is not self administered (as opposed to pills)? If so how much will they cover (with a supplement plan). Regarding Orgovyx, since it is a pill and not an injection will it be covered under Medicare part D drug coverage? and if so do all of the
Will Medicare cover Lupron injections under part B as it is not self administered (as opposed to pills)? If so how much will they cover (with a supplement plan). Regarding Orgovyx, since it is a pill and not an injection will it be covered under Medicare part D drug coverage? and if so do all of the
SilverSeppi
in
Advanced Prostate Cancer
9 months ago
Update on my daddy- 8 years stage four
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Hello guys! I wanted to give a little update on my dad. He was diagnosed stage four prostate cancer in June 2015, with a PSA of 257 and a single lymph node involved. His prostate was so enlarged at the time that he had to have double nephrostomy bags. He started hormone therapy and chemo immediately
Lynsi13
in
Advanced Prostate Cancer
9 months ago
MRI guided radiation
been watching my Prostate cancer since 2010. Performed local focal ablation 3 times with no success. 2022 had divinci robic surgery, after 1 year PSA 0.8. They are recommending radiation MRI guided. (View Ray)Our US Prostate leader is recommending Avodart to keep the PSA down for as long as possible
been watching my Prostate cancer since 2010. Performed local focal ablation 3 times with no success. 2022 had divinci robic surgery, after 1 year PSA 0.8. They are recommending radiation MRI guided. (View Ray)Our US Prostate leader is recommending Avodart to keep the PSA down for as long as possible
Mark090
in
Advanced Prostate Cancer
10 months ago
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