Search
Search
About
Log in
Join
Experiences with
Leukaemia
Posts
Communities
3,304 public posts
Filter results
White Paper recommends steps to improve the care and support of people with Chronic Lymphocytic Leukemia who face immune challenges
[/i] So, they produced a White Paper titled [i]
"Compromised: Uncovering the immune-related challenges facing people with chronic lymphocytic
" [/i]
which was released this week (15 May 2023).
[/i] So, they produced a White Paper titled [i]
"Compromised: Uncovering the immune-related challenges facing people with chronic lymphocytic
" [/i]
which was released this week (15 May 2023).
CLLerinOz
Administrator
in
CLL Support
1 year ago
Durability of Ruxolitinib for PV, Dr V in Targeted Oncology interview
A few weeks ago there was some discussion on there was some discussion on her re the durability of Rux for PV. Below is a answer to that from Dr V in a interview with Targeted Oncolgy in Nov 2022 In polycythemia vera, ruxolitinib is valuable as a second-line choice when things don't go well with hydroxyurea
A few weeks ago there was some discussion on there was some discussion on her re the durability of Rux for PV. Below is a answer to that from Dr V in a interview with Targeted Oncolgy in Nov 2022 In polycythemia vera, ruxolitinib is valuable as a second-line choice when things don't go well with hydroxyurea
ainslie
in
MPN Voice
2 years ago
Is my body killing my embryos?
I'm 41... conceived a son through IVF in 2019 (an angel - my mum died of
leukaemia
in the middle of that cycle - I can't believe he was ok). From that cycle, I produced three more good quality blastocysts (grade B). These were put in the freezer.
I'm 41... conceived a son through IVF in 2019 (an angel - my mum died of
leukaemia
in the middle of that cycle - I can't believe he was ok). From that cycle, I produced three more good quality blastocysts (grade B). These were put in the freezer.
rainbowbaby8320
in
Fertility Network UK
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
CANCER CURE! Little girl's leukemia UNDETECTABLE after 6 months! (Treatment is applicable to OTHER diseases!)
[/i] [i]"All other treatments for Alyssa's
leukaemia
had failed."[/i] [i]"So doctors at Great Ormond Street Hospital used "base editing" to perform a feat of biological engineering to build her a new living drug."[/i] [i]"[/i][u][i]
Six months later the cancer is undetectable
[/i][/u][i]."
[/i] [i]"All other treatments for Alyssa's
leukaemia
had failed."[/i] [i]"So doctors at Great Ormond Street Hospital used "base editing" to perform a feat of biological engineering to build her a new living drug."[/i] [i]"[/i][u][i]
Six months later the cancer is undetectable
[/i][/u][i]."
PDWarrior1900
in
Cure Parkinson's
2 years ago
LDN Dosing for Cancer - General Guide
It can be used for all cancer types except
leukaemia
and lymphoma. I highly recommend running a Maintrac test every 3-6 months to monitor for early signs of recurrence (it provides an early warning before tumours form).
It can be used for all cancer types except
leukaemia
and lymphoma. I highly recommend running a Maintrac test every 3-6 months to monitor for early signs of recurrence (it provides an early warning before tumours form).
Shewulf
Administrator
in
LDN Research Trust
1 year ago
CAR-T for CLL Hits Goal of Mid-Stage Trial - All patients had progressed on BTK inhibitors & most had failed venetoclax - MedPageToday, 6/12
[/i] * * * Here are links to the [i]
Lancet
[/i] paper (full access) and [i]
TRANSCEND CLL 004
[/i] trial: [i]
Lisocabtagene maraleucel in chronic lymphocytic
and small lymphocytic lymphoma (TRANSCEND CLL 004): a multicentre, open-label, single-arm, phase 1–2 study, The Lancet
[/i] * * * Here are links to the [i]
Lancet
[/i] paper (full access) and [i]
TRANSCEND CLL 004
[/i] trial: [i]
Lisocabtagene maraleucel in chronic lymphocytic
and small lymphocytic lymphoma (TRANSCEND CLL 004): a multicentre, open-label, single-arm, phase 1–2 study, The Lancet
cujoe
in
CLL Support
1 year ago
The Leukemia & Lymphoma Society - - COVID Updates: Where We Are and Where We Go From Here
COVID Updates: Where We Are and Where We Go From Here https://youtu.be/0aUhKTfOVUI We invite you to learn more about: How COVID-19 has evolved Safety tips for immunocompromised patients Current treatment advances Living with COVID through the end of 2022 and beyond https://youtu.be/0aUhKTfOVUI
COVID Updates: Where We Are and Where We Go From Here https://youtu.be/0aUhKTfOVUI We invite you to learn more about: How COVID-19 has evolved Safety tips for immunocompromised patients Current treatment advances Living with COVID through the end of 2022 and beyond https://youtu.be/0aUhKTfOVUI
lankisterguy
Volunteer
in
CLL Support
2 years ago
CLL relapse
Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62). She is taking Bendamustine monotherapy and was in remission about 3 years after treatment. Now she has one enlarged lymphnode in her armpit, her hematologist said that CLL is slowly coming back. Leukocites 7.7 Lymphocites
Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62). She is taking Bendamustine monotherapy and was in remission about 3 years after treatment. Now she has one enlarged lymphnode in her armpit, her hematologist said that CLL is slowly coming back. Leukocites 7.7 Lymphocites
Taupe7
in
CLL Support
2 years ago
First COVID Antibody Test
I just got the results back from my first COVID antibody test. It said that my antibody level is 150. Is this a decent level? It is difficult to find much information on this. I am trying to see if I can feel a little secure if we have family over for Christmas. I will probably wear a mask and
I just got the results back from my first COVID antibody test. It said that my antibody level is 150. Is this a decent level? It is difficult to find much information on this. I am trying to see if I can feel a little secure if we have family over for Christmas. I will probably wear a mask and
noeagaman
in
CLL Support
2 years ago
Patient Power's MOST-READ ARTICLEs for 2022
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
lankisterguy
Volunteer
in
CLL Support
2 years ago
Latest Consultation/Bloods
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Divisidero
in
CLL Support
2 years ago
Could you share your leukaemia diagnosis story?
Hi everyone, Alex here from
Leukaemia
Care. 👋 September is Blood Cancer Awareness Month and we will be running our Spot
Leukaemia
campaign, which aims to raise awareness of the signs and symptoms of
leukaemia
.
Hi everyone, Alex here from
Leukaemia
Care. 👋 September is Blood Cancer Awareness Month and we will be running our Spot
Leukaemia
campaign, which aims to raise awareness of the signs and symptoms of
leukaemia
.
LCAlex
in
Leukaemia Support
2 years ago
Recently diagnosed with Primary Myelofibrosis
Up until I caught Covid at the beginning of June 2022 I was fit, healthy and pretty active, always outdoors doing something like playing golf two or three times a week. I never really recovered from Covid although tested negative after two weeks. Since that time, I became more and more out of breath
Up until I caught Covid at the beginning of June 2022 I was fit, healthy and pretty active, always outdoors doing something like playing golf two or three times a week. I never really recovered from Covid although tested negative after two weeks. Since that time, I became more and more out of breath
Flyingsteamer
in
MPN Voice
2 years ago
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD Provided by Clinical Care Options, LLC
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic Lymphocytic Leukemia Care: A Master Class for the Community Multidisciplinary Team
Key Takeaways
• Obinutuzumab is the preferred anti-CD20
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic Lymphocytic Leukemia Care: A Master Class for the Community Multidisciplinary Team
Key Takeaways
• Obinutuzumab is the preferred anti-CD20
lankisterguy
Volunteer
in
CLL Support
2 years ago
Collagen
Good Day All I am 80 years old and have been on W & W for 5 years. I am considering taking a collagen supplement for joint pain in my knee. Does anyone know of reason I shouldn't take collagen with CLL. Thanks very much.
Good Day All I am 80 years old and have been on W & W for 5 years. I am considering taking a collagen supplement for joint pain in my knee. Does anyone know of reason I shouldn't take collagen with CLL. Thanks very much.
Buttons42
in
CLL Support
2 years ago
"Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia"
Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia - https://www.news-medical.net/news/20221212/Three-drug-combination-highly-effective-in-patients-with-high-risk-forms-of-chronic-lymphocytic-leukemia.aspx - small USA trial (68) with acalabrutinib
Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia - https://www.news-medical.net/news/20221212/Three-drug-combination-highly-effective-in-patients-with-high-risk-forms-of-chronic-lymphocytic-leukemia.aspx - small USA trial (68) with acalabrutinib
JIDD
in
CLL Support
2 years ago
Withdrawal from Jakafi
I've been on Jakafi for about two months now, and I'm afraid that it doesn't seem to be working out for me. For the first six weeks, everything looked good: WBC and PLT in normal range and stable, RBC, HCT and HGB steadily declining but still only slightly less than normal. Because of the decline,
I've been on Jakafi for about two months now, and I'm afraid that it doesn't seem to be working out for me. For the first six weeks, everything looked good: WBC and PLT in normal range and stable, RBC, HCT and HGB steadily declining but still only slightly less than normal. Because of the decline,
sbs_patient
in
MPN Voice
2 years ago
🎄Support available over Christmas🎄
Leukaemia
Care Office: Our office will be closed from 12pm on Friday 23rd December until 9am on Tuesday 3rd January 2023. Please head to our website to contact our team and we will respond when our office re-opens in the New Year.
Leukaemia
Care Office: Our office will be closed from 12pm on Friday 23rd December until 9am on Tuesday 3rd January 2023. Please head to our website to contact our team and we will respond when our office re-opens in the New Year.
LCAlex
in
Leukaemia Support
2 years ago
Treatment of Richter's syndrome - ASH 2022 Education Program
This year's American Society of Hematology (ASH) annual conference is now underway and the ASH Education Program, Volume 2022, Issue 1 booklet that was published on 9 December 2022 is now available at: https://ashpublications.org/hematology/issue/2022/1 It contains three review articles from sessions
This year's American Society of Hematology (ASH) annual conference is now underway and the ASH Education Program, Volume 2022, Issue 1 booklet that was published on 9 December 2022 is now available at: https://ashpublications.org/hematology/issue/2022/1 It contains three review articles from sessions
CLLerinOz
Administrator
in
CLL Support
2 years ago
Second opinion
Hi,I suffer from polycythaemia vera and have done so for the last 7 years. I am on hydroxycarbamide, which they have kept increasing the dosage, but it is failing to keep my platelet levels etc in check. The consultant wants to give me a bone marrow biopsy and change my medication, but I would like a
Hi,I suffer from polycythaemia vera and have done so for the last 7 years. I am on hydroxycarbamide, which they have kept increasing the dosage, but it is failing to keep my platelet levels etc in check. The consultant wants to give me a bone marrow biopsy and change my medication, but I would like a
Georgehb
in
MPN Voice
2 years ago
1
...
20
21
22
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1817 results
MPN Voice
841 results
Leukaemia Support
270 results
View top 10 communities
Sort by
Most Relevant
Newest