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Experiences with
Munchausen's syndrome by proxy
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Gabapentin
have been on Gabapentin on and off for approximately 6 months, I’ve tried to keep the dose as low as possible. I started on 100 mg before I went to bed this seemed to work with me only waking up once. It then got worse and I now suffer with pain across my shoulders at night aswell as in my legs, I upped
have been on Gabapentin on and off for approximately 6 months, I’ve tried to keep the dose as low as possible. I started on 100 mg before I went to bed this seemed to work with me only waking up once. It then got worse and I now suffer with pain across my shoulders at night aswell as in my legs, I upped
Catbennie
in
Restless Legs Syndrome
11 months ago
Augmentation
So , I have been withdrawing off Ropinirole for months and getting closer to the finishing line . At the mo im taking Tramadol , Dipyridamole , Gabapentin and Clonazepan to help .When Ive taken my last Ropinirole then what do I take?Do I need a complete break off everything for a while or not?
So , I have been withdrawing off Ropinirole for months and getting closer to the finishing line . At the mo im taking Tramadol , Dipyridamole , Gabapentin and Clonazepan to help .When Ive taken my last Ropinirole then what do I take?Do I need a complete break off everything for a while or not?
Huntingleroy
in
Restless Legs Syndrome
11 months ago
Been smelling smoke for a week after bonfire.
Constantly smelling smoke when the wind changed direction as I burnt some conifer branches. It's happened before but never continued for this long. Cut my nose hair, tried nasal sprays, irrigation etc; to no effect. Only thing that helps is Olbas oil which counters the stink. Googled it and it came
Constantly smelling smoke when the wind changed direction as I burnt some conifer branches. It's happened before but never continued for this long. Cut my nose hair, tried nasal sprays, irrigation etc; to no effect. Only thing that helps is Olbas oil which counters the stink. Googled it and it came
pffft2017
in
Thyroid UK
1 year ago
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Buprenorphine SL vs transdermal
Hi. Can anyone weigh in on their experience or knowledge of the advantages or disadvantages of the different formulations of buprenorphine? I understand there is a risk of severe tooth decay with the sublingual formulation but is that only in the drug-addicted population? Has anyone had personal experience
Hi. Can anyone weigh in on their experience or knowledge of the advantages or disadvantages of the different formulations of buprenorphine? I understand there is a risk of severe tooth decay with the sublingual formulation but is that only in the drug-addicted population? Has anyone had personal experience
Doctorplacebo
in
Restless Legs Syndrome
11 months ago
Euthyroid Sick Syndrome
Hi everyone, Just wondering if anyone has been diagnosed with Euthyroid Sick Syndrome or thinks they may have it? I am now beginning to think that my problems are due to this and not Hypothyroidism. Am thinking of getting a reverse T3 test but it's quite expensive.This cannot be treated with meds so
Hi everyone, Just wondering if anyone has been diagnosed with Euthyroid Sick Syndrome or thinks they may have it? I am now beginning to think that my problems are due to this and not Hypothyroidism. Am thinking of getting a reverse T3 test but it's quite expensive.This cannot be treated with meds so
Sooty101
in
Thyroid UK
11 months ago
Restless Pain syndrom
I never knew how little information and interest there was about RLS until I found this site. I mean rls has very severe pain and as a result I use to loose sleep every single night and had to try and catch up the following day. With a family and job that is impossible to. I went to a sleep study
I never knew how little information and interest there was about RLS until I found this site. I mean rls has very severe pain and as a result I use to loose sleep every single night and had to try and catch up the following day. With a family and job that is impossible to. I went to a sleep study
shaughnna
in
Restless Legs Syndrome
11 months ago
Pain spec letter
This is what the pain specialist sent to my dr when I asked about subutex for restless legs and nerve pain.....I have very severe restless legs and heard thus was good for it. I'm just speechless....all i was on was 200mcgs of buprenorphine and the targin 5mgs twice a day.
This is what the pain specialist sent to my dr when I asked about subutex for restless legs and nerve pain.....I have very severe restless legs and heard thus was good for it. I'm just speechless....all i was on was 200mcgs of buprenorphine and the targin 5mgs twice a day.
Hidden
in
Restless Legs Syndrome
11 months ago
opioid not working at all
Hi, I’m after some advice after years of Ropinirole use I have recently changed to Shortec 5mg Oxycodone. I have slowly increased the amount to the maximum recommended of 20mg per night which I take an hour before bed. Two months in I have never been so exhausted, I’m regularly falling asleep from
Hi, I’m after some advice after years of Ropinirole use I have recently changed to Shortec 5mg Oxycodone. I have slowly increased the amount to the maximum recommended of 20mg per night which I take an hour before bed. Two months in I have never been so exhausted, I’m regularly falling asleep from
Allatonce
in
Restless Legs Syndrome
11 months ago
Dihydrocodeine (sp)
Hi since coming off pramipexole i have been struggling to get any sleep at night. One doctor prescribed codeine it’s not strong enough. Doctor i spoke with this morning is going to prescribe dihydrocodeine sorry if that’s not the right spelling i am pretty brain dead from sleep deprivation. Anyone
Hi since coming off pramipexole i have been struggling to get any sleep at night. One doctor prescribed codeine it’s not strong enough. Doctor i spoke with this morning is going to prescribe dihydrocodeine sorry if that’s not the right spelling i am pretty brain dead from sleep deprivation. Anyone
Hidden
in
Restless Legs Syndrome
11 months ago
moving to Eastern Europe
I’m wondering what meditation is available for restless legs in Europe and how enlightened Eastern Europe may be as to the use of Belbuca. I’m currently on 2 mg Neupro and 800 mg of Gabapentin. But I have used both Belbuca and Methadone in the past. I know there is a clinic on the coast in Kotor Montenegro
I’m wondering what meditation is available for restless legs in Europe and how enlightened Eastern Europe may be as to the use of Belbuca. I’m currently on 2 mg Neupro and 800 mg of Gabapentin. But I have used both Belbuca and Methadone in the past. I know there is a clinic on the coast in Kotor Montenegro
Jrskyhook32
in
Restless Legs Syndrome
11 months ago
choosing between Create or Kings for over 40s low AMH low morphology need help with wobble
hi everyone I am new here and have found your posts super useful. I am still on the wobble whether to even start IVF at all as I know myself I am the personality of if I start it I’ll likely not want to get off it until 6 cycles which would be hugely devastating going through all the let downs ! we
hi everyone I am new here and have found your posts super useful. I am still on the wobble whether to even start IVF at all as I know myself I am the personality of if I start it I’ll likely not want to get off it until 6 cycles which would be hugely devastating going through all the let downs ! we
RarePlant
in
Fertility Network UK
1 year ago
Horizitom
Transitioning off of Pramipexole and onto Horiziton/Gabapentin. 600 no of Gabapentin and results have been so so. Take it a 5 pm and ot seems I start getting the symptoms a bit and other nights not. Taking 12.5 mg Ambien trying to sleep and last night was not good. Buzzing toes , fingers and extremities
Transitioning off of Pramipexole and onto Horiziton/Gabapentin. 600 no of Gabapentin and results have been so so. Take it a 5 pm and ot seems I start getting the symptoms a bit and other nights not. Taking 12.5 mg Ambien trying to sleep and last night was not good. Buzzing toes , fingers and extremities
tuckerdog109
in
Restless Legs Syndrome
1 year ago
flare?
Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches, no energy. I had a total knee replacement 3 months ago and I’m due to go back to part time work next weds. Should I increase my pred for a couple
Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches, no energy. I had a total knee replacement 3 months ago and I’m due to go back to part time work next weds. Should I increase my pred for a couple
kentish61
in
PMRGCAuk
1 year ago
RLS Lymphodema and MLD
I have severe RLS and severe PLMD I am currently on 0.5 clonazepam,250 pregabalin and 2mg neupro patches In march i had a knee replacement operation and after this my leg swelled up and I have been diagnosed with lymphodema. I have been prescribed Manual Lymphatic Drainage (MLD) massage therapy I
I have severe RLS and severe PLMD I am currently on 0.5 clonazepam,250 pregabalin and 2mg neupro patches In march i had a knee replacement operation and after this my leg swelled up and I have been diagnosed with lymphodema. I have been prescribed Manual Lymphatic Drainage (MLD) massage therapy I
thorp
in
Restless Legs Syndrome
1 year ago
new meds
i have severe RLS and i take Methadone daily for this. I have recently been put on Eliquis and Spironolactone . Would either of these aggravate my RLS? Thanks for your help.
i have severe RLS and i take Methadone daily for this. I have recently been put on Eliquis and Spironolactone . Would either of these aggravate my RLS? Thanks for your help.
wairoa36
in
Restless Legs Syndrome
1 year ago
Restless Legs Syndrome
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
Longwaytoofar
in
Restless Legs Syndrome
1 year ago
Dialysis / RLS
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
bumblebee_tuna
in
Restless Legs Syndrome
1 year ago
Link between dry eyes and throat and PMRGCA? Any ideas?
This is my first post, so it’s a bit long-winded, as I’ve included some context and background. Context: • About 20 years ago, when I was in my mid-50s, I developed dry eyes and dry throat. This was eventually diagnosed as ‘dry eye/dry throat syndrome’. I had my tear ducts plugged to minimise loss
This is my first post, so it’s a bit long-winded, as I’ve included some context and background. Context: • About 20 years ago, when I was in my mid-50s, I developed dry eyes and dry throat. This was eventually diagnosed as ‘dry eye/dry throat syndrome’. I had my tear ducts plugged to minimise loss
allofaquandry
in
PMRGCAuk
1 year ago
CARBIDOPA 25/LEVODOPA 100MG TAB For RLS
I know this drug was talked about in relation to Parkinson's. My doctor has prescribed it for my RLS when I travel in an airplane. I am only to take no more than 3 tablets per week. Has anyone used this for traveling? Any help? Side effects? Comments, please.
I know this drug was talked about in relation to Parkinson's. My doctor has prescribed it for my RLS when I travel in an airplane. I am only to take no more than 3 tablets per week. Has anyone used this for traveling? Any help? Side effects? Comments, please.
DogBella
in
Restless Legs Syndrome
1 year ago
Ropinirole withdrawal
Hi all, newbie here. I was prescribed Ropinirole about 6 months ago, in May my ankles started to swell and got burning sensation in my feet. Saw GP again and he said it is probably diabetic neuropathy but my sugars are well controlled, anyway he put me on amitriptyline. Either of these meds was making
Hi all, newbie here. I was prescribed Ropinirole about 6 months ago, in May my ankles started to swell and got burning sensation in my feet. Saw GP again and he said it is probably diabetic neuropathy but my sugars are well controlled, anyway he put me on amitriptyline. Either of these meds was making
Mikamydog
in
Restless Legs Syndrome
1 year ago
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