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Shingles and essential thrombocythemia
Has anyone experienced shingles while on Pegasys interferon for essential thrombocythemia ? X
Has anyone experienced shingles while on Pegasys interferon for essential thrombocythemia ? X
BeckyG88
in
MPN Voice
3 years ago
Germline genetic factors influence the outcome of interferon-α therapy in polycythemia vera
« Interferon-α (IFN-α)–based therapies can induce sustained hematologic responses (HRs) and durable molecular responses (MRs) in polycythemia vera (PV) and other myeloproliferative neoplasms (MPNs). During treatment of PV, an HR reflects normalization of blood values, whereas a MR marks a substantial
« Interferon-α (IFN-α)–based therapies can induce sustained hematologic responses (HRs) and durable molecular responses (MRs) in polycythemia vera (PV) and other myeloproliferative neoplasms (MPNs). During treatment of PV, an HR reflects normalization of blood values, whereas a MR marks a substantial
Manouche
in
MPN Voice
3 years ago
Questions about stents and support
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
SomersetJo
in
British Heart Foundation
3 years ago
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WARWICK's ASCT Journey Begins Today...
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
socrates_8
in
MPN Voice
3 years ago
Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective immune response to Covid-19
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Iupiter
in
CLL Support
3 years ago
Ropeginterferon alfa-2b versus phlebotomy in low-risk patients with polycythaemia vera (Low-PV study)
There is no evidence that phlebotomy alone is sufficient to steadily maintain haematocrit on target level in low-risk patients with polycythaemia vera. This study aimed to compare the efficacy and safety of ropeginterferon alfa-2b on top of the standard phlebotomy regimen with phlebotomy alone. https
There is no evidence that phlebotomy alone is sufficient to steadily maintain haematocrit on target level in low-risk patients with polycythaemia vera. This study aimed to compare the efficacy and safety of ropeginterferon alfa-2b on top of the standard phlebotomy regimen with phlebotomy alone. https
Manouche
in
MPN Voice
3 years ago
Covid trial in UK examines mixing different vaccines
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
Jm954
Administrator
in
CLL Support
3 years ago
Fertility and essential thrombocythemia
Hey I’m 32 year of age Iv currently have essential thrombocythemia , diagnosed over 10 years ago with blood readings of 1,800 Currently takin Pegasy Been trying to conceive for over a year now , suffered for years with bad periods heavy and very very painful . Just wondering if having this condition
Hey I’m 32 year of age Iv currently have essential thrombocythemia , diagnosed over 10 years ago with blood readings of 1,800 Currently takin Pegasy Been trying to conceive for over a year now , suffered for years with bad periods heavy and very very painful . Just wondering if having this condition
BeckyG88
in
MPN Voice
4 years ago
How Can I Cure Leg Wasting ?
Pls , I Am 29 years old now and a Sickle Cell Patient too. When I was 19 years, my hip joint started to pain me and I attended to the hospital, they told me the hip is reducing so I have to wear crutches to walk and I did that for a year. However when I used the crutches for a year the pain reduced
Pls , I Am 29 years old now and a Sickle Cell Patient too. When I was 19 years, my hip joint started to pain me and I attended to the hospital, they told me the hip is reducing so I have to wear crutches to walk and I did that for a year. However when I used the crutches for a year the pain reduced
WarriorChild_
in
Sickle Cell Society
3 years ago
New mutation
Morning all I haven’t posted for a while as have been struggling along nicely on peg ...... My platelets have remained steady although my HCT has been creeping up. My specialist arranged a red cell mass scan and my red volume is normal so he is not too concerned about HCT being raised. The letter from
Morning all I haven’t posted for a while as have been struggling along nicely on peg ...... My platelets have remained steady although my HCT has been creeping up. My specialist arranged a red cell mass scan and my red volume is normal so he is not too concerned about HCT being raised. The letter from
Graham7694
in
MPN Voice
4 years ago
Strange case of CLL remission
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
mkawass
in
CLL Support
3 years ago
Re: WARWICK's ASCT Journey Begins Today...
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
socrates_8
in
MPN Voice
3 years ago
MF
I’m 67 and about 2 years ago was diagnosed with Myelofibrosis with no real symptoms it was picked up with a routine blood test. Still in a bit of shock even now. I have avoided google and the like. Stem cell replacement had been ruled out I guess because of my age. But I can’t except that there is no
I’m 67 and about 2 years ago was diagnosed with Myelofibrosis with no real symptoms it was picked up with a routine blood test. Still in a bit of shock even now. I have avoided google and the like. Stem cell replacement had been ruled out I guess because of my age. But I can’t except that there is no
Grizly
in
MPN Voice
4 years ago
Webinar - Living well with CLL - 3.30pm Monday 15th Feb
Lymphoma Action and Leukaemia Care are back with their next joint webinar on Monday 15th February 2021 at 3,30pm Please join to explore strategies that may aid you to live well with a CLL diagnosis, regardless of what stage of the journey you may be at. The experienced panel of clinicians and patients
Lymphoma Action and Leukaemia Care are back with their next joint webinar on Monday 15th February 2021 at 3,30pm Please join to explore strategies that may aid you to live well with a CLL diagnosis, regardless of what stage of the journey you may be at. The experienced panel of clinicians and patients
Jm954
Administrator
in
CLL Support
3 years ago
Tocilizumab extension
Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply
Hi I wrote a couple of weeks ago asking if anyone had been told that their tocilizumab was being extended. I’ve heard nothing from rheumatology or G.P but today I’ve had a txt from the company that deliver the injections to say they are delivering early March. Not sure if it’s the normal 8 weeks supply
Devoid
in
PMRGCAuk
3 years ago
Richter’s Transformation - Results of my Pseudo Richter Human Genome study
Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping that Richter's transformation is not the great unknown within the world of CLL. We have sequenced the entire genome of the CLL and the lymph
Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping that Richter's transformation is not the great unknown within the world of CLL. We have sequenced the entire genome of the CLL and the lymph
Priss69
in
CLL Support
3 years ago
Leukemia
Hello, my dad just got diagnosed with leukemia yesterday. He is in the hospital now getting a biopsy. Can anyone please let me know how long the process takes and when can he come home? He is very anxious and miss the family very much. With the coronavirus we cannot visit him. I am wondering between
Hello, my dad just got diagnosed with leukemia yesterday. He is in the hospital now getting a biopsy. Can anyone please let me know how long the process takes and when can he come home? He is very anxious and miss the family very much. With the coronavirus we cannot visit him. I am wondering between
Sam510
in
Leukaemia Support
4 years ago
Richter's in Remission - 11 months post transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
SarasotaPaul
in
CLL Support
3 years ago
Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
3 years ago
Vaccinate or not?
I have just spoken with my haematologists office and asked what is recommended for those taking Hydroxy etc. We are advised to have a vaccination, it doesn't matter which one. If you have Aplastic Anemia then he would speak with you first. So pleased I've been given the go ahead!
I have just spoken with my haematologists office and asked what is recommended for those taking Hydroxy etc. We are advised to have a vaccination, it doesn't matter which one. If you have Aplastic Anemia then he would speak with you first. So pleased I've been given the go ahead!
Jennytheb
in
MPN Voice
4 years ago
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