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Life insurance
Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?
Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?
Hidden
in
Lung Conditions Community Forum
3 months ago
Counsellor with transplant patient experience
My husband had successful liver transplant surgery 6 months ago. At the same time he was battling liver ill health, he lost the sight in his dominant eye due to a retinal detachment. He now has better vision in his other eye, and is hoping to be able to drive again (he has been off the road for over
My husband had successful liver transplant surgery 6 months ago. At the same time he was battling liver ill health, he lost the sight in his dominant eye due to a retinal detachment. He now has better vision in his other eye, and is hoping to be able to drive again (he has been off the road for over
ScruffyRosie
in
British Liver Trust
3 months ago
transplant
Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I
Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I
Meanies
in
National Foundation for Transplants
3 months ago
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Post Transplant Fatigue
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Dawnejoy
in
British Liver Trust
3 months ago
previous question
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
an introduction...
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Lung damage, ECMO, time taken to recover.
Hi, my uncle was diagnosed with pnemonia and a 90% lung damage on 18Dec. He was put on ventilator and ECMO on 20th, its been 35 days ans there has been no improvement in the lungs. he took about 20 days to come out of induced coma, doctors are now making him sit occasionally and hoping for some improvement
Hi, my uncle was diagnosed with pnemonia and a 90% lung damage on 18Dec. He was put on ventilator and ECMO on 20th, its been 35 days ans there has been no improvement in the lungs. he took about 20 days to come out of induced coma, doctors are now making him sit occasionally and hoping for some improvement
shivnajain
in
ICUsteps
3 months ago
Possible Kidney Failure
Hello: My husband had a liver transplant many years ago and has done very well, for which we are very grateful. Since October of 2023, his creatinine started rising and his egfr started falling. He had blood work done several times since then. He latest egfr is 45, his creatinine is 1.6 and his BUN
Hello: My husband had a liver transplant many years ago and has done very well, for which we are very grateful. Since October of 2023, his creatinine started rising and his egfr started falling. He had blood work done several times since then. He latest egfr is 45, his creatinine is 1.6 and his BUN
PennyLovas
in
Kidney Disease
4 months ago
Never give up .
Hi all I just want to say what a brilliant site this is and seeing all the different posts with information and experiences people have had is really helpful. I had sort of given up hope of my vision returning in my left eye due to cornea damage after many procedures due to Glaucoma and Uveitis and
Hi all I just want to say what a brilliant site this is and seeing all the different posts with information and experiences people have had is really helpful. I had sort of given up hope of my vision returning in my left eye due to cornea damage after many procedures due to Glaucoma and Uveitis and
LondonStadium
in
Glaucoma UK
4 months ago
Mycophenolate instead of Perfinedine or Nintenanib?
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
DaveLister
in
Lung Conditions Community Forum
4 months ago
decompensated cirrhosis
hi I was diagnosed with decompensated cirrhosis in march , I have quit alcohol since but and had scan last month, my next appointment is 6 month time, is this Normal just to carry on as if nothing is wrong, I asked about liver transplant and was told a would have passed before one is available so basically
hi I was diagnosed with decompensated cirrhosis in march , I have quit alcohol since but and had scan last month, my next appointment is 6 month time, is this Normal just to carry on as if nothing is wrong, I asked about liver transplant and was told a would have passed before one is available so basically
Kingbilly3
in
British Liver Trust
4 months ago
First Overseas Holiday post liver transplant
I am about to go on my first overseas holiday since having a liver transplant 12 months ago, I will be staying with family who have 2 dogs. Grateful for advice from anyone who has been in a similar position of being immunosuppressed and being around dogs. Also thoughts on swimming pool use. Many
I am about to go on my first overseas holiday since having a liver transplant 12 months ago, I will be staying with family who have 2 dogs. Grateful for advice from anyone who has been in a similar position of being immunosuppressed and being around dogs. Also thoughts on swimming pool use. Many
TripleCrown
in
British Liver Trust
4 months ago
Ischemic Cholangiopathy following liver transplant.
Hi All, I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery? I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have
Hi All, I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery? I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have
KateG94
in
British Liver Trust
4 months ago
Has anyone had Covid post-transplant?
After much thought, I think it all stems from the onset of Covid, right about the time I had my
kidney
transplant
. I never experienced anxiety before.
After much thought, I think it all stems from the onset of Covid, right about the time I had my
kidney
transplant
. I never experienced anxiety before.
Djangosmom
in
Kidney Transplant
1 year ago
after liver transplant
after my liver transplant everything went great! But, now having problems with kidneys why???
after my liver transplant everything went great! But, now having problems with kidneys why???
Livergal
in
British Liver Trust
4 months ago
Anniversary of varices bleed
Up until 23rd December 2022 I thought I was quite well and healthy and rarely needed to visit our GP. Out of the blue on the 23rd December 2022, I started to vomit up approx. 3 - 4 pints of blood, as you can imagine my wife and I were in shock from the whole episode. Following an emergency admission
Up until 23rd December 2022 I thought I was quite well and healthy and rarely needed to visit our GP. Out of the blue on the 23rd December 2022, I started to vomit up approx. 3 - 4 pints of blood, as you can imagine my wife and I were in shock from the whole episode. Following an emergency admission
foofighter1
in
British Liver Trust
5 months ago
Christmas
Hey all, mums chirosis continues to cause us fun each day. I’m now pretty much at the stage of forcing her to eat little and often as she is never hungry, and is never thirsty despite all of her lips cracking and her tounge swelling. When she drinks, it’s as though she is trying to swallow knives or
Hey all, mums chirosis continues to cause us fun each day. I’m now pretty much at the stage of forcing her to eat little and often as she is never hungry, and is never thirsty despite all of her lips cracking and her tounge swelling. When she drinks, it’s as though she is trying to swallow knives or
PerpetuallySad
in
British Liver Trust
5 months ago
Manganese levels
hi everyone so I’ve come on here to pick peoples brains because I am completely at a loss of what to do. I was recently seen by my consultant and he said everything is going really well, and my bloods are normal so even though I have cirrhosis my liver is working. I’ve been referred to a neurologist
hi everyone so I’ve come on here to pick peoples brains because I am completely at a loss of what to do. I was recently seen by my consultant and he said everything is going really well, and my bloods are normal so even though I have cirrhosis my liver is working. I’ve been referred to a neurologist
Lifehappened123
in
British Liver Trust
5 months ago
portal vein pressure test
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
pussycat66
in
British Liver Trust
5 months ago
PSA in lower range, yet PSMA PET SCAN shows diffuse bone Metastasis
Dear all , my father latest Total PSA level shows 6.24 which is down after touching 10.45. He was given one infusion of Docetaxel, however, he has been weaned off due to adverse reactions he has had, as his overall condition worsened and he had lot of prolonged mouth sores, with WBCs touching .08 and
Dear all , my father latest Total PSA level shows 6.24 which is down after touching 10.45. He was given one infusion of Docetaxel, however, he has been weaned off due to adverse reactions he has had, as his overall condition worsened and he had lot of prolonged mouth sores, with WBCs touching .08 and
Ij2023
in
Advanced Prostate Cancer
5 months ago
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