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Vasculitis – GPA
On March 18, 2017, at 50 years of age, I was diagnosed with vasculitis – GPA. I am a white female. I was hospitalized until April 15, 2017. During my stay I had numerous blood tests, CAT scans, Ultrasounds, Endoscopy, Port put in my neck and then chest for dialysis, blood clots, 2 intestinal blockages
On March 18, 2017, at 50 years of age, I was diagnosed with vasculitis – GPA. I am a white female. I was hospitalized until April 15, 2017. During my stay I had numerous blood tests, CAT scans, Ultrasounds, Endoscopy, Port put in my neck and then chest for dialysis, blood clots, 2 intestinal blockages
cpierce1016
in
Vasculitis UK
7 years ago
Professor Graham Hughes' Blog January 2018
Professor Graham Hughes' Blog January 2018
BLOG : January 2018 January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave
Professor Graham Hughes' Blog January 2018
BLOG : January 2018 January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Professor Graham Hughes' Blog January 2018
[u]BLOG : January 2018[/u]
January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave a lecture to colleagues in Cambridge.
[u]BLOG : January 2018[/u]
January 2018 is proving a dark, rather depressing start to the year. A number of our team have been hit by the ‘flu’ epidemic sweeping the country. Added to which, the sun has made only rare appearances so far. Last week I gave a lecture to colleagues in Cambridge.
MaryF
Administrator
in
Hughes Syndrome APS Forum
7 years ago
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Lost in the world of Vasculitis
I’m a newbie on here and to be honest to the whole world of Vasculitis. My dad has diagnosed with Vasculitis back in October when he was admitted to hospital with kidney failure, we embarked on the most horrendous journey of our lives, dad was given dialysis and then started on plasma exchange. He seemed
I’m a newbie on here and to be honest to the whole world of Vasculitis. My dad has diagnosed with Vasculitis back in October when he was admitted to hospital with kidney failure, we embarked on the most horrendous journey of our lives, dad was given dialysis and then started on plasma exchange. He seemed
Louloulou40
in
Vasculitis UK
7 years ago
Would plasmapheresis be an option?
KellyInTexas there is an article “ plasmapheresis for the Antiphospholipid patient.” Google this I nformation. Maybe clear out the Antiphospholipids reeking havoc to get things under control and start over? With maybe new less effective Antiphospholipids if this is even possible since yours seem so aggressive
KellyInTexas there is an article “ plasmapheresis for the Antiphospholipid patient.” Google this I nformation. Maybe clear out the Antiphospholipids reeking havoc to get things under control and start over? With maybe new less effective Antiphospholipids if this is even possible since yours seem so aggressive
Wittycjt
in
Hughes Syndrome APS Forum
7 years ago
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
AOSD - Read what it did to my wife
Hi, where do I start. My wife for a long time has had recurrent Lung Infections, Pneumonia, Pleurisy etc. In 2013 she was unable to work for 6 months due to Pleurisy and that is where this story begins. Investigations began as to how a young woman (39 at the time) kept getting chest infections. My
Hi, where do I start. My wife for a long time has had recurrent Lung Infections, Pneumonia, Pleurisy etc. In 2013 she was unable to work for 6 months due to Pleurisy and that is where this story begins. Investigations began as to how a young woman (39 at the time) kept getting chest infections. My
AOSD
in
NRAS
7 years ago
Even with Lupus, the world is still your oyster.
Hello all you beautiful people I'm new here and would like to share a little story. I'm a male with SLE, and lots of other conditions. So many that when I walk into a room to see a new consultant, we usually end up laughing about the fact my conditions take up a single page of a letter. Although I can
Hello all you beautiful people I'm new here and would like to share a little story. I'm a male with SLE, and lots of other conditions. So many that when I walk into a room to see a new consultant, we usually end up laughing about the fact my conditions take up a single page of a letter. Although I can
HODL
in
LUPUS UK
7 years ago
Could I have Addison's?
I have also developed hyperpigmentation on my upper lip (
Melasma
) and I my tan hasn't faded since my 5 night holiday to Lanzarote in May (so 13 weeks ago) and I spent a lot of my sunbathing time in the shade reading. I only sunbathed properly for about 2 days.
I have also developed hyperpigmentation on my upper lip (
Melasma
) and I my tan hasn't faded since my 5 night holiday to Lanzarote in May (so 13 weeks ago) and I spent a lot of my sunbathing time in the shade reading. I only sunbathed properly for about 2 days.
Bushbaby83
in
Thyroid UK
7 years ago
melasma
hi I am new here I have bad
melasma
in my face. is anyone can help me with good cream for
melasma
and sun protection cream thank
hi I am new here I have bad
melasma
in my face. is anyone can help me with good cream for
melasma
and sun protection cream thank
wesamalrefai
in
MY SKIN
7 years ago
Iatrogenic thyrotoxicosis and the role of therapeutic plasma exchange
It is interesting that plasma exchange can be a sensible treatment for thyrotoxicosis. It is good to know the treatment was successful. The reason for choosing to post the abstract, though, is the sentence that is emphasised by bold and underlining. Just what was the pharmacy doing? Quite how high
It is interesting that plasma exchange can be a sensible treatment for thyrotoxicosis. It is good to know the treatment was successful. The reason for choosing to post the abstract, though, is the sentence that is emphasised by bold and underlining. Just what was the pharmacy doing? Quite how high
helvella
Thyroid UK
in
Thyroid UK
8 years ago
Hair loss and hypo for 12 yrs advice please
I have
melasma
on face, i don't know if that's part of being hypo or not? Any advice please. Any advice will be greatly appreciated.
I have
melasma
on face, i don't know if that's part of being hypo or not? Any advice please. Any advice will be greatly appreciated.
G2-1_g
in
Thyroid UK
8 years ago
Advice on prevention of pneumonia having recently lost our father (wegeners)
Hi all. We lost our father in October and I'm basically looking for some information and knowledge. We feel with better care he would still be here. He had gone to see his consultant for results of blood test and a test which they check your lungs(not sure what its called)These results were given over
Hi all. We lost our father in October and I'm basically looking for some information and knowledge. We feel with better care he would still be here. He had gone to see his consultant for results of blood test and a test which they check your lungs(not sure what its called)These results were given over
Chelle24-09
in
Vasculitis UK
8 years ago
New member
Hi my name is KEITH and I am 66 years old and was diagnosed with Vasculitis Wenegers 12 months ago.Spent 2 weeks in St James Leeds having plasma exchange and then 5 months of cyclphos.Then on azothiprine and steroids but recently kidney function dropped dramaticaly so I start rituximab tomorrow with
Hi my name is KEITH and I am 66 years old and was diagnosed with Vasculitis Wenegers 12 months ago.Spent 2 weeks in St James Leeds having plasma exchange and then 5 months of cyclphos.Then on azothiprine and steroids but recently kidney function dropped dramaticaly so I start rituximab tomorrow with
Keithtim10
in
Vasculitis UK
8 years ago
Plasma therapy for neuropathy
Hi, has anyone tried plasmapheresis for peripheral neuropathy induced by lack of B12? Any success on it? Thanks!
Hi, has anyone tried plasmapheresis for peripheral neuropathy induced by lack of B12? Any success on it? Thanks!
Caro44
in
Pernicious Anaemia Society
8 years ago
Off-loaded by my consultant, or, perhaps not.
I was diagnosed with GPA [Wegener's] back in April 2002. Diagnosis came after I was hospitalised due to an intra-cranial haemorrhage as a result of the vasculitis, and after many weeks of GP appointments trying to discover what was wrong with me and who were treating me for sinusitis. Although being
I was diagnosed with GPA [Wegener's] back in April 2002. Diagnosis came after I was hospitalised due to an intra-cranial haemorrhage as a result of the vasculitis, and after many weeks of GP appointments trying to discover what was wrong with me and who were treating me for sinusitis. Although being
shanat19
in
Vasculitis UK
8 years ago
Hi everyone I'm new here I need your help
I will start at the beginning... Nov 2013 I was 67 yr old diagnosed with GPA I was admitted into hospital with a kidney function of 9 !! After asking for a blood test After several visits to my GP over a period of 3 months with varying symptoms blocked ears , cough , eye problems, fatigue finally
I will start at the beginning... Nov 2013 I was 67 yr old diagnosed with GPA I was admitted into hospital with a kidney function of 9 !! After asking for a blood test After several visits to my GP over a period of 3 months with varying symptoms blocked ears , cough , eye problems, fatigue finally
102637
in
Vasculitis UK
8 years ago
Trying to make a difference
Thanks for visiting my page. My name is Neil and I turned 46 while on life support. I have Vasculitis. Some of you will know me and some of you may even know my story; for those who don’t, please read and let’s get the word out there. I have deliberately described my early symptoms at length as this
Thanks for visiting my page. My name is Neil and I turned 46 while on life support. I have Vasculitis. Some of you will know me and some of you may even know my story; for those who don’t, please read and let’s get the word out there. I have deliberately described my early symptoms at length as this
Neildougherty
in
Vasculitis UK
8 years ago
pANCA positive, GPA and Anti-GBM (Goodpasture Syndrome)
Hello - my mother has pANCA positive, GPA and she has Anti-GBM disease which is named as Good pasture Syndrome. This has impacted her Kidney and she is on dailysis (twice in a week). The damaged has been very quick for her, RPGN. Plasmapheresis 5 shots were done. Endoxon 5 times (15 days) have been
Hello - my mother has pANCA positive, GPA and she has Anti-GBM disease which is named as Good pasture Syndrome. This has impacted her Kidney and she is on dailysis (twice in a week). The damaged has been very quick for her, RPGN. Plasmapheresis 5 shots were done. Endoxon 5 times (15 days) have been
gouravjazz
in
Vasculitis UK
8 years ago
Any advice on being around anti-vaccinationers??
Hello, My wife has been experiencing "atypical" rejection since Oct 2015. She had her tx in Dec 2014 for acute liver failure (seronegative, e.g. unknown cause). After pulsed steroids, the rejection came back again in March 2016. She was then given ATG (severe immunosuppression) and is now on many types
Hello, My wife has been experiencing "atypical" rejection since Oct 2015. She had her tx in Dec 2014 for acute liver failure (seronegative, e.g. unknown cause). After pulsed steroids, the rejection came back again in March 2016. She was then given ATG (severe immunosuppression) and is now on many types
strangecarr
in
British Liver Trust
8 years ago
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