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Call for a more complete vitamins blood testing, especially b6.
I would have preferred to write about my coping with PD at a later stage, but in view of recent events I would like to warn you about the possible consequences of incomplete examination. After being diagnosed 1.5 years ago at 65, I found the development of the disease to be (too) fast. There is still
I would have preferred to write about my coping with PD at a later stage, but in view of recent events I would like to warn you about the possible consequences of incomplete examination. After being diagnosed 1.5 years ago at 65, I found the development of the disease to be (too) fast. There is still
Esperanto
in
Cure Parkinson's
2 years ago
Vitamin B1 Therapy
Is anyone on the high dosage of vitamin B1 therapy and for those who are, are you also taking any meds for Parkinson's like "Levodopa"?
Is anyone on the high dosage of vitamin B1 therapy and for those who are, are you also taking any meds for Parkinson's like "Levodopa"?
Rafyaz
in
Cure Parkinson's
2 years ago
6 Important Supplements To Fight Peripheral Neuropathy
People with Parkinson's disease (PwP) are at increased risk for getting Peripheral Neuropathy (PN). PN can have many causes. Multiple causes other than PD such as diabetes, insulin resistance or certain chemotherapy agents can also cause PN. The main consideration is that the nerves are being damaged
People with Parkinson's disease (PwP) are at increased risk for getting Peripheral Neuropathy (PN). PN can have many causes. Multiple causes other than PD such as diabetes, insulin resistance or certain chemotherapy agents can also cause PN. The main consideration is that the nerves are being damaged
chartist
in
Cure Parkinson's
2 years ago
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Parkinson and narrow angle glaucoma
Hi, I have been suffering from Parkinson's and have been taking the following medications: Pacitane Tablet - SALT COMPOSITION Trihexyphenidyl (2mg) Sinemet 250mg/25mg Tablet - SALT COMPOSITION Levodopa (250mg) + Carbidopa (25mg) I have been recently diagnosed with narrow angle glaucoma in one of
Hi, I have been suffering from Parkinson's and have been taking the following medications: Pacitane Tablet - SALT COMPOSITION Trihexyphenidyl (2mg) Sinemet 250mg/25mg Tablet - SALT COMPOSITION Levodopa (250mg) + Carbidopa (25mg) I have been recently diagnosed with narrow angle glaucoma in one of
drmittal
in
Cure Parkinson's
2 years ago
is l dopa toxic?
https://www.youtube.com/watch?v=k703Shlgkhw
https://www.youtube.com/watch?v=k703Shlgkhw
Solvang53
in
Cure Parkinson's
2 years ago
Parkinson
I now have Parkinson as well as restless legs ,am on Levodopa 100mg/5Omg at 11.OO am -3.00pm -7.OOpm -11.OOpm capsules only last 3-4 hours waken at 3.OOam in morning with restless legs on and off till getting up at 8.OOam for breakfast . Consultant phoning this week to see how I am getting on she will
I now have Parkinson as well as restless legs ,am on Levodopa 100mg/5Omg at 11.OO am -3.00pm -7.OOpm -11.OOpm capsules only last 3-4 hours waken at 3.OOam in morning with restless legs on and off till getting up at 8.OOam for breakfast . Consultant phoning this week to see how I am getting on she will
auldreekie18
in
Restless Legs Syndrome
2 years ago
My disastrous MRI guided FUS PTT
I had the surgery at Sonimodul in Switzerland in Feb 2021. Short story: Before PTT, I took 3 x Levodopa Carbidopa CR daily. Now, I take 5 and my symptoms are a lot worse. Progression rate has increased. Long story: I never had resting tremors. I have rigidity, dystonia, bradykinesia, akinesia
I had the surgery at Sonimodul in Switzerland in Feb 2021. Short story: Before PTT, I took 3 x Levodopa Carbidopa CR daily. Now, I take 5 and my symptoms are a lot worse. Progression rate has increased. Long story: I never had resting tremors. I have rigidity, dystonia, bradykinesia, akinesia
Parkie-
in
Cure Parkinson's
2 years ago
Role of the adrenals in my tremor and dopamine deficiency
I am wondering if I am alone in being aware of the connection between my adrenals and my dopamine deficiency and resulting tremors. I’d appreciate all feedback, whether academic or incidental. Firstly, I definitely have a dopamine deficiency because my dexterity can return to perfect for the small windows
I am wondering if I am alone in being aware of the connection between my adrenals and my dopamine deficiency and resulting tremors. I’d appreciate all feedback, whether academic or incidental. Firstly, I definitely have a dopamine deficiency because my dexterity can return to perfect for the small windows
Meg024
in
Cure Parkinson's
2 years ago
“How Does Deep Brain Stimulation Change the Course of Parkinson's Disease?”
This very recent (May 2022) review was posted elsewhere (FB) and after reading it myself (it's open access) I thought it worth re-posting here on HU - for those interested in learning more on long-term DBS outcomes. https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mds.29052?fbclid=IwAR3EaJVE5QUEQ165u7wKsneu2V3JHhs36YuQCiRHxjSrbhUXHTkr31qCafU
This very recent (May 2022) review was posted elsewhere (FB) and after reading it myself (it's open access) I thought it worth re-posting here on HU - for those interested in learning more on long-term DBS outcomes. https://movementdisorders.onlinelibrary.wiley.com/doi/10.1002/mds.29052?fbclid=IwAR3EaJVE5QUEQ165u7wKsneu2V3JHhs36YuQCiRHxjSrbhUXHTkr31qCafU
Kevin51
in
Cure Parkinson's
2 years ago
levodopa and sleep
I've been struggling with sleep for a couple of years (actually a couple of decades, but it got worse a couple of years ago. after going down the medication hole (with no lasting help) I remembered that a couple of folks had mentioned here that reducing bedtime levodopa helped with sleep. I cut back
I've been struggling with sleep for a couple of years (actually a couple of decades, but it got worse a couple of years ago. after going down the medication hole (with no lasting help) I remembered that a couple of folks had mentioned here that reducing bedtime levodopa helped with sleep. I cut back
rebtar
in
Cure Parkinson's
2 years ago
Effect of Doxycycline in Levodopa Treated Parkinson's Disease Patients
New clinical trial registered in Bangladesh: Researchers will be evaluating doxycycline (50mg 2x daily or placebo) in 60 individuals with levodopa-treated Parkinsons; 8 weeks treatment randomised, double blinded; UPDRS & C-reactive protein are endpoints https://clinicaltrials.gov/ct2/show/NCT05492019
New clinical trial registered in Bangladesh: Researchers will be evaluating doxycycline (50mg 2x daily or placebo) in 60 individuals with levodopa-treated Parkinsons; 8 weeks treatment randomised, double blinded; UPDRS & C-reactive protein are endpoints https://clinicaltrials.gov/ct2/show/NCT05492019
Farooqji
in
Cure Parkinson's
2 years ago
Can you use red yeast rice with carbadopa/levodopa to lower cholesterol? Is it safe to use?
Trying to lower cholesterol. Is it safe to use red yeast rice with Carbidopa levodopa? I don't want to take statins. Thanks for your help!
Trying to lower cholesterol. Is it safe to use red yeast rice with Carbidopa levodopa? I don't want to take statins. Thanks for your help!
Smittybear7
in
Cure Parkinson's
2 years ago
Mucuna Supplements’ Levodopa Levels are Not Consistent (not surprised)
https://medicalxpress.com/news/2022-08-otc-supplements-high-levodopa-paranoia.html
https://medicalxpress.com/news/2022-08-otc-supplements-high-levodopa-paranoia.html
Juliegrace
in
Cure Parkinson's
2 years ago
Levodopa Overmedication – Common, Unrecognized, Devastating
Dystonia – muscle tightness – is a common symptom of Parkinson's. It can also be a symptom of levodopa overmedication. The only study I could find of this phenomenon was done in 1999 and received very little notice from the medical community: http://bbs.neuro.or.kr/space/journal/1999/9904010.pdf As
Dystonia – muscle tightness – is a common symptom of Parkinson's. It can also be a symptom of levodopa overmedication. The only study I could find of this phenomenon was done in 1999 and received very little notice from the medical community: http://bbs.neuro.or.kr/space/journal/1999/9904010.pdf As
park_bear
in
Cure Parkinson's
2 years ago
Husband so sick but not sure what’s going on
Hi this is my first time posting but I’ve been reading for a long time and I’m hoping someone here can shed light on what’s happening to my husband. He was diagnosed in 2013 with early onset (age 57) idiopathic Parkinson’s (rigidity and no tremors) and put on Sinemet and had two months of feeling better
Hi this is my first time posting but I’ve been reading for a long time and I’m hoping someone here can shed light on what’s happening to my husband. He was diagnosed in 2013 with early onset (age 57) idiopathic Parkinson’s (rigidity and no tremors) and put on Sinemet and had two months of feeling better
shirlzoni
in
Cure Parkinson's
2 years ago
Looking for answer
Has anyone taken Entacapone 200mg 3 times a day
Has anyone taken Entacapone 200mg 3 times a day
Knight1963
in
Cure Parkinson's
2 years ago
sinemet and mucuna pruriens
Dear Comunity I am anxious about my mother age 76. She is taking 6 tbl. of sinemet a day. I found out that Mucuna Pruriens is an option. I was able to find MP with 15% of L-Dopa. How to use it ? Thanks for helping.
Dear Comunity I am anxious about my mother age 76. She is taking 6 tbl. of sinemet a day. I found out that Mucuna Pruriens is an option. I was able to find MP with 15% of L-Dopa. How to use it ? Thanks for helping.
stop-parkinson
in
Cure Parkinson's
2 years ago
Levodopa and magnesium oxide
Based on in vtro results and a n=1 case study: "Levodopa and carbidopa are reported to be degraded by magnesium oxide (MgO), which is often used as a laxative for patients with Parkinson's disease (PD). Ascorbic acid (AsA) can stabilize levodopa and carbidopa solutions; however, the effect of AsA on
Based on in vtro results and a n=1 case study: "Levodopa and carbidopa are reported to be degraded by magnesium oxide (MgO), which is often used as a laxative for patients with Parkinson's disease (PD). Ascorbic acid (AsA) can stabilize levodopa and carbidopa solutions; however, the effect of AsA on
johntPM
in
Cure Parkinson's
2 years ago
Side effects of levodopa
The most common side effects of levodopa are nausea and vomiting. These occur most often when first taking the drug and usually disappear over time. Nausea is much less common with controlled release Sinemet (Sinemet CR), which is absorbed more slowly than the regular Sinemet. In addition to a queasy
The most common side effects of levodopa are nausea and vomiting. These occur most often when first taking the drug and usually disappear over time. Nausea is much less common with controlled release Sinemet (Sinemet CR), which is absorbed more slowly than the regular Sinemet. In addition to a queasy
Farooqji
in
Cure Parkinson's
2 years ago
Is anyone concerned about aspartame in the carbidopa-levodopa?
Is there a form of Carbidopa levodopa that does not have aspartame in it?
Is there a form of Carbidopa levodopa that does not have aspartame in it?
Smittybear7
in
Cure Parkinson's
2 years ago
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