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Experiences with
Munchausen's syndrome by proxy
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Communities
201 public communities
Gorlin Syndrome Group
220 members
The Gorlin Syndrome Group is a support network offering guidance and information to individuals, their families and carers whose lives are affected by Gorlin Syndrome (also known as Nevoid Basal Cell Carcinoma Syndrome). The group is organised by individuals affected by Gorlin Syndrome and their families, with support from medical advisors. Our aims and objectives are: to offer guidance and information to individuals, their carers, family and friends with Gorlin syndrome the advancement of the education of the medical profession into Gorlin syndrome and its implications for the family to promote research into the causes, effects, treatment and management of Gorlin syndrome.
Sweet's Syndrome UK
477 members
Sweet's Syndrome UK is a Derbyshire-based (formerly Cardiff-based) patient group that helps those with the rare autoinflammatory condition and neutrophilic dermatosis, Sweet's syndrome. Information provided is evidence-based and supported by medical research.
The Australian Sjögren's Syndrome Association
2,448 members
The Australian Sjogren's Syndrome Association Inc. was incorporated in Parramatta in 2001, although due to illness of the founder, the association did not commence trading until June 2004 in Mullumbimby, Northern NSW. The name of the founder and president is Ms Beverly Norton. Background The Association was started by Beverly Norton who, in May 2000, was diagnosed with Sjogren's, a disease that Australian doctors knew very little about. Sjogren's (pronounced show-grins) syndrome is a chronic, autoimmune disorder in which the body's immune system mistakenly attacks its own moisture producing glands. The specific causes of Sjogren's syndrome are not known, but multiple factors are probably involved. These include genetics, viruses, hormones or a combination of all of these. It is critical that it is identified quickly and treated otherwise it can be fatal.
Sjogren's Support
725 members
This community is a safe space for members to chat about their experience with Sjogren's syndrome.
Lynch Syndrome UK
115 members
Lynch syndrome (LS) is a genetic disorder that causes an increase in certain cancers at an earlier age than usual. There about 12 cancers that can be affected, the commonest are large bowel cancer and rectal cancer. After that, the next most common is womb cancer. LS tends to run in families so it is usual to find than people in different generations have one of these cancers. Find out more on our website lynch-syndrome-uk.org
Down's Syndrome Support
322 members
We are a friendly support community for people living with or caring for someone with Down's syndrome. Join to connect with others who understand! Why not share your story today: https://healthunlocked.com/dhg/write/
Hughes Syndrome APS Forum
10,376 members
Hughes Syndrome - APS Support is a Forum that helps support people with Hughes/Antiphospholipid Syndrome and Sero-negative Hughes/APS (SN-APS), also referred to at times as STICKY BLOOD or Sludge Blood. We help people from the UK and globally. We also enhance education, awareness and research into Hughes Syndrome. Some of our members are writing books, and some already have, this does help raise awareness both with the public and medical staff. Please share your experiences, gather useful information, learn from others and don’t be afraid to ask for help if you need it. Above all please enjoy this site!
BWS Support
711 members
A community dedicated to supporting those with Beckwith-Wiedemann Syndrome (BWS), which is an overgrowth disorder.
PCOS UK (Verity)
10,134 members
Verity is a self-help group for women with polycystic ovary syndrome (PCOS). The group was established in 1997 to share the truth about the condition and improve the lives of women living with PCOS. The charity is run by a dedicated board of Volunteer Trustees supported by a team of further volunteers, who all support thousands of women both in the UK and internationally. Polycystic ovary syndrome (PCOS): -affects millions of women in the UK and worldwide -runs in families -is one of the leading causes of fertility problems in women -if not properly managed, can lead to additional health problems in later life -can have an impact on appearance and self-esteem Although PCOS is treatable and the symptoms can be managed, it cannot be cured.
Restless Legs Syndrome
21,871 members
Welcome to the European Alliance for Restless Legs Syndrome (EARLS) and RLS-UK forum. Learn more about us at www.earls.eu and www.rls-uk.org
Ehlers-Danlos Support UK
2,976 members
Ehlers-Danlos Support UK (EDS) assists those with Ehlers-Danlos. It is a genetic connective tissue condition that is a multi-systemic syndrome.
FASD Support
951 members
Foetal Alcohol Spectrum Disorders (FASD) Support is an online community dedicated to providing a safe space for all people, families and communities affected by the condition to get support, share advice and meet others who understand. This community is run by the National Organisation for Foetal Alcohol Syndrome Disorders-UK (NOFAS-UK), in partnership with a number of other members from the FASD UK ALLiance.
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