Search
Search
About
Log in
Join
Experiences with
Laser therapy
Posts
Communities
16,761 public posts
Filter results
coming off gnhr analogue injections
I’ve been on gnhr analogue injections for endo and adeno for a year and they relieved all my symptoms. My consultant has now taken me off them as they started wearing off after 3 weeks and he wanted to “see how I got on without them” (which is a whole different matter and I’m quite angry about). I’m
I’ve been on gnhr analogue injections for endo and adeno for a year and they relieved all my symptoms. My consultant has now taken me off them as they started wearing off after 3 weeks and he wanted to “see how I got on without them” (which is a whole different matter and I’m quite angry about). I’m
lauraeastw
in
Endometriosis UK
9 months ago
Duluxotine
Hi. I have been on Duluxotine for about 5 months now and have not felt any benefits re: pain. It has been making me wake up.in the night and more tired. I had a cold turkey over Christmas as I couldn't get my meds and had to go back on them after 5 days as I was still rattling. I take Pregablin as well
Hi. I have been on Duluxotine for about 5 months now and have not felt any benefits re: pain. It has been making me wake up.in the night and more tired. I had a cold turkey over Christmas as I couldn't get my meds and had to go back on them after 5 days as I was still rattling. I take Pregablin as well
Catsandcakes77
in
Fibromyalgia Action UK
9 months ago
Radiation?
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
Tommyj2
in
Advanced Prostate Cancer
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
perineural Invasion
My prostate biopsy has discovered perineural invasion (cancer along nerves) in 4 out of 6 sites with Gleason Score 9 in half of my prostate. This is associated with a significantly worse prognosis for survival. What are experiences of other men with this diagnosis? I am 84, in good health, and preparing
My prostate biopsy has discovered perineural invasion (cancer along nerves) in 4 out of 6 sites with Gleason Score 9 in half of my prostate. This is associated with a significantly worse prognosis for survival. What are experiences of other men with this diagnosis? I am 84, in good health, and preparing
Worked_the_World
in
Advanced Prostate Cancer
9 months ago
Statin use and mortality risk in men on ADT.
New ADT study from Hong Kong (1). "A total of 4920 patients were included, consisting of 2578 statin users and 2342 non-users (mean age 76.1 ± 8.2 years). Over a mean follow-up period of 4.2 ± 3.3 years, it was observed that statin users had significantly lower risks of both PCa-related mortality
New ADT study from Hong Kong (1). "A total of 4920 patients were included, consisting of 2578 statin users and 2342 non-users (mean age 76.1 ± 8.2 years). Over a mean follow-up period of 4.2 ± 3.3 years, it was observed that statin users had significantly lower risks of both PCa-related mortality
pca2004
in
Fight Prostate Cancer
9 months ago
My decision on Radiotherapy -v- Prostatectomy
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
I hope this story might be useful to others. I'm based in the UK and had a PSA of 12.7 from a test in June 2023. That led to an MRI in August with a PI-RADS of 5 with irregularity on the front of the prostate. I eventually had a biopsy at the end of September after 3 cancellations (this was through the
MarkS
in
Prostate Cancer Network
9 months ago
Having trouble with right med combo for 11 year old son.
Our son was diagnosed with ADHD in December 2022. We started behavioral therapy (DBT training) in January 2022 and also recently started ADHD meds in April 2022. He is currently on Focalin XR (15 mg) right before school and short acting Focalin after school (7.5 mg), We have found that the long acting
Our son was diagnosed with ADHD in December 2022. We started behavioral therapy (DBT training) in January 2022 and also recently started ADHD meds in April 2022. He is currently on Focalin XR (15 mg) right before school and short acting Focalin after school (7.5 mg), We have found that the long acting
Kristin_B
in
CHADD's ADHD Parents Together
1 year ago
Role of Occupational Therapy
Interesting paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4606403/
Interesting paper https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4606403/
pdpatient
in
Cure Parkinson's
1 year ago
The devil's dilemma
Between a rock and a hard place I am not sure if this topic has been discussed here before but it’s extremely frustrating to me since I don’t understand which way to go Very very interesting video. In a nut shell, the video discussion is about the introduction of NEPC and progression from HS to
Between a rock and a hard place I am not sure if this topic has been discussed here before but it’s extremely frustrating to me since I don’t understand which way to go Very very interesting video. In a nut shell, the video discussion is about the introduction of NEPC and progression from HS to
StayingOptimistic
in
Advanced Prostate Cancer
9 months ago
PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Hidden
in
Advanced Prostate Cancer
9 months ago
After bicalutimide and a high testosterone level is pre treatment T just guess work?
Just turning to fellow travellers on our various journeys for some input/advice/ thoughts as I make a decision on how far to push to the SOC for my high risk G9, given my oncologist is saying 15 months adjuvant (I am nervous of anything less than 18 months) is enough given my co morbidities, age at 73
Just turning to fellow travellers on our various journeys for some input/advice/ thoughts as I make a decision on how far to push to the SOC for my high risk G9, given my oncologist is saying 15 months adjuvant (I am nervous of anything less than 18 months) is enough given my co morbidities, age at 73
SimMartin
in
Prostate Cancer Network
9 months ago
Divergent second opinion
My husband was recently diagnosed with PCa with 6-7 mets to the bones as seen on the PSMA Pet scan (see profile for details), The first MO we met at an NCCN center recommended triplet therapy. He has started Firmagon + Darulotomide with Docetaxel planned in the coming weeks. We also got a second opinion
My husband was recently diagnosed with PCa with 6-7 mets to the bones as seen on the PSMA Pet scan (see profile for details), The first MO we met at an NCCN center recommended triplet therapy. He has started Firmagon + Darulotomide with Docetaxel planned in the coming weeks. We also got a second opinion
Cali3
in
Advanced Prostate Cancer
9 months ago
New possible treatment being researched
Just read an interesting article about some research at Trent University that says there's hope for a new PCa treatment. It's a naturally occurring molecule called carnosine and seems to indicate much fewer side effects. As I've written before, I think ADT is too harsh and takes away too much, so I
Just read an interesting article about some research at Trent University that says there's hope for a new PCa treatment. It's a naturally occurring molecule called carnosine and seems to indicate much fewer side effects. As I've written before, I think ADT is too harsh and takes away too much, so I
Shamrock46
in
Advanced Prostate Cancer
9 months ago
Update on Head/neck pressure post from a few days ago
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
I have a previous post discussing this but as a quick recap - for some reason, after about 2.5 years of being on a steady dose, I suddenly felt unwell and v overmedicated on holiday about 8 weeks ago. I dropped my dose by 5, then another 5mcg and felt fine about from about two weeks afterwards until
Murphysmum
in
Thyroid UK
9 months ago
Foot Cramps
Can anyone suggest anything I can take for foot cramps. I am currently taking 600mg pregablin, ramipril, hrt, zapain and naproxen aswell as iron, calcium and magnesium. The cramps are becoming more and more frequent and my Gp said to eat bananas and rub magnesium into my feet. Last night was unbearable
Can anyone suggest anything I can take for foot cramps. I am currently taking 600mg pregablin, ramipril, hrt, zapain and naproxen aswell as iron, calcium and magnesium. The cramps are becoming more and more frequent and my Gp said to eat bananas and rub magnesium into my feet. Last night was unbearable
UpsideDownInsideOut
in
Restless Legs Syndrome
9 months ago
How My Phobia of the Dark Helped Me Treat My OCD
I used to be afraid to leave the comfort of my bed nighttime for a fear of being attacked by supernatural beings. This was ridiculous. I prided myself in having a scientific mind. How could I be afraid of ghosts nighttime when I walked out of my comfort zone? I was pretty sure that ghosts didn’t exist
I used to be afraid to leave the comfort of my bed nighttime for a fear of being attacked by supernatural beings. This was ridiculous. I prided myself in having a scientific mind. How could I be afraid of ghosts nighttime when I walked out of my comfort zone? I was pretty sure that ghosts didn’t exist
deValentin
in
My OCD Community
9 months ago
Zoladex experience
Hey there 👋 I'm just wondering if anyone has had a negative experience with zoladex? I am due to have my 4th injection next week, was supposed to be yesterday but appointment got cancelled. I'm also on Estradot patches and utrogestan tablets. I've never felt so shit in all my life and the only thing
Hey there 👋 I'm just wondering if anyone has had a negative experience with zoladex? I am due to have my 4th injection next week, was supposed to be yesterday but appointment got cancelled. I'm also on Estradot patches and utrogestan tablets. I've never felt so shit in all my life and the only thing
x_b_x
in
Endometriosis UK
9 months ago
New Developments in My Husband's PCA Journey
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
Hello, I wanted to provide an update on my husband's progression and, hopefully, some of you may have some knowledge to share or have a similar profile. His psa has risen from <0.04 since RP for Stage 3b to 0.06 in 9/23. A recheck a week later showed a rise to 0.1. This was followed by a drop to <.04
103532
in
Advanced Prostate Cancer
9 months ago
RP & T3B
Those who had RP and T3b with no ADT/SRT yet, how are you doing and when was your RP?
Those who had RP and T3b with no ADT/SRT yet, how are you doing and when was your RP?
tn12
in
Advanced Prostate Cancer
9 months ago
Blood test time - still no better
Hello I'm posting again to get views on my latest blood tests, although I think it's probably same as last time. I just don't get anywhere with my doctor. Last time some of you were saying that I possibly had poor conversion and I think my results this time are showing similar sort of numbers. My doctor
Hello I'm posting again to get views on my latest blood tests, although I think it's probably same as last time. I just don't get anywhere with my doctor. Last time some of you were saying that I possibly had poor conversion and I think my results this time are showing similar sort of numbers. My doctor
Loopnova
in
Thyroid UK
9 months ago
1
...
78
79
80
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4622 results
Thyroid UK
2436 results
Endometriosis UK
1894 results
View top 10 communities
Sort by
Most Relevant
Newest