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Mast cell leukaemia
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Chlorambucil
I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on Obinutzumib but I had anaphylaxis and it was terminated. Hope this helps. Jan x
I had Chlorambucil along with Rituximub infusions which put me in remission for 2 years. The only side effects were nausea. They tried me initially on Obinutzumib but I had anaphylaxis and it was terminated. Hope this helps. Jan x
JanChas
in
CLL Support
3 years ago
Leukemia diagnosis
I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please
I am confused .I was told I had leukemia .I now have a diagnosis of lymphoproliferative disorder .anybody got any answers please
Mariacat01
in
CLL Support
3 years ago
Antibody test
I just got my 2nd covid vaccination, Moderna. I would like to get an antibody test in a few weeks to make sure it did the job since they don't know yet whether the vaccine will work with CLL. Has anyone else done/ considered this idea? Is it even feasible?
I just got my 2nd covid vaccination, Moderna. I would like to get an antibody test in a few weeks to make sure it did the job since they don't know yet whether the vaccine will work with CLL. Has anyone else done/ considered this idea? Is it even feasible?
PerfectPurple
in
CLL Support
3 years ago
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Thalassemia beta trait and elevated platelets
I was referred to a haematologist last year as the blood test results from my annual health screen came back with some abnormal results. I have thalassemia trait so my blood results are never normal but my GP noted that my platelets were elevated at 489. I looked back at some older blood tests and
I was referred to a haematologist last year as the blood test results from my annual health screen came back with some abnormal results. I have thalassemia trait so my blood results are never normal but my GP noted that my platelets were elevated at 489. I looked back at some older blood tests and
nutter1234
in
MPN Voice
3 years ago
Any one know ......
Hi due to have my pneumonia vacination next week it's been 8 years since my last vaccination back in 2013 and they only gave me the adult one pneumovax 23 ( pnn23) then I phoned up my GPs to book this and Spoke to the practice nurse explained it's been 8 years since my last one and I wanted the
Hi due to have my pneumonia vacination next week it's been 8 years since my last vaccination back in 2013 and they only gave me the adult one pneumovax 23 ( pnn23) then I phoned up my GPs to book this and Spoke to the practice nurse explained it's been 8 years since my last one and I wanted the
stewie
in
CLL Support
3 years ago
3 x Articles from 'The Conversation'
[u]
Coronavirus might become endemic – here’s how.
[/u] Endemic viruses are those that have constant presence within a geographical area. Such viruses are all around us, though they vary by location. Examples in Europe and North America include the rhinovirus (a cause of the common cold) and influenza
[u]
Coronavirus might become endemic – here’s how.
[/u] Endemic viruses are those that have constant presence within a geographical area. Such viruses are all around us, though they vary by location. Examples in Europe and North America include the rhinovirus (a cause of the common cold) and influenza
2greys
in
Lung Conditions Community Forum
3 years ago
Hello from CT
Newly diagnosed 50 year old male from Connecticut with CLL. Awaiting the results of the FISH test. Just wanted to thank everyone for the knowledge here as I have been reading and reading non stop. I am sure I will be asking many questions as I move forward but right now trying to learn everything I
Newly diagnosed 50 year old male from Connecticut with CLL. Awaiting the results of the FISH test. Just wanted to thank everyone for the knowledge here as I have been reading and reading non stop. I am sure I will be asking many questions as I move forward but right now trying to learn everything I
controlsct
in
CLL Support
3 years ago
Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Newly diagnosed with myelofibrosis
Hallo. I am newly diagnosed with myelofibrosis. I was called to be told a week ago. I’ve been in and out of shock since and now so frightened I can’t sleep. I have no information, and have been googling prognoses and crying constantly. I don’t know what I’m dealing with at all. Will I be around to see
Hallo. I am newly diagnosed with myelofibrosis. I was called to be told a week ago. I’ve been in and out of shock since and now so frightened I can’t sleep. I have no information, and have been googling prognoses and crying constantly. I don’t know what I’m dealing with at all. Will I be around to see
LuluCosson
in
MPN Voice
3 years ago
Top-speed antibody development.
The development of biopharmaceuticals is a long and expensive process. A decade or more can elapse between the discovery of a new protein-based active ingredient and the release of a new drug. One major hurdle on this journey is the passage from the lab to clinical trials. As a rule, it takes between
The development of biopharmaceuticals is a long and expensive process. A decade or more can elapse between the discovery of a new protein-based active ingredient and the release of a new drug. One major hurdle on this journey is the passage from the lab to clinical trials. As a rule, it takes between
2greys
in
Lung Conditions Community Forum
3 years ago
Should I push harder for tests to rule out essential thrombocythemia?
I have a complex medical history, mixed connective tissue disease, RA, eosiniophilc esophagitis, hypopituitarism, adrenal insufficiency, exercise anaphylaxis, a bunch of things that are unrelated, some serious, some annoyances. I have extremely high bone density, so have degenerative spinal disease
I have a complex medical history, mixed connective tissue disease, RA, eosiniophilc esophagitis, hypopituitarism, adrenal insufficiency, exercise anaphylaxis, a bunch of things that are unrelated, some serious, some annoyances. I have extremely high bone density, so have degenerative spinal disease
lilyak
in
MPN Voice
3 years ago
Webinar - Living well with CLL - 3.30pm Monday 15th Feb
Hello friends Lymphoma Action and Leukaemia Care are back with our next joint webinar on Monday 15th February 2021 at 3,30pm Please join us to explore strategies that may aid you to live well with a CLL diagnosis, regardless of what stage of the journey you may be at. The experienced panel of clinicians
Hello friends Lymphoma Action and Leukaemia Care are back with our next joint webinar on Monday 15th February 2021 at 3,30pm Please join us to explore strategies that may aid you to live well with a CLL diagnosis, regardless of what stage of the journey you may be at. The experienced panel of clinicians
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Cookalong with LuBan Kitchen for Chinese New Year and support Leukaemia Care
We'd like to share with you an exciting online event which is happening on Thursday 11th February at 7pm. Leukaemia Care have teamed up with LuBan Kitchen for an online cook-along, where you get to cook authentic Chinese food with Head Chef, Dave. Our menu for the evening is the following: Chicken
We'd like to share with you an exciting online event which is happening on Thursday 11th February at 7pm. Leukaemia Care have teamed up with LuBan Kitchen for an online cook-along, where you get to cook authentic Chinese food with Head Chef, Dave. Our menu for the evening is the following: Chicken
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Richter's Transformation
Hi Andreag555, Sorry to hear about your father RT diagnosis. Quick background on myself. Dx'd with CLL in 2014. Various lines of treatment. Heavely treated with about 6 treatments one after the other(Sorry chemo brain keeps me from remembering all of them!) Was on Venetolclax in 2018. Diagnosed with
Hi Andreag555, Sorry to hear about your father RT diagnosis. Quick background on myself. Dx'd with CLL in 2014. Various lines of treatment. Heavely treated with about 6 treatments one after the other(Sorry chemo brain keeps me from remembering all of them!) Was on Venetolclax in 2018. Diagnosed with
Feisal
in
CLL Support
3 years ago
post stem cell transplant covid question
I am now approaching 21 months post transplant (MF) and feeling well. My last consultation and bloods was about 3 months ago. I've only had phone consultations since March last year and so I'm hoping my next appointment, due in June, will be face to face at the QE B'ham where I had the transplant. I'm
I am now approaching 21 months post transplant (MF) and feeling well. My last consultation and bloods was about 3 months ago. I've only had phone consultations since March last year and so I'm hoping my next appointment, due in June, will be face to face at the QE B'ham where I had the transplant. I'm
Dodders
in
MPN Voice
3 years ago
Stem cell replacement
Has anyone traveled down the road of having stem cell/bone marrow transplant? I have MF It looks like it maybe a possibility for me.
Has anyone traveled down the road of having stem cell/bone marrow transplant? I have MF It looks like it maybe a possibility for me.
Grizly
in
MPN Voice
3 years ago
Interferon therapy in the management of myeloproliferative neoplasms
Time on treatment analysis demonstrated that every year on interferon reduced the risk of progression to myelofibrosis (MF) by 9% (HR 0.91 [95% CI, 0.87–0.95]; p < 0.001), and was associated with a mortality risk reduction by 6% per year (HR 0.94 [95% CI, 0.90–0.99]; p < 0.012). Discontinuation rates
Time on treatment analysis demonstrated that every year on interferon reduced the risk of progression to myelofibrosis (MF) by 9% (HR 0.91 [95% CI, 0.87–0.95]; p < 0.001), and was associated with a mortality risk reduction by 6% per year (HR 0.94 [95% CI, 0.90–0.99]; p < 0.012). Discontinuation rates
Manouche
in
MPN Voice
3 years ago
Webinar - 3.30pm 4th Feb - COVID-19 ‘shielding’ update, coping and support.
This webinar will explore the effect of shielding long term and managing the impact on blood cancer patients. The webinar seeks to provide coping strategies to support patients and their loved ones to manage the emotional and psychological burden you may be experiencing.
We will be joined by:[/b
This webinar will explore the effect of shielding long term and managing the impact on blood cancer patients. The webinar seeks to provide coping strategies to support patients and their loved ones to manage the emotional and psychological burden you may be experiencing.
We will be joined by:[/b
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
Nobody Wants Cancer. But a ‘Big C’ Label Has Surprising Upsides.
« “The cancer designation did open up significant new funding opportunities, for example from the National Cancer Institute,” said Barbara Van Husen, board chair of the MPN Research Foundation. “It has definitely accelerated research.” There are more than 200 clinical trials underway for various MPNs
« “The cancer designation did open up significant new funding opportunities, for example from the National Cancer Institute,” said Barbara Van Husen, board chair of the MPN Research Foundation. “It has definitely accelerated research.” There are more than 200 clinical trials underway for various MPNs
Manouche
in
MPN Voice
3 years ago
Update on my ABCDE minus L diet for fighting CLL
Four months ago, I posted that I was embarking on, what I called the "ABCDE minus L diet" for fighting CLL. See: https://healthunlocked.com/cllsupport/posts/144613625/the-abcde-minus-l-diet-for-fighting-cll Briefly. I am at the "watch and worry" stage with my CLL. I am eating and drinking the following
Four months ago, I posted that I was embarking on, what I called the "ABCDE minus L diet" for fighting CLL. See: https://healthunlocked.com/cllsupport/posts/144613625/the-abcde-minus-l-diet-for-fighting-cll Briefly. I am at the "watch and worry" stage with my CLL. I am eating and drinking the following
HowardR
in
CLL Support
3 years ago
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