starting methadone: the dr put me on... - Restless Legs Syn...

Restless Legs Syndrome

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starting methadone

Need-Sleep profile image
13 Replies

the dr put me on 5mg methadone, I started it last night and ended up thrashing around on the floor begging for sleep again.

I hope it just may take time to work??? Or is this another dead end? This disease has taken over😩. Do I try a delta 9 THc with it?

Help.

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Need-Sleep
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13 Replies
TeddiJ profile image
TeddiJ

Hi. I was on methadone. It will work quickly so you just need to try a quarter pill more and see if 7.5 mgs works to completely stop the rls. I did the same thing-the 5mg didn't cover my rls. Opioids can keep people awake, too, so you may need a little something extra for sleep.

For now, you most likely just need a bit more to stop the rls. So try that. Some people need only 5 mgs but many need 7, 10, 15 and some spread doses out.

Just make sure you don't run out of the methadone as the withdrawal is brutal.

TeddiJ profile image
TeddiJ

PS-I have taken Delta 8 along with an opioid or kratom and it worked great for sleep.

Merny5 profile image
Merny5

Yes, I would try Delta 8. I am currently on methadone and take a 10 mg THC indica gummy. Most nights I sleep okay.

GuillaumeL profile image
GuillaumeL

In my case, methadone started working better over a period of weeks/months. There's a number of studies showing that methadone has a neuroprotective effect over time. That might just be it.

And just to be sure, you're on 5mg and not 0.5mg? 0.5 is the lowest dose. It would be standard to start you there, but it will need to be increased.

Need-Sleep profile image
Need-Sleep in reply to GuillaumeL

thank you, I did check, and it is 5mg. Last night (2nd night on it) wasn’t as severe, so hopefully it will just take time. Thank you

TeddiJ profile image
TeddiJ in reply to Need-Sleep

I don't agree with that-it either covers your RLS or it doesn't. If you have methadone or another opioid, it will work at the right dose.

TheDoDahMan profile image
TheDoDahMan

I've been taking 10 mg per day for 4 years, and it has been covering my symptoms well. Sometimes I split the 5 mg pills with a splitter and take 7.5 mg at first and the other 2.5 a few hours later. Sometimes I take 5 mg at first, and the other 5 mg later. In other words, my symptoms vary, so my dosage varies. The methadone regime has save my life. Best of luck!

I think that only 5 mg per 24 hours may just be too little to get the relief you're looking for.

TeddiJ profile image
TeddiJ in reply to TheDoDahMan

Exactly!

wairoa36 profile image
wairoa36

Methadone has literally been a lifesaver for me. I started with 10 mg and needed 15 mg to get results. It’s a miracle. After decades of zero sleep or possibly 30 minutes max per night of sleep, with Methadone I get 5 hours or more. I take it once daily at about 6 pm.I have not needed any increase. Many other narcotics were useless tome. I live in Australia and count myself lucky to be able to get the Methadone.it’s a miracle.

Need-Sleep profile image
Need-Sleep in reply to wairoa36

do you feel out of it during the day?

DogBella profile image
DogBella

I had severe side effects from Methadone. Vomiting and nausea, could note at and had no relief. Tried other opioids but no relief from RLS. I have been off ropinirole for nearly six weeks and no relief. Opioids seem not to work for me. I get really doped up. I lost my balance and fell and ended up in ICU with a brain bleed. Now off all opioids and Xanax. Still have no relief. Been thinking of Katram but that also seems to have some serious side effects. On good nights I can get about 3 hrs max of sleep. I feel I am going crazy. Hadanironinfusion and iron results are now good.

DataRN profile image
DataRN in reply to DogBella

Oh my! What dose of Methadone were you on? The typical starting dose is 5mg increasing up to a max of 15mg. It’s very unusual for Methadone, at these low doses, to cause any euphoric effects at all. Do you routinely get your serum ferritin level and transferrin levels checked?

DogBella profile image
DogBella

I was taking 5 twice a day. Had an iron infusion last spring and iron levels are now good. Thinking of maybe trying methadone once again but dread the side effects.

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