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Understanding High Iron
Hi everyone. For those diagnosed with Leukemia, can you tell me what your Iron and Ferritin levels are? These are typically elevated in Leukemia patients. I have a follow-up and consultation with my doctor coming in a few weeks but am gathering a bit of information (aside from google searches) on my
Hi everyone. For those diagnosed with Leukemia, can you tell me what your Iron and Ferritin levels are? These are typically elevated in Leukemia patients. I have a follow-up and consultation with my doctor coming in a few weeks but am gathering a bit of information (aside from google searches) on my
UhOhCKD
in
Leukaemia Support
3 years ago
immunohistochemistry need help understanding
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
kp58ny
in
CLL Support
3 years ago
Cost for treatment
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Rubymom
in
CLL Support
3 years ago
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Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Mtk1
in
CLL Support
3 years ago
World CLL Day
Good morning, 1st September, where is the year going. Getting used to it being dull now, longing for some sun. Blood tests this morning and then possibly a journalist in conjunction with Leukaemia Care calling to do an interview for Spot Leukaemia Early campaign month. Have already made a video which
Good morning, 1st September, where is the year going. Getting used to it being dull now, longing for some sun. Blood tests this morning and then possibly a journalist in conjunction with Leukaemia Care calling to do an interview for Spot Leukaemia Early campaign month. Have already made a video which
kitchengardener2
in
CLL Support
3 years ago
Red painful Feet
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
Marchmouse
in
CLL Support
3 years ago
Myelofibrosis worsened so going to start ruxolitinib
I've had my second consultant appointment since being diagnosed with post ET myelofibrosis about 1 month ago. Then I was intermediate level 1 with platelet count 117 which gave me a median survival of 14 years. Now my platelets have gone down to about 70 do I'm now intermediate level 2 with a median
I've had my second consultant appointment since being diagnosed with post ET myelofibrosis about 1 month ago. Then I was intermediate level 1 with platelet count 117 which gave me a median survival of 14 years. Now my platelets have gone down to about 70 do I'm now intermediate level 2 with a median
Scaredy_cat
in
MPN Voice
3 years ago
Richter Transformation Update 21-06-2021
Chronic
lymphocytic
leukemia
, two breast cancers, and a Ricther transformation. In remission of all four. A miracle. A hug colleagues and to all those who are diagnosed with Ricther's Transformation, you can contact our group to have contact with other people who have the same disease.
Chronic
lymphocytic
leukemia
, two breast cancers, and a Ricther transformation. In remission of all four. A miracle. A hug colleagues and to all those who are diagnosed with Ricther's Transformation, you can contact our group to have contact with other people who have the same disease.
Priss69
in
CLL Support
3 years ago
HLH & CLL
Hi All, CLL diagnosed in 2014 and HLH on top of that in 2018. HLH makes CLL look like a cold it's nasty and I thank God for every day that I'm still here and as of yet not needed a transplant. I'm now 43 years of age. Is anyone out there in the same boat? Have a great weekend all! 😊
Hi All, CLL diagnosed in 2014 and HLH on top of that in 2018. HLH makes CLL look like a cold it's nasty and I thank God for every day that I'm still here and as of yet not needed a transplant. I'm now 43 years of age. Is anyone out there in the same boat? Have a great weekend all! 😊
Shirty78
in
CLL Support
3 years ago
New Diagnosis - Everything Normal except cytology
Just diagnosed this month, age 49. My lymphocytes are elevated and my cytology shows “atypical” CLL. All my other labs were good and I am mutated with normal FISH results. My doc says this is all good but I feel like I’m waiting for the other shoe to drop. Like someone is going to come to me and say,
Just diagnosed this month, age 49. My lymphocytes are elevated and my cytology shows “atypical” CLL. All my other labs were good and I am mutated with normal FISH results. My doc says this is all good but I feel like I’m waiting for the other shoe to drop. Like someone is going to come to me and say,
Keggs2020
in
CLL Support
3 years ago
Step out for Spot Leukaemia to help fund support for people affected by a diagnosis of leukaemia
September is Blood Cancer Awareness Month and the Leukaemia Care Spot Leukaemia campaign begins. Please consider joining us in fundraising activities to help support people affected by a diagnosis of leukaemia. The Step out for Spot Leukaemia is a terrific opportunity to have a socially distanced adventure
September is Blood Cancer Awareness Month and the Leukaemia Care Spot Leukaemia campaign begins. Please consider joining us in fundraising activities to help support people affected by a diagnosis of leukaemia. The Step out for Spot Leukaemia is a terrific opportunity to have a socially distanced adventure
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
First results of a head-to-head trial of acalabrutinib versus ibrutinib in previously treated chronic lymphocytic leukemia.
We conducted an open-label, randomized, noninferiority, phase 3 trial to compare Aca vs Ib in patients (pts) with chronic
lymphocytic
leukemia
(CLL).
We conducted an open-label, randomized, noninferiority, phase 3 trial to compare Aca vs Ib in patients (pts) with chronic
lymphocytic
leukemia
(CLL).
Jm954
Administrator
in
CLL Support
3 years ago
Covid Anti-body Tests through LLS
The Leukemia and Lymphoma Society has set up a registry and is offering a testing program to patients. Sign up through the LLS COVID -19 Patient Registry at: https://www.ciitizen.com/lls/
The Leukemia and Lymphoma Society has set up a registry and is offering a testing program to patients. Sign up through the LLS COVID -19 Patient Registry at: https://www.ciitizen.com/lls/
michaeledward
in
CLL Support
3 years ago
Pfizer buys a company
They bought Trillium. I mention this because this company has a few blood cancer treatments in its pipeline including one that targets TP-53 mutation but for AML and NOT CLL, at least not yet. Still, with their expertise in the realm of treatments for blood cancers and now with the added resources of
They bought Trillium. I mention this because this company has a few blood cancer treatments in its pipeline including one that targets TP-53 mutation but for AML and NOT CLL, at least not yet. Still, with their expertise in the realm of treatments for blood cancers and now with the added resources of
Luap001
in
CLL Support
3 years ago
CAR-T post 9 months
Hi all Just the latest update on me - I’m still MRD negative 9 months after my CAR-T for aggressive CLL at the Peter Mac in Melbourne. Sadly the trial has now closed its CLL arm so only 9 of us in the world got this treatment for CLL. Here’s a more detailed update shared with the Leukaemia Foundation
Hi all Just the latest update on me - I’m still MRD negative 9 months after my CAR-T for aggressive CLL at the Peter Mac in Melbourne. Sadly the trial has now closed its CLL arm so only 9 of us in the world got this treatment for CLL. Here’s a more detailed update shared with the Leukaemia Foundation
Debinoz
in
CLL Support
3 years ago
LLS Ciitizen USA Study Shows Most Blood Cancer Patients Benefit from an Additional (3rd) COVID-19 Vaccine Dose
However, these rates vary by cancer type, with non-Hodgkin Lymphoma (NHL) and chronic
lymphocytic
leukemia
(CLL) patients less likely to have detectable antibodies. Patients with these forms of cancer have a diminished response to vaccination because NHL and CLL can deplete the body’s B-cells.
However, these rates vary by cancer type, with non-Hodgkin Lymphoma (NHL) and chronic
lymphocytic
leukemia
(CLL) patients less likely to have detectable antibodies. Patients with these forms of cancer have a diminished response to vaccination because NHL and CLL can deplete the body’s B-cells.
lankisterguy
Volunteer
in
CLL Support
3 years ago
CLL Transform to Lymphoma?
My ophthalmologist specialist is pretty sure I have ocular lymphoma. I will have a biopsy on August 25th. Does anyone have background on CLL combining with lymphoma?
My ophthalmologist specialist is pretty sure I have ocular lymphoma. I will have a biopsy on August 25th. Does anyone have background on CLL combining with lymphoma?
cll2013
in
CLL Support
3 years ago
How Good is the Level of Scientific Evidence Underlying the National Comprehensive Cancer Network Clinical Practice (NCCN) CLL Guidelines?
Our community support team take pride in maintaining reliable content in this community. When your life depends on it, you need confidence that what you are reading will give you the information you need. That way you can intelligently question your medical support team for reassurance that they are
Our community support team take pride in maintaining reliable content in this community. When your life depends on it, you need confidence that what you are reading will give you the information you need. That way you can intelligently question your medical support team for reassurance that they are
AussieNeil
Partner
in
CLL Support
3 years ago
Lactase Dehydogenase level high!
I started seeing an MPN specialist on July 1. He tested for lactase dehydrogenase and in was 242. I just had it repeated and it is now 327. My platelets rose from 648 to 725, wbc went from 13 to 16. HCT went down a little bit from 48.3 to 47.5 which I think both are high for female. I am really bothered
I started seeing an MPN specialist on July 1. He tested for lactase dehydrogenase and in was 242. I just had it repeated and it is now 327. My platelets rose from 648 to 725, wbc went from 13 to 16. HCT went down a little bit from 48.3 to 47.5 which I think both are high for female. I am really bothered
Wewo01
in
MPN Voice
3 years ago
New Study reveals vaccines not very effective for CLL and MM patients
Two new studies published in Blood suggest that the mRNA COVID-19 vaccine may have reduced efficacy in individuals with chronic
lymphocytic
leukemia
(CLL) and multiple myeloma, two types of blood cancer.
Two new studies published in Blood suggest that the mRNA COVID-19 vaccine may have reduced efficacy in individuals with chronic
lymphocytic
leukemia
(CLL) and multiple myeloma, two types of blood cancer.
naddude
in
CLL Support
3 years ago
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