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Sphincter of Oddi Dysfunction Type 1 with cirrhosis of the liver
I had an Endoscopic ultrasound on Tuesday where they confirmed I have Sphincter of Oddi Dysfunction (SOD) Type 1. Last week I was diagnosed with cirrhosis with a score of 22.5. I'm still not sure what this score really means except I'm in the risk category (20-25). A score over 25 is high risk. I'm a
I had an Endoscopic ultrasound on Tuesday where they confirmed I have Sphincter of Oddi Dysfunction (SOD) Type 1. Last week I was diagnosed with cirrhosis with a score of 22.5. I'm still not sure what this score really means except I'm in the risk category (20-25). A score over 25 is high risk. I'm a
Horsemum101
in
British Liver Trust
2 years ago
Liver fibrosis
Can Liver stiffness increased if someone drink from last 15 days and next morning take half litre water before fibroscan
Can Liver stiffness increased if someone drink from last 15 days and next morning take half litre water before fibroscan
Jhon789
in
British Liver Trust
2 years ago
How long were your liver enzymes elevated before diagnosis
So it’s been years of high liver enzymes for me 9 to be exact. I have a history of Hep A that cleared. My maternal aunt has PBC and my drs say it’s just most likely a matter of time before I get it. Right now my ALP is normal my auto immune markers normal just slightly elevated AST and ALT
So it’s been years of high liver enzymes for me 9 to be exact. I have a history of Hep A that cleared. My maternal aunt has PBC and my drs say it’s just most likely a matter of time before I get it. Right now my ALP is normal my auto immune markers normal just slightly elevated AST and ALT
mtk0925
in
PBC Foundation
2 years ago
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Cirrhosis again
Hi everyone, I’m just a bit worried about my liver. I had a transplant 4 years ago and all was well until recently. I have ascites again. Spironolactone isn’t working for me. Does my replacement liver now have cirrhosis like my own did? How has that happened? Any ideas anyone? Naturally my GP and the
Hi everyone, I’m just a bit worried about my liver. I had a transplant 4 years ago and all was well until recently. I have ascites again. Spironolactone isn’t working for me. Does my replacement liver now have cirrhosis like my own did? How has that happened? Any ideas anyone? Naturally my GP and the
Hidden
in
British Liver Trust
2 years ago
PTH high after third infusion, can't find a competent endocrinologist to consult
Online search for PTH shows some pretty dire consequences (
liver
failure
, kidney decease, surgical removal of the parathyroid gland) and little available in terms of treatment. Has anybody had this problem before? What did you do? What was the outcome?
Online search for PTH shows some pretty dire consequences (
liver
failure
, kidney decease, surgical removal of the parathyroid gland) and little available in terms of treatment. Has anybody had this problem before? What did you do? What was the outcome?
Oldie68
in
Advanced Prostate Cancer
2 years ago
UK Patients with cirrhosis invited to take part in liver cancer surveillance workshop
Nottingham University Hospitals NHS Trust in collaboration with the University of Manchester are hosting an online involvement workshop in July. The workshop will be introducing a research project about monitoring people with cirrhosis, who are at higher risk of getting liver cancer.
They are eager
Nottingham University Hospitals NHS Trust in collaboration with the University of Manchester are hosting an online involvement workshop in July. The workshop will be introducing a research project about monitoring people with cirrhosis, who are at higher risk of getting liver cancer.
They are eager
BritishLiverTrust1
Partner
in
British Liver Trust
2 years ago
Mixed messages
I was diagnosed with a Fatty liver about 2 years ago, which seemed odd given that CT/ ultrasound, MRI etc did not. Some raised liver bloods, anyway had a Fibroscan which showed quite high Cap ie over 300, but low scarring. So off I went and stopped all drink, lost some weight and changed diet, since
I was diagnosed with a Fatty liver about 2 years ago, which seemed odd given that CT/ ultrasound, MRI etc did not. Some raised liver bloods, anyway had a Fibroscan which showed quite high Cap ie over 300, but low scarring. So off I went and stopped all drink, lost some weight and changed diet, since
Ruggerhead
in
British Liver Trust
2 years ago
Scar Tissue & Pain
Hi, my emergency liver resection and tumour removal was in sept 2020. I’ve got a large yet beautiful scar across my abdomen. After 18months, I still get a lot of scar pain and can feel the scar tissue. I’ve had scar tissue massage a few times from a trained person and try to do a bit myself at home
Hi, my emergency liver resection and tumour removal was in sept 2020. I’ve got a large yet beautiful scar across my abdomen. After 18months, I still get a lot of scar pain and can feel the scar tissue. I’ve had scar tissue massage a few times from a trained person and try to do a bit myself at home
SurvivorPhoenix
in
ICUsteps
2 years ago
Heatic encephalopathy
Been a alcoholic for over 20 years. My sweat smells like cat pee (amonia). Is this common for HE? The flies can smell it. They keep flying towards me.I know this how they find their food. The smell of amonia is the smell of death. Have other symptoms as well stomach cramps itchy skin really smelly
Been a alcoholic for over 20 years. My sweat smells like cat pee (amonia). Is this common for HE? The flies can smell it. They keep flying towards me.I know this how they find their food. The smell of amonia is the smell of death. Have other symptoms as well stomach cramps itchy skin really smelly
Davideo
in
British Liver Trust
2 years ago
Spider nevi central spot?
Hi, As per previous posts I'm anxious about my liver, with good cause as a previous heavy drinker (50 units a week , much reduced last few years). A couple of years ago I had a liver MRI -fine. So my question - I've noticed some red veins at bottom of nose. Are these always spider nevi? I can't see
Hi, As per previous posts I'm anxious about my liver, with good cause as a previous heavy drinker (50 units a week , much reduced last few years). A couple of years ago I had a liver MRI -fine. So my question - I've noticed some red veins at bottom of nose. Are these always spider nevi? I can't see
BlueYear
in
British Liver Trust
2 years ago
I have Cirrhosis of the Liver and Heart failure is it safe to get a Tattoo
I would like to get the first part of a Dylan Thomas poem inked onto my wrist but worried about bleeding and infection
I would like to get the first part of a Dylan Thomas poem inked onto my wrist but worried about bleeding and infection
thelad73
in
British Liver Trust
2 years ago
Diagnosed with cirrhosis
Today I found out I have stage 4 fibrosis which is cirrhosis. I quit drinking over 10 years ago, I've had weight loss surgery and lost over 5 stone which as reduced my fatty liver to practically zero. I don't have hepatitis or autoimmune liver disease, yet I still have cirrhosis. I'm only 41. I'm feeling
Today I found out I have stage 4 fibrosis which is cirrhosis. I quit drinking over 10 years ago, I've had weight loss surgery and lost over 5 stone which as reduced my fatty liver to practically zero. I don't have hepatitis or autoimmune liver disease, yet I still have cirrhosis. I'm only 41. I'm feeling
Horsemum101
in
British Liver Trust
2 years ago
Swapping Baricitinib for Tocilizumab
Hi All. Been having a bad time with flare and fatigue following Covid and although on Baricitinib 4 mgs and Pred 10 mgs daily I’ve not been good. I started a flare back in December and it seemed that in Feb after Covid the Baricitinib is much less effective, if it’s working at all. The rheumatologists
Hi All. Been having a bad time with flare and fatigue following Covid and although on Baricitinib 4 mgs and Pred 10 mgs daily I’ve not been good. I started a flare back in December and it seemed that in Feb after Covid the Baricitinib is much less effective, if it’s working at all. The rheumatologists
Amnesiac3637
in
NRAS
2 years ago
Could I have cirrhosis?
I am 28 years old. I have spider angiomas on my chest and palmar erythema on my hand. I used antipsychotic and antidepressant drugs for a long time. I have sometimes taken flu meds and roaccutane along with these meds. My doctor said it's nothing to worry about. But high direct bilirubin worries me.
I am 28 years old. I have spider angiomas on my chest and palmar erythema on my hand. I used antipsychotic and antidepressant drugs for a long time. I have sometimes taken flu meds and roaccutane along with these meds. My doctor said it's nothing to worry about. But high direct bilirubin worries me.
tryhealourliver
in
British Liver Trust
2 years ago
update on postural hypertension
I have had a letter from the Consultant Physician Dept of Medicine for the Elderly(!) When I mentioned my PA he appeared to understand and agree that my nausea investigated 9 yrs ago by Gastroenterology without success,was cured by B12.l told himself jab was agreed by GP. In his letter to GP,different
I have had a letter from the Consultant Physician Dept of Medicine for the Elderly(!) When I mentioned my PA he appeared to understand and agree that my nausea investigated 9 yrs ago by Gastroenterology without success,was cured by B12.l told himself jab was agreed by GP. In his letter to GP,different
jaybirdxNHM
in
Pernicious Anaemia Society
2 years ago
Fluid around liver post transplant
Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with
Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with
Craftynan
in
British Liver Trust
2 years ago
Liver Fibrosis and Marijuana
Hi, my diagnosis a year ago by Fibroscan was mild fatty liver with stiffness measurement of 6.39 kPa correlating to METAVIR fibrosis score of F2-F3. Im 41 years old. Binge drinker and pot smoker since my early 20s. Going for a year without out drinking. Pot on occasions. Symptoms: lower right abdomen
Hi, my diagnosis a year ago by Fibroscan was mild fatty liver with stiffness measurement of 6.39 kPa correlating to METAVIR fibrosis score of F2-F3. Im 41 years old. Binge drinker and pot smoker since my early 20s. Going for a year without out drinking. Pot on occasions. Symptoms: lower right abdomen
T_Shelby
in
British Liver Trust
2 years ago
Low Blood Sugar readings
Hi I have Stage 4 fibrosis NASH and 2T diabetes. My readings are dropping below 5 regularly and I eat sweets to bring it back up. Tonight my reading was 3.2. Anyone else have the same problem?
Hi I have Stage 4 fibrosis NASH and 2T diabetes. My readings are dropping below 5 regularly and I eat sweets to bring it back up. Tonight my reading was 3.2. Anyone else have the same problem?
Robert1220
in
British Liver Trust
2 years ago
Confused
I am confused, can anyone help me please. I have not had an alcoholic drink for 2.5 years. In September 2019 my ELF blood test was 9.0. I have had another one in June 2021 which was 10.1 I was never given a fibroscan and was very anxious with not knowing what was going on with my liver. I was told
I am confused, can anyone help me please. I have not had an alcoholic drink for 2.5 years. In September 2019 my ELF blood test was 9.0. I have had another one in June 2021 which was 10.1 I was never given a fibroscan and was very anxious with not knowing what was going on with my liver. I was told
kippy2
in
British Liver Trust
2 years ago
Rising Bilirubin
Good morning. I have stage 4 prostate cancer and since March, have been taking a drug called Zytiga (Abiraterone) which has been known to affect the liver. A recent blood test shows my Bilirubin to be 24umol/L when the normal range should be 0-20. A month ago, it was 19umol/L. I am therefore concerned
Good morning. I have stage 4 prostate cancer and since March, have been taking a drug called Zytiga (Abiraterone) which has been known to affect the liver. A recent blood test shows my Bilirubin to be 24umol/L when the normal range should be 0-20. A month ago, it was 19umol/L. I am therefore concerned
Dastardly
in
British Liver Trust
2 years ago
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