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Intravenous immunoglobulin (IVIg)
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Stay positive x
Predisolone no good,
ivig
no good , platelets at 9 .so starting rituximab, hopefully it will do the job. I want to get better for myself but more so for my husband and daughter who have been superb support. Anyway kind thoughts to you all and wish you a speedy recovery. X
Predisolone no good,
ivig
no good , platelets at 9 .so starting rituximab, hopefully it will do the job. I want to get better for myself but more so for my husband and daughter who have been superb support. Anyway kind thoughts to you all and wish you a speedy recovery. X
Olivia2812
in
ITP Support Association
7 years ago
Itp verses sle
I have primary sle and secondary Itp, recently my sle had been in remission but my Itp had been uncontrollable I have tried every treatment medication, rituximab nothing works and my body now rejects prednisalone, so I have to have
ivig
, I had my last one last week and my platelets are up to 93 which
I have primary sle and secondary Itp, recently my sle had been in remission but my Itp had been uncontrollable I have tried every treatment medication, rituximab nothing works and my body now rejects prednisalone, so I have to have
ivig
, I had my last one last week and my platelets are up to 93 which
Manclady61
in
LUPUS UK
7 years ago
Results
My platelets are now 42 after having bloods today ( dropped since
ivig
as it was a short term solution ) I am not too concerned my hemotologist mentioned we need to look at options I am quite happy to just get monitered but she mentioned holigistic approach as I had bad reactions with
ivig
drip and steroids
My platelets are now 42 after having bloods today ( dropped since
ivig
as it was a short term solution ) I am not too concerned my hemotologist mentioned we need to look at options I am quite happy to just get monitered but she mentioned holigistic approach as I had bad reactions with
ivig
drip and steroids
Topography52_-
in
ITP Support Association
7 years ago
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FISH test result changed post chemo
He has
IVIG
infusions for repeated infections. Anyone else been in this situation. Was a total shock to find these deletions and am very worried re prognosis. Any input gratefully received. We live in UK.
He has
IVIG
infusions for repeated infections. Anyone else been in this situation. Was a total shock to find these deletions and am very worried re prognosis. Any input gratefully received. We live in UK.
lemsford
in
CLL Support
7 years ago
ITP , 6000 - 23000 platelet count, Age 69
Platelets count 4000, Got
IVIG
now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3.
Platelets count 4000, Got
IVIG
now able to speak (2 weeks before) 2. Had 30 units of Platelet transfusion in 10 days. 5 units Single Donor Platelet 3.
RONALD-DASON-P
in
ITP Support Association
7 years ago
Ivig
I read all the time of peoples counts going up by the hundreds after
ivig
drip mine only went to 210 any thoughts please obviously mine have now dropped I am just curious why some people see a significant boost and others not : (
I read all the time of peoples counts going up by the hundreds after
ivig
drip mine only went to 210 any thoughts please obviously mine have now dropped I am just curious why some people see a significant boost and others not : (
Topography52_-
in
ITP Support Association
7 years ago
My mom and son both have ITP. Anyone else?
He was admitted to the hospital with platelets of 5000, given 3 courses of
IVIG
and started on steroids before his body responded. Last platelet count was 300,000 (woohoo!!!). This past week, my mother was also admitted with platelets of 5000.
He was admitted to the hospital with platelets of 5000, given 3 courses of
IVIG
and started on steroids before his body responded. Last platelet count was 300,000 (woohoo!!!). This past week, my mother was also admitted with platelets of 5000.
Kelly109
in
ITP Support Association
7 years ago
High fever as side effect of Ibrutinib ?
For the last 2 years I am on monthly
IVIG
because of frequent pneumonias. Helped really good. Now my CLL has returned . 4 months ago a low grade fever started , about 37.5C .
For the last 2 years I am on monthly
IVIG
because of frequent pneumonias. Helped really good. Now my CLL has returned . 4 months ago a low grade fever started , about 37.5C .
GIDI
in
CLL Support
7 years ago
Vacation
I do tend to get infections a great deal, and
IVIG
helps tremendously. Here is my question. We are heading to Idaho for the lakes and mountains. I worry about infections obtained from lake swimming. Does anyone continue to do that? i haven't been in the ocean yet since diagnosis.
I do tend to get infections a great deal, and
IVIG
helps tremendously. Here is my question. We are heading to Idaho for the lakes and mountains. I worry about infections obtained from lake swimming. Does anyone continue to do that? i haven't been in the ocean yet since diagnosis.
beanlake14
in
CLL Support
7 years ago
Migratory joint pain.
I have only been on Imbruvica other than
IVIG
, doing great other than the migratory joint pain. Suggestions?
I have only been on Imbruvica other than
IVIG
, doing great other than the migratory joint pain. Suggestions?
usapajgy
in
CLL Support
7 years ago
Fall i platelets count after ivig treatment
My platelates fall upto 2000 then after transfusion treated with
ivig
treatment. My platelates level rises upto 1.4 lakh with in a month but after that falls to 40 thouand. I m on depsone 100 mg. Im worried now please comment is this fall and rise is common in itp
My platelates fall upto 2000 then after transfusion treated with
ivig
treatment. My platelates level rises upto 1.4 lakh with in a month but after that falls to 40 thouand. I m on depsone 100 mg. Im worried now please comment is this fall and rise is common in itp
Vika0001
in
ITP Support Association
7 years ago
IVIG with Imbruvica
I have been on
IVIG
10+ years, starting with only cold seasonal treatment. I have been on
IVIG
30 grams q 28 days continuously for almost 6 years. I started Imbruvica 14 days ago due to my first leukemia recurrence since remission, 2011.
I have been on
IVIG
10+ years, starting with only cold seasonal treatment. I have been on
IVIG
30 grams q 28 days continuously for almost 6 years. I started Imbruvica 14 days ago due to my first leukemia recurrence since remission, 2011.
W00dfin
in
CLL Support
7 years ago
My daughter is doing well. Thanks for your blessings
As you all know , in Nov,16.. her hematologist made her stopped all medications after gradually tapering her steroid doses from Aug .. when she was diagnosed with ITP at 4000 count and got
IVIG
infusion.
As you all know , in Nov,16.. her hematologist made her stopped all medications after gradually tapering her steroid doses from Aug .. when she was diagnosed with ITP at 4000 count and got
IVIG
infusion.
Toughytoughy
in
ITP Support Association
7 years ago
9 year old with ITP
Hi my son was diagnosed last June 9 with itp with platelet count of 4. had two bottles of
ivig
and platelet count was still at 4. had another two bottles of
ivig
and platelet count went up to 7 and the doctor discharged him.
Hi my son was diagnosed last June 9 with itp with platelet count of 4. had two bottles of
ivig
and platelet count was still at 4. had another two bottles of
ivig
and platelet count went up to 7 and the doctor discharged him.
Hidden
in
ITP Support Association
7 years ago
IVIG infusion
Just wondering how people did with
IVIG
infusions. I've had lots of sinus infections over the past 3 years so doc thought I should start
IVIG
infusions. I am 56 and pretty healthy otherwise. I had chemo 4 years ago and had 7 months of Imbruvica a year ago.
Just wondering how people did with
IVIG
infusions. I've had lots of sinus infections over the past 3 years so doc thought I should start
IVIG
infusions. I am 56 and pretty healthy otherwise. I had chemo 4 years ago and had 7 months of Imbruvica a year ago.
Huckfin1
in
CLL Support
7 years ago
ITP DISORDER OF MY SON
He was given
ivig
treatment with 5g with five bottles dose. On 20 th June again cbp was done and this time his platelets raised to 1.61 lakes. On 21st June again cbp was done and platelets were 2.17 lakes.. He was discharged from the hospital from that day.
He was given
ivig
treatment with 5g with five bottles dose. On 20 th June again cbp was done and this time his platelets raised to 1.61 lakes. On 21st June again cbp was done and platelets were 2.17 lakes.. He was discharged from the hospital from that day.
Shilpid
in
ITP Support Association
7 years ago
Need advice on treatment options for relapsed SLL
I am now on
IVIG
for frequent infections and I am starting to deal with fatigue again. I have lost 20 pounds since January. NO night sweats. I KNOW that more treatment is in my future, I just don't know which drug is best.
I am now on
IVIG
for frequent infections and I am starting to deal with fatigue again. I have lost 20 pounds since January. NO night sweats. I KNOW that more treatment is in my future, I just don't know which drug is best.
ReneeSusan
in
CLL Support
7 years ago
Good hematologist in London
Hi , My son is 3 years old and he had been diagnosed with ITP one month ago , started with small dots on his body and when we did the CBC test his platelets were 10 , he admired in the hospital for one week and they gave him steroids and
IVIG
, after 4 days his platelets jumped high to 179 , after 10
Hi , My son is 3 years old and he had been diagnosed with ITP one month ago , started with small dots on his body and when we did the CBC test his platelets were 10 , he admired in the hospital for one week and they gave him steroids and
IVIG
, after 4 days his platelets jumped high to 179 , after 10
qassemi
in
ITP Support Association
7 years ago
Glad I found this group
I have been on
IVIG
consecutively for the last year but no chemo since 2010. Numbers are going crazy now but praying they stay somewhat under control for now. So glad to be able to share with people that understand!
I have been on
IVIG
consecutively for the last year but no chemo since 2010. Numbers are going crazy now but praying they stay somewhat under control for now. So glad to be able to share with people that understand!
DRADCLIFF
in
CLL Support
7 years ago
Necrotising myopathy/myositis
I start
IVIG
treatment on 19/06. Can anyone offer advice on this illness/treatment? I am finding it difficult to cope emotionally as well as physically now.
I start
IVIG
treatment on 19/06. Can anyone offer advice on this illness/treatment? I am finding it difficult to cope emotionally as well as physically now.
Maureenhall55
in
Care Community
7 years ago
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