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immunohistochemistry need help understanding
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
kp58ny
in
CLL Support
3 years ago
Cost for treatment
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Rubymom
in
CLL Support
3 years ago
Just joined
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Mtk1
in
CLL Support
3 years ago
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Hairy cell leukaemia - treatment update
Quick update one week after my 5 day subcutaneous chemo jabs ended. So far so good, I've managed a few one mile or so walks with my daughter, am sleeping well, eating well but have lost nearly a stone (13 lb) weight over the last 6 weeks, and get tired if I over-exert myself. Also having a lot of night
Quick update one week after my 5 day subcutaneous chemo jabs ended. So far so good, I've managed a few one mile or so walks with my daughter, am sleeping well, eating well but have lost nearly a stone (13 lb) weight over the last 6 weeks, and get tired if I over-exert myself. Also having a lot of night
frankmok
in
Leukaemia CARE
3 years ago
Video of COVID-19: THE END OF LOCKDOWN UPDATE
The charity
Leukaemia
Care hosted this webinar two days ago, 12th July. "In this webinar we discussed how to manage your day-to-day activities and how to start mixing with wider community as we see the world opening back up.
The charity
Leukaemia
Care hosted this webinar two days ago, 12th July. "In this webinar we discussed how to manage your day-to-day activities and how to start mixing with wider community as we see the world opening back up.
bennevisplace
in
CLL Support
3 years ago
Myelofibrosis worsened so going to start ruxolitinib
I've had my second consultant appointment since being diagnosed with post ET myelofibrosis about 1 month ago. Then I was intermediate level 1 with platelet count 117 which gave me a median survival of 14 years. Now my platelets have gone down to about 70 do I'm now intermediate level 2 with a median
I've had my second consultant appointment since being diagnosed with post ET myelofibrosis about 1 month ago. Then I was intermediate level 1 with platelet count 117 which gave me a median survival of 14 years. Now my platelets have gone down to about 70 do I'm now intermediate level 2 with a median
Scaredy_cat
in
MPN Voice
3 years ago
Red painful Feet
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
Marchmouse
in
CLL Support
3 years ago
Frontline treatment of Chronic Lymphocytic Leukemia (CLL/SLL) in 2021
JCO Oncology Practice has recently published two important papers: a clinical review article by Elizabeth A Brem MD and Susan O'Brien MD and a commentary by Nitin Jain MD which outline the current frontline therapies for CLL. Nitin Jain's excellent summary, titled '
[i]Evolving Treatment Paradigm
JCO Oncology Practice has recently published two important papers: a clinical review article by Elizabeth A Brem MD and Susan O'Brien MD and a commentary by Nitin Jain MD which outline the current frontline therapies for CLL. Nitin Jain's excellent summary, titled '
[i]Evolving Treatment Paradigm
CLLerinOz
Volunteer
in
CLL Support
3 years ago
Time to quit?
A little over a decade ago I went down with a form of
leukaemia
, since when chemo, illness and injury have periodically knocked me back to newbie level.
A little over a decade ago I went down with a form of
leukaemia
, since when chemo, illness and injury have periodically knocked me back to newbie level.
Altair2
in
Bridge to 10K
3 years ago
Leukemia and Lymphoma Society 3 D models help improve our understanding of Chronic Lymphocytic Leukemia (CLL/SLL)
The Leukemia and Lymphoma Society of the USA https://www.lls.org (well worth joining - it's free) has recently released 3D/animated models to help us better visualise how blood cancers impact on our health. The following links are to annotated models of specific interest to those of us with CLL/SLL
The Leukemia and Lymphoma Society of the USA https://www.lls.org (well worth joining - it's free) has recently released 3D/animated models to help us better visualise how blood cancers impact on our health. The following links are to annotated models of specific interest to those of us with CLL/SLL
AussieNeil
Administrator
in
CLL Support
3 years ago
Where does CLL apoptosis take place?
After watching the video (Living With Chronic Lymphocytic Leukemia) I’m curious as to where the CLL cells death (apoptosis) takes place? In the blood? In the marrow? In the lymph nodes? In the spleen? All of the above? The part of the video (below*) is what got me thinking about this. “Dr. Vose: Bruton's
After watching the video (Living With Chronic Lymphocytic Leukemia) I’m curious as to where the CLL cells death (apoptosis) takes place? In the blood? In the marrow? In the lymph nodes? In the spleen? All of the above? The part of the video (below*) is what got me thinking about this. “Dr. Vose: Bruton's
Lavinia-Blue
in
CLL Support
3 years ago
HLH & CLL
Hi All, CLL diagnosed in 2014 and HLH on top of that in 2018. HLH makes CLL look like a cold it's nasty and I thank God for every day that I'm still here and as of yet not needed a transplant. I'm now 43 years of age. Is anyone out there in the same boat? Have a great weekend all! 😊
Hi All, CLL diagnosed in 2014 and HLH on top of that in 2018. HLH makes CLL look like a cold it's nasty and I thank God for every day that I'm still here and as of yet not needed a transplant. I'm now 43 years of age. Is anyone out there in the same boat? Have a great weekend all! 😊
Shirty78
in
CLL Support
3 years ago
New Diagnosis - Everything Normal except cytology
Just diagnosed this month, age 49. My lymphocytes are elevated and my cytology shows “atypical” CLL. All my other labs were good and I am mutated with normal FISH results. My doc says this is all good but I feel like I’m waiting for the other shoe to drop. Like someone is going to come to me and say,
Just diagnosed this month, age 49. My lymphocytes are elevated and my cytology shows “atypical” CLL. All my other labs were good and I am mutated with normal FISH results. My doc says this is all good but I feel like I’m waiting for the other shoe to drop. Like someone is going to come to me and say,
Keggs2020
in
CLL Support
3 years ago
Covid Anti-body Tests through LLS
The Leukemia and Lymphoma Society has set up a registry and is offering a testing program to patients. Sign up through the LLS COVID -19 Patient Registry at: https://www.ciitizen.com/lls/
The Leukemia and Lymphoma Society has set up a registry and is offering a testing program to patients. Sign up through the LLS COVID -19 Patient Registry at: https://www.ciitizen.com/lls/
michaeledward
in
CLL Support
3 years ago
Pfizer buys a company
They bought Trillium. I mention this because this company has a few blood cancer treatments in its pipeline including one that targets TP-53 mutation but for AML and NOT CLL, at least not yet. Still, with their expertise in the realm of treatments for blood cancers and now with the added resources of
They bought Trillium. I mention this because this company has a few blood cancer treatments in its pipeline including one that targets TP-53 mutation but for AML and NOT CLL, at least not yet. Still, with their expertise in the realm of treatments for blood cancers and now with the added resources of
Luap001
in
CLL Support
3 years ago
CLL Transform to Lymphoma?
My ophthalmologist specialist is pretty sure I have ocular lymphoma. I will have a biopsy on August 25th. Does anyone have background on CLL combining with lymphoma?
My ophthalmologist specialist is pretty sure I have ocular lymphoma. I will have a biopsy on August 25th. Does anyone have background on CLL combining with lymphoma?
cll2013
in
CLL Support
3 years ago
What comes next after ICU or HDU
I was very fortunate with my rehab but even this was a limited resource that realistically couldnt feasibly address all the complex issues I experienced as a survivor of ICU & my ongoing treatment for
leukaemia
.
I was very fortunate with my rehab but even this was a limited resource that realistically couldnt feasibly address all the complex issues I experienced as a survivor of ICU & my ongoing treatment for
leukaemia
.
Sepsur
in
ICUsteps
3 years ago
Lactase Dehydogenase level high!
I started seeing an MPN specialist on July 1. He tested for lactase dehydrogenase and in was 242. I just had it repeated and it is now 327. My platelets rose from 648 to 725, wbc went from 13 to 16. HCT went down a little bit from 48.3 to 47.5 which I think both are high for female. I am really bothered
I started seeing an MPN specialist on July 1. He tested for lactase dehydrogenase and in was 242. I just had it repeated and it is now 327. My platelets rose from 648 to 725, wbc went from 13 to 16. HCT went down a little bit from 48.3 to 47.5 which I think both are high for female. I am really bothered
Wewo01
in
MPN Voice
3 years ago
How Good is the Level of Scientific Evidence Underlying the National Comprehensive Cancer Network Clinical Practice (NCCN) CLL Guidelines?
Our community support team take pride in maintaining reliable content in this community. When your life depends on it, you need confidence that what you are reading will give you the information you need. That way you can intelligently question your medical support team for reassurance that they are
Our community support team take pride in maintaining reliable content in this community. When your life depends on it, you need confidence that what you are reading will give you the information you need. That way you can intelligently question your medical support team for reassurance that they are
AussieNeil
Administrator
in
CLL Support
3 years ago
CLL Diet
My Oncologist told me diet has no effect on CLL. Does anyone have input as to a good diet while undergoing treatment now that it is soon to start for me? Even though we need Lipids, cutting back on them may help. Anybody heard that too? I gained too much weight during 2020 pandemic, and feel that will
My Oncologist told me diet has no effect on CLL. Does anyone have input as to a good diet while undergoing treatment now that it is soon to start for me? Even though we need Lipids, cutting back on them may help. Anybody heard that too? I gained too much weight during 2020 pandemic, and feel that will
Hugo51
in
CLL Support
3 years ago
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