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Does anyone else have scarred retinas that cause double vision? If so, what was your treatment? Did you find a good specialist to help?
4 years ago I had swelling of my retinas during my pregnancy which later caused extensive scarring to both retinas. It’s most likely the cause of my double vision according to the 4 retina specialists I’ve seen. No surgery is available to correct the amount of scars I have. What’s worse is no one can
4 years ago I had swelling of my retinas during my pregnancy which later caused extensive scarring to both retinas. It’s most likely the cause of my double vision according to the 4 retina specialists I’ve seen. No surgery is available to correct the amount of scars I have. What’s worse is no one can
DoublevisionS
in
Macular Society
4 years ago
Loss of Smell Associated with Milder Clinical Course in COVID-19.
Following an earlier study that validated the loss of smell and taste as indicators of SARS-CoV-2 infection, researchers at UC San Diego Health report in newly published findings that olfactory impairment suggests the resulting COVID-19 disease is more likely to be mild to moderate, a potential early
Following an earlier study that validated the loss of smell and taste as indicators of SARS-CoV-2 infection, researchers at UC San Diego Health report in newly published findings that olfactory impairment suggests the resulting COVID-19 disease is more likely to be mild to moderate, a potential early
2greys
in
Lung Conditions Community Forum
4 years ago
Another big thank you for help received
Just wanted to post this in order to acknowledge the time and effort given by jinask,and Tto express my gratitude. I know you guys do this day in day out but a thank you doesn't go amiss. Many many thanks for your time and effort spent in sending me the booklet and DVD.I received it today,Friday 1st
Just wanted to post this in order to acknowledge the time and effort given by jinask,and Tto express my gratitude. I know you guys do this day in day out but a thank you doesn't go amiss. Many many thanks for your time and effort spent in sending me the booklet and DVD.I received it today,Friday 1st
yorkieme
in
PMRGCAuk
4 years ago
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risk factors.
Hi. I have had PMR for 5 years and been on prednisolone for the same amount of time. I am now on 2 mg but unable to get below. I am 59 so got it fairly young (54) and its dragging its pesky feet! I understand the risk of the steroids suppressing the immune system. Does having an auto immune disease increase
Hi. I have had PMR for 5 years and been on prednisolone for the same amount of time. I am now on 2 mg but unable to get below. I am 59 so got it fairly young (54) and its dragging its pesky feet! I understand the risk of the steroids suppressing the immune system. Does having an auto immune disease increase
Jennykk
in
PMRGCAuk
4 years ago
Blood clots Article in Irish Time
Evidence is building that Covid-19 can cause blood clotting abnormalities in patients, which could increase their risk of death. Researchers in Ireland have reported finding that patients with severe coronavirus infection have micro blood clots in their lungs – something they say is not seen in other
Evidence is building that Covid-19 can cause blood clotting abnormalities in patients, which could increase their risk of death. Researchers in Ireland have reported finding that patients with severe coronavirus infection have micro blood clots in their lungs – something they say is not seen in other
Dodie117
in
AF Association
4 years ago
Loss of Smell in PD and COVID-19
There are 3 coronaviruses that cause 13% of colds. Loss of smell is often first symptom in COVID-19 and PD. It has long been a theory that one route to PD is is a viral infection that travels from nose to the deep brain. In the past few days, 6 papers on COVID-19 have cited a 1992 PD paper that shows
There are 3 coronaviruses that cause 13% of colds. Loss of smell is often first symptom in COVID-19 and PD. It has long been a theory that one route to PD is is a viral infection that travels from nose to the deep brain. In the past few days, 6 papers on COVID-19 have cited a 1992 PD paper that shows
zawy
in
Cure Parkinson's
4 years ago
Lines on my forehead. Anything that I can do?
I am a 34-year-old who has always had beautiful skin, has already been commented on by strangers. It all started so quickly around the age of 33. I noticed two lines on my forehead for the first time, I no longer have wrinkles anywhere on my face. I was not worried until one day after I left the gym,
I am a 34-year-old who has always had beautiful skin, has already been commented on by strangers. It all started so quickly around the age of 33. I noticed two lines on my forehead for the first time, I no longer have wrinkles anywhere on my face. I was not worried until one day after I left the gym,
JohnHanks5
in
MY SKIN
4 years ago
Nightime headaches and now ache in jaw. Update.
Thank you all you lovely people for your replies, they have all been really helpful. Yesterday I had a telephone consultation with my rheumatologist who said it may be TMD, which some of you have already suggested, or possibly a problem with my neck. However he has ordered some blood tests which I have
Thank you all you lovely people for your replies, they have all been really helpful. Yesterday I had a telephone consultation with my rheumatologist who said it may be TMD, which some of you have already suggested, or possibly a problem with my neck. However he has ordered some blood tests which I have
cataline
in
PMRGCAuk
4 years ago
Vacuuming in a vacuum
Finally, l’m having to admit that the housework isn’t going to do itself and the dust won’t lockdown until my cleaner returns. So, I get out the Dyson. I was a much stronger person when I bought it, but I was shocked to discover how cumbersome it is and really painful to my hand and wrist. I believe
Finally, l’m having to admit that the housework isn’t going to do itself and the dust won’t lockdown until my cleaner returns. So, I get out the Dyson. I was a much stronger person when I bought it, but I was shocked to discover how cumbersome it is and really painful to my hand and wrist. I believe
Jora
in
NRAS
4 years ago
AMD - Cancelled Injections, Sight Deteriorated, Visit Hospital VS Covid19
Hi Mum is 90 years old with Glaucoma and AMD Her sight has deteroriated in last 4 weeks. Trying to weigh up the risks of not seeing a specialist VS risk of Covid19. She has a lung condition - hence is very unlinkely to survive covid19 She was diagnosed with Glaucoma and AMD about 4 years ago Taking drops
Hi Mum is 90 years old with Glaucoma and AMD Her sight has deteroriated in last 4 weeks. Trying to weigh up the risks of not seeing a specialist VS risk of Covid19. She has a lung condition - hence is very unlinkely to survive covid19 She was diagnosed with Glaucoma and AMD about 4 years ago Taking drops
ColinKin
in
Macular Society
4 years ago
Egg Freezing / Fertilty Advice?
Hi everyone. I've recently been diagnosed with endo via ultrasound/MRI. Considered to be stage 4, including large bilateral endometriomas. My treatment was delayed by Covid-19 so I am awaiting cystectomy etc. My AMH levels when tested were I believe just within 'acceptable' range, but I am aware surgery
Hi everyone. I've recently been diagnosed with endo via ultrasound/MRI. Considered to be stage 4, including large bilateral endometriomas. My treatment was delayed by Covid-19 so I am awaiting cystectomy etc. My AMH levels when tested were I believe just within 'acceptable' range, but I am aware surgery
Noodle31
in
Fertility Network UK
4 years ago
Avastin
I have been on carboplatin paclitaxel and bevacizumab had surgery after 3cycles once recovered from surgery had another 3 cycles starting next week I will be on bevacizumab only every 3 weeks otherwise known as avastin. CT scan booked for May don't know if I ned yet. My question is to others similar
I have been on carboplatin paclitaxel and bevacizumab had surgery after 3cycles once recovered from surgery had another 3 cycles starting next week I will be on bevacizumab only every 3 weeks otherwise known as avastin. CT scan booked for May don't know if I ned yet. My question is to others similar
Madmolly
in
My Ovacome
4 years ago
Food parcels
Good morning. I have registered with the Government website and they have given my name to the supermarkets and so ASDA have now given me a regular weekly home delivery slot. Great. However, the government site must link into these weekly food parcels that DEFRA are doing and so today I've had a box
Good morning. I have registered with the Government website and they have given my name to the supermarkets and so ASDA have now given me a regular weekly home delivery slot. Great. However, the government site must link into these weekly food parcels that DEFRA are doing and so today I've had a box
GinnyE
in
NRAS
4 years ago
Joint flare ups
Hello everyone hope you’re safe and well? My sister and I seem to follow the same patterns heathwise, so we compare notes unfortunately she’s in Devon and I’m in the North East. We are both hypothyroid and she takes 175 thyroxine per day and I 150. It seems to be more or less right. BUT we both have
Hello everyone hope you’re safe and well? My sister and I seem to follow the same patterns heathwise, so we compare notes unfortunately she’s in Devon and I’m in the North East. We are both hypothyroid and she takes 175 thyroxine per day and I 150. It seems to be more or less right. BUT we both have
Trying-hard
in
Thyroid UK
4 years ago
Sjögren’s syndrome?
Just wondering if anyone has any experience of Sjögren’s syndrome? I was diagnosed ( due to symptoms, high CRP and rapid response to steroids) with GCA in January of this year. I have been tapering for the last 2 months or so. During this time I’ve also been diagnosed with glaucoma - I went to the optician
Just wondering if anyone has any experience of Sjögren’s syndrome? I was diagnosed ( due to symptoms, high CRP and rapid response to steroids) with GCA in January of this year. I have been tapering for the last 2 months or so. During this time I’ve also been diagnosed with glaucoma - I went to the optician
Phoenix51
in
PMRGCAuk
4 years ago
Positive hospital experience.
I just wanted to write a POSITIVE comment. I live in a rural area where there are not many cases of Covid 19 I know but last night I had to go to NHS 24 at the local hospital because of a sore eye and sore jaw and I was very aware that having polymyalgia it could be GCA. The place was empty- the staff
I just wanted to write a POSITIVE comment. I live in a rural area where there are not many cases of Covid 19 I know but last night I had to go to NHS 24 at the local hospital because of a sore eye and sore jaw and I was very aware that having polymyalgia it could be GCA. The place was empty- the staff
Bubble56
in
PMRGCAuk
4 years ago
EMDR App ?
I know one is not supposed to do EMDR on their own, but does anyone know of any online apps that can be used while this pandemic is going on? Thanks.
I know one is not supposed to do EMDR on their own, but does anyone know of any online apps that can be used while this pandemic is going on? Thanks.
Hidden
in
Heal My PTSD
4 years ago
COVID-19 and Immune System Disorders
I had my quarterly visit with my neurologist as "telemedicine" last Friday. It was a bit challenging as the technology was quite buggy on both sides, but we were finally able to do it with her seeing me and me just hearing her. I told her that my husband and I both had the virus and were amongst the
I had my quarterly visit with my neurologist as "telemedicine" last Friday. It was a bit challenging as the technology was quite buggy on both sides, but we were finally able to do it with her seeing me and me just hearing her. I told her that my husband and I both had the virus and were amongst the
elaineinqueens
in
My MSAA Community
4 years ago
Blurred vision.
Hiya everybody. Last week (Sunday) I was playing on my PlayStation which I haven’t done for a few years as when I did play on a game concentration was difficult and fatigue would take over in the early years of my recovery.. anyway.. I was playing for a couple of hours in my bedroom and decided to
Hiya everybody. Last week (Sunday) I was playing on my PlayStation which I haven’t done for a few years as when I did play on a game concentration was difficult and fatigue would take over in the early years of my recovery.. anyway.. I was playing for a couple of hours in my bedroom and decided to
Wazza84
in
Headway
4 years ago
Blepharitis
Hi I'm new to the site but have had SLE for 35 years. Recently been diagnosed with blepharitis which my lovely optician thought might be linked to my SLE. Has anyone else got this irritating (in so many ways) condition which is aggravated at the moment by the tree pollen. I am using Hycosan Extra eye
Hi I'm new to the site but have had SLE for 35 years. Recently been diagnosed with blepharitis which my lovely optician thought might be linked to my SLE. Has anyone else got this irritating (in so many ways) condition which is aggravated at the moment by the tree pollen. I am using Hycosan Extra eye
Larks0ng
in
LUPUS UK
4 years ago
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