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looking for advice.
My husband Martin was diagnosed in 2019 with prostate cancer. Gleason score 7 (3+4) Biopsy showed 12 out of 16 cores. In June 2019 he had Robotic surgery. We were told everything went very well. His PSA dropped to <0.05. This lasted until September 2020 when his PSA started to increase 0.46. And continued
My husband Martin was diagnosed in 2019 with prostate cancer. Gleason score 7 (3+4) Biopsy showed 12 out of 16 cores. In June 2019 he had Robotic surgery. We were told everything went very well. His PSA dropped to <0.05. This lasted until September 2020 when his PSA started to increase 0.46. And continued
Believeit
in
Advanced Prostate Cancer
1 year ago
Hyperbaric Oxjen Chamber/ Portable unit
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Hi, My partner of 26 years has stage 4 metastatic prostate cancer. He has been fighting it for 10 years He is 74. He had it removed immediately, 10yrs ago - Gleason was a 9. He did low dose chemo following that and so many drugs on and off over the years as well as Lupron which has left him without
Peanutdog123
in
Advanced Prostate Cancer
1 year ago
Life beyond Myelofibrosis
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
Scaredy_cat
in
MPN Voice
1 year ago
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Here I go.
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
PabloK
in
Advanced Prostate Cancer
1 year ago
blip in treatment continued
not sure what happened? Continuing We are both now in a place of extreme anxiety and trying to cling onto vague hope If it fails then it will be a more invasive chemo or to decide to stop treatment? Has anyone heard of such a blip and possible outcomes.? I should add that in last 6 months he was
not sure what happened? Continuing We are both now in a place of extreme anxiety and trying to cling onto vague hope If it fails then it will be a more invasive chemo or to decide to stop treatment? Has anyone heard of such a blip and possible outcomes.? I should add that in last 6 months he was
Holepunch
in
The Roy Castle Lung Cancer Foundation
1 year ago
Blip in Immunitherapy ?
wonder if anyone has experience of a blip in immunotherapy treatment? My husband has stage 4 non small cell lung cancer He was diagnosed about 10 months ago and has been responding well to immunotherapy and chemotherapy (3 weekly treatments of pemetrexed and pembrolizubmab spelling maybe a bit wrong
wonder if anyone has experience of a blip in immunotherapy treatment? My husband has stage 4 non small cell lung cancer He was diagnosed about 10 months ago and has been responding well to immunotherapy and chemotherapy (3 weekly treatments of pemetrexed and pembrolizubmab spelling maybe a bit wrong
Holepunch
in
The Roy Castle Lung Cancer Foundation
1 year ago
Ramp 201 Trial
Good evening everyone, hope you all have had a good day, or a better one. Just wondering if any of you may be on the Ramp 201 trial, or Frame. I feel I should start researching what could be worth considering as an option for me, since it seems progression to be happening based on my last three CA
Good evening everyone, hope you all have had a good day, or a better one. Just wondering if any of you may be on the Ramp 201 trial, or Frame. I feel I should start researching what could be worth considering as an option for me, since it seems progression to be happening based on my last three CA
jsc50
in
My Ovacome
1 year ago
Tinnitus being made worse by chemotherapy
I’m sure this is a story you’ve all heard a million times but I’m deep in the thralls of it and needed to reach out somewhere, but I’m too scared to go down the rabbit hole that is Tinnitus Talk, just lurking on that forum has had a disastrous effect on my mental health and yet I can’t stop doing it,
I’m sure this is a story you’ve all heard a million times but I’m deep in the thralls of it and needed to reach out somewhere, but I’m too scared to go down the rabbit hole that is Tinnitus Talk, just lurking on that forum has had a disastrous effect on my mental health and yet I can’t stop doing it,
Masterfox66
in
Tinnitus UK
1 year ago
Kidney failure and future treatments
Hello everyone, first of all apologies if everything is not very clear as English is not my first language (I generally speak it very well, however I'm not used to talk about medical terms). I'd love to hear about my dad's situation. My dad was diagnosed with Stage IV PC in September, 2022. PSA was
Hello everyone, first of all apologies if everything is not very clear as English is not my first language (I generally speak it very well, however I'm not used to talk about medical terms). I'd love to hear about my dad's situation. My dad was diagnosed with Stage IV PC in September, 2022. PSA was
Yabaa
in
Advanced Prostate Cancer
1 year ago
Carboplatin & Etoposide
Hi everyone. My dad will be starting Carboplatin and Etoposide next Monday. I was hoping to get some tips for helping make my dad comfortable. I have read random tips such as starting Claritin before and buying ice mitts/hat, etc. but wanted to ask those who have been through chemo, what are some helpful
Hi everyone. My dad will be starting Carboplatin and Etoposide next Monday. I was hoping to get some tips for helping make my dad comfortable. I have read random tips such as starting Claritin before and buying ice mitts/hat, etc. but wanted to ask those who have been through chemo, what are some helpful
antisocialsocialwrkr
in
Advanced Prostate Cancer
1 year ago
Chemo may be helping
Hi Fellow Fighters, Prior to my third round of Taxotere last Friday, I had blood work done. After 2 rounds, my PSA dropped 4.7 points. TBH, I feel like crap today, but the results are promising. My blood work also showed low cortisol levels, how concerned should I be about that? Thanks.
Hi Fellow Fighters, Prior to my third round of Taxotere last Friday, I had blood work done. After 2 rounds, my PSA dropped 4.7 points. TBH, I feel like crap today, but the results are promising. My blood work also showed low cortisol levels, how concerned should I be about that? Thanks.
MJCA
in
Advanced Prostate Cancer
1 year ago
post surgery FLOT decision!
Hi everyone we’ve got an appointment with the oncologist tomorrow to discuss whether or not to have the 4 cycles of FLOT. My husband was staged as T4a N1 or 2 and M0 and it was touch and go whether he could have the surgery. We were told because the tumour was so large and bulky he’d go for a trial dissection
Hi everyone we’ve got an appointment with the oncologist tomorrow to discuss whether or not to have the 4 cycles of FLOT. My husband was staged as T4a N1 or 2 and M0 and it was touch and go whether he could have the surgery. We were told because the tumour was so large and bulky he’d go for a trial dissection
Tighan
in
Oesophageal & Gastric Cancer
1 year ago
Doxazosin and what’s next
I have had 2 strokes, one while undergoing chemotherapy, (ovarian cancer, hysterectomy and chemo due to cyst burst) which had to be stopped after 2 sessions due to reactions from Pachtaxel, and Dexamethasone(steroids). Was recovering well when woke up with limited movement on right. I have had high
I have had 2 strokes, one while undergoing chemotherapy, (ovarian cancer, hysterectomy and chemo due to cyst burst) which had to be stopped after 2 sessions due to reactions from Pachtaxel, and Dexamethasone(steroids). Was recovering well when woke up with limited movement on right. I have had high
Quilting4me
in
High Blood Pressure Support
1 year ago
New episode of Living with Ovarian Cancer Podcast
“Living with Ovarian Cancer Podcast” has a new episode. Do head over to listen to it wherever you listen to your podcasts or by following the link below. In this episode I talk to Gemma, a young woman living with Endometrioid Uterine and Ovarian Cancer in Manchester. Gemma has a very powerful story
“Living with Ovarian Cancer Podcast” has a new episode. Do head over to listen to it wherever you listen to your podcasts or by following the link below. In this episode I talk to Gemma, a young woman living with Endometrioid Uterine and Ovarian Cancer in Manchester. Gemma has a very powerful story
Levanah
in
My Ovacome
1 year ago
side effects of Tamoxifen
I joined Health Unlocked in 2016 when my daughter was diagnosed with both breast cancer and diabetes. She was 36 at the time so it was the full works in terms of treatment. She underwent a lumpectomy in her left breast, chemo, radiation and has been on hormone therapy - 1 tab of Tamoxifen a day since
I joined Health Unlocked in 2016 when my daughter was diagnosed with both breast cancer and diabetes. She was 36 at the time so it was the full works in terms of treatment. She underwent a lumpectomy in her left breast, chemo, radiation and has been on hormone therapy - 1 tab of Tamoxifen a day since
suryakaizen
in
SHARE Breast Cancer Support
1 year ago
Gratitude
It is my husband who has AFib. A long story but having a lobe of his lung removed for cancer and grueling chemo causing heart and kidney damage and Covid have all contributed. But I am so grateful for this group. I am a retired RN and sometimes a little knowledge causes lots of anxiety. Thank you
It is my husband who has AFib. A long story but having a lobe of his lung removed for cancer and grueling chemo causing heart and kidney damage and Covid have all contributed. But I am so grateful for this group. I am a retired RN and sometimes a little knowledge causes lots of anxiety. Thank you
Lenaropes
in
AF Association
1 year ago
When do I go from here?
I have tried almost all available options and the numbers continue to get worse. Pending treatment options - immunotherapy (low success rate) or JEVTANA (could buy me a few more months). The last 12 months of constant nausea, which still continues even after I have stopped treatment, has left me very
I have tried almost all available options and the numbers continue to get worse. Pending treatment options - immunotherapy (low success rate) or JEVTANA (could buy me a few more months). The last 12 months of constant nausea, which still continues even after I have stopped treatment, has left me very
barrybayarea
in
Advanced Prostate Cancer
1 year ago
Selective amino acid restriction therapy (SAART)
This is a follow-on from something that came up in the "
Cysteine depletion sensitizes prostate cancer cells to agents that enhance DNA damage and to immune checkpoint inhibition"
post. Some here may be unfamiliar with the idea of selective amino acid restriction. I have never been tempted to
This is a follow-on from something that came up in the "
Cysteine depletion sensitizes prostate cancer cells to agents that enhance DNA damage and to immune checkpoint inhibition"
post. Some here may be unfamiliar with the idea of selective amino acid restriction. I have never been tempted to
pca2004
in
Fight Prostate Cancer
1 year ago
PSA Question
I updated my husbands profile to show his PSA went from -- 2.08 in January to... 1.73 in February 1.77 in March 1.78 in April His next test is 6/6. It has never gotten lower than 1.24 back in December of 2022. Is it normal for some people to not have an extremely low PSA? He
I updated my husbands profile to show his PSA went from -- 2.08 in January to... 1.73 in February 1.77 in March 1.78 in April His next test is 6/6. It has never gotten lower than 1.24 back in December of 2022. Is it normal for some people to not have an extremely low PSA? He
Izzygirl1
in
Advanced Prostate Cancer
1 year ago
Any tips
Any tips on overcoming this sticky feeling when on chemo !! I have anti nausea tablets but they don’t always take the edge off
Any tips on overcoming this sticky feeling when on chemo !! I have anti nausea tablets but they don’t always take the edge off
Cazy1010
in
My Ovacome
1 year ago
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