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Hello everyone
I have been here for just a couple of days, am still finding my way around. I was diagnosed with RRMS in 1994 and was doing very good up until about 6 years ago. That is when I had to quit work and go on disability. I have a wonderful neuro who has been with me since the start of my journey. Since becoming
I have been here for just a couple of days, am still finding my way around. I was diagnosed with RRMS in 1994 and was doing very good up until about 6 years ago. That is when I had to quit work and go on disability. I have a wonderful neuro who has been with me since the start of my journey. Since becoming
dearydear57
in
My MSAA Community
6 years ago
Knee problems
I have had PMR for about five years and it is reasonably well controlled with 5mg of Medrol. Recently I have been having problems with swollen and sore knees. I am slightly overweight, probably due to the cortisone and two relatively recent ankle operations which left me with very limited mobility for
I have had PMR for about five years and it is reasonably well controlled with 5mg of Medrol. Recently I have been having problems with swollen and sore knees. I am slightly overweight, probably due to the cortisone and two relatively recent ankle operations which left me with very limited mobility for
Loco99
in
PMRGCAuk
6 years ago
Need tapering off steroid support
Hi, I have been on Medrol ( similar to prednisone) for two and a half years. My highest dose was 30 mg. I am in the process of tapering off very slowly and would really like to hear your taper stories. I have many of the withdrawal symptoms that are listed and some that are not like swollen ankles and
Hi, I have been on Medrol ( similar to prednisone) for two and a half years. My highest dose was 30 mg. I am in the process of tapering off very slowly and would really like to hear your taper stories. I have many of the withdrawal symptoms that are listed and some that are not like swollen ankles and
sara1215
in
NRAS
6 years ago
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I’d like to introduce myself
New here and want to share my history with you. On Dec 2015 went to primary doctor due to sore throat and while there told him “oh by the way, my index finger is swollen and really hurts.” Sent me to a rheumatologist who thought I had psoriatic arthritis ( I have2 brothers with that) and started me
New here and want to share my history with you. On Dec 2015 went to primary doctor due to sore throat and while there told him “oh by the way, my index finger is swollen and really hurts.” Sent me to a rheumatologist who thought I had psoriatic arthritis ( I have2 brothers with that) and started me
sara1215
in
NRAS
6 years ago
Can prednisone cause hives.
A few days ago when taking my daily dose of 25 mg prednisone I started to feel panicky, complete with the feeling of chest tightness and some difficulty swallowing. At first I dismissed it, knowing prednisone can cause panic attacks and I am prone to them. Next day same symptoms, but noticed hives in
A few days ago when taking my daily dose of 25 mg prednisone I started to feel panicky, complete with the feeling of chest tightness and some difficulty swallowing. At first I dismissed it, knowing prednisone can cause panic attacks and I am prone to them. Next day same symptoms, but noticed hives in
Skenjin
in
NRAS
6 years ago
Finally
No lupus RRMS had my fst series of solumedrol it's kicking my ass with late side effects but at least I know what expect next time. This will explain all the problems I've been experiencing. Good luck to all of you and thanks for the support.
No lupus RRMS had my fst series of solumedrol it's kicking my ass with late side effects but at least I know what expect next time. This will explain all the problems I've been experiencing. Good luck to all of you and thanks for the support.
I814u24u
in
LUPUS UK
6 years ago
Medication experiences ?!?
Hello hope all is as well as can be... I'm wondering about my pain meds like if I'm on the right ones I have been on quite a few over the years but ATM for my pain I'm on gabapentin which has benn upped an upped over the years and Marol... they do help I just feel drained even more which I feel I don't
Hello hope all is as well as can be... I'm wondering about my pain meds like if I'm on the right ones I have been on quite a few over the years but ATM for my pain I'm on gabapentin which has benn upped an upped over the years and Marol... they do help I just feel drained even more which I feel I don't
Hidden
in
Fibromyalgia Action UK
6 years ago
Finally
After almost three years and multiple doctors I finally have a diagnoses of RRMS. Now they want do genetic testing for what I don't know, it's expensive and I'm not going to pay for it. I get my first round of solumedrol Monday. Wish me luck. It's got allot of side effects. I'm very apprehensive
After almost three years and multiple doctors I finally have a diagnoses of RRMS. Now they want do genetic testing for what I don't know, it's expensive and I'm not going to pay for it. I get my first round of solumedrol Monday. Wish me luck. It's got allot of side effects. I'm very apprehensive
I814u24u
in
LUPUS UK
6 years ago
Lots of veins
I've been on medrol for over a year. I've noticed the skin on my hands has thi nes and my veins now show. My hands appear older than the rest of me. Also lots of spider veins on my face and legs. I'm hoping to get off medrol at some point. Will the spider veins on my face disappear after I'm off
I've been on medrol for over a year. I've noticed the skin on my hands has thi nes and my veins now show. My hands appear older than the rest of me. Also lots of spider veins on my face and legs. I'm hoping to get off medrol at some point. Will the spider veins on my face disappear after I'm off
Kdbarnes
in
NRAS
6 years ago
Exacerbation
I know there are many knowledgable people on this site so I'm hoping somebody can help. I have stage 4 emphysema. Cutting a long story short grandson came over with bad cough and 4 days later I develop a cough and the next day I was so sob I could hardly talk. Went to local GP who said chest infection
I know there are many knowledgable people on this site so I'm hoping somebody can help. I have stage 4 emphysema. Cutting a long story short grandson came over with bad cough and 4 days later I develop a cough and the next day I was so sob I could hardly talk. Went to local GP who said chest infection
CyprusPat
in
Lung Conditions Community Forum
6 years ago
LUNG INVOLEMENT IN CFS/FIBRO
Hi, My name is Nancy and I am new here. Have had fibro/cfs for 30 yrs Things have changed … Now I am having swallowing disorder. Had barium swallow/ manometry...all tests show that my esophagus has little motility. So I cough to the point of going to ER, and prednisone and IV solumedrol help to stop
Hi, My name is Nancy and I am new here. Have had fibro/cfs for 30 yrs Things have changed … Now I am having swallowing disorder. Had barium swallow/ manometry...all tests show that my esophagus has little motility. So I cough to the point of going to ER, and prednisone and IV solumedrol help to stop
JChris
in
Fibromyalgia Action UK
6 years ago
asking for help finding a doctor in Reading
Good day! I have lupus Nephritis. I have plans on visiting UK this coming July, I just wanted to know if you guys have idea how much this medicines will cost in UK? I am taking Cycloposporine, medrol, and hydroxycloquine, and I wanted to ask if you can recommend where I can see a doctor for Lupus in
Good day! I have lupus Nephritis. I have plans on visiting UK this coming July, I just wanted to know if you guys have idea how much this medicines will cost in UK? I am taking Cycloposporine, medrol, and hydroxycloquine, and I wanted to ask if you can recommend where I can see a doctor for Lupus in
jessa08
in
LUPUS UK
6 years ago
GETTING BETTER ALL THE TIME! TOO GOOD TO BE TRUE? VACULITIS, PMR/GCA??
Hi to All, My diagnosis has never been entirely clear. Antibodies to PR3 at 1.6 in September, 2016; given diagnosis of C- ANCA vasculitis, but no lung or kidney involvement that I could feel or see. I have always thought symptoms were PMR, (with family history of my maternal grandmother having had it
Hi to All, My diagnosis has never been entirely clear. Antibodies to PR3 at 1.6 in September, 2016; given diagnosis of C- ANCA vasculitis, but no lung or kidney involvement that I could feel or see. I have always thought symptoms were PMR, (with family history of my maternal grandmother having had it
Christophene47
in
Vasculitis UK
6 years ago
I can’t get relief from costochondritis
can’t take nsaids . I’m on tramadol (already on it for fibromyalgia) muscle relaxants and now gabapentin and lidocaine patches. I want to die ! This is terrible pain I get severe sternal chest tightness abs then my back feels like it will collapse. I was initially diagnosed with pericarditis ( now resolved
can’t take nsaids . I’m on tramadol (already on it for fibromyalgia) muscle relaxants and now gabapentin and lidocaine patches. I want to die ! This is terrible pain I get severe sternal chest tightness abs then my back feels like it will collapse. I was initially diagnosed with pericarditis ( now resolved
Nickel38
in
Fibromyalgia Action UK
6 years ago
I can’t get relief from costochondritis
. I can’t take nsaids . I’m on tramadol (already on it for fibromyalgia) muscle relaxants and now gabapentin and lidocaine patches. I want to die ! This is terrible pain I get severe sternal chest tightness abs then my back feels like it will collapse. I was initially diagnosed with pericarditis ( now
. I can’t take nsaids . I’m on tramadol (already on it for fibromyalgia) muscle relaxants and now gabapentin and lidocaine patches. I want to die ! This is terrible pain I get severe sternal chest tightness abs then my back feels like it will collapse. I was initially diagnosed with pericarditis ( now
Nickel38
in
My Fibro Community
6 years ago
MS giving flu like symptoms
Hi everyone, I was wondering if anyone ever feels like they have the flu but really don’t? In the past I’ve realized that I start to have flu like symptoms prior & during a relapse which is not fun at all. The last several days my head feel heavy, I have a constant headache or dull pain behind my eyes
Hi everyone, I was wondering if anyone ever feels like they have the flu but really don’t? In the past I’ve realized that I start to have flu like symptoms prior & during a relapse which is not fun at all. The last several days my head feel heavy, I have a constant headache or dull pain behind my eyes
Eveliz
in
My MSAA Community
6 years ago
i was admitted with 4000 platelet count!!!
2 years back 2016 jaundice hepatatis A striked me den through it the bilribrium level reached to 51 count and then my haemglobin level came down to 4 frm 13 or 11. i was admitted and transfused blood twice.and was given treatment for autoimmuno disease and jaundice i was given predinasolone from 60mg
2 years back 2016 jaundice hepatatis A striked me den through it the bilribrium level reached to 51 count and then my haemglobin level came down to 4 frm 13 or 11. i was admitted and transfused blood twice.and was given treatment for autoimmuno disease and jaundice i was given predinasolone from 60mg
Platelet4000
in
ITP Support Association
6 years ago
Duloxetine no no....!
Well, I tried it and really didn't realise how depressed and anxious it made me until my husband mentioned it! I stuck with it for 3 weeks and that was it. I phoned the hospital and they noted yet another medication I've had a bad reaction to. The trouble is that the anxiety has hung on to the point
Well, I tried it and really didn't realise how depressed and anxious it made me until my husband mentioned it! I stuck with it for 3 weeks and that was it. I phoned the hospital and they noted yet another medication I've had a bad reaction to. The trouble is that the anxiety has hung on to the point
Blackwitch
in
Fibromyalgia Action UK
6 years ago
Having PMR Is Like Dancing With A Gorilla……..
The dance isn’t over until the gorilla decides it’s over. On August 25, 2017, I began a treatment regimen which included weekly injections of depo-medrol that provided me with an average of 11.4 mg per day. Ten months later, I had tapered my daily dose to approximately 3.3 mg and switched over to 4.0
The dance isn’t over until the gorilla decides it’s over. On August 25, 2017, I began a treatment regimen which included weekly injections of depo-medrol that provided me with an average of 11.4 mg per day. Ten months later, I had tapered my daily dose to approximately 3.3 mg and switched over to 4.0
Admiral06
in
PMRGCAuk
6 years ago
Introductions
Hello! I’m Ali, recently (January) diagnosed with progressive relapsing MS. It’s been a huge learning curve to manage the slew of symptoms and my new normal. But it’s worth the fight when I’m enjoying time doing something I love. I am married to a wonderful Navy sailor and we have 2 kids. Ryan is 12
Hello! I’m Ali, recently (January) diagnosed with progressive relapsing MS. It’s been a huge learning curve to manage the slew of symptoms and my new normal. But it’s worth the fight when I’m enjoying time doing something I love. I am married to a wonderful Navy sailor and we have 2 kids. Ryan is 12
alimitchell1
in
My MSAA Community
6 years ago
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