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I’m scared of treatment
Venetoclax and Obinutuzumab My Haematologist has suggested that I may need to start treatment with these drugs and Calquence. I’ve been on Watch & Wait since diagnosed in 2014 when WBC count was just above normal range. Now it’s about six times higher than normal range and my red cell count has gone
Venetoclax and Obinutuzumab My Haematologist has suggested that I may need to start treatment with these drugs and Calquence. I’ve been on Watch & Wait since diagnosed in 2014 when WBC count was just above normal range. Now it’s about six times higher than normal range and my red cell count has gone
tigerbeauty
in
CLL Support
1 year ago
cataract op for glaucoma
hi. Has anyone had a cataract operation to reduce eye pressure and did it work? I have not been able to use any eye drops for over a year as developed allergy to all. Laser only reduced pressure slightly. Was told optic nerve had deteriorated slightly over 5 years. As I am 75 I thought it would be ok
hi. Has anyone had a cataract operation to reduce eye pressure and did it work? I have not been able to use any eye drops for over a year as developed allergy to all. Laser only reduced pressure slightly. Was told optic nerve had deteriorated slightly over 5 years. As I am 75 I thought it would be ok
Islandhome
in
Glaucoma UK
1 year ago
Hashimotos double vision
Hello everyone. Just wondering if anyone else here has experienced double vision with Hashimoto's ? I have been feeling tired, heavy, low mood, brain fog, memory problems etc. I went to my optician for a routine check up 3 weeks ago and the letters on the chart were swimming around in a way I'd never
Hello everyone. Just wondering if anyone else here has experienced double vision with Hashimoto's ? I have been feeling tired, heavy, low mood, brain fog, memory problems etc. I went to my optician for a routine check up 3 weeks ago and the letters on the chart were swimming around in a way I'd never
Girtonian
in
Thyroid UK
1 year ago
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Pegasys - to start or not
It has been now 3 years with ET diagnosis. Lot of reading about MPN’s behind me, especially through this network of wonderful people. I am now seriously considering starting Pegasys and reserved today an appointment with my specialist to discuss how we would go about it. In my country this line of
It has been now 3 years with ET diagnosis. Lot of reading about MPN’s behind me, especially through this network of wonderful people. I am now seriously considering starting Pegasys and reserved today an appointment with my specialist to discuss how we would go about it. In my country this line of
Bigcheat
in
MPN Voice
1 year ago
Risk Factor
I have Glaucoma in my left eye and last November had a Preserflo MicroShunt inserted. My question is I am considering having Foam Sclerotherapy injections to veins in my leg and wonder if this has any risk factor.
I have Glaucoma in my left eye and last November had a Preserflo MicroShunt inserted. My question is I am considering having Foam Sclerotherapy injections to veins in my leg and wonder if this has any risk factor.
eye4thefuture
in
Glaucoma UK
1 year ago
Cue Band’ to counter drooling enrolling patients for at-home testing
Cue Band is a wearable wristband, similar to a smartwatch, that delivers a vibration ‘cue’ to instruct a patient to swallow. As such, it aims to counter drooling without the need for oral medications like glycopyrronium bromide, or for botox injections into the salivary gland that generally have to be
Cue Band is a wearable wristband, similar to a smartwatch, that delivers a vibration ‘cue’ to instruct a patient to swallow. As such, it aims to counter drooling without the need for oral medications like glycopyrronium bromide, or for botox injections into the salivary gland that generally have to be
Farooqji
in
Cure Parkinson's
1 year ago
New diagnosis - Full thickness macular hole!
Hello everyone here, I'm new to these pages although I am on the Fibromyalgia pages. There was me, minding my own business and watching TV towards the end of January. When I took off my varifocals and rubbed my right eye. It was then I noticed the on screen face became more of a Picasso. What's more
Hello everyone here, I'm new to these pages although I am on the Fibromyalgia pages. There was me, minding my own business and watching TV towards the end of January. When I took off my varifocals and rubbed my right eye. It was then I noticed the on screen face became more of a Picasso. What's more
Gulfstream_Maggie
in
Macular Society
1 year ago
A lot of us have Hashimoto's so... Selenium and Inositol for Hashimoto's
A lot of us have Hashimoto's so... Selenium and Inositol for Hashimoto's https://healthunlocked.com/cure-parkinsons/posts/146559023/myo-inositol-random-wondering
A lot of us have Hashimoto's so... Selenium and Inositol for Hashimoto's https://healthunlocked.com/cure-parkinsons/posts/146559023/myo-inositol-random-wondering
Bolt_Upright
in
Cure Parkinson's
1 year ago
General Double-Vision/Arteritis Question
I've been having double vision for at least a year, maybe longer. But it's only when I TILT my head (as opposed to looking side to side). My ophthalmologist said the muscles that control my eye movements are not working right (my words, not his), and that [u]one [/u]of the causes could be GCA (which
I've been having double vision for at least a year, maybe longer. But it's only when I TILT my head (as opposed to looking side to side). My ophthalmologist said the muscles that control my eye movements are not working right (my words, not his), and that [u]one [/u]of the causes could be GCA (which
montebello
in
PMRGCAuk
1 year ago
Early AMD and epimacular membrane
Hi, I have been diagnosed with early dry macular degeneration in both eyes but apparently any visual distortion I have (wavy lines etc.,) are due to this membrane rather than AMD at the moment. Other distortion is that the membrane eye sees things larger that the other. Ibeelieve surgery to remove it
Hi, I have been diagnosed with early dry macular degeneration in both eyes but apparently any visual distortion I have (wavy lines etc.,) are due to this membrane rather than AMD at the moment. Other distortion is that the membrane eye sees things larger that the other. Ibeelieve surgery to remove it
cherrabah
in
Macular Society
1 year ago
Double Vision after Eylea shot.
Good Morning All. After my last Eylea shot 3 weeks ago in my right eye, I experienced double vision and the Dr. had to insert a needle to withdraw some of the fluid. I have been getting shots for about 6 years and also have glaucoma. I have gone blind a couple of times after shots, but never had
Good Morning All. After my last Eylea shot 3 weeks ago in my right eye, I experienced double vision and the Dr. had to insert a needle to withdraw some of the fluid. I have been getting shots for about 6 years and also have glaucoma. I have gone blind a couple of times after shots, but never had
Zool
in
Macular Society
1 year ago
clinical trial for gene therapy
my doctor ask me if I would be interested in going into phase 3 clinical trials for macular degeneration gene therapy. Has anyone on this forum been in a clinical trial or what is your opinion?
my doctor ask me if I would be interested in going into phase 3 clinical trials for macular degeneration gene therapy. Has anyone on this forum been in a clinical trial or what is your opinion?
Slattery
in
Macular Society
1 year ago
In the words of Columbo - "just one more thing…”
I've been diagnosed with fibromyalgia for only the last 15 months. Although battling chronic fatigue, muscle spasms, painful joints, sporadic pain from head to toe (comes & goes), constant nausea, lack of concentration, brain fog, etc. Has been going on for years In addition 2020 saw me in
I've been diagnosed with fibromyalgia for only the last 15 months. Although battling chronic fatigue, muscle spasms, painful joints, sporadic pain from head to toe (comes & goes), constant nausea, lack of concentration, brain fog, etc. Has been going on for years In addition 2020 saw me in
Gulfstream_Maggie
in
Fibromyalgia Action UK
1 year ago
cataract plus micro shunt
Has anybody had cataract surgery with micro surgery at same time My consultant says it only takes 2 mins longer and did it work ?
Has anybody had cataract surgery with micro surgery at same time My consultant says it only takes 2 mins longer and did it work ?
Eye2see
in
Glaucoma UK
1 year ago
Progynova and ovulation
Hey lovely ladies! I am preparing for a new FET (3day embryos), I have just started Progynova (estradiol 2mg), 3 pills a day. My dr told me that once you are on Progynova it is a controlled cycle and that ovulation is unlikely. This is how all of my previous FETs looked like - progynova for a number
Hey lovely ladies! I am preparing for a new FET (3day embryos), I have just started Progynova (estradiol 2mg), 3 pills a day. My dr told me that once you are on Progynova it is a controlled cycle and that ovulation is unlikely. This is how all of my previous FETs looked like - progynova for a number
Anita85
in
Fertility Network UK
1 year ago
partial thickness macular hole
Helllo. Just wondering if anyone has been offered vitrectomy surgery for a partial thickness macular hole. I had fairly good vision recovery after vitrectomy for a full thickness macular hole in my left eye. I now have a partial thickness hole in my right eye. NHS eye hospital tell me surgery
Helllo. Just wondering if anyone has been offered vitrectomy surgery for a partial thickness macular hole. I had fairly good vision recovery after vitrectomy for a full thickness macular hole in my left eye. I now have a partial thickness hole in my right eye. NHS eye hospital tell me surgery
Blinker
in
Macular Society
1 year ago
Eye pain
Has anyone had eye pain that improved once they began treatment? I have eye pain in only right eye, I have seen ophthalmologist. retina specialist, and neurologist. I’ve been treated for migraines, but a dull pain still remains, My MPN specialist said it may be side effect from MPN ? Any thoughts?
Has anyone had eye pain that improved once they began treatment? I have eye pain in only right eye, I have seen ophthalmologist. retina specialist, and neurologist. I’ve been treated for migraines, but a dull pain still remains, My MPN specialist said it may be side effect from MPN ? Any thoughts?
Bears23
in
MPN Voice
1 year ago
Some advice in choosing the best blood tests to go for, please, as am becoming a bit bogged-down with choices!
1)
Starting results and start of treatment from my Bio March ’91-March ’93 – Under Care of [Dr] A, GP At HC1 From Mid ’84-End of March ‘94: a really good, all-round GP who was fully conversant with both my medical and personal history and treated patients in a truly collaborative, advocating on
1)
Starting results and start of treatment from my Bio March ’91-March ’93 – Under Care of [Dr] A, GP At HC1 From Mid ’84-End of March ‘94: a really good, all-round GP who was fully conversant with both my medical and personal history and treated patients in a truly collaborative, advocating on
PRJ20
in
Thyroid UK
1 year ago
I will eat my diploma
4 years studying psychology through pandemics, wars, terrorism, earthquakes, family abuse, zombie apocalypse and an alien invasion to recieve full A on my final exam and a handshake from the head of the psychology department of the second best university in Bulgaria just for my grandmother to tell me
4 years studying psychology through pandemics, wars, terrorism, earthquakes, family abuse, zombie apocalypse and an alien invasion to recieve full A on my final exam and a handshake from the head of the psychology department of the second best university in Bulgaria just for my grandmother to tell me
Against_the_current
in
Anxiety and Depression Support
1 year ago
What I see where my vision is impaired
My name is Michael. I'm 43 years old. I was diagnosed with macular dystrophy several years ago. I was told that without some type of genetic test that it's difficult to know whether or not it is adult onset or Best's Disease. At that time, I had never heard of this condition. Previous visits to the optometrist
My name is Michael. I'm 43 years old. I was diagnosed with macular dystrophy several years ago. I was told that without some type of genetic test that it's difficult to know whether or not it is adult onset or Best's Disease. At that time, I had never heard of this condition. Previous visits to the optometrist
Alberni79
in
Macular Society
1 year ago
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