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A community of HOPE
I am new to this group . So many life changes in such a short period of time . 2 small kids , I had 3 opinions before starting treatment . started with Ibrance and letrozole for a month . Had Zomadex and Zolodex for bones to keep strong . Went to Md Anderson to get 3rd opinion they recommended switching
I am new to this group . So many life changes in such a short period of time . 2 small kids , I had 3 opinions before starting treatment . started with Ibrance and letrozole for a month . Had Zomadex and Zolodex for bones to keep strong . Went to Md Anderson to get 3rd opinion they recommended switching
Chewysmom
in
SHARE Metastatic Breast Cancer
2 years ago
Travelling
It has always been on our bucket list to visit my friend in Australia. I have er,pr positive breast cancer that metastized to my pleural lining. I am on IBrance and letrozole I believe for ever. Can I ever go and how? i have to have bloodwork every month in order to get my iBrance.
It has always been on our bucket list to visit my friend in Australia. I have er,pr positive breast cancer that metastized to my pleural lining. I am on IBrance and letrozole I believe for ever. Can I ever go and how? i have to have bloodwork every month in order to get my iBrance.
Chef50
in
SHARE Metastatic Breast Cancer
2 years ago
Recurrence update
Hi lovely ladies I saw my oncologist on Friday to get results of PET scan and update of first recurrence. The scan showed another area of growth this time near my liver. Measuring 14mm same as those in diaphragm and cardio although these haven’t grown much since last scan. Extremely bright in velocity
Hi lovely ladies I saw my oncologist on Friday to get results of PET scan and update of first recurrence. The scan showed another area of growth this time near my liver. Measuring 14mm same as those in diaphragm and cardio although these haven’t grown much since last scan. Extremely bright in velocity
Barmycharm
in
My Ovacome
2 years ago
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Xelado
Ibrance/Letrozole has stopped working for me. Will be starting Xeloda. Anyone have side effects from Xeloda?
Ibrance/Letrozole has stopped working for me. Will be starting Xeloda. Anyone have side effects from Xeloda?
Marla61
in
SHARE Metastatic Breast Cancer
2 years ago
Private IVF clinics Manchester / Best clinic abroad
Hi.. I’ve been off this site for a while struggling with my mood after my most recent miscarriage in October. I’ve had 3 rounds of ivf on the nhs, I feel like St Mary’s wasted my 3rd round. My consultant has now moved abroad. It’s time to give up on the nhs and go private. Does anybody have any experience
Hi.. I’ve been off this site for a while struggling with my mood after my most recent miscarriage in October. I’ve had 3 rounds of ivf on the nhs, I feel like St Mary’s wasted my 3rd round. My consultant has now moved abroad. It’s time to give up on the nhs and go private. Does anybody have any experience
JustAGirl21
in
Fertility Network UK
2 years ago
Night spasms
I had bowel cancer in May last year and had a hemi-colectomy that was straight forward and needed no further treatment. Nine weeks after that operation I was told that they had found another cancer on the bowel they removed. This turned out to be Low grade serous ovarian cancer. I had a Radical hysterectomy
I had bowel cancer in May last year and had a hemi-colectomy that was straight forward and needed no further treatment. Nine weeks after that operation I was told that they had found another cancer on the bowel they removed. This turned out to be Low grade serous ovarian cancer. I had a Radical hysterectomy
Frinks
in
My Ovacome
2 years ago
itching
hello everyone! Does anyone take anything for itching? It’s most likely a side effect from ibrance or letrozole. Does Claritin help?
hello everyone! Does anyone take anything for itching? It’s most likely a side effect from ibrance or letrozole. Does Claritin help?
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
No period after norethisterone
Hi I'm new here. Just wondering what everyone experience is after taking norethisterone. I was advised by my doctor to take 1 pill 3 x a day for 5 days to induce my period so i could startt letrozole as i am trying to conceive and I don't have them for 80 days sometimes. I stopped taking norethisterone
Hi I'm new here. Just wondering what everyone experience is after taking norethisterone. I was advised by my doctor to take 1 pill 3 x a day for 5 days to induce my period so i could startt letrozole as i am trying to conceive and I don't have them for 80 days sometimes. I stopped taking norethisterone
Nuz1
in
Fertility Network UK
2 years ago
Pneumonia Vaccine
Hi all, I have been on Ibrance and Letrozole since August 2018, 75mg 3 weeks on and 2 weeks off. All CT scans are stable (last one in September 2022). I had my Pnuemonia jab and it seems I am having a slight delayed reaction of breathlessness. I have lung mets, so worried its that. I have not had
Hi all, I have been on Ibrance and Letrozole since August 2018, 75mg 3 weeks on and 2 weeks off. All CT scans are stable (last one in September 2022). I had my Pnuemonia jab and it seems I am having a slight delayed reaction of breathlessness. I have lung mets, so worried its that. I have not had
TE53_67
in
SHARE Metastatic Breast Cancer
2 years ago
Sharing My Good News
For the first time since I started this "journey" in September, 2019, my cancer markers have reached the normal range. In Saskatchewan, the cancer markers used are CA 15-3 with a normal range of 30 or below. On December 24th, 2022, mine were read at 23!! I'm having a CT Scan on Jan. 10th so I hope
For the first time since I started this "journey" in September, 2019, my cancer markers have reached the normal range. In Saskatchewan, the cancer markers used are CA 15-3 with a normal range of 30 or below. On December 24th, 2022, mine were read at 23!! I'm having a CT Scan on Jan. 10th so I hope
Hazelgreen
in
SHARE Metastatic Breast Cancer
2 years ago
Ibrance plus letrozole working
I’ve been taking Ibrance 75 mg two weeks on two weeks off for 3 1/2 years Took a while to get the Ibrance balance. I take letrozole daily. Scans taken every 4 months have shown no progression. I had a double mastectomy and bone lesions on my spine. I followed Joe Tippens protocol for 2 years. I did
I’ve been taking Ibrance 75 mg two weeks on two weeks off for 3 1/2 years Took a while to get the Ibrance balance. I take letrozole daily. Scans taken every 4 months have shown no progression. I had a double mastectomy and bone lesions on my spine. I followed Joe Tippens protocol for 2 years. I did
myrtice
in
SHARE Metastatic Breast Cancer
2 years ago
First-Line Ribociclib Plus Endocrine Therapy Bests Chemo for Aggressive Breast Cancer
Published in Oncology, December 08, 2022
Patients with hormone receptor (HR)-positive, HER2-negative advanced breast cancer treated with ribociclib plus endocrine therapy (ET) had fewer adverse events and significantly longer progression-free survival than those treated with combination chemotherapy
Published in Oncology, December 08, 2022
Patients with hormone receptor (HR)-positive, HER2-negative advanced breast cancer treated with ribociclib plus endocrine therapy (ET) had fewer adverse events and significantly longer progression-free survival than those treated with combination chemotherapy
Hazelgreen
in
SHARE Metastatic Breast Cancer
2 years ago
Slight progression question
MBC 4 years. Bone only Treating with Ibrance & letrozole. Handled well mostly. Bone scan 1 ago showed “slight interval progression.” Tumor markers around 300 after slow but steady increase. No gene mutation. Oncologist suggests Afinitot plus new AI. Two questions please. First, is it worthwhile
MBC 4 years. Bone only Treating with Ibrance & letrozole. Handled well mostly. Bone scan 1 ago showed “slight interval progression.” Tumor markers around 300 after slow but steady increase. No gene mutation. Oncologist suggests Afinitot plus new AI. Two questions please. First, is it worthwhile
Yikes123
in
SHARE Metastatic Breast Cancer
2 years ago
question about Mets
hi everyone- I wrote in here a few days ago regarding my father with his Er+ PR+ MBC that he was diagnosed with in June of this year. He has been on letrozole lupron Ibrance and xjeva since June. His first PET scan 9/14 showed no evidence of active disease. my father is very active living in Florida
hi everyone- I wrote in here a few days ago regarding my father with his Er+ PR+ MBC that he was diagnosed with in June of this year. He has been on letrozole lupron Ibrance and xjeva since June. His first PET scan 9/14 showed no evidence of active disease. my father is very active living in Florida
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
Side effects of iBrance vs Kisqali
Good morning all! I’m taking Letrozole and my doc wants me to add a CDK4/6 inhibitor. Trying to decide whether to go with iBrance or Kisqali. If anyone has had experience with both of these drugs could you give me some input on side effects? It looks like Kisqali has a bit better outcomes but there
Good morning all! I’m taking Letrozole and my doc wants me to add a CDK4/6 inhibitor. Trying to decide whether to go with iBrance or Kisqali. If anyone has had experience with both of these drugs could you give me some input on side effects? It looks like Kisqali has a bit better outcomes but there
PlutosNose
in
SHARE Metastatic Breast Cancer
2 years ago
General Question
good afternoon everyone! I’ve written in here many times- just a recap my father was diagnosed with MBC in June of 2022 with Mets to the bone- he is currently on Ibrance, letrozole, xjeva, and lupron. He is a 64 year old and is super active playing 2-3 sports per day. His first pet scan after starting
good afternoon everyone! I’ve written in here many times- just a recap my father was diagnosed with MBC in June of 2022 with Mets to the bone- he is currently on Ibrance, letrozole, xjeva, and lupron. He is a 64 year old and is super active playing 2-3 sports per day. His first pet scan after starting
Jenniferp2122
in
SHARE Metastatic Breast Cancer
2 years ago
took my Letrozole 2.5mg twice this morning!
I'm not having any negative symptoms -- I'm assuming that some of you have accidentally taken their letrozole twice, having forgotten if they have taken it or not--will you all confirm. Hope you are having a day filled with HOPE and goodness. And do you guys write down when you take your drugs how
I'm not having any negative symptoms -- I'm assuming that some of you have accidentally taken their letrozole twice, having forgotten if they have taken it or not--will you all confirm. Hope you are having a day filled with HOPE and goodness. And do you guys write down when you take your drugs how
TwithBC
in
SHARE Metastatic Breast Cancer
2 years ago
Hair Loss while on IBrance?
After my 3rd recurrance of breast cancer (all in breast and chest area) and even after bi lateral mastectomies and radiation and chemo. I've been on ibrance/letrozole for 1 1/2 yrs. I noticed some thinning of my hair approximately 6 months ago. Lately its thinning further. Anyone else had this
After my 3rd recurrance of breast cancer (all in breast and chest area) and even after bi lateral mastectomies and radiation and chemo. I've been on ibrance/letrozole for 1 1/2 yrs. I noticed some thinning of my hair approximately 6 months ago. Lately its thinning further. Anyone else had this
sonycamera
in
SHARE Metastatic Breast Cancer
2 years ago
Does Letrozole gives false positive pregnancy urine test ?
Hi All, I have PCOD and trying to get pregnant.My doctor suggested me to use 3 cycle of Letrozole. I am in my 2 nd cycle of using Letrozole . My period date is in the next 3 days . I have done pregnancy test and confused whether it's positive or false positive pregnancy. Could you please suggest me ?
Hi All, I have PCOD and trying to get pregnant.My doctor suggested me to use 3 cycle of Letrozole. I am in my 2 nd cycle of using Letrozole . My period date is in the next 3 days . I have done pregnancy test and confused whether it's positive or false positive pregnancy. Could you please suggest me ?
glv_budda
in
Fertility Network UK
2 years ago
Letrozole(Femara) /joint pain threads continued.....
I have been reading with interest the threads concerning Letrozole and the many side effects we all deal with. My history: DX May 2019 MBC to right femoral hip/thigh. IM nail procedure to stabilize. Started Letrozole/Ibrance. NED after 3 months of treatment! Tried the brand name of Letrozole - Femara
I have been reading with interest the threads concerning Letrozole and the many side effects we all deal with. My history: DX May 2019 MBC to right femoral hip/thigh. IM nail procedure to stabilize. Started Letrozole/Ibrance. NED after 3 months of treatment! Tried the brand name of Letrozole - Femara
OceanBreeze3
in
SHARE Metastatic Breast Cancer
2 years ago
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