What comes next after ICU or HDU

[Sepsur]

Many of us drop down through the various wards and end up in rehab whether as an in or outpatient. Across the U.K. there is a great discrepancy between the various Trusts - for those of us who experience ICU before Covid, there was very little long term provision of help. I was very fortunate with my rehab but even this was a limited resource that realistically couldnt feasibly address all the complex issues I experienced as a survivor of ICU & my ongoing treatment for leukaemia. Some of us formed a group that looked at practical ways to address some of our common issues. Please see the header photo for our weekly programme of free help to all ( even your loved ones). These sessions run at U.K. local time.

[Del20]

Hi there, thank you for all these information and for your candidness when you speak of all you’ve been through. You most be a very strong person, carrying so much on you but looking out for others. I came home as outpatient, receiving physical therapy at home and a nurse visiting three times a week for three months. I’m still recuperating, have mild fibrosis also due to the Covid. We also have a Covid survivors group here and I also attend bereavement zoom meetings four time a month. Perhaps someday I’ll have the courage and drop in on your group.

Thank you for letting me be a part of your conversation.

Best!

[Sepsur in reply to Del20]

You’d always be welcome - we’ve found the sessions helpful - I’m still physically improving 5yrs on from ICU - although the waters are slightly muddier because of several times in hospital since then which always leads to some deconditioning again - I lose muscle tone & become more breathless once more. It’s a long old hike but easier with people along side you 😊

[Isl_living]

Thanks so much for this information and link. I’ve just looked around the site as well as the April newsletter. In it was mentioned the possibility of a drop in specifically for Australians which is fantastic, because that’s where I live. I’m 5 months out of hospital following severe pneumonia, necessitating intubation/coma/ventilator, and weeks in a respiratory ward and then rehab. The specialist I saw a month after discharge warned me that it would be a long recovery, and he is so right. Sadly, there’s no support group offered by the hospital, so online orgs have been what I’ve been searching for.

[Sepsur in reply to Isl_living]

We have several members across Australia - so we thought about an inclusive drop-in 😊. Good luck moving forward with your recovery

[Isl_living]

Thanks for responding back. I’m sorry I didn’t get back sooner - have been away visiting my Mum who’s in nursing care (dementia). Have you decided on a date for the Australian drop in? Cheers!

[Sepsur in reply to Isl_living]

Not confirmed yet 😊