Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,294 public posts
Filter results
CORONA VIRUS
Husband is JAX-2-V617 mutation positive MPN consistent with Polycythaemia Vera Ruxolitinib 15grms twice a day. Is he classed in the current situation as vulnerable.
Husband is JAX-2-V617 mutation positive MPN consistent with Polycythaemia Vera Ruxolitinib 15grms twice a day. Is he classed in the current situation as vulnerable.
waddles22
in
MPN Voice
4 years ago
Video Interview: Acute lymphoblastic leukaemia (ALL) research updates from ASH 2019. How genetic information aids diagnosis and treatment
Whilst there, the team spoke to a number of experts, in these first two videos we hear from Professor Anthony Moorman on how genetic information about the
leukaemia
cell is used in the diagnosis and treatment of acute
leukaemia
, along with what research was presented on the topic of genetics and acute
Whilst there, the team spoke to a number of experts, in these first two videos we hear from Professor Anthony Moorman on how genetic information about the
leukaemia
cell is used in the diagnosis and treatment of acute
leukaemia
, along with what research was presented on the topic of genetics and acute
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
An Investigation into the Quality of Life and Dietary Behaviours of Young Adult Cancer Survivors
When I was fifteen years old I was diagnosed with Acute Lymphoblastic
Leukaemia
and received three and half years of chemotherapy treatment. I will always be incredibly grateful for the amazing care and support that I received and will remain inspired by the many people I met along the way.
When I was fifteen years old I was diagnosed with Acute Lymphoblastic
Leukaemia
and received three and half years of chemotherapy treatment. I will always be incredibly grateful for the amazing care and support that I received and will remain inspired by the many people I met along the way.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
War on blood Car -t cells
Did any one watch BBC war on blood and see how incredible brave the two unsuccessful patient faced their pain and subsequent deaths from
Leukaemia
. Certainly made me appreciate how fortunate my ET never developed into AML. So get on with life now. town Crier Et for 30 years.
Did any one watch BBC war on blood and see how incredible brave the two unsuccessful patient faced their pain and subsequent deaths from
Leukaemia
. Certainly made me appreciate how fortunate my ET never developed into AML. So get on with life now. town Crier Et for 30 years.
catkinspolymer
in
MPN Voice
4 years ago
UK CLL Forum Advice for CLL Patients and a survey for the UK patients - Please complete the survey if you can.
They have partnered with CLL Support (who moderate this site) and
Leukaemia
Care to promote a survey and provide information support.
They have partnered with CLL Support (who moderate this site) and
Leukaemia
Care to promote a survey and provide information support.
Jm954
Administrator
in
CLL Support
4 years ago
ALL of us with CLL are immune compromised, so what does it mean to be immunocompromised? Why does this increase our risk of coronavirus?
Vincent, Research Fellow; Rheumatology Research Group, Centre for Inflammatory Diseases: https://theconversation.com/what-does-it-mean-to-be-immunocompromised-and-why-does-this-increase-your-risk-of-coronavirus-135200 Tips from Australia's
Leukaemia
Foundation on preventing infection and illness https
Vincent, Research Fellow; Rheumatology Research Group, Centre for Inflammatory Diseases: https://theconversation.com/what-does-it-mean-to-be-immunocompromised-and-why-does-this-increase-your-risk-of-coronavirus-135200 Tips from Australia's
Leukaemia
Foundation on preventing infection and illness https
AussieNeil
Partner
in
CLL Support
4 years ago
Are these early symptoms of cll?
The problem is that now I have symptoms that could be early indications of a cll or indolent t-cell
Leukaemia
which are low grade fever around 99 with now apparent reason, sometimes swollen and tender to touch nodes under my jaw, base of throat and waistline (can it be a lymph node there?
The problem is that now I have symptoms that could be early indications of a cll or indolent t-cell
Leukaemia
which are low grade fever around 99 with now apparent reason, sometimes swollen and tender to touch nodes under my jaw, base of throat and waistline (can it be a lymph node there?
Alexpan2004
in
CLL Support
4 years ago
Richter syndrome. Ganglion below the neck
Hello friends A month ago I wrote, because a small node had grown out from under my jaw. I did an ultrasound and they found a 4X3 millimeter node. Do not call my hematologist because I have a consultation in two weeks. I took antibiotics and I have not left. I had fungus in my mouth that I'm treating
Hello friends A month ago I wrote, because a small node had grown out from under my jaw. I did an ultrasound and they found a 4X3 millimeter node. Do not call my hematologist because I have a consultation in two weeks. I took antibiotics and I have not left. I had fungus in my mouth that I'm treating
Priss69
in
CLL Support
4 years ago
The impact of dose modification and temporary interruption of ibrutinib on outcomes of CLL patients in routine clinical practice
This paper in Cancer Medicine (18/03/2020) reports on a retrospective study of 209 consecutive CLL patients treated with Ibrutinib outside the context of a clinical trial at the Mayo Clinic. Results from the study show that among CLL patients treated outside the context of a clinical trial, approximately
This paper in Cancer Medicine (18/03/2020) reports on a retrospective study of 209 consecutive CLL patients treated with Ibrutinib outside the context of a clinical trial at the Mayo Clinic. Results from the study show that among CLL patients treated outside the context of a clinical trial, approximately
Jm954
Administrator
in
CLL Support
4 years ago
ACCEPTED INTO LOXO-305 CLINICAL TRIAL
LOXO-305 TRIAL UPDATE TWO MONTHS IN Hey everyone, I started this trial on 2/02/2020 at Memorial Sloan Kettering in NJ. After being diagnosed in 2009 with CLL, I have been through 3 prior treatments, FCR, Ibrutinib and Venclaxta. I had a 5 1/2 year remission with FCR, 3 with Ibrutinib,and about 18
LOXO-305 TRIAL UPDATE TWO MONTHS IN Hey everyone, I started this trial on 2/02/2020 at Memorial Sloan Kettering in NJ. After being diagnosed in 2009 with CLL, I have been through 3 prior treatments, FCR, Ibrutinib and Venclaxta. I had a 5 1/2 year remission with FCR, 3 with Ibrutinib,and about 18
steve5441
in
CLL Support
4 years ago
Childhood ALL video update by Dr Sara Ghorashian from the 2019 American Society of Hematology (ASH)
In this video interview Dr Sara Ghorashian describes the remaining challenges in the treatment of childhood acute lymphoblastic
leukaemia
(ALL), and how these could be addressed. https://youtu.be/o4R9V5OeQoU
In this video interview Dr Sara Ghorashian describes the remaining challenges in the treatment of childhood acute lymphoblastic
leukaemia
(ALL), and how these could be addressed. https://youtu.be/o4R9V5OeQoU
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Slowly deteriorating
Horrendous Christmas, lots of stress, mother in law diagnosed with
leukaemia
, husband and son really ill with chest infections, just one thing after another. Started to feel awful, vertigo, memory loss, speech loss, peripheral neuropathy, spider crawling sensations on my face, extreme fatigue.
Horrendous Christmas, lots of stress, mother in law diagnosed with
leukaemia
, husband and son really ill with chest infections, just one thing after another. Started to feel awful, vertigo, memory loss, speech loss, peripheral neuropathy, spider crawling sensations on my face, extreme fatigue.
ExploringWonderland
in
Pernicious Anaemia Society
4 years ago
Update
So there is good news guys my father doesn’t have
leukaemia
he has a lie form of pre-
leukaemia
. With the right treatment they said 2/3 years and obviously if it takes well who knows how long that could be as in hopefully it will be longer.
So there is good news guys my father doesn’t have
leukaemia
he has a lie form of pre-
leukaemia
. With the right treatment they said 2/3 years and obviously if it takes well who knows how long that could be as in hopefully it will be longer.
Meyer_Gdmnx
in
Anxiety and Depression Support
4 years ago
CLL/SLL and bone pain was in both arms
Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT Mefical School Austin stated my cancer is Stage 0. Yeah! I do have questions regarding ongoing bone pain. He stated that he didn’t feel it was related
Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT Mefical School Austin stated my cancer is Stage 0. Yeah! I do have questions regarding ongoing bone pain. He stated that he didn’t feel it was related
annetxfan
in
CLL Support
4 years ago
New Gov Guidelines
Hi my husband had CLL(chronic
leukaemia
) and has received his hi- lighted letter warning him that he is in the top 5 vulnerable people. I however did not receive a letter and I think I should have and asking to see what others think. In October I had my right lung removed due to a 3cm lesion.
Hi my husband had CLL(chronic
leukaemia
) and has received his hi- lighted letter warning him that he is in the top 5 vulnerable people. I however did not receive a letter and I think I should have and asking to see what others think. In October I had my right lung removed due to a 3cm lesion.
Starky67
in
The Roy Castle Lung Cancer Foundation
4 years ago
CAR-NK Cells Make Their Debut in Hematologic Cancers with Promising results
In this study, 11 patients with CD19-positive chronic lymphocytic leukemia (CLL) or non-Hodgkin lymphoma received the modified cells, known as chimeric antigen receptor-NK (CAR-NK) cells. Seven of the patients experienced complete remission, while in 1 other patient, treatment reduced the aggressiveness
In this study, 11 patients with CD19-positive chronic lymphocytic leukemia (CLL) or non-Hodgkin lymphoma received the modified cells, known as chimeric antigen receptor-NK (CAR-NK) cells. Seven of the patients experienced complete remission, while in 1 other patient, treatment reduced the aggressiveness
Jm954
Administrator
in
CLL Support
4 years ago
Just a quick question
Hello all. I’m asking this on behalf of my mum. She has Alzheimer’s and around 10 years ago she was diagnosed with CLL, up till now she hasn’t had to have any treatment for her CLL. We are in the U.K. We are being told that if you fall under the very vulnerable group you must stay in isolation for 12
Hello all. I’m asking this on behalf of my mum. She has Alzheimer’s and around 10 years ago she was diagnosed with CLL, up till now she hasn’t had to have any treatment for her CLL. We are in the U.K. We are being told that if you fall under the very vulnerable group you must stay in isolation for 12
rustydog
in
CLL Support
4 years ago
Acute lymphoblastic leukaemia
Hi is the forum still active for Acute lymphoblastic
leukaemia
on this site. I can only see CLL posts. Thanks Hayley
Hi is the forum still active for Acute lymphoblastic
leukaemia
on this site. I can only see CLL posts. Thanks Hayley
Cyprusfan
in
Leukaemia Support
4 years ago
Australians have your say in getting CLL medicines approved
Venetoclax in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic
leukaemia
(CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for fludarabine based chemotherapy 2.
Venetoclax in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic
leukaemia
(CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for fludarabine based chemotherapy 2.
lymphomaoz
in
CLL Support
4 years ago
New Study: Predicted Survival in Polycythemia Vera Patients
Anyone have any of these three mutations tested for? -- This study evaluated the impact of co-occurring mutations and clinical characteristics on prognosis in 85 patients with WHO-defined polycythemia vera (PV). Overall, 84 patients harbored a JAK2 V617F mutation. An additional mutation was identified
Anyone have any of these three mutations tested for? -- This study evaluated the impact of co-occurring mutations and clinical characteristics on prognosis in 85 patients with WHO-defined polycythemia vera (PV). Overall, 84 patients harbored a JAK2 V617F mutation. An additional mutation was identified
JT_Marlin
in
MPN Voice
4 years ago
1
...
67
68
69
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1813 results
MPN Voice
837 results
Leukaemia Support
270 results
View top 10 communities
Sort by
Most Relevant
Newest