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Experiences with
Lung lobectomy
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Hello- I am 50yo woman and have been battling stage 4 nsc lung cancer for a little over a year now. I've have chemo (Carboplatin and Alimta) , then maintenance with only Alimta. The full chemo had good progress but once I went on maintenance it started to grow and the pain in my bones is coming back
Hello- I am 50yo woman and have been battling stage 4 nsc lung cancer for a little over a year now. I've have chemo (Carboplatin and Alimta) , then maintenance with only Alimta. The full chemo had good progress but once I went on maintenance it started to grow and the pain in my bones is coming back
Lexis6767
in
Lung Cancer Support
7 years ago
Are you a man affected by cancer, if so can you help with some research
hello all, below are details from a research project looking for men who have viewed support services as part of managing their cancer. Please use the contact below if you are able to assist. Male cancer patients are invited for a research, which aims to examine the impact of non-clinical services on
hello all, below are details from a research project looking for men who have viewed support services as part of managing their cancer. Please use the contact below if you are able to assist. Male cancer patients are invited for a research, which aims to examine the impact of non-clinical services on
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
7 years ago
I’m new here
Hi, I had a right middle Lobectomy 4 weeks ago biopsy showed pulmonary adenocarcinoma T2aN0M0 so no adjuvant chimo or radiation, but CT scans every 4 months. I feel really strange being in this nowhere-land and have so many questions like; how long after vats lobectomy will I feel well? When should
Hi, I had a right middle Lobectomy 4 weeks ago biopsy showed pulmonary adenocarcinoma T2aN0M0 so no adjuvant chimo or radiation, but CT scans every 4 months. I feel really strange being in this nowhere-land and have so many questions like; how long after vats lobectomy will I feel well? When should
Metafran
in
Lung Cancer Support
7 years ago
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Tracheobroncomalacia
Hi after several studies to see if I am a candidate for a long transplant, de doctor said that I have a test tracheobroncomalacia. They referral me from doing the lung transplant there because they said that they have no experience. This happens at the SaintJoseph Hospital in Arizona. They suggest it
Hi after several studies to see if I am a candidate for a long transplant, de doctor said that I have a test tracheobroncomalacia. They referral me from doing the lung transplant there because they said that they have no experience. This happens at the SaintJoseph Hospital in Arizona. They suggest it
ajua
in
COPD Friends
7 years ago
Lung Surgery is on Hold
After visiting my consultant ideas told that I needed major lung surgery as my right lung is in a really bad state. This was going to be a problem as I was told years ago by the army physician that I am allergic to general anesthetic. On seeing the Surgeon I explained to him about this and I was told
After visiting my consultant ideas told that I needed major lung surgery as my right lung is in a really bad state. This was going to be a problem as I was told years ago by the army physician that I am allergic to general anesthetic. On seeing the Surgeon I explained to him about this and I was told
Goalsetterphil
in
COPD Friends
7 years ago
How long does it take to recover from a Lobectomy?
Hello, my husband has to have his middle lung removed. It's not cancer. However there are masses growing causing blocked airways. The doctors are saying it would be 2 weeks of recovery time. I on the other hand do not believe that. They will be opening up the chest so I'm finding it hard to believe he
Hello, my husband has to have his middle lung removed. It's not cancer. However there are masses growing causing blocked airways. The doctors are saying it would be 2 weeks of recovery time. I on the other hand do not believe that. They will be opening up the chest so I'm finding it hard to believe he
Darnate71
in
Lung Cancer Support
7 years ago
Lung transplant having a celebratory drink.
Good morning everyone, I am currently trying to get on the lung transplant list in the UK. I occasionally at party’s and Birthday celebrations toast a glass or two to the person celebrating. My question is if I am successful in getting on the list and having the surgery is the rule that you don’t drink
Good morning everyone, I am currently trying to get on the lung transplant list in the UK. I occasionally at party’s and Birthday celebrations toast a glass or two to the person celebrating. My question is if I am successful in getting on the list and having the surgery is the rule that you don’t drink
Joseph260268
in
Lung Conditions Community Forum
7 years ago
Are you receiving or have you received immunotherapy for non small cell lung cancer (NSCLC) in the last 12 months?
I've had a request from Patient Power for help from UK lung cancer patients who may be eligible to take part in a survey about their experience with their immunotherapy treatments. If you or anyone you know is eligible, please contact Laura directly at laura@patientpower.info if you or they fit the
I've had a request from Patient Power for help from UK lung cancer patients who may be eligible to take part in a survey about their experience with their immunotherapy treatments. If you or anyone you know is eligible, please contact Laura directly at laura@patientpower.info if you or they fit the
JanetteR57
in
The Roy Castle Lung Cancer Foundation
7 years ago
Salt lamps
Hi everyone merry Christmas! I'm one year post op single lung transplant, I'm currently going thru a chest infection for which I'm on extremely strong antibiotics for, I have a salt lamp and use eucalyptus oil and peppermint in it, I don't know if it's supposed to be doing its job or not!! Does anyone
Hi everyone merry Christmas! I'm one year post op single lung transplant, I'm currently going thru a chest infection for which I'm on extremely strong antibiotics for, I have a salt lamp and use eucalyptus oil and peppermint in it, I don't know if it's supposed to be doing its job or not!! Does anyone
Hidden
in
Lung Conditions Community Forum
7 years ago
Opdivo..What do You Know
Help. Doctor has changed mind again. He is now checking my insurance to see if it will approve me trying Opdivo. I have read about the side affects and am worried. Has anyone tried this immunotherapy drug? I read an article recently that Keytruda was doing better for certain people but it appears
Help. Doctor has changed mind again. He is now checking my insurance to see if it will approve me trying Opdivo. I have read about the side affects and am worried. Has anyone tried this immunotherapy drug? I read an article recently that Keytruda was doing better for certain people but it appears
Marymac4441
in
Lung Cancer Support
7 years ago
Ruth
I was diagnosed last year with
lung
cancer I had a right upper
lobectomy
and went through chemo In December 16 my scan was 100% clear so was a time to celebrate x Had a scan in march 2017 and it was back but in my main chest gland as you can imagine devastation on telling my family it was back !!
I was diagnosed last year with
lung
cancer I had a right upper
lobectomy
and went through chemo In December 16 my scan was 100% clear so was a time to celebrate x Had a scan in march 2017 and it was back but in my main chest gland as you can imagine devastation on telling my family it was back !!
Birchley1
in
The Roy Castle Lung Cancer Foundation
7 years ago
Bexsta35
my mum has recently had a left
lung
lobectomy
they removed the tumour it was 6.2 cm, test showed it had not travelled to the lymph nodes. however they have found something in her spine. Mum had adenocarcinoma, is this safe to say the cancer has spread to the spine,!!!!!
my mum has recently had a left
lung
lobectomy
they removed the tumour it was 6.2 cm, test showed it had not travelled to the lymph nodes. however they have found something in her spine. Mum had adenocarcinoma, is this safe to say the cancer has spread to the spine,!!!!!
Bexsta35
in
The Roy Castle Lung Cancer Foundation
7 years ago
Severe Anxiety!
I thought I had got on top of this issue but.... about 7 weeks ago it returned!!! I call it my wobbles!!! Psyching myself up to go anywhere even to work in the morning or home in the evening!!! I get shortness of breath, tight back, tight tummy and an obsessive need for the toilet!!! I always calm myself
I thought I had got on top of this issue but.... about 7 weeks ago it returned!!! I call it my wobbles!!! Psyching myself up to go anywhere even to work in the morning or home in the evening!!! I get shortness of breath, tight back, tight tummy and an obsessive need for the toilet!!! I always calm myself
Lynnelovessunshine
in
Lung Conditions Community Forum
7 years ago
Am I the only one
On October 21, 2014 I had surgery for a Right Upper Lobectomy. At that time they removed several lymph nodes and they were clear, meaning no Cancer. I have been told by many that I was lucky to have had surgery and the Surgeon was able to remove all the Cancer . I know that I am lucky to have had surgery
On October 21, 2014 I had surgery for a Right Upper Lobectomy. At that time they removed several lymph nodes and they were clear, meaning no Cancer. I have been told by many that I was lucky to have had surgery and the Surgeon was able to remove all the Cancer . I know that I am lucky to have had surgery
mbrad24
in
Lung Cancer Support
7 years ago
Matt says hi
So Matt hasn't been on much as his RA has been bad and his hands hurt. He's now concerned that the RA might affect the requirements for lung transplant but still waiting to see. He sends his love to all. I hope you could send him some healing thoughts and I will get him to read them .
So Matt hasn't been on much as his RA has been bad and his hands hurt. He's now concerned that the RA might affect the requirements for lung transplant but still waiting to see. He sends his love to all. I hope you could send him some healing thoughts and I will get him to read them .
allanah
in
NRAS
7 years ago
The FDA approves a new test to look at mutations in many types of cancers, including lung cancer
Yesterday the FDA approved a test that can detect mutations in 324 genes and two genomic signatures in any type of solid tumor (including lung cancer). The Centers for Medicare & Medicaid Services (CMS) also proposed coverage of this test. This one test could allow doctors to better understand the profile
Yesterday the FDA approved a test that can detect mutations in 324 genes and two genomic signatures in any type of solid tumor (including lung cancer). The Centers for Medicare & Medicaid Services (CMS) also proposed coverage of this test. This one test could allow doctors to better understand the profile
MFH_Advocate
in
Lung Cancer Support
7 years ago
Anxious and scared
I have a shadow on my lung 4cm , waiting for pet scan to see if it's anywhere else or just my right lung, I have cried given my self death sentence, all very strange had a cough for 4/6 weeks had x ray then ct scan 5 days later had my first lung clinic appointment past all the tests 100% not breathless
I have a shadow on my lung 4cm , waiting for pet scan to see if it's anywhere else or just my right lung, I have cried given my self death sentence, all very strange had a cough for 4/6 weeks had x ray then ct scan 5 days later had my first lung clinic appointment past all the tests 100% not breathless
Sherriehope
in
Lung Conditions Community Forum
7 years ago
Lung Cancer Resources Webinar on Thursday
When you or a loved one is diagnosed with lung cancer, you can’t help but feel alone. But you are not! There are resources to help you and your family cope and get the best care. How do you find them quickly? On this Thursday, November 30, 2017 @ Noon Pacific / 8 pm BST join Patient Power's Andrew Schorr
When you or a loved one is diagnosed with lung cancer, you can’t help but feel alone. But you are not! There are resources to help you and your family cope and get the best care. How do you find them quickly? On this Thursday, November 30, 2017 @ Noon Pacific / 8 pm BST join Patient Power's Andrew Schorr
tclementi
in
The Roy Castle Lung Cancer Foundation
7 years ago
Lung Cancer Resources Webinar on Thursday
When you or a loved one is diagnosed with lung cancer, you can’t help but feel alone. But you are not! There are resources to help you and your family cope and get the best care. How do you find them quickly? On this Thursday, November 30, 2017 @ Noon Pacific, join Patient Power's Andrew Schorr, leading
When you or a loved one is diagnosed with lung cancer, you can’t help but feel alone. But you are not! There are resources to help you and your family cope and get the best care. How do you find them quickly? On this Thursday, November 30, 2017 @ Noon Pacific, join Patient Power's Andrew Schorr, leading
tclementi
in
Lung Cancer Support
7 years ago
Hashimoto’s
Hi I’m new to this site. I have a Hashimoto’s Thyroiditis found on ultrasound and confirmed with TPO antibodies of more than 1300. I had a diagnostic left Thyroid lobectomy in Sept for a symptomatic nodule that was benign and started on 50mcg of Levothyroxine My latest blood results show that I am very
Hi I’m new to this site. I have a Hashimoto’s Thyroiditis found on ultrasound and confirmed with TPO antibodies of more than 1300. I had a diagnostic left Thyroid lobectomy in Sept for a symptomatic nodule that was benign and started on 50mcg of Levothyroxine My latest blood results show that I am very
Hidden
in
Thyroid UK
7 years ago
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