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Hubby is feeling like he can’t get comfortable
He is increasingly saying he can’t get comfortable and can’t do anything as he can’t find a comfortable position. This is distressing him. What causes this? Last night his arms became very stiff and he felt like they were being pulled in. Is this over or under medication? Is it wearing off? It seems
He is increasingly saying he can’t get comfortable and can’t do anything as he can’t find a comfortable position. This is distressing him. What causes this? Last night his arms became very stiff and he felt like they were being pulled in. Is this over or under medication? Is it wearing off? It seems
LAJ12345
in
Cure Parkinson's
4 years ago
I hope this can assist
So about 2 months ago I wrote a post about neuroplastisity and wondered if it had any merit to it. I had some wonderful comments from people on this forum to which I was grateful, so since the gyms opened up about 6-8 weeks ago after quarantine I thought I'd give it a go. So I'm not on any supplements
So about 2 months ago I wrote a post about neuroplastisity and wondered if it had any merit to it. I had some wonderful comments from people on this forum to which I was grateful, so since the gyms opened up about 6-8 weeks ago after quarantine I thought I'd give it a go. So I'm not on any supplements
AaronS
in
Cure Parkinson's
4 years ago
Help. Suddenly much worse
My husband was doing really well pre lock down and now even though in NZ we are back to normal he has taken a big step backwards with symptoms. He had been getting stiffer so has tried to take the C/L kinson which made him very nauseous so he was unable to take enough to do anything. He has just changed
My husband was doing really well pre lock down and now even though in NZ we are back to normal he has taken a big step backwards with symptoms. He had been getting stiffer so has tried to take the C/L kinson which made him very nauseous so he was unable to take enough to do anything. He has just changed
LAJ12345
in
Cure Parkinson's
4 years ago
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CHEAP SINEMET CR OR EXPENSIVE RYTARY. WHICH WORKS BEST FOR YOU?
Hi Friends, my MDS is about to switch me to expensive Rytary.I keep wondering why Rytary instead of a cheaper Sinemet CR.If you had an experience with this two drugs as a patient or a caregiver,please your input will be appreciated.I am currently having off periods due to generic Sinemet,not working
Hi Friends, my MDS is about to switch me to expensive Rytary.I keep wondering why Rytary instead of a cheaper Sinemet CR.If you had an experience with this two drugs as a patient or a caregiver,please your input will be appreciated.I am currently having off periods due to generic Sinemet,not working
OREOLU
in
Cure Parkinson's
4 years ago
Magnesium chloride - dosing
I started using magnesium chloride gel two weeks ago, every night, along with my meds; it works great and sleep has improved to 5-6 hours. But I need up to 8 hours. How soon can you reapply the gel? Is it risky to “overdose on magnesium”?
I started using magnesium chloride gel two weeks ago, every night, along with my meds; it works great and sleep has improved to 5-6 hours. But I need up to 8 hours. How soon can you reapply the gel? Is it risky to “overdose on magnesium”?
ScribblerCLT
in
Restless Legs Syndrome
4 years ago
Advice on Rotigotine Patches
Advice on medication gratefully received. Hi all, first time poster, please be kind! PD diagnosed in 2017, various meds since then. Currently on 5 x daily madopar 100/25, and until recently rotigotine patches. Recently the patches have produced a massive skin reaction, pure solid blister and pus (sorry
Advice on medication gratefully received. Hi all, first time poster, please be kind! PD diagnosed in 2017, various meds since then. Currently on 5 x daily madopar 100/25, and until recently rotigotine patches. Recently the patches have produced a massive skin reaction, pure solid blister and pus (sorry
Shipbuilder
in
Cure Parkinson's
4 years ago
How long before levodopa starts working when first introduced?
I was diagnosed at age 70 about a year ago and prescribed Madopar 50/12.5, but resisted taking it until about 5 weeks ago by when a left hand tremor had developed to supplement the Bradykinesia, stiffness, awkward walking etc. Until now nothing’s happened. I was wondering whether it’s normal to take
I was diagnosed at age 70 about a year ago and prescribed Madopar 50/12.5, but resisted taking it until about 5 weeks ago by when a left hand tremor had developed to supplement the Bradykinesia, stiffness, awkward walking etc. Until now nothing’s happened. I was wondering whether it’s normal to take
Slobber1
in
Cure Parkinson's
4 years ago
Madopar for RLS
I have had RLS since childhood and self diagnosed in 2000 when I was on Pergolide which was discontinued. They then put me into Madopar which was ineffective unless I combined it with Pramipexole 0.088. Having read all the dreadful things on this site for Pramipexole I have now changed to Pregabalin
I have had RLS since childhood and self diagnosed in 2000 when I was on Pergolide which was discontinued. They then put me into Madopar which was ineffective unless I combined it with Pramipexole 0.088. Having read all the dreadful things on this site for Pramipexole I have now changed to Pregabalin
Jeverleybane
in
Restless Legs Syndrome
4 years ago
Trial and error
My hwp is feeling very depressed today. He's 58, dx 5 years ago and for last 6 months he started Modopar (50mg levodopa / 12.5mg benserazide) 1 caps 3 times a day (6am - 12- 6 pm) taken with 1 x ropinirole (12mg) at 6am. He also takes B1 500mg. He's main problem is freezing - his left foot/leg which
My hwp is feeling very depressed today. He's 58, dx 5 years ago and for last 6 months he started Modopar (50mg levodopa / 12.5mg benserazide) 1 caps 3 times a day (6am - 12- 6 pm) taken with 1 x ropinirole (12mg) at 6am. He also takes B1 500mg. He's main problem is freezing - his left foot/leg which
Vik38
in
Cure Parkinson's
4 years ago
Jerks and Depression
Hi all my husband age 57 has CBD. He has jerks which can be quite severe, the Consultant has tried sodium valproate which made him ill, modopar which had no effect and recently Topiramate which again made him ill. Does anyone have any experience of this please? Also he is very low and teary. We have
Hi all my husband age 57 has CBD. He has jerks which can be quite severe, the Consultant has tried sodium valproate which made him ill, modopar which had no effect and recently Topiramate which again made him ill. Does anyone have any experience of this please? Also he is very low and teary. We have
Northstar1
in
PSP Association
4 years ago
Hello, I rejoin you all.
Bonjour, I am a 66 years old man, living in France. I have been diagnosed with Parkinson's disease two years ago but I remember having suffering symptoms in 1993. I'm taking actually 3 x modopar 125 and one Rasagaline each day. My right leg is troubled and my right arm doesn't balance normally, this
Bonjour, I am a 66 years old man, living in France. I have been diagnosed with Parkinson's disease two years ago but I remember having suffering symptoms in 1993. I'm taking actually 3 x modopar 125 and one Rasagaline each day. My right leg is troubled and my right arm doesn't balance normally, this
Hidden
in
Cure Parkinson's
4 years ago
Continuous / Extended Release
I used to take Sinemet CR 50/250 overnight (as well as various daytime medications. Worked well for me. Sinemet CR 50/250 is no longer manufactured. I was offered a generic product, same carbidopa levodopa mix, but extended release rather than continuous release. I have been using this for about 6 weeks
I used to take Sinemet CR 50/250 overnight (as well as various daytime medications. Worked well for me. Sinemet CR 50/250 is no longer manufactured. I was offered a generic product, same carbidopa levodopa mix, but extended release rather than continuous release. I have been using this for about 6 weeks
Joynb
in
Cure Parkinson's
4 years ago
P
I'm supposed to start taking sinemet CR 50mg but need to know how will affect me...
I'm supposed to start taking sinemet CR 50mg but need to know how will affect me...
Hidden
in
Cure Parkinson's
4 years ago
Advice
I was told two and a half years ago I had essential tremors but have been diagnosed with Parkinson's and just been on new tablets Madopar for four weeks still building up to a higher dose how long before I see a difference
I was told two and a half years ago I had essential tremors but have been diagnosed with Parkinson's and just been on new tablets Madopar for four weeks still building up to a higher dose how long before I see a difference
lucrob1971
in
National Tremor Foundation
4 years ago
List of PD Supplements and medications
I am doing a little research project on the most used supplements, vitamins and medications that may be useful for PD. At the moment for vitamins/supplements I have Vitamin B1 Mannitol Vitamin D(+ K) Curcumin CoQ10 N-acetylcysteine Lithium Orotate Celery Seed Extract PQQ For standard medications I have
I am doing a little research project on the most used supplements, vitamins and medications that may be useful for PD. At the moment for vitamins/supplements I have Vitamin B1 Mannitol Vitamin D(+ K) Curcumin CoQ10 N-acetylcysteine Lithium Orotate Celery Seed Extract PQQ For standard medications I have
alexask
in
Cure Parkinson's
4 years ago
Madopa kicks in
How long does it take Madopa to start being affective? I've just started on 62.5mg dose yesterday
How long does it take Madopa to start being affective? I've just started on 62.5mg dose yesterday
Dholplayer
in
Cure Parkinson's
4 years ago
Madopa long term
Has anybody been taking Madopa long term who can share their experience, especially side effects?
Has anybody been taking Madopa long term who can share their experience, especially side effects?
Dholplayer
in
Cure Parkinson's
4 years ago
Dyskinesia
Hi, I am a long term sufferer from PD (15yrs) and take regular doses of Madopar and mucuna. My mornings are manageable but early and late evenings I experience terrible dyskinesia after which I feel totally drained. Has anyone found something that would benefit me please?
Hi, I am a long term sufferer from PD (15yrs) and take regular doses of Madopar and mucuna. My mornings are manageable but early and late evenings I experience terrible dyskinesia after which I feel totally drained. Has anyone found something that would benefit me please?
jag73
in
Cure Parkinson's
4 years ago
Neuro patch with madopar
Hi My mum has pd for 5 yrs now and she is slowing down..walking ..very slow. Current medication- madopar 100mg 3 x per day . Neurologist has now recommended Neuro patch..to assist with her pd . Has anyone experienced this patch with there treatment.
Hi My mum has pd for 5 yrs now and she is slowing down..walking ..very slow. Current medication- madopar 100mg 3 x per day . Neurologist has now recommended Neuro patch..to assist with her pd . Has anyone experienced this patch with there treatment.
PSZ28
in
Cure Parkinson's
4 years ago
Madopa meds
Hi does anyone take Madopa meds for PD? PLEASE let me know pro's and cons you have experienced
Hi does anyone take Madopa meds for PD? PLEASE let me know pro's and cons you have experienced
Dholplayer
in
Cure Parkinson's
4 years ago
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