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Another one has left this earth
My husband, Roger took his last breath after a 6 1/2 year journey with prostate cancer. When diagnosed with aggressive prostate cancer (12/12 cores, Gleason 8, perineal invasion) we were told they could do surgery, radiation, hormones immediately…we instead left for Germany and got hyperthermia plus
My husband, Roger took his last breath after a 6 1/2 year journey with prostate cancer. When diagnosed with aggressive prostate cancer (12/12 cores, Gleason 8, perineal invasion) we were told they could do surgery, radiation, hormones immediately…we instead left for Germany and got hyperthermia plus
Rsdutcher7
in
Prostate Cancer Network
1 year ago
Burning Mouth Syndrome with narcotic use
Has anyone experienced burning mouth/tongue while using narcotics for RLS? I think it may take a long while to occur after starting narcotics. I have reduced the BMS and occurrence of RLS using Solgar brand Omega 3 Fish Oil Concentrate (Amazon), which also greatly reduces joint pain, you can take 7-8
Has anyone experienced burning mouth/tongue while using narcotics for RLS? I think it may take a long while to occur after starting narcotics. I have reduced the BMS and occurrence of RLS using Solgar brand Omega 3 Fish Oil Concentrate (Amazon), which also greatly reduces joint pain, you can take 7-8
Altruist
in
Restless Legs Syndrome
1 year ago
Oxycodone not working well
I have been alternating between Tramadol and Oxycodone for awhile now. I do pretty well on the Tramadol but after a month or so,, sometimes sooner, it isn’t as effective so I switch off to oxycodone. I don’t do near as well on the oxy and am wondering if it’s a dosage issue, a timing issue, or maybe
I have been alternating between Tramadol and Oxycodone for awhile now. I do pretty well on the Tramadol but after a month or so,, sometimes sooner, it isn’t as effective so I switch off to oxycodone. I don’t do near as well on the oxy and am wondering if it’s a dosage issue, a timing issue, or maybe
SleeplessinOR
in
Restless Legs Syndrome
1 year ago
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Methadone + Pregabalin + Trazodone - So far so good
Hi everyone, just wanted to share a good story. Sorry for the telegraphic style, I'm just saving everyone's time. I'm 33, living in Canada. I guess I've had RLS my whole life, but it started affecting my sleep about 10 years ago. I'm very active (cycling everyday, rock climbing & calisthenics). No other
Hi everyone, just wanted to share a good story. Sorry for the telegraphic style, I'm just saving everyone's time. I'm 33, living in Canada. I guess I've had RLS my whole life, but it started affecting my sleep about 10 years ago. I'm very active (cycling everyday, rock climbing & calisthenics). No other
GuillaumeL
in
Restless Legs Syndrome
1 year ago
Bye Bye Tramadol
Since I started methadone a couple months ago, I understand better about the difficulties I started to have with Tramadol. BTW, I went cold turkey off Tramadol, because methadone would negate it anyway. I realize now that after 4-5 years on Tramadol I was augmenting badly. I didn't realize what was
Since I started methadone a couple months ago, I understand better about the difficulties I started to have with Tramadol. BTW, I went cold turkey off Tramadol, because methadone would negate it anyway. I realize now that after 4-5 years on Tramadol I was augmenting badly. I didn't realize what was
ratfancy
in
Restless Legs Syndrome
2 years ago
LDN Dosing for Cancer - General Guide
For an adult cancer patient who has “no evidence of disease” and wants to use LDN as recurrence prevention, I generally set a target dose of 2mg – 4.5mg. I start at 2mg and gradually increase to 3mg then 4mg then 4.5mg as tolerated. I use bedtime dosing as long as sleep is ok prior to starting LDN.
For an adult cancer patient who has “no evidence of disease” and wants to use LDN as recurrence prevention, I generally set a target dose of 2mg – 4.5mg. I start at 2mg and gradually increase to 3mg then 4mg then 4.5mg as tolerated. I use bedtime dosing as long as sleep is ok prior to starting LDN.
Shewulf
Administrator
in
LDN Research Trust
2 years ago
methadone and shortness of breath
Hi all, Apologize in advance for length of this post. I've had RLS for since my early 40s and spent about 14 years on DA drugs. A not unusual story with augmentation and switching over to pregabalin about 3 years ago- but the pregabalin not being entirely effective for symptoms. At that time I was
Hi all, Apologize in advance for length of this post. I've had RLS for since my early 40s and spent about 14 years on DA drugs. A not unusual story with augmentation and switching over to pregabalin about 3 years ago- but the pregabalin not being entirely effective for symptoms. At that time I was
KClark68
in
Restless Legs Syndrome
2 years ago
Tramadol has been a life saver for me
I try to alternate between mirapexin(unfortunately) and tramadol. Its the only thing that seems to work for me. Ive tried most other meds except methadone and the one which makes you feel nauseous as they wont give it to me. Lately though Im not doing so well as when I come off the tram I wake up every
I try to alternate between mirapexin(unfortunately) and tramadol. Its the only thing that seems to work for me. Ive tried most other meds except methadone and the one which makes you feel nauseous as they wont give it to me. Lately though Im not doing so well as when I come off the tram I wake up every
Coeso
in
Restless Legs Syndrome
2 years ago
RLS OPIOID REGISTRY UPDATE
The Massachussetts RLS Opioid Registry, with over 500 participants, shows that suicidal ideation is still quite high amongst those on opioid treatment. It is interesting that it's lowest among methadone users, as methadone gives the best cover and the best sleep. There are quite a few members of this
The Massachussetts RLS Opioid Registry, with over 500 participants, shows that suicidal ideation is still quite high amongst those on opioid treatment. It is interesting that it's lowest among methadone users, as methadone gives the best cover and the best sleep. There are quite a few members of this
Joolsg
in
Restless Legs Syndrome
2 years ago
What to take after Methadone
I have been on Methadone for about 3 years and though it works well the constipation was so bad, I finally came off of Methadone and want to go on a drug that isn't an opiod. Does anyone have any suggestion. Been on requip, Mirapex, gabapentin and wondering what will work? I just cracked my femur
I have been on Methadone for about 3 years and though it works well the constipation was so bad, I finally came off of Methadone and want to go on a drug that isn't an opiod. Does anyone have any suggestion. Been on requip, Mirapex, gabapentin and wondering what will work? I just cracked my femur
McClintok
in
Restless Legs Syndrome
2 years ago
Methadone vs buprenorphine/naloxone
Hello all. I am in the "fortunate" position of being offered either methadone or Suboxone (buprenorphine/naloxone) for my refractory RLS. I have been taking a very low dose of methadone --1/4 of a 5mg tab once daily--for only 3-1/2 weeks and I fall asleep quickly and sleep uninterrupted about 5
Hello all. I am in the "fortunate" position of being offered either methadone or Suboxone (buprenorphine/naloxone) for my refractory RLS. I have been taking a very low dose of methadone --1/4 of a 5mg tab once daily--for only 3-1/2 weeks and I fall asleep quickly and sleep uninterrupted about 5
Doctorplacebo
in
Restless Legs Syndrome
2 years ago
How do you know your circadian rhythm?
This week I will be starting methadone, which may be the answer for me. If effective, it would give me a chance to change my sleeping pattern from 4am to noon to something more normal. My question is this: How do I determine what my current circadian rhythm is? It might be that I actually am still
This week I will be starting methadone, which may be the answer for me. If effective, it would give me a chance to change my sleeping pattern from 4am to noon to something more normal. My question is this: How do I determine what my current circadian rhythm is? It might be that I actually am still
ratfancy
in
Restless Legs Syndrome
2 years ago
Weight gain on methadone?
I finally found a doctor in Sarasota who prescribes methadone. The plan is to stop Tramadol and switch to methadone. Will I gain weight - does it slow metabolism? I've been reading that some people have problems and I tend to gain weight easily. Anyone have experience? Thanks for your comments.
I finally found a doctor in Sarasota who prescribes methadone. The plan is to stop Tramadol and switch to methadone. Will I gain weight - does it slow metabolism? I've been reading that some people have problems and I tend to gain weight easily. Anyone have experience? Thanks for your comments.
Hidden
in
Restless Legs Syndrome
2 years ago
Help from those taking Methadone
I need a shoulder replacement and is scheduled soon. I have been taking methadone to control my RLS. When I told my surgeon that I was taking methadone, he told me that he could not manage my pain. He said that anything that he gave me wouldn’t control my pain. He suggested to ask my neurologist or go
I need a shoulder replacement and is scheduled soon. I have been taking methadone to control my RLS. When I told my surgeon that I was taking methadone, he told me that he could not manage my pain. He said that anything that he gave me wouldn’t control my pain. He suggested to ask my neurologist or go
Merny5
in
Restless Legs Syndrome
2 years ago
starting methadone
the dr put me on 5mg methadone, I started it last night and ended up thrashing around on the floor begging for sleep again. I hope it just may take time to work??? Or is this another dead end? This disease has taken over😩. Do I try a delta 9 THc with it? Help.
the dr put me on 5mg methadone, I started it last night and ended up thrashing around on the floor begging for sleep again. I hope it just may take time to work??? Or is this another dead end? This disease has taken over😩. Do I try a delta 9 THc with it? Help.
Need-Sleep
in
Restless Legs Syndrome
2 years ago
Anxiety brought on by ropinirole withdrawal?
I'm just starting week #3 after total withdrawal of ropinirole after 9 years on that drug. My dosage increased over the years from 1mg to 3mg/day. Around July 2022, I went into augmentation and realized that I'd need to get permanently off of the DA. It has been a struggle as you all know. But I'm
I'm just starting week #3 after total withdrawal of ropinirole after 9 years on that drug. My dosage increased over the years from 1mg to 3mg/day. Around July 2022, I went into augmentation and realized that I'd need to get permanently off of the DA. It has been a struggle as you all know. But I'm
climber54
in
Restless Legs Syndrome
2 years ago
Do you want you doctor to prescribe an opioid instead of DA ?John Hopkins statistics on both.
This may help you when requesting an opioid verses the doctor wishing to prescribe DA https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html I am typing this information direct from John hopkins treatment article. An estimated 85%
This may help you when requesting an opioid verses the doctor wishing to prescribe DA https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html I am typing this information direct from John hopkins treatment article. An estimated 85%
Shumbah
in
Restless Legs Syndrome
2 years ago
Restless Legs using sleeping pill
I have had RLS for years. It started getting irritating in my 40's and continued to get worst. I am now 85 and on Methadone, trying to withdraw from it because it is hard to get in Las Vegas. I am down to .5mg at night. I gave up my noon pill because of constipation.. I was getting very little sleep
I have had RLS for years. It started getting irritating in my 40's and continued to get worst. I am now 85 and on Methadone, trying to withdraw from it because it is hard to get in Las Vegas. I am down to .5mg at night. I gave up my noon pill because of constipation.. I was getting very little sleep
McClintok
in
Restless Legs Syndrome
2 years ago
getting things off my chest that only you can understand
Is the severity of fibromyalgia generally the same for everybody? Now the weather has changed I feel horrible every morning totally exhausted and back arms and neck hurting like hell after about 2 hrs from having my meds it relieves it and I can try get on with my day. I was loads better during the
Is the severity of fibromyalgia generally the same for everybody? Now the weather has changed I feel horrible every morning totally exhausted and back arms and neck hurting like hell after about 2 hrs from having my meds it relieves it and I can try get on with my day. I was loads better during the
Gavin79
in
Fibromyalgia Action UK
2 years ago
Eliquis (apixaban)
My severe RLS has been controlled very well since starting Methadone in July. Three weeks ago I was put on Eliquis (blood thinner) due to A-fib and have since returned to RLS every night. Has anyone else experienced this possible side effect of Eliquis? I’ve been told by my doctor that it is not an RLS
My severe RLS has been controlled very well since starting Methadone in July. Three weeks ago I was put on Eliquis (blood thinner) due to A-fib and have since returned to RLS every night. Has anyone else experienced this possible side effect of Eliquis? I’ve been told by my doctor that it is not an RLS
Philix
in
Restless Legs Syndrome
2 years ago
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