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Stuck!- Now Surviving on an All Clear Liquid Diet.
Hey all, I just wanted to post an update on my personal Colon Cancer Stage 4 journey. Things have taken a very strange and not good turn for me. I truly am very Worried and Concerned about the refusal of local Drs. to put a Stent into my Colon -(they all say I desperately Need!), so that I can go on
Hey all, I just wanted to post an update on my personal Colon Cancer Stage 4 journey. Things have taken a very strange and not good turn for me. I truly am very Worried and Concerned about the refusal of local Drs. to put a Stent into my Colon -(they all say I desperately Need!), so that I can go on
Hidden
in
Colon Cancer Connected
1 year ago
another lump!
my partners only 8 weeks post op after lobectomy and 4 ribs removed.. 3A NSCC due to start chemo soon and has taken unwell. He’s now in hospital had a ct scan to show another lump to middle lobe.. same thing it looks like an abscess but that’s how the first presented. I’m so scared right now just when
my partners only 8 weeks post op after lobectomy and 4 ribs removed.. 3A NSCC due to start chemo soon and has taken unwell. He’s now in hospital had a ct scan to show another lump to middle lobe.. same thing it looks like an abscess but that’s how the first presented. I’m so scared right now just when
Clareoh
in
The Roy Castle Lung Cancer Foundation
1 year ago
Tagrisso vs Erlotinib
Hi All, Dad had results of liquid biopsy and EGFR positive, Oncologist has recommended Erlotinib ( NHS treatment). We understand that his diagnosis T4 N2 M0 is non curative but trying to balance quality of life and length; chemo and a standard biopsy were deemed not tolerable for my 89 yr old dad. Silly
Hi All, Dad had results of liquid biopsy and EGFR positive, Oncologist has recommended Erlotinib ( NHS treatment). We understand that his diagnosis T4 N2 M0 is non curative but trying to balance quality of life and length; chemo and a standard biopsy were deemed not tolerable for my 89 yr old dad. Silly
Adaughter
in
The Roy Castle Lung Cancer Foundation
1 year ago
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latest bloods - thoughts please
Hello all History - partial lobectomy 2001 - no meds needed Remaining thyroid removed Sept 2021 - thyroxine 150mcg reduced to 125 and again to 100mcg June 2022. History of low ferritin- heavy bleeding every month due to a polyp that needs removing. I have no breakdowns of vitamins because they’ve
Hello all History - partial lobectomy 2001 - no meds needed Remaining thyroid removed Sept 2021 - thyroxine 150mcg reduced to 125 and again to 100mcg June 2022. History of low ferritin- heavy bleeding every month due to a polyp that needs removing. I have no breakdowns of vitamins because they’ve
Pow1977
in
Thyroid UK
1 year ago
Happy Monday 😊
Good morning all, well after finally getting an appointment with the Chest clinic at the hospital, after my phoned appointment was cancelled four times. I got to see a specialist. I have had COPD for years now, taken lots of different inhalers. The specialist told me I have severe COPD, and told Trimbow
Good morning all, well after finally getting an appointment with the Chest clinic at the hospital, after my phoned appointment was cancelled four times. I got to see a specialist. I have had COPD for years now, taken lots of different inhalers. The specialist told me I have severe COPD, and told Trimbow
purdeyspringer
in
Lung Conditions Community Forum
1 year ago
weak voice
I had upper left lobectomy November 21 which went well and no further treatment required so feel very lucky. The cancer was discovered by chance following an X-ray for something else. Since November 22 I have suffered continuously with chest infections, one after another. I’m being treated for COPD
I had upper left lobectomy November 21 which went well and no further treatment required so feel very lucky. The cancer was discovered by chance following an X-ray for something else. Since November 22 I have suffered continuously with chest infections, one after another. I’m being treated for COPD
Brookbond
in
The Roy Castle Lung Cancer Foundation
1 year ago
Given clear ct scan but it wasn't true
I had a lobectomy last March, 20mm metastases after bowel cancer. Got follow up ct scans May 22 and August 22, told they were completely clear. Had ct scan Feb 23, told chest lymph nodes enlarged. Asked for copy of ct report and the lymph node issue was noted in the previous ct scan. I have at least
I had a lobectomy last March, 20mm metastases after bowel cancer. Got follow up ct scans May 22 and August 22, told they were completely clear. Had ct scan Feb 23, told chest lymph nodes enlarged. Asked for copy of ct report and the lymph node issue was noted in the previous ct scan. I have at least
SunshineM
in
The Roy Castle Lung Cancer Foundation
1 year ago
saving my dad
Hi all! My dad was recently diagnosed with Pulmonary Fibrosis. He is only 64 years old and last year this same time he was in great health! Drs are unsure if it’s IPF or another severe form of pulmonary fibrosis. He had a lung biopsy that came back inconclusive. He relies on full time oxygen and coughs
Hi all! My dad was recently diagnosed with Pulmonary Fibrosis. He is only 64 years old and last year this same time he was in great health! Drs are unsure if it’s IPF or another severe form of pulmonary fibrosis. He had a lung biopsy that came back inconclusive. He relies on full time oxygen and coughs
Timslungs
in
Lung Conditions Community Forum
1 year ago
Lung cancer and Keytruda
I was diagnosed with adenicarcinoma Stage 4, T1B, N3, M1B in January 2023 and offered Pembrolizumab (Keytruda) having a PD-LI expression of 50%. I have had 4 6-weekly cycles so far , with a CT scan after the first 2 sessions and I am due to have another in a couple of weeks - before I have cycle 5. My
I was diagnosed with adenicarcinoma Stage 4, T1B, N3, M1B in January 2023 and offered Pembrolizumab (Keytruda) having a PD-LI expression of 50%. I have had 4 6-weekly cycles so far , with a CT scan after the first 2 sessions and I am due to have another in a couple of weeks - before I have cycle 5. My
KipperKate
in
The Roy Castle Lung Cancer Foundation
1 year ago
Strategic Masking to Protect Patients from All Respiratory Viral Infections
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
https://www.nejm.org/doi/full/10.1056/NEJMp2306223 - The end of the public health emergency in the United States is a richly symbolic milestone in the course of the SARS-CoV-2 pandemic. During the height of the pandemic, the virus killed millions of people worldwide, upended lives, and radically altered
lankisterguy
Volunteer
in
CLL Support
1 year ago
lung hyperinflation,
Having severe shortness of breath month now, chest xray shows moderate lung hyperinflation. Can this be caused by anxiety?
Having severe shortness of breath month now, chest xray shows moderate lung hyperinflation. Can this be caused by anxiety?
msthingy123
in
Lung Conditions Community Forum
1 year ago
Join Us! Tuesday July 11th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tuesday, July 11th, at 5pm PT/8pm ET. At this meeting
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tuesday, July 11th, at 5pm PT/8pm ET. At this meeting
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
Life After Colectomy/Colon Resection Surgery
Hello, Could anyone please share about their experience with a colon resection surgery? Changes in urgency or incontinence or pain? What about eating? Can you eat seeds or nutshell, etc.? How long to heal? Thanks.
Hello, Could anyone please share about their experience with a colon resection surgery? Changes in urgency or incontinence or pain? What about eating? Can you eat seeds or nutshell, etc.? How long to heal? Thanks.
Gorsundar
in
Colon Cancer Connected
1 year ago
Poor immune system since lobectomy
Hi, I had a lower right lobectomy last January and despite recovering well - back in work 4 months after the opI am beginning to struggle. Every time I get an infection or cold my body seems to refuse to fight it like it used to, I’ve even had Bell’s palsy. My immune system feels like it is shot! My
Hi, I had a lower right lobectomy last January and despite recovering well - back in work 4 months after the opI am beginning to struggle. Every time I get an infection or cold my body seems to refuse to fight it like it used to, I’ve even had Bell’s palsy. My immune system feels like it is shot! My
Beaniesboo
in
The Roy Castle Lung Cancer Foundation
1 year ago
out of hosital now
Im now out of hospital now thankfully (until the next time my levels go down) with bruises all over my right hand This is because despite me telling them I didnt need a canula in because last time i was in my specialist asked why I was wearing one (&I said i thought it was standard procedure
Im now out of hospital now thankfully (until the next time my levels go down) with bruises all over my right hand This is because despite me telling them I didnt need a canula in because last time i was in my specialist asked why I was wearing one (&I said i thought it was standard procedure
horseygirl_0103
in
Lung Conditions Community Forum
1 year ago
St. Patrick's Tradition in Chicago
I don't post a lot but I love the amazing advice given here. I appreciate the science-based knowledge shared. I am a Respiratory Therapy student in Chicago. I also have Bronchiectasis and had a lower left lobectomy in Oct. 2019. My excuse for not posting more is that I am a mom of 3, I have a job, my
I don't post a lot but I love the amazing advice given here. I appreciate the science-based knowledge shared. I am a Respiratory Therapy student in Chicago. I also have Bronchiectasis and had a lower left lobectomy in Oct. 2019. My excuse for not posting more is that I am a mom of 3, I have a job, my
Schmu
in
Lung Conditions Community Forum
1 year ago
Life After Colectomy - Colon Resection
Hello. Can anyone tell me realistically their experience after colectomy- colon resection surgery? I have been offered a left hemicolectomy and want to know what the true recovery is. Surgeons are minimizing the recovery and say once healed you will probably not notice anything. I have a hard time
Hello. Can anyone tell me realistically their experience after colectomy- colon resection surgery? I have been offered a left hemicolectomy and want to know what the true recovery is. Surgeons are minimizing the recovery and say once healed you will probably not notice anything. I have a hard time
Gorsundar
in
SHARE Ovarian Cancer Support
1 year ago
Join Us! Tomorrow, June 13th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, June 13th, at 5pm PT/8pm ET. At this meeting
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tomorrow, June 13th, at 5pm PT/8pm ET. At this meeting
Michelezeh
Partner
in
Lung Cancer Support
1 year ago
BIOMARKER TESTING
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
My wife has extensive small cell lung cancer (SCLC-E) and has undergone chemotherapy, immunotherapy and radiotherapy. Her lung tumor is currently stable and I want to get options if her current immunotherapy (atezolizumab every three weeks) becomes ineffective. There are several chemotherapy options
Info911
in
The Roy Castle Lung Cancer Foundation
1 year ago
hyperventilating
Everytime I cough hard as a result of breathlessness because of any slight movemnt I make Ive started hyperventilating this has only happened very recently Im used to getting sick after it but its scary this hyperventilating its very scary Ive never Mum once again wont accept that Im hyperventilating
Everytime I cough hard as a result of breathlessness because of any slight movemnt I make Ive started hyperventilating this has only happened very recently Im used to getting sick after it but its scary this hyperventilating its very scary Ive never Mum once again wont accept that Im hyperventilating
horseygirl_0103
in
Lung Conditions Community Forum
1 year ago
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