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Experiences with
Intravenous immunoglobulin (IVIg)
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IVIG Infusion
Has anyone had the
IVIG
infusion? If so, what was it like? Did it help?
Has anyone had the
IVIG
infusion? If so, what was it like? Did it help?
Dermatray15
in
Lung Conditions Community Forum
4 years ago
IVIG HELP
I have low IGG so I have
IVIG
every other month.
I have low IGG so I have
IVIG
every other month.
Kyranbigeyes
in
CLL Support
4 years ago
2019-2020 a comparison
following two emergency admissions, failed chemo, massive reduction of platelets and heamaglobin, weekly blood transfusions monthly
IVIG
in 2019, I find myself taking 'targeted therapy' on week 16 of 'shielding' and pondering do I really want to go back to work? meanwhile, family life rolls on!
following two emergency admissions, failed chemo, massive reduction of platelets and heamaglobin, weekly blood transfusions monthly
IVIG
in 2019, I find myself taking 'targeted therapy' on week 16 of 'shielding' and pondering do I really want to go back to work? meanwhile, family life rolls on!
Meic13
in
Cancer Journeys Foundation
4 years ago
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For anyone new...
The nodes I had in my neck seem to have reduced (maybe from
ivig
?). Anyway, hang in there everyone and thank your lucky stars that the landscape has changed so drastically than that dreadful day 8 years ago! ❤️
The nodes I had in my neck seem to have reduced (maybe from
ivig
?). Anyway, hang in there everyone and thank your lucky stars that the landscape has changed so drastically than that dreadful day 8 years ago! ❤️
CoCoLuna11
in
CLL Support
4 years ago
Sweat smells like ammonia
An update on neuro stuff.... still waiting to get
IVIG
set up. Have not been able to get in touch with neurologist since appt about 3 weeks ago. Rheum won’t write for it. Getting very frustrated and depressed by this whole situation. I keep physically declining. My vision is crap.
An update on neuro stuff.... still waiting to get
IVIG
set up. Have not been able to get in touch with neurologist since appt about 3 weeks ago. Rheum won’t write for it. Getting very frustrated and depressed by this whole situation. I keep physically declining. My vision is crap.
Jmiller623
in
LUPUS UK
4 years ago
Vestibular problems
IVIG
, Rituxan, MTX or plasmapheresis. I was so elated that someone actually took my neuro symptoms seriously and recorded actual neuro problems in my chart. Cranial nerve neuritis finally seen and documented. Been fighting for this for over a year now!
IVIG
, Rituxan, MTX or plasmapheresis. I was so elated that someone actually took my neuro symptoms seriously and recorded actual neuro problems in my chart. Cranial nerve neuritis finally seen and documented. Been fighting for this for over a year now!
Jmiller623
in
LUPUS UK
4 years ago
Has anyone had issues with Hemolytic Anemia?
I am 8 1/2 years into my CLL diagnosis and turned 65 this year, I have had some recent problems with CLL cells appearing in some masses in both my feet and left ankle, but to have a biopsy last week they gave me 4 strong doses of
IVIG
to support my platelets (i have ITP) as well.
I am 8 1/2 years into my CLL diagnosis and turned 65 this year, I have had some recent problems with CLL cells appearing in some masses in both my feet and left ankle, but to have a biopsy last week they gave me 4 strong doses of
IVIG
to support my platelets (i have ITP) as well.
KevinCLLITP
in
CLL Support
4 years ago
IVIG(intravenous immunogbulin)
Is anyone taking
IVIG
(intravenous immunogbulin) for dermatomyositis? Is it helping your condition?
Is anyone taking
IVIG
(intravenous immunogbulin) for dermatomyositis? Is it helping your condition?
Dermatray15
in
Myositis UK
4 years ago
ITP and Pregnancy
I've also read that it's possible for babies born to mothers with ITP to have thrombocytopenia when they are born or in the first couple weeks of life and need treatment with
IVIG
. Thanks for any additional info or personal stories!
I've also read that it's possible for babies born to mothers with ITP to have thrombocytopenia when they are born or in the first couple weeks of life and need treatment with
IVIG
. Thanks for any additional info or personal stories!
FromToronto
in
ITP Support Association
4 years ago
Ibrutinib - Joint Pain
I also discontinued
IVIG
treatment 2 months ago, as a result of COVID, might that be a possible reason for the increase in pain (I haven’t seen anything on line that could support this)?
I also discontinued
IVIG
treatment 2 months ago, as a result of COVID, might that be a possible reason for the increase in pain (I haven’t seen anything on line that could support this)?
RobertCLL
in
CLL Support
4 years ago
Discontinue IVIG?
When we started IVF treatment this time around, killer cell blood tests showed that my TNF alpha was slightly elevated so Intravenous Immunoglobin (
IVIG
) was recommended which I had before FET.
When we started IVF treatment this time around, killer cell blood tests showed that my TNF alpha was slightly elevated so Intravenous Immunoglobin (
IVIG
) was recommended which I had before FET.
CW9915
in
Fertility Network UK
4 years ago
First ivig this week
Scheduled for first
ivig
on Thursday. My veins like to play hide and seek whenever they are invaded so my lab friends always use a butterfly needle. When I had my transfusion last year after 11 unsuccessful pokes they went down to a 20 needle (I have no idea what that means.
Scheduled for first
ivig
on Thursday. My veins like to play hide and seek whenever they are invaded so my lab friends always use a butterfly needle. When I had my transfusion last year after 11 unsuccessful pokes they went down to a 20 needle (I have no idea what that means.
Imbub
in
CLL Support
4 years ago
Open Heart Surgery W/ ITP
Lets try
IVIG
and infuse over a 4 week period. 1st Infusion is on 3/2/2020. 2nd Heart Attack is on 3/4/2020. Now What? I never had a chance to get my #s higher than 11K when I went into the Hospital and I have no more time.
Lets try
IVIG
and infuse over a 4 week period. 1st Infusion is on 3/2/2020. 2nd Heart Attack is on 3/4/2020. Now What? I never had a chance to get my #s higher than 11K when I went into the Hospital and I have no more time.
Dahle2424
in
ITP Support Association
4 years ago
How COVID-19 Has Impacted Clinical Trials for Chronic Lymphocytic Leukemia
For those on
IVIG
, now would be a good time to ask if you can switch to subcutaneous IgG infusions. You can keep a month or two of IgG in your refrigerator and do the infusions at home.
For those on
IVIG
, now would be a good time to ask if you can switch to subcutaneous IgG infusions. You can keep a month or two of IgG in your refrigerator and do the infusions at home.
AussieNeil
Administrator
in
CLL Support
4 years ago
Could I ask for a little support? Today is the day I have the 5th miscarriage.
I even read about NK cells and
IVIG
but wonder if anyone has any experience? Or these things are all about faith and destiny? I founds some people shared valuable experience having babies in the era before APS diagnosis. I have been reading your comments in this forum and found they are helpful.
I even read about NK cells and
IVIG
but wonder if anyone has any experience? Or these things are all about faith and destiny? I founds some people shared valuable experience having babies in the era before APS diagnosis. I have been reading your comments in this forum and found they are helpful.
Stillsomehopes
in
Hughes Syndrome APS Forum
4 years ago
IVIG infusions - Covid
The guidelines state: Postpone
IVIG
infusions as risk of exposure to COVID19 may outweigh benefit of infusion during pandemic period. Consultant to assess on case by case basis. Consider stopping
IVIG
and give prophylactic antibiotics for 6 months instead.
The guidelines state: Postpone
IVIG
infusions as risk of exposure to COVID19 may outweigh benefit of infusion during pandemic period. Consultant to assess on case by case basis. Consider stopping
IVIG
and give prophylactic antibiotics for 6 months instead.
RobertCLL
in
CLL Support
4 years ago
Post 660 That slippery slope 11 Jul 2020
She Who must be Obeyed did a course of Intravenous Immuno Gamma Globulin (
IVIG
) a few years back and she has been doing very well for years. Certainly, nothing has been reversed, but nothing has gone forward. Aim for this, set it as your goal. Be the first person who stopped ms.
She Who must be Obeyed did a course of Intravenous Immuno Gamma Globulin (
IVIG
) a few years back and she has been doing very well for years. Certainly, nothing has been reversed, but nothing has gone forward. Aim for this, set it as your goal. Be the first person who stopped ms.
RoyceNewton
in
My MSAA Community
4 years ago
I am in high risk group?
Get infections all the time so have
IvIg
6mths of every year. Consultant phoned to tell me to self isolate for 12wks. Live on my own . Having difficulty getting slots for online shopping. Had to give up work last year as infections got too bad.
Get infections all the time so have
IvIg
6mths of every year. Consultant phoned to tell me to self isolate for 12wks. Live on my own . Having difficulty getting slots for online shopping. Had to give up work last year as infections got too bad.
Frodo21
in
CLL Support
4 years ago
Post 642 I have been scared 8 May 2020
IVIG
infusions helped her and they have worked for years. I am pretty sure that I feared the pain mostly, and if I could cope another night. Whoever says that there is no pain in RRms is lying or they do not know what they are talking about.
IVIG
infusions helped her and they have worked for years. I am pretty sure that I feared the pain mostly, and if I could cope another night. Whoever says that there is no pain in RRms is lying or they do not know what they are talking about.
RoyceNewton
in
My MSAA Community
4 years ago
Leukaemia Care Webinar 8th April - a bit more information
Regarding
ivig
- they have been giving their patients 3 months of antibiotics to see them through this period. Going to the day unit for
ivig
may not be possible and too great a risk to all concerned. Those with sc
ivig
should make sure they clean it well when it arrives.
Regarding
ivig
- they have been giving their patients 3 months of antibiotics to see them through this period. Going to the day unit for
ivig
may not be possible and too great a risk to all concerned. Those with sc
ivig
should make sure they clean it well when it arrives.
Jm954
Administrator
in
CLL Support
4 years ago
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