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Hello 👋🏿
Hi everyone! My name is Taress (rhymes with caress). I was diagnosed with Multiple Sclerosis 6 months ago. It's been a long time coming. I have had symptoms of it, on and off, since 2005. I am one of three of my family members whose been diagnosed with it. My main symptoms are fatigue, dizziness, neuropathy
Hi everyone! My name is Taress (rhymes with caress). I was diagnosed with Multiple Sclerosis 6 months ago. It's been a long time coming. I have had symptoms of it, on and off, since 2005. I am one of three of my family members whose been diagnosed with it. My main symptoms are fatigue, dizziness, neuropathy
RessieBare02
in
My MSAA Community
2 months ago
No thyroid
Hi, all the posts are about thyroid problems and taking levo for underactive thyroid, I'm taking levo 50mg and 75mg on alternate days. Can anyone tell me if taking tiromel or the unipharma tablets would be any use fo r someone who has had a total thyroidectomy. At the moment I feel as though I'm sleeping
Hi, all the posts are about thyroid problems and taking levo for underactive thyroid, I'm taking levo 50mg and 75mg on alternate days. Can anyone tell me if taking tiromel or the unipharma tablets would be any use fo r someone who has had a total thyroidectomy. At the moment I feel as though I'm sleeping
Sleepyasf--k
in
Thyroid UK
2 months ago
Medication not working
I’ve had rheumatoid arthritis for nearly 20years. I’ve tried, methotrexate, Arava, adalimimab, entanercept, ruituxan, filgotinib, baracitinib and a few others that aren’t biologics. The problem is, they don’t work for me. Has anyone else had this issue and if so what are you taking now. I’m at my wits
I’ve had rheumatoid arthritis for nearly 20years. I’ve tried, methotrexate, Arava, adalimimab, entanercept, ruituxan, filgotinib, baracitinib and a few others that aren’t biologics. The problem is, they don’t work for me. Has anyone else had this issue and if so what are you taking now. I’m at my wits
Lornap1
in
NRAS
2 months ago
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Travel
My husband has decompensated alcohol related liver disease with ascites, abstinent for 7 months. We would like to get to Germany to see his family for a month in our motorhome and wondered if a) anyone has travelled abroad with this condition and b) if anyone has experience of the insurance companies
My husband has decompensated alcohol related liver disease with ascites, abstinent for 7 months. We would like to get to Germany to see his family for a month in our motorhome and wondered if a) anyone has travelled abroad with this condition and b) if anyone has experience of the insurance companies
Breakfastbabe
in
British Liver Trust
6 months ago
Bloating
Hi....I've battled with IBS for many years and following endoscopy and gastroscopy I was diagnosed with a lazy stomach. Dietary controls and careful eating seemed to keep things under control with minimal 'episodes' of wind, bloating and diarrhea. Fast forward a few years and following a prolonged course
Hi....I've battled with IBS for many years and following endoscopy and gastroscopy I was diagnosed with a lazy stomach. Dietary controls and careful eating seemed to keep things under control with minimal 'episodes' of wind, bloating and diarrhea. Fast forward a few years and following a prolonged course
Sardinesagain
in
IBS Network
6 months ago
biologics
hi all! I have rheumatoid arthritis I’m currently injecting 15 mg of Metratrexate but just had all my screening including TB all come back clear so now I have the green light to start Himera but I’m really nervous of this medication!🤦🏽‍♀️I’m staying on the metratrexate but adding in the biologic as
hi all! I have rheumatoid arthritis I’m currently injecting 15 mg of Metratrexate but just had all my screening including TB all come back clear so now I have the green light to start Himera but I’m really nervous of this medication!🤦🏽‍♀️I’m staying on the metratrexate but adding in the biologic as
Mybirthday1975
in
NRAS
2 months ago
Heat does it cause problems
Hi allBoth ankles and knees swollen does this often happen with underactive thyroid I am on 75 to 100mg daily which I alternate as recommended by you lovely lot which has helped me become stable and feel better for last year I do have inflammatory arthritis also and am on DMARS for Any advise tips will
Hi allBoth ankles and knees swollen does this often happen with underactive thyroid I am on 75 to 100mg daily which I alternate as recommended by you lovely lot which has helped me become stable and feel better for last year I do have inflammatory arthritis also and am on DMARS for Any advise tips will
Castroll
in
Thyroid UK
2 months ago
so. Is Undifferentiated Connective Tissue Disease latent lupus or lupus?
diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry mouth, ulcers on parotid glands, thyroid, testes, mouth ulcers, Yesterday taken into hospital for suspected brain bleed, aneurism. One protein
diagnosed with UCTD in October 2023. Fatigue, weird blood results which sent down rabbit hole for heart, liver. Scans showed all okay… fatigue, dry eyes, dry mouth, ulcers on parotid glands, thyroid, testes, mouth ulcers, Yesterday taken into hospital for suspected brain bleed, aneurism. One protein
Bigdave79
in
LUPUS UK
2 months ago
Results from blood tests
These is what my blood results came back has. I'm been treated for underactive . But to be told I'm hyperthyroidism instead
These is what my blood results came back has. I'm been treated for underactive . But to be told I'm hyperthyroidism instead
Salsybar73
in
Thyroid UK
2 months ago
Testosterone and PCa risk - 3
Here's a plot showing the Odds Ratio for having either Intermediate Risk PCa or high-risk PCa, as a function of baseline testosterone levels. The Odds Ratio tells the likelihood of getting PCa, compared to a reference value of 1. So, for example, for the lower plot (high risk), a testosterone level
Here's a plot showing the Odds Ratio for having either Intermediate Risk PCa or high-risk PCa, as a function of baseline testosterone levels. The Odds Ratio tells the likelihood of getting PCa, compared to a reference value of 1. So, for example, for the lower plot (high risk), a testosterone level
janebob99
in
Advanced Prostate Cancer
6 months ago
Disease remission achieved in SLE with dual-target CAR T-cell therapy
Disease remission achieved in SLE with dual-target CAR T-cell therapy Nearly all patients in small trial see long-term medication-free remission Nearly all people with systemic lupus erythematosus (SLE) treated with iCell Gene Therapeutics’ dual-target CAR T-cell therapy achieved medication-free
Disease remission achieved in SLE with dual-target CAR T-cell therapy Nearly all patients in small trial see long-term medication-free remission Nearly all people with systemic lupus erythematosus (SLE) treated with iCell Gene Therapeutics’ dual-target CAR T-cell therapy achieved medication-free
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 months ago
Feeling rubbish
Hi been feeling achy, exhausted,can sleep 12 hrs but wake up groggy & tired. Everything hurts. Have plantar fasciatis. Patella deformity in knee, spondylitis in my back giving me sciatica. Herniated discs both sides of neck. Causing numbess & pain. Chronic pain syndrome. Cfs/fybro/me. Arthritis in some
Hi been feeling achy, exhausted,can sleep 12 hrs but wake up groggy & tired. Everything hurts. Have plantar fasciatis. Patella deformity in knee, spondylitis in my back giving me sciatica. Herniated discs both sides of neck. Causing numbess & pain. Chronic pain syndrome. Cfs/fybro/me. Arthritis in some
bellemia
in
Thyroid UK
2 months ago
NRAS Live: How Important is Nutrition & Diet when Managing Rheumatoid Arthritis?
Join us for our next NRAS Live which will be taking place on Wednesday 26th June at 7pm. This month, we delve into the important role of nutrition and diet when managing a healthy lifestyle living with rheumatoid arthritis. Ailsa will be sitting down with Elena Nikiphorou, Rheumatologist Consultant and
Join us for our next NRAS Live which will be taking place on Wednesday 26th June at 7pm. This month, we delve into the important role of nutrition and diet when managing a healthy lifestyle living with rheumatoid arthritis. Ailsa will be sitting down with Elena Nikiphorou, Rheumatologist Consultant and
Aribah-NRAS
NRAS
in
NRAS
2 months ago
Testosterone and PCa risk - 2
This plot shows a Kaplan-Mier Prostate Cancer Mortality Survival plot for three different levels of baseline testosterone: Low-T, IntermediateT, and Normal-T. The best survival is for men with Normal testosterone levels at baseline, and the worst survival is for men with low-T. REF: www.spandidos-publications.com
This plot shows a Kaplan-Mier Prostate Cancer Mortality Survival plot for three different levels of baseline testosterone: Low-T, IntermediateT, and Normal-T. The best survival is for men with Normal testosterone levels at baseline, and the worst survival is for men with low-T. REF: www.spandidos-publications.com
janebob99
in
Advanced Prostate Cancer
6 months ago
Testosterone Levels and Prostate Cancer Risk - 1
This plot shows the association of baseline testosterone levels with PCa aggressiveness. For example, if you have low aggressive PCA, your testosterone is likely to be Normal. But, if you have metastatic PCa, your testosterone is likely to be very Low. This shows that having normal testosterone
This plot shows the association of baseline testosterone levels with PCa aggressiveness. For example, if you have low aggressive PCA, your testosterone is likely to be Normal. But, if you have metastatic PCa, your testosterone is likely to be very Low. This shows that having normal testosterone
janebob99
in
Advanced Prostate Cancer
6 months ago
thank you for the help! ❤️
I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I spoke to the hepatobillary clinic who removed my gallbladder & they agree it’s most likely the pancreatitis is being caused by an autoimmune issue
I recently posted asking if anyone had pancreatitis issues with lupus (just been diagnosed with cutaneous lupus) and I got some advise & help & support. I spoke to the hepatobillary clinic who removed my gallbladder & they agree it’s most likely the pancreatitis is being caused by an autoimmune issue
Loobie72
in
LUPUS UK
2 months ago
Strange definition of pernicious anemia
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
Found this questionable definition of pernicious anemia on a Johns Hopkins web page about gastritis: [i]
Pernicious anemia
. This is a form of anemia that happens when your stomach can't digest vitamin B-12.[/i] Even the best seem to get it wrong. https://www.hopkinsmedicine.org/health/conditions-and-diseases
palmier
in
Pernicious Anaemia Society
2 months ago
Once I start supplementing B12, will my B12 blood tests still be accurate?
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
I would like to know if blood tests will still be a useful measure of my B12 levels, once I have started supplementing B12. I would be testing active B12. The reason I ask is that I have read pernicious anemia people saying that once they start injections (and supplements too maybe), that the B12 blood
Carrie234
in
Thyroid UK
2 months ago
Curcumin and Ginkgo Biloba Extract Together
AD research, may also benefit PD... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10229698/ Abstract Alzheimer’s disease (AD) is one of the most prevalent neurodegenerative illnesses, and yet, no workable treatments have been discovered to prevent or reverse AD. Curcumin (CUR), the major polyphenolic
AD research, may also benefit PD... https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10229698/ Abstract Alzheimer’s disease (AD) is one of the most prevalent neurodegenerative illnesses, and yet, no workable treatments have been discovered to prevent or reverse AD. Curcumin (CUR), the major polyphenolic
JayPwP
in
Cure Parkinson's
6 months ago
Imuran Side Effects
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
AIGal73
in
British Liver Trust
6 months ago
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