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Update
So there is good news guys my father doesn’t have
leukaemia
he has a lie form of pre-
leukaemia
. With the right treatment they said 2/3 years and obviously if it takes well who knows how long that could be as in hopefully it will be longer.
So there is good news guys my father doesn’t have
leukaemia
he has a lie form of pre-
leukaemia
. With the right treatment they said 2/3 years and obviously if it takes well who knows how long that could be as in hopefully it will be longer.
Meyer_Gdmnx
in
Anxiety and Depression Support
4 years ago
Slowly deteriorating
Horrendous Christmas, lots of stress, mother in law diagnosed with
leukaemia
, husband and son really ill with chest infections, just one thing after another. Started to feel awful, vertigo, memory loss, speech loss, peripheral neuropathy, spider crawling sensations on my face, extreme fatigue.
Horrendous Christmas, lots of stress, mother in law diagnosed with
leukaemia
, husband and son really ill with chest infections, just one thing after another. Started to feel awful, vertigo, memory loss, speech loss, peripheral neuropathy, spider crawling sensations on my face, extreme fatigue.
ExploringWonderland
in
Pernicious Anaemia Society
4 years ago
New Gov Guidelines
Hi my husband had CLL(chronic
leukaemia
) and has received his hi- lighted letter warning him that he is in the top 5 vulnerable people. I however did not receive a letter and I think I should have and asking to see what others think. In October I had my right lung removed due to a 3cm lesion.
Hi my husband had CLL(chronic
leukaemia
) and has received his hi- lighted letter warning him that he is in the top 5 vulnerable people. I however did not receive a letter and I think I should have and asking to see what others think. In October I had my right lung removed due to a 3cm lesion.
Starky67
in
The Roy Castle Lung Cancer Foundation
4 years ago
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CLL/SLL and bone pain was in both arms
Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT Mefical School Austin stated my cancer is Stage 0. Yeah! I do have questions regarding ongoing bone pain. He stated that he didn’t feel it was related
Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT Mefical School Austin stated my cancer is Stage 0. Yeah! I do have questions regarding ongoing bone pain. He stated that he didn’t feel it was related
annetxfan
in
CLL Support
4 years ago
CAR-NK Cells Make Their Debut in Hematologic Cancers with Promising results
In this study, 11 patients with CD19-positive chronic lymphocytic leukemia (CLL) or non-Hodgkin lymphoma received the modified cells, known as chimeric antigen receptor-NK (CAR-NK) cells. Seven of the patients experienced complete remission, while in 1 other patient, treatment reduced the aggressiveness
In this study, 11 patients with CD19-positive chronic lymphocytic leukemia (CLL) or non-Hodgkin lymphoma received the modified cells, known as chimeric antigen receptor-NK (CAR-NK) cells. Seven of the patients experienced complete remission, while in 1 other patient, treatment reduced the aggressiveness
Jm954
Administrator
in
CLL Support
4 years ago
Acute lymphoblastic leukaemia
Hi is the forum still active for Acute lymphoblastic
leukaemia
on this site. I can only see CLL posts. Thanks Hayley
Hi is the forum still active for Acute lymphoblastic
leukaemia
on this site. I can only see CLL posts. Thanks Hayley
Cyprusfan
in
Leukaemia CARE
4 years ago
Just a quick question
Hello all. I’m asking this on behalf of my mum. She has Alzheimer’s and around 10 years ago she was diagnosed with CLL, up till now she hasn’t had to have any treatment for her CLL. We are in the U.K. We are being told that if you fall under the very vulnerable group you must stay in isolation for 12
Hello all. I’m asking this on behalf of my mum. She has Alzheimer’s and around 10 years ago she was diagnosed with CLL, up till now she hasn’t had to have any treatment for her CLL. We are in the U.K. We are being told that if you fall under the very vulnerable group you must stay in isolation for 12
rustydog
in
CLL Support
4 years ago
Australians have your say in getting CLL medicines approved
Venetoclax in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic
leukaemia
(CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for fludarabine based chemotherapy 2.
Venetoclax in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic
leukaemia
(CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for fludarabine based chemotherapy 2.
lymphomaoz
in
CLL Support
4 years ago
New Study: Predicted Survival in Polycythemia Vera Patients
Anyone have any of these three mutations tested for? -- This study evaluated the impact of co-occurring mutations and clinical characteristics on prognosis in 85 patients with WHO-defined polycythemia vera (PV). Overall, 84 patients harbored a JAK2 V617F mutation. An additional mutation was identified
Anyone have any of these three mutations tested for? -- This study evaluated the impact of co-occurring mutations and clinical characteristics on prognosis in 85 patients with WHO-defined polycythemia vera (PV). Overall, 84 patients harbored a JAK2 V617F mutation. An additional mutation was identified
JT_Marlin
in
MPN Voice
4 years ago
Impaired Immune System???
Diagnosed CLL a little less than 2 years ago, stage 0. I have no symptoms other than my blood work and slightly anemic. So my question is, does the CLL automatically make me at risk for "impaired immune system"? I keep seeing information about COVID-19 and people with impaired immune systems.
Diagnosed CLL a little less than 2 years ago, stage 0. I have no symptoms other than my blood work and slightly anemic. So my question is, does the CLL automatically make me at risk for "impaired immune system"? I keep seeing information about COVID-19 and people with impaired immune systems.
Faith50
in
CLL Support
4 years ago
Richter's Syndrome - Possible relapse
Hello friends. I noticed a lump under the right jaw the size of an olive. Start noticing it two weeks ago. It is hard and painful to the touch. My neck hurts and I feel that I have fallen asleep. My family doctor sent me an antibiotic in case it was an infection. As you know, I have Ricthert and they
Hello friends. I noticed a lump under the right jaw the size of an olive. Start noticing it two weeks ago. It is hard and painful to the touch. My neck hurts and I feel that I have fallen asleep. My family doctor sent me an antibiotic in case it was an infection. As you know, I have Ricthert and they
Priss69
in
CLL Support
4 years ago
Government Guidelines 16.03.2020 for transplanted patients
be at particular risk due to complex health problems such as:
People who have received an organ transplant and remain on ongoing immunosuppression medication
People with cancer who are undergoing active chemotherapy or radiotherapy People with cancers of the blood or bone marrow such as
leukaemia
be at particular risk due to complex health problems such as:
People who have received an organ transplant and remain on ongoing immunosuppression medication
People with cancer who are undergoing active chemotherapy or radiotherapy People with cancers of the blood or bone marrow such as
leukaemia
Kimlescam
in
British Liver Trust
4 years ago
Massive Bruising on Left Thigh
This is bruising linked to cancer and
Leukaemia
. Has anyone else experienced this? The golf exercise could have ruptured tiny blood vessels as I have a sedentary job (Driving Instructor).
This is bruising linked to cancer and
Leukaemia
. Has anyone else experienced this? The golf exercise could have ruptured tiny blood vessels as I have a sedentary job (Driving Instructor).
Wessex
in
CLL Support
4 years ago
Blood test or Not?
Blood test or Not??? Due for another blood work up in the next week already have contacted Dr waiting for response! I’ve been on imbrutinib 420mg 1x daily for 11 months and wbc is down to 11,400 feeling great but truly concerned about contracting covid 19 @ the local quest office. I’m a very hard stick
Blood test or Not??? Due for another blood work up in the next week already have contacted Dr waiting for response! I’ve been on imbrutinib 420mg 1x daily for 11 months and wbc is down to 11,400 feeling great but truly concerned about contracting covid 19 @ the local quest office. I’m a very hard stick
haposwald
in
CLL Support
4 years ago
Which fish have the best Vitamin D to Mercury Ratio?
About half of the world's population is deficient in Vitamin D, and fish and sun (without sunscreen) are the best natural sources. So if you don't get much sun, you might want to regularly eat fish because Vitamin D deficiencies have been correlated with at least one kind of cancer and with other health
About half of the world's population is deficient in Vitamin D, and fish and sun (without sunscreen) are the best natural sources. So if you don't get much sun, you might want to regularly eat fish because Vitamin D deficiencies have been correlated with at least one kind of cancer and with other health
HowardR
in
CLL Support
4 years ago
A HUGE THANK YOU 🤗 TO ALL !!! ADMINISTRATION, DOCTORS AND ALIKE. THANK YOU TO ALL OUR WONDERFUL CLL COMMUNITY🤗❤!!!
Thank You!!! For keeping myself informed, as to the latest information, and research with this devastating Corona Virus!😷. Aside from TV, Radio, Newspaper !!! The CLL Support Community is " The Bomb" 😇 as they say.!!! Unfortunately, I had to inform my two clients( an elderly lady with Lymphedema and
Thank You!!! For keeping myself informed, as to the latest information, and research with this devastating Corona Virus!😷. Aside from TV, Radio, Newspaper !!! The CLL Support Community is " The Bomb" 😇 as they say.!!! Unfortunately, I had to inform my two clients( an elderly lady with Lymphedema and
debdetermine58
in
CLL Support
4 years ago
walter49
I was diagnosed with CLL in 2013 and have been on W &W since then, with no intervention. I have half-yearly blood checks and my blood results have, apart from a blip a couple of years ago when I had a bone marrow specimen taken, been, according to my consultant, nearly as good as ‘a normal’ person’s
I was diagnosed with CLL in 2013 and have been on W &W since then, with no intervention. I have half-yearly blood checks and my blood results have, apart from a blip a couple of years ago when I had a bone marrow specimen taken, been, according to my consultant, nearly as good as ‘a normal’ person’s
Walter49
in
CLL Support
4 years ago
Cll UK conflicting advice
Ok as I understand it the UK government has asked us with cll on chemo or inhibitors or stem cell ,BMT to self isolate for 12:weeks and have seen this as advice given in bloodwise . But thought I would phone my own hospital James Paget and my consultant secretary to see what there advice is and they
Ok as I understand it the UK government has asked us with cll on chemo or inhibitors or stem cell ,BMT to self isolate for 12:weeks and have seen this as advice given in bloodwise . But thought I would phone my own hospital James Paget and my consultant secretary to see what there advice is and they
cartwheels
in
CLL Support
4 years ago
UK government's 12 week shielding group.
People with specific cancers: people with cancer who are undergoing active chemotherapy people with lung cancer who are undergoing radical radiotherapy people with cancers of the blood or bone marrow such as
leukaemia
, lymphoma or myeloma who are at any stage of treatment people having immunotherapy
People with specific cancers: people with cancer who are undergoing active chemotherapy people with lung cancer who are undergoing radical radiotherapy people with cancers of the blood or bone marrow such as
leukaemia
, lymphoma or myeloma who are at any stage of treatment people having immunotherapy
gilders
in
Early CKD Support
4 years ago
Melatonin against platelets?
Dear all, Since I was given melatonin not for sleep, but to detox, I’ve been much better. I looked up effect of melatonin on platelets and I was shocked to find that melatonin caused platelet apoptosis (death). There are studies proving this. Here is info: https://www.sciencedirect.com/science/article
Dear all, Since I was given melatonin not for sleep, but to detox, I’ve been much better. I looked up effect of melatonin on platelets and I was shocked to find that melatonin caused platelet apoptosis (death). There are studies proving this. Here is info: https://www.sciencedirect.com/science/article
Anag
in
MPN Voice
4 years ago
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