Madopa long term

[Dholplayer]

Has anybody been taking Madopa long term who can share their experience, especially side effects?

[Mie60]

I take Madopar liquid when I wake up and

20 minutes later I can walk!

I take it now for over 10 years without any sideeffects

[Cagey84]

Over 6 years now, no side effects, wouldn’t be without it. A little tip - chewing Madopar capsules gets it absorbed faster.

[Hidden in reply to Cagey84]

But...I've read on here numerous times that prescription PD meds are poisonous chemical drugs with inevitable and unavoidable side effects that are worse than PD.

Perhaps a natural herb is better?

[Grumpy77 in reply to Hidden]

Based on your previous posting history, I reckon this is a kind of sarcasm 👍🏿👍🏿

But anyways the poster was asking about Madopar not C/L

Edit:. Ok you've edited c/l out of your post, great!

[Juliegrace in reply to Hidden]

Horace,

I've supported a lot of your comments, but jumping in with this kind of sarcasm on a post that has nothing to do with the subject you have an issue with is unproductive. The OP does not deserve this sort of negativity and distraction from their reasonable question.

Julie

[Hidden in reply to Juliegrace]

I actually disagree.

I think positive med experiences deserve attention and at the same time should be viewed in light of popular HU narratives about their supposed perils.

It's not like the natural therapy zealots have any issue derailing a thread to promote their ideas. Im actually in favour of considerably tighter moderation of this forum but since we arent getting it, to achieve some balance we might need to say things we ordinarily wouldn't.

[Woofie123]

Good question. I’ve just started on it too, 50 mg in the afternoon to get me going to prepare dinner (on top of kinson earlier in the day)

[DEAT]

I have been on Madopar for nearly 4 years. Dx 2015.

Take 150mg three times a day. No side effects. No increase in that time (dose).

My reservations about starting medication (c/l) were

unfounded.

[Dholplayer in reply to DEAT]

Thanks I am anxious so thank you for the info

[bandmember]

Made me very sick for a few months, but I persevered (and took Domperidone if I felt too bad) because it got rid of my tremor. It's now about 18 months since I started and I'm doing well. Madopar 125 3 times a day

[Dholplayer in reply to bandmember]

Thanks much appreciated

[condor39]

I have been on Madopar 25/100 (Actually, Pro;opa.which is the Canadian version) ,I slowy worked up to a high dose, three capsules every four hours, I started a year ago. I weigh 230 lbs.

I have no side effects,, and take no supplements, of any kind.

[Zella23]

My husband has been on Madopar since 2015 he has been on same dose for 4 years, recently just cut down on a half dose.

Had started to get dyskinesia last autumn, added in Half dose of

Rasigiline and now Amantadine which has almost got rid of dyskinesia.

So now just taking 3 and a half dose of 25/100. Last dose at 6 30 then nothing until 7 30 the next morning. Sleeps very well.

He also takes 3 gms b1 HCL plus other supplements so as to progression of symptoms he would say he’s not so good as last year but still manages to do most of what he wants. Goes to the gym and still walks a lot.

[Dholplayer in reply to Zella23]

Thanks... It helps, but I am still very anxious as I am getting to the point where I need to start meds

[jaybird53 in reply to Dholplayer]

If you haven’t got on meds yet check out the amino acid protocol by Dr Marty Hinz. I’m down to taking one dose a day from three after three years. It not a cure but no side affects so far.

[Dholplayer in reply to jaybird53]

Will do thank... Do you have link or shall I just Google

[jaybird53 in reply to Dholplayer]

Just google. There’s a lot of info on the protocol out there and numerous people on this site that use it

[Dholplayer in reply to jaybird53]

Brill thank you

[Dholplayer in reply to Zella23]

Thanks much appreciated

[Zella23]

No probs - think when my husband first got dx he had already had symptoms going back 4 - 5 years and was getting cross mostly with preparing food, cutting and chopping were difficult.

He took Modopar as given to him by Neuro but he didn’t notice a tremendous difference at the beginning. He still says he doesn’t have off/on times but remains pretty even much of the time.

I wish the Neuro had given him something like Rasigiline then as I think it perhaps would have helped more at the beginning after dx.

He does take it now.

I also wish we had been better informed about Parkinsons, we were ‘like rabbits in the headlights’ and just took the advice given. We have since changed Neurologists.

This website has been amazing and I frequently look for info here.

Keep researching about Parkinson s and the meds so you have some ideas about how they work so you can begin a dialogue with your Neurologist as far as possible.

[Astra7]

Taken it for 4 years. Had to increase dose a bit as time passes, and get a little dystonia when it starts to work (about an hour after taking). Would not be without it - allows me to live a normal life.

As someone mentioned chewing it makes it work more quickly and avoiding protein makes it more effective.

[Dholplayer in reply to Astra7]

What proteins to avoid? I'm a vegetarian

[Astra7 in reply to Dholplayer]

Interesting question.

I avoid meat but I’m not not sure about beans etc as I don’t eat them very much (bit hard to digest for me).

I don’t avoid dairy products but only eat those in relatively small quantities.

Perhaps someone else on this site could advise?