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PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked
She-66
in
British Liver Trust
7 months ago
PBC/AIH
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked up
Hi I habe PBC crossovered with AiH . I understand it’s not hereditary but can run in families . Nobody else in my family has this (that I know of ) should my siblings / children go and get their bloods done ? I wasn’t diagnosed until i had stage 4 cirrhosis… as i had no symptoms , this was picked up
She-66
in
PBC Foundation
7 months ago
update on switching to digoxin from lopressor
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
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Lupus rash?
I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems and there was nothing more he could do for me. He referred me to the hospital but I’m still waiting four years down the line. I discussed Lupus
I have suffered many different symptoms for a period approaching 15 years. About 4 years ago my GP said that I had too many symptoms across multiple systems and there was nothing more he could do for me. He referred me to the hospital but I’m still waiting four years down the line. I discussed Lupus
Dontknowwhattodo
in
LUPUS UK
4 months ago
Puzzling Tachycardia
Hi Everybody, I hope someone in this lovely community will be able to help me understand my puzzling tachycardia. Just to give you some background. I have been diagnosed with paroxysmal AFIB little over five years ago. I have been on Amiodarone (100 mg) for the past four years. Amiodarone helps, but
Hi Everybody, I hope someone in this lovely community will be able to help me understand my puzzling tachycardia. Just to give you some background. I have been diagnosed with paroxysmal AFIB little over five years ago. I have been on Amiodarone (100 mg) for the past four years. Amiodarone helps, but
Ruza2020
in
Atrial Fibrillation Support
3 months ago
Slowly Reducing Antiarrhythmic medications
I had an abalation just on 3 months ago. After the first month my EP advised I can start reducing my medication which is Flecainide and Dilitiazem and he did not need to see me anymore. I am now taking 50mg Flec. and was initially taking 100mg. By July I should be medication free. I have had some
I had an abalation just on 3 months ago. After the first month my EP advised I can start reducing my medication which is Flecainide and Dilitiazem and he did not need to see me anymore. I am now taking 50mg Flec. and was initially taking 100mg. By July I should be medication free. I have had some
Murphy10
in
Atrial Fibrillation Support
3 months ago
Advanced Prostate Cancer
I have Advanced prostate cancer. Prostate removed, radiation, lupron for the last 4 years, Now I am on abiraterone with the lupron, because PSA was up . See Dr in Feb to see if PSA is stable Is anyone else on the 2 drugs Thank you Mark
I have Advanced prostate cancer. Prostate removed, radiation, lupron for the last 4 years, Now I am on abiraterone with the lupron, because PSA was up . See Dr in Feb to see if PSA is stable Is anyone else on the 2 drugs Thank you Mark
Retrievertrainer
in
Advanced Prostate Cancer
7 months ago
May- Vasculitis Awareness Month
May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculitis and almost always affects females. Vasculitis is a challenging illness to live with: ''Living with vasculitis is a hard task with a lot of ups and downs, and the future feels quite frightening. Now, six years on, I have
May - Day 28 Vasculitis Awareness Month HUV is a more severe type of vasculitis and almost always affects females. Vasculitis is a challenging illness to live with: ''Living with vasculitis is a hard task with a lot of ups and downs, and the future feels quite frightening. Now, six years on, I have
zoe69
Vasculitis UK
in
Vasculitis UK
3 months ago
Advice, please!
Over the past four months I’ve had a very painful knee. I have a doctor’s appointment next week. I suspect it is osteoarthritis (I’m 68). I’m also aware that other joints, particularly my shoulders, are also aching, especially when I get up in the mornings. I am taking 60 mg Lixiana, 1.25 mg Bisoprolol
Over the past four months I’ve had a very painful knee. I have a doctor’s appointment next week. I suspect it is osteoarthritis (I’m 68). I’m also aware that other joints, particularly my shoulders, are also aching, especially when I get up in the mornings. I am taking 60 mg Lixiana, 1.25 mg Bisoprolol
Rog65
in
Atrial Fibrillation Support
3 months ago
calming a fibs
So, I am having a fibs right now 9:30 at night in the USA. Heart rate went up to 137, then down to 80s 90's jumping all around. Could feel it racing and I was short of breath. My question is this: WHAT CAN I DO TO CALM ALL THIS DOWN? HOW DO I STOP THE ANXIETY WHILE IT IS HAPPENING? I just drank
So, I am having a fibs right now 9:30 at night in the USA. Heart rate went up to 137, then down to 80s 90's jumping all around. Could feel it racing and I was short of breath. My question is this: WHAT CAN I DO TO CALM ALL THIS DOWN? HOW DO I STOP THE ANXIETY WHILE IT IS HAPPENING? I just drank
peachtreepiggy
in
Atrial Fibrillation Support
3 months ago
Heartburn from Digoxin
On Digoxin 2 plus weeks. Blood level fine. Am having constant heartburn/nausea. My Dr said not a usual side effect. Tough it out? or go back on Lopressor which had its own side effects. Many say it will get better. Permanent persistent afib.
On Digoxin 2 plus weeks. Blood level fine. Am having constant heartburn/nausea. My Dr said not a usual side effect. Tough it out? or go back on Lopressor which had its own side effects. Many say it will get better. Permanent persistent afib.
farewelltoarms
in
Atrial Fibrillation Support
3 months ago
Has anyone tried Inclisiran in place of Statins
My doctor is keen to reduce my cholesterol as it is 7.3 and I can't/wont take statins. I also have problems with palpitations so can't even raise my levo. I am a bit worried I am developing a heart condition too. I am just waiting for a blood test and xray before I go back to the doc who has suggested
My doctor is keen to reduce my cholesterol as it is 7.3 and I can't/wont take statins. I also have problems with palpitations so can't even raise my levo. I am a bit worried I am developing a heart condition too. I am just waiting for a blood test and xray before I go back to the doc who has suggested
Dizzy938
in
Thyroid UK
3 months ago
Looking at DHEA again and the Cortisol link popped up...
[i]"When one takes DHEA it can combat the production of another hormone called cortisol. Cortisol is the stress hormone. Higher levels of cortisol is usually present in the body when the levels of DHEA decline. If a high level of cortisol is allowed to circulate freely in the body it can damage the endocrine
[i]"When one takes DHEA it can combat the production of another hormone called cortisol. Cortisol is the stress hormone. Higher levels of cortisol is usually present in the body when the levels of DHEA decline. If a high level of cortisol is allowed to circulate freely in the body it can damage the endocrine
TiggerMe
in
Thyroid UK
7 months ago
Good news on memory following B12 treatment
Hi, some of the regular posters may remember me posting in absolute despair last autumn about my husband’s cognitive issues and extreme memory loss. I’m now posting an update in case it helps anyone else in his position. In summary he had experienced symptoms over a couple of decades since he was twenty
Hi, some of the regular posters may remember me posting in absolute despair last autumn about my husband’s cognitive issues and extreme memory loss. I’m now posting an update in case it helps anyone else in his position. In summary he had experienced symptoms over a couple of decades since he was twenty
Zmalp
in
Pernicious Anaemia Society
4 months ago
There is hope
This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are
This is on my bio but thought I would copy you all in. I've never posted before but wanted to share this. I have never asked a question but have learnt so much on here that has helped me to support my husband through a very rough time in our 35 year marriage. A total change in life style and we are
Oldbits
in
British Liver Trust
7 months ago
Paroxysmal atrial fribulation
Just another question all whilst I was on verapamil and digoxin my heart rate just raced away for no reason not afib but just a rapid rate of bpm whilst moving or trying to work doesn't happen with bisoprolol so much
Just another question all whilst I was on verapamil and digoxin my heart rate just raced away for no reason not afib but just a rapid rate of bpm whilst moving or trying to work doesn't happen with bisoprolol so much
Aprilla12345
in
Atrial Fibrillation Support
3 months ago
ectopics or extra beats.
I have twice in the past converted to persistent AF which has been sorted both times by cardioversion. However yesterday for the entire day my heart felt like it was having a disco. Ectopics, extra beats, early or skipped beats…..whatever! Should I be worried? I do have a bit of a chesty cough at the
I have twice in the past converted to persistent AF which has been sorted both times by cardioversion. However yesterday for the entire day my heart felt like it was having a disco. Ectopics, extra beats, early or skipped beats…..whatever! Should I be worried? I do have a bit of a chesty cough at the
Fondant
in
Atrial Fibrillation Support
3 months ago
Post ablation concerns part 2
Hi everyone - last weekend I posted that 10 days after my PFA I went back into AF. Sadly I am still there & now pretty terrified it has completely failed. The hospital did an ECG on Monday then called on Wednesday to say for me to restart the Amiodorone which was stopped after the ablation & they would
Hi everyone - last weekend I posted that 10 days after my PFA I went back into AF. Sadly I am still there & now pretty terrified it has completely failed. The hospital did an ECG on Monday then called on Wednesday to say for me to restart the Amiodorone which was stopped after the ablation & they would
Heartening
in
Atrial Fibrillation Support
3 months ago
My brother got into a car acciddent and nurses put him back to sleep eveytime he gets agitated (please help)
Hi guys over the weekend my brother crashed into the free way with the wall concrete that divides the cars its been reported he wasnt able to breath properly so they medically induced him into coma the 2 day they finally removed his breathing tube and seems like he had a minor injury in his head and
Hi guys over the weekend my brother crashed into the free way with the wall concrete that divides the cars its been reported he wasnt able to breath properly so they medically induced him into coma the 2 day they finally removed his breathing tube and seems like he had a minor injury in his head and
casleyva
in
ICUsteps
7 months ago
Blood test positive lupus
Recently had bloods done due to a few skin rashes and I looked at the results and some say lupus positive I need more bloods done tomorrow but haven't spoke to the doctor yet but looked online about lupus and a lot of what I'm having seems to all add up to lupus my head is all over the place
Recently had bloods done due to a few skin rashes and I looked at the results and some say lupus positive I need more bloods done tomorrow but haven't spoke to the doctor yet but looked online about lupus and a lot of what I'm having seems to all add up to lupus my head is all over the place
Debz1974
in
LUPUS UK
4 months ago
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