National Patient Data day conference - June 24 Leeds

[Snellybob]

I'm a member of an organisation called useMydata - a group of patients keen on having their medical data shared across different bits of the NHS. So that GPs, consultants, ambulance crews can find out about you.

Our organisation is having a conference on the subject of health data sharing for our own care and for research, this June, In Leeds.

My Leukaemia data is spread around different parts of the NHS; 2 GP surgeries, 3 hospitals. No researcher would ever find the whole progression of my Chronic lymphocytic leukaemia (CLL).

Check it out on our website: usemydata.org/content_db.ph...

 And even if you can't come think about joining useMydata - we're doing some useful stuff providing patient representatives to all sorts of organisations within and outside the NHS.

[Walkingtall62]

Hi, is this the same as Patientsknowbest, or yet another piece of software that the NHS have to enter data into and patients and doctors have to look at. Yet more passwords, yet more learning to use. It may be better, I dont know. I think there should just be one for the time being. I have been using Patientsknowbest for a few years and find it very helpful, but not against change

[Snellybob in reply to Walkingtall62]

No, it is an in person conference organised by patients for patients.

Do look at the useMydata website.

D