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One year from diagnosis/surgery/BR chemo start
We one year ago on Nov 12th..I had a doctor look at me and say "You have a lymphoma". He sent me to another doctor at the Cleveland Clinic. On Black Friday last year...I had my first of 2 surgery's to determine what type of cancer I had. On December 18th, I was diagnosed with CLL and started chemo the
We one year ago on Nov 12th..I had a doctor look at me and say "You have a lymphoma". He sent me to another doctor at the Cleveland Clinic. On Black Friday last year...I had my first of 2 surgery's to determine what type of cancer I had. On December 18th, I was diagnosed with CLL and started chemo the
momof12
in
CLL Support
8 years ago
Visible lymph nodes after first BR treatment
Hi. My husband Raja just finished his first 2-day session of BR. It went very well and he felt nothing more that sleepiness and overall fatigue for a few days. He also felt flushed in the face during the first week especially when lying down. All these side effects subdued towards the end of the first
Hi. My husband Raja just finished his first 2-day session of BR. It went very well and he felt nothing more that sleepiness and overall fatigue for a few days. He also felt flushed in the face during the first week especially when lying down. All these side effects subdued towards the end of the first
Reem-ayoub
in
Lymphoma Canada
8 years ago
Bendamustine and Rituximab
Hi, I will be starting BR on Dec. 2nd and would love to hear from those who have had this treatment...pros and cons. Anything I need to know? I had R-CHOP in 2007 for Richter's, looks like the remission is over.
Hi, I will be starting BR on Dec. 2nd and would love to hear from those who have had this treatment...pros and cons. Anything I need to know? I had R-CHOP in 2007 for Richter's, looks like the remission is over.
emmiekay
in
CLL Support
8 years ago
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Anyone with Marginal Zone NHL?
Hello. I'm a 54 yr. old female and new here. I was just diagnosed with MZ-NHL (Marginal Zone) last month. Monday I'll be having a bone marrow biopsy and Tuesday a PET scan to help determine my treatment plan. Anyone else have MZ? I was told by my Oncologist that it's one of the better cancers to have
Hello. I'm a 54 yr. old female and new here. I was just diagnosed with MZ-NHL (Marginal Zone) last month. Monday I'll be having a bone marrow biopsy and Tuesday a PET scan to help determine my treatment plan. Anyone else have MZ? I was told by my Oncologist that it's one of the better cancers to have
Calipewings_2016
in
Non Hodgkin's Lymphoma Friends
8 years ago
CAR-T Complete Remission Duration in Follicular Lymphoma
Here is some good news we learned from Dr. Steven Schuster (one of the gurus in CAR-T) during today's Lymphoma Research Foundation "Advances in Immunotherapy in the Treatment of Lymphoma" teleconference Q&A on November 17. Results from his UPENN Abramson Comprehensive Cancer Center follicular lymphoma
Here is some good news we learned from Dr. Steven Schuster (one of the gurus in CAR-T) during today's Lymphoma Research Foundation "Advances in Immunotherapy in the Treatment of Lymphoma" teleconference Q&A on November 17. Results from his UPENN Abramson Comprehensive Cancer Center follicular lymphoma
wmay13241
in
Non Hodgkin's Lymphoma Friends
8 years ago
I am New here
I was diagnosed with waldenstroms macroglobulinemia in June. Have had treatment and now waiting for a CT scan at the end of the month. It seems that this is a rare type of lymphoma.
I was diagnosed with waldenstroms macroglobulinemia in June. Have had treatment and now waiting for a CT scan at the end of the month. It seems that this is a rare type of lymphoma.
Anne946
in
Non Hodgkin's Lymphoma Friends
8 years ago
Chicago LRF Conference News
Except in cases where indications for aggressive
lymphomas
, most commonly for us DLBCL (Diffuse Large B Cell Lymphoma), are indicated. CT scans are not necessary for CLL diagnosis nor is a Bone Marrow Biopsy. CBC (Complete Blood Count) Blood work is all you need for CLL diagnosis period.
Except in cases where indications for aggressive
lymphomas
, most commonly for us DLBCL (Diffuse Large B Cell Lymphoma), are indicated. CT scans are not necessary for CLL diagnosis nor is a Bone Marrow Biopsy. CBC (Complete Blood Count) Blood work is all you need for CLL diagnosis period.
ThreeWs
in
CLL Support
8 years ago
Great to be among new Friends :)
Hi friends, my name is Nancy. I live in Pittsburgh PA. I'm new to this page. I was diagnosed with FNHL in may of 2012. After getting a partial remission in 2014 with retuxan, I relapsed extensively in 2015 requiring 5 cycles of bendamustine. I started retuxan maintenance treatment last month for 2 years
Hi friends, my name is Nancy. I live in Pittsburgh PA. I'm new to this page. I was diagnosed with FNHL in may of 2012. After getting a partial remission in 2014 with retuxan, I relapsed extensively in 2015 requiring 5 cycles of bendamustine. I started retuxan maintenance treatment last month for 2 years
dermnurse
in
Non Hodgkin's Lymphoma Friends
8 years ago
CRISPR gene-editing tested in a person for the first time, treating aggressive lung cancer
[i]'A Chinese group has become the first to inject a person with cells that contain genes edited using the revolutionary CRISPR–Cas9 technique.[/i] [i]On 28 October, a team led by oncologist Lu You at Sichuan University in Chengdu delivered the modified cells into a patient with aggressive lung cancer
[i]'A Chinese group has become the first to inject a person with cells that contain genes edited using the revolutionary CRISPR–Cas9 technique.[/i] [i]On 28 October, a team led by oncologist Lu You at Sichuan University in Chengdu delivered the modified cells into a patient with aggressive lung cancer
AussieNeil
Partner
in
CLL Support
8 years ago
Hi I'm new here
I'm new here. Does anyone have or know of someone that has Cutaneous T Cell Lymphoma? I was diagnosed in September and have joined other sites, but am unable to connect with others who have this,
I'm new here. Does anyone have or know of someone that has Cutaneous T Cell Lymphoma? I was diagnosed in September and have joined other sites, but am unable to connect with others who have this,
budsmom912
in
Non Hodgkin's Lymphoma Friends
8 years ago
Agressive B Cell - Marginal Zone
I was first diagnoised December 2012 was Agressive B Cell. I had 6 chop chemos every 3 weeks. Then 2 more, because it was still in bone marrow in my right leg. Clear PET and 8 days before 2 year diagnosis, I had Marginal Zone. 6 Rituxin drips every Friday for 6 weeks and the 1 every other month for 1
I was first diagnoised December 2012 was Agressive B Cell. I had 6 chop chemos every 3 weeks. Then 2 more, because it was still in bone marrow in my right leg. Clear PET and 8 days before 2 year diagnosis, I had Marginal Zone. 6 Rituxin drips every Friday for 6 weeks and the 1 every other month for 1
dbalthrop
in
Non Hodgkin's Lymphoma Friends
8 years ago
Burkitt's NH Lymphoma - extranodal
Hi everyone. I am 56 yr old female and am now 9 months cancer free!. I was diagnosed with Large B-cell NH lymphoma in June 2015. The biopsy showed Burkitt-like behavior so my dx was Burkitt's. The treatment plan was Hyper-CVAD alternating with High dose Methotrexate plus cytarabine with Rituxamab
Hi everyone. I am 56 yr old female and am now 9 months cancer free!. I was diagnosed with Large B-cell NH lymphoma in June 2015. The biopsy showed Burkitt-like behavior so my dx was Burkitt's. The treatment plan was Hyper-CVAD alternating with High dose Methotrexate plus cytarabine with Rituxamab
ntbusby
in
Non Hodgkin's Lymphoma Friends
8 years ago
Mantle Cell Lymphoma
Hello! Would really appreciate feedback on treatment options for Indolent Mantle Cell Lymphoma for a healthy 49 year old male. Anyone familiar with Bendamustine/ Rituximab followed by Autologous SCT? Thank you, Reem
Hello! Would really appreciate feedback on treatment options for Indolent Mantle Cell Lymphoma for a healthy 49 year old male. Anyone familiar with Bendamustine/ Rituximab followed by Autologous SCT? Thank you, Reem
Reem-ayoub
in
Lymphoma Canada
8 years ago
CLL Research Down Under into BTK cardiotoxicity, e.g. development of AF on Ibrutinib - from CLL Global Research Foundation
From the CLL Global Research Foundation - October / November Issue [i]'Earlier this year CLL Global was approached by a donor interested in making a contribution that would be directed specifically towards research into cardiotoxicity associated with Bruton's tyrosine kinase (BTK) inhibitors such as
From the CLL Global Research Foundation - October / November Issue [i]'Earlier this year CLL Global was approached by a donor interested in making a contribution that would be directed specifically towards research into cardiotoxicity associated with Bruton's tyrosine kinase (BTK) inhibitors such as
AussieNeil
Partner
in
CLL Support
8 years ago
Help night sweats
Hello thank you for allowing me to be part of your group. I was diagnosed in 2012 with lymphoma the cancer had attacked my L2 and I have a small hole in that bone. I had radiation and chemo. I also had 9 shots of ge a reclass drug. They did scans recently because I was having so much trouble with my
Hello thank you for allowing me to be part of your group. I was diagnosed in 2012 with lymphoma the cancer had attacked my L2 and I have a small hole in that bone. I had radiation and chemo. I also had 9 shots of ge a reclass drug. They did scans recently because I was having so much trouble with my
clairerrut
in
Non Hodgkin's Lymphoma Friends
8 years ago
PCa & Alzheimer's disease
SMR > 1,000 for
lymphomas
, p < 0.001). The highest SMRs were typically within the first year after cancer diagnosis (SMRs 10 - 10,000, p < 0.001). Prostate cancer patients had increasing SMRs from Alzheimer's disease, as did testicular patients from suicide.
SMR > 1,000 for
lymphomas
, p < 0.001). The highest SMRs were typically within the first year after cancer diagnosis (SMRs 10 - 10,000, p < 0.001). Prostate cancer patients had increasing SMRs from Alzheimer's disease, as did testicular patients from suicide.
pjoshea13
in
Advanced Prostate Cancer
8 years ago
Gluten-free & Dapsone - but still struggling
I've been GF and on Dapsone for two full years. I've been treating at Mayo Clinic where their reputation leads one to be optimistic about resolving this miserable condition. This week I told the doc that perhaps I should stop the Dapsone - to see if it actually makes any difference - because my symptoms
I've been GF and on Dapsone for two full years. I've been treating at Mayo Clinic where their reputation leads one to be optimistic about resolving this miserable condition. This week I told the doc that perhaps I should stop the Dapsone - to see if it actually makes any difference - because my symptoms
dwaage1
in
Gluten Free Guerrillas
8 years ago
Starting clinical trial for non noudle marginal lymphoma
Hi my name is Theresa, I was diagnosed with low grade marginal Lymphoma almost 2 years ago,. At that time I had a mass on back for which I received radiation and rituxin infusion once every week for four weeks and a maintenance schedule of once every two months for a 2 year period. I was about 6 months
Hi my name is Theresa, I was diagnosed with low grade marginal Lymphoma almost 2 years ago,. At that time I had a mass on back for which I received radiation and rituxin infusion once every week for four weeks and a maintenance schedule of once every two months for a 2 year period. I was about 6 months
Tmcarmicino
in
Non Hodgkin's Lymphoma Friends
8 years ago
Sharing resources
Hi Everyone - I am new to this online community. I am not a cancer patient, however I am a caregiver with substantial cancer experience. I provided primary care to both of my parents following their diagnosis and treatment for bladder cancer (both deceased). When my husband was diagnosed originally
Hi Everyone - I am new to this online community. I am not a cancer patient, however I am a caregiver with substantial cancer experience. I provided primary care to both of my parents following their diagnosis and treatment for bladder cancer (both deceased). When my husband was diagnosed originally
AnneNewman
in
Non Hodgkin's Lymphoma Friends
8 years ago
Watch and Wait - LGFL
I was diagnosed in July of 2015 with Low Grade Follicular Lymphoma. I had one node which was surgically removed. I am stage 1 Grade 1. I am in watch and wait. I wish there was some treatment that could cure this since I am in a low level but my oncologists says there is not. Although I am fine it
I was diagnosed in July of 2015 with Low Grade Follicular Lymphoma. I had one node which was surgically removed. I am stage 1 Grade 1. I am in watch and wait. I wish there was some treatment that could cure this since I am in a low level but my oncologists says there is not. Although I am fine it
Josie2rulrs
in
Non Hodgkin's Lymphoma Friends
8 years ago
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