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PD and B1
I am taking carbidopa/
levodopa
for three years now. I have read ”Parkinson’s and the B1 therapy“ on Amazon and am evaluating my next steps. At my last visit to the Neurologist, she mentioned something that could put the cabidopa/
levodopa
“on high octane”.
I am taking carbidopa/
levodopa
for three years now. I have read ”Parkinson’s and the B1 therapy“ on Amazon and am evaluating my next steps. At my last visit to the Neurologist, she mentioned something that could put the cabidopa/
levodopa
“on high octane”.
Hidden
in
Cure Parkinson's
1 year ago
Why not give Hyperbaric Oxygen Therapy (HBOT) as Adjunctive Therapy a Try?
LEVODOPA
REDUCTION FROM 2400 MG DAILY DOWN TO 1400 MG SUSTAINED. SOME DAYS 1,000 MG, THERE WERE 800 EVEN 600, LOWEST 400 MG 5. MY DOSING SCHEDULE HAS ALWAYS BEEN EVERY 3 HOURS STARTING AT 0500. AT THE TIME I GOT ON THE TASIGNA TRIAL I WAS GETTING ONLY 2.5 HOURS ON MY GOOD DAYS.
LEVODOPA
REDUCTION FROM 2400 MG DAILY DOWN TO 1400 MG SUSTAINED. SOME DAYS 1,000 MG, THERE WERE 800 EVEN 600, LOWEST 400 MG 5. MY DOSING SCHEDULE HAS ALWAYS BEEN EVERY 3 HOURS STARTING AT 0500. AT THE TIME I GOT ON THE TASIGNA TRIAL I WAS GETTING ONLY 2.5 HOURS ON MY GOOD DAYS.
Isthistheone
in
Cure Parkinson's
11 months ago
Which are your effects drinking alcool while taking levodopa?
The researches says that alcool can increase the side effects of
levodopa
and worse PD symptoms. In my experience if I drink about 2/3 glasses of wine and after drinking a Margarita, my symptoms of PD get improve.
The researches says that alcool can increase the side effects of
levodopa
and worse PD symptoms. In my experience if I drink about 2/3 glasses of wine and after drinking a Margarita, my symptoms of PD get improve.
michelagvolpe
in
Cure Parkinson's
10 months ago
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Apomorphine
It sounds like a nightmare; a drug that has no relation to morphine, that's meant for dogs, makes you incredibly nauseous and sick, needs to be administered via a pump or injection and would be given during off periods which I don't have or with
Levodopa
which I don't take.
It sounds like a nightmare; a drug that has no relation to morphine, that's meant for dogs, makes you incredibly nauseous and sick, needs to be administered via a pump or injection and would be given during off periods which I don't have or with
Levodopa
which I don't take.
mach262
in
Cure Parkinson's
9 months ago
Progression
I am taking carbidopa/
levodopa
which helps with the tremors, and I take muscle relaxant for pain and cramps in my legs.
I am taking carbidopa/
levodopa
which helps with the tremors, and I take muscle relaxant for pain and cramps in my legs.
horseandwolf
in
PSP Association
1 year ago
Weaning off high dose Pramipexole
My neurologist addressed it by a pramipexole vacation and prescribed carbidopa
levodopa
for 3 months. Seemed odd as it is a dopamine drug but it worked to knock back the symptoms to the evening. . Then over time I started adapting and required higher and higher doses.
My neurologist addressed it by a pramipexole vacation and prescribed carbidopa
levodopa
for 3 months. Seemed odd as it is a dopamine drug but it worked to knock back the symptoms to the evening. . Then over time I started adapting and required higher and higher doses.
lessergoldfinch
in
Restless Legs Syndrome
1 year ago
IPX203 ;promising new PD drug?
https://parkinsonsnewstoday.com/news/license-ipx203-extended-release-
levodopa
-parkinsons/ 1. Does anyone have any experience with this drug, perhaps participated in trials,they would share? 2. I know that some people get Rx filled in Canada. Because prices are more reasonable.
https://parkinsonsnewstoday.com/news/license-ipx203-extended-release-
levodopa
-parkinsons/ 1. Does anyone have any experience with this drug, perhaps participated in trials,they would share? 2. I know that some people get Rx filled in Canada. Because prices are more reasonable.
Jmellano
in
Cure Parkinson's
6 months ago
Does iron in hard water interfere with levodopa uptake?
We are told to avoid supplements containing iron when taking
levodopa
because it interferes with
levodopa
uptake. We will be vacationing in an area where the tap water has high iron content that affects the taste of the water and stains the sinks.
We are told to avoid supplements containing iron when taking
levodopa
because it interferes with
levodopa
uptake. We will be vacationing in an area where the tap water has high iron content that affects the taste of the water and stains the sinks.
Ashti
in
Cure Parkinson's
1 year ago
Sharing Info : Thorne Gut Test
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
Please note : This is not an endorsement. Wanted to share with everyone. Hope it helps you. ( Also, I am not a doctor and should not be considered and medical advice Given the recent news that there is high probability that PD starts in the gut and travels to the brain (Alpha Synuclein found
John_morris71
in
Cure Parkinson's
10 months ago
Swapping Rasagiline for Safinamide - Hobson’s Choice or out of the frying pan and into the fire?
I have been on Rasagiline from the start. 8 years as my staple bedrock of my cocktail of PD drugs principally Ropinirole, Amantadine and of course Co-Careldopa. I have a pacemaker and take Atorvastatin and Ramipril for heart issues. Now the pharmacy says Rasagiline is in short supply in the UK and likely
I have been on Rasagiline from the start. 8 years as my staple bedrock of my cocktail of PD drugs principally Ropinirole, Amantadine and of course Co-Careldopa. I have a pacemaker and take Atorvastatin and Ramipril for heart issues. Now the pharmacy says Rasagiline is in short supply in the UK and likely
Lyricist
in
Cure Parkinson's
7 months ago
15-Year Subthalamic Deep Brain Stimulation outcome in a Parkinson's disease patient with Parkin gene mutation: a case report
Levodopa
was started, and during the following 10 years, he reported good motor symptoms control, with only mild modification of
levodopa
intake and pramipexole introduction. In 2005, he developed disabling motor fluctuations and dyskinesia.
Levodopa
was started, and during the following 10 years, he reported good motor symptoms control, with only mild modification of
levodopa
intake and pramipexole introduction. In 2005, he developed disabling motor fluctuations and dyskinesia.
Hidden
in
Cure Parkinson's
1 year ago
AAN 2023: Amneal’s IPX203 shows promise for Parkinson’s disease patients
Academy of Neurology (AAN) 2023 Annual Meeting, Amneal presented new data evaluating IPX203 (carbidopa +
levodopa
, CD/LD) in a nine-month open-label extension (OLE) study in Parkinson’s disease (PD) patients with motor fluctuations (NCT03877510).
Academy of Neurology (AAN) 2023 Annual Meeting, Amneal presented new data evaluating IPX203 (carbidopa +
levodopa
, CD/LD) in a nine-month open-label extension (OLE) study in Parkinson’s disease (PD) patients with motor fluctuations (NCT03877510).
Farooqji
in
Cure Parkinson's
1 year ago
How to decrease levodopa to half pills per dose
Just recently increased to 4 x a day 100/25 vs 3 x a day.per neurologist advice because of rigidity stiffness in my legs. By the second day of 4 x day having horrible knee and leg pain. Couldn’t hardly walk for a week. Just decreased to half a pill to 3 times Day but kept the full pill in the morning
Just recently increased to 4 x a day 100/25 vs 3 x a day.per neurologist advice because of rigidity stiffness in my legs. By the second day of 4 x day having horrible knee and leg pain. Couldn’t hardly walk for a week. Just decreased to half a pill to 3 times Day but kept the full pill in the morning
Nonni1958
in
Cure Parkinson's
1 year ago
Tasigna off label for parkinson's disease. What happens when the smallest kid on the block gets run out of town. Time for a vote.
There were many times when I could skip my
levodopa
- I DIDN'T NEED IT!!! While on TASIGNA, I once went 15 hours between doses!! 5. When I started on TASIGNA, my dose was 300 mg
levodopa
every three hours. That's a total of 2400 mg daily.
There were many times when I could skip my
levodopa
- I DIDN'T NEED IT!!! While on TASIGNA, I once went 15 hours between doses!! 5. When I started on TASIGNA, my dose was 300 mg
levodopa
every three hours. That's a total of 2400 mg daily.
Isthistheone
in
Cure Parkinson's
1 year ago
Real-world evidence on levodopa dose escalation in patients with Parkinson’s disease treated with istradefylline (Nourianz)
These findings suggest that initiating istradefylline before other
levodopa
-adjunctive therapies may mitigate LDD increases, potentially reducing occurrence or severity of
levodopa
-induced complications in long-term istradefylline treatment.Article Link below:https://www.medrxiv.org/content/10.1101/2022.06.02.22275921v1
These findings suggest that initiating istradefylline before other
levodopa
-adjunctive therapies may mitigate LDD increases, potentially reducing occurrence or severity of
levodopa
-induced complications in long-term istradefylline treatment.Article Link below:https://www.medrxiv.org/content/10.1101/2022.06.02.22275921v1
Sydney75
in
Cure Parkinson's
1 year ago
Cutting levodopa dose by 50% with Citicoline
Citicoline was reported to effective in reducing
levodopa
by up to 50%, with improvement in the patient's rigidity, akinesia, tremor, habwriting and speech. https://www.clinicaltherapeutics.com/article/S0149-2918(20)30518-X/fulltext#:~:text=Citicoline%20was%20reported%20to%20effective,%2C%20tremor%2C
Citicoline was reported to effective in reducing
levodopa
by up to 50%, with improvement in the patient's rigidity, akinesia, tremor, habwriting and speech. https://www.clinicaltherapeutics.com/article/S0149-2918(20)30518-X/fulltext#:~:text=Citicoline%20was%20reported%20to%20effective,%2C%20tremor%2C
Farooqji
in
Cure Parkinson's
1 year ago
Low Iron, RLS, but also with Parkinson's
My Neurologist prescribed a low dose of meds (Co- Beneldopa 50mg/12.5mg
Levodopa
/Benserazade) but up to two months ago I had NOT started to take them. I have frequently over the years had mild RSL but have always been able to cope OK.
My Neurologist prescribed a low dose of meds (Co- Beneldopa 50mg/12.5mg
Levodopa
/Benserazade) but up to two months ago I had NOT started to take them. I have frequently over the years had mild RSL but have always been able to cope OK.
Jess123dog
in
Restless Legs Syndrome
1 month ago
PD sucks
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
PD suspected by GP in November 2022. Confirmed by neurologist in January 2023. Tried different meds - now on rotigotine patches plus after research, I now take mucuna morning and afternoon. Supposed to provide 240mg L-Dopa each day. It helps with constipation. What bothers me most is poor
reefeye
in
Cure Parkinson's
11 months ago
DHIVY
I’m taking two carbidopa
levodopa
at 25/100 and the tremors are much much worse and stiffness is worse as well. I can’t take any more than two a day because my gut will not take it and the pain in my stomach becomes much much worse as well.
I’m taking two carbidopa
levodopa
at 25/100 and the tremors are much much worse and stiffness is worse as well. I can’t take any more than two a day because my gut will not take it and the pain in my stomach becomes much much worse as well.
MissRita
in
Cure Parkinson's
1 year ago
Experiences with bHaptics TactGloves for Tass vCR stimulation paradigm?
I mostly use the gloves in the evening, more than 4 hrs after the last
levodopa
medication. So far it's hard to tell on potential benefits. I do feel more relaxed while using the gloves and recently noticed a slight improvement of smell/taste.
I mostly use the gloves in the evening, more than 4 hrs after the last
levodopa
medication. So far it's hard to tell on potential benefits. I do feel more relaxed while using the gloves and recently noticed a slight improvement of smell/taste.
Ethin
in
Cure Parkinson's
1 year ago
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