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Iodine
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CLL RELAPSE.. LATEST TREATMENTS AVAILABLE
Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 2018- reached Rai stage 3.. FCR was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse of CLL as Ibrutinib stopped
Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 2018- reached Rai stage 3.. FCR was given starting with immunotherapy 2019- relapse of CLL- started having Ibrutinib 2020 Nov- got covid ( episode 1) 2021- April - COVID ( episode2) June- relapse of CLL as Ibrutinib stopped
theoptimistduo
in
CLL Support
2 years ago
Doctor says its dangerous to take carbimazol for long time and advise RAI considering its less harmful...
I just saw today my doctor and asked her why I can not continue my treatment with carbimazol(I feel good but just have big goiter) She insisted that taking carbimazol for life is not posible, that I will have the complications with heart because of it. Is it true? (I was taking 5mg ,now she wants
I just saw today my doctor and asked her why I can not continue my treatment with carbimazol(I feel good but just have big goiter) She insisted that taking carbimazol for life is not posible, that I will have the complications with heart because of it. Is it true? (I was taking 5mg ,now she wants
femme12000
in
Thyroid UK
2 years ago
Pregabalin, Dosage thoughts?
Hi, I restarted Pregabalin in Feb. this year partly I have to say out of desperation, there being nothing else prescribeable available to me, GP had allowed me to trial Codeine but it took 90mg to suppress symptoms and there was no way that was going to be viable long term, more potent Opioids were
Hi, I restarted Pregabalin in Feb. this year partly I have to say out of desperation, there being nothing else prescribeable available to me, GP had allowed me to trial Codeine but it took 90mg to suppress symptoms and there was no way that was going to be viable long term, more potent Opioids were
Bumble34
in
Restless Legs Syndrome
2 years ago
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Feeling like something us stuck in my throat - Hashis/subclinical hypothyroidism
- i cant see any goitre or lumps externally - i have never really had any major symptoms other than struggling to get pregnant which is why i had blood tests initially I have read it could be due to
iodine
deficiency? I don't think i have had this checked - any ideas what it might be? .
- i cant see any goitre or lumps externally - i have never really had any major symptoms other than struggling to get pregnant which is why i had blood tests initially I have read it could be due to
iodine
deficiency? I don't think i have had this checked - any ideas what it might be? .
Nat2021
in
Thyroid UK
2 years ago
CBD oil for pain?
hi folks. Anyone use CBD oil for pain? Now that I cannot take NSAIDs I have a huge rise in anti inflamm pain. I have tried codeine with no impact. Also not wanting opioids. Not sure what to try next but someone mentioned CBD Oil. Any help would be hugely appreciated. My go to meds are paracetamol
hi folks. Anyone use CBD oil for pain? Now that I cannot take NSAIDs I have a huge rise in anti inflamm pain. I have tried codeine with no impact. Also not wanting opioids. Not sure what to try next but someone mentioned CBD Oil. Any help would be hugely appreciated. My go to meds are paracetamol
LittleLuna
in
MPN Voice
2 years ago
Elevated TSH despite its suppression
I had a complete thyroidectomy and underwent radio
iodine
therapy. I take a high dose of T4 and normally my TSH level is 0.5 or below. In two recent blood tests my TSH was around 6mcUI/ml, just above and below, and T4 was at the upper limit (1.7ng/dl on last test, lab's max is 1.72).
I had a complete thyroidectomy and underwent radio
iodine
therapy. I take a high dose of T4 and normally my TSH level is 0.5 or below. In two recent blood tests my TSH was around 6mcUI/ml, just above and below, and T4 was at the upper limit (1.7ng/dl on last test, lab's max is 1.72).
acousmetre
in
Thyroid UK
2 years ago
Advice on the treatment
Last blood test 19/05/2022 TS H < 0,014 (0,4-4,5) FT4 1,75 (0,85-1,8) FT3 5,35 (2,5 -4,4) Folate 6.2 ( > 5,38) B 12 307 (211-911) D3/Ferritin - they did not test but MCH 26.9 (27-33.5) Antiperoxidase >1300 (60) Big multinodular goiter with 4 cold nods(result of Gammagraphy 10/05/2021) Strong headaches
Last blood test 19/05/2022 TS H < 0,014 (0,4-4,5) FT4 1,75 (0,85-1,8) FT3 5,35 (2,5 -4,4) Folate 6.2 ( > 5,38) B 12 307 (211-911) D3/Ferritin - they did not test but MCH 26.9 (27-33.5) Antiperoxidase >1300 (60) Big multinodular goiter with 4 cold nods(result of Gammagraphy 10/05/2021) Strong headaches
femme12000
in
Thyroid UK
2 years ago
What’s my Options
I am finding it very difficult as whenever I have consultations, I am being leaned on/pushed to have Radioactive
Iodine
right now while I am stable, even though I have said several times this is not the treatment I want for myself.
I am finding it very difficult as whenever I have consultations, I am being leaned on/pushed to have Radioactive
Iodine
right now while I am stable, even though I have said several times this is not the treatment I want for myself.
Kjones64
in
Thyroid UK
2 years ago
An Unusual False-Positive Uptake of Radioiodine Caused by Breast Implants
If the issue applies, make sure you discuss properly with anyone who wants to give you radioactive
iodine
. I suspect it will be at the obscure end of the scale. [i]Clin Nucl Med. 2022 Mar 30. doi: 10.1097/RLU.0000000000004165. Online ahead of print.
If the issue applies, make sure you discuss properly with anyone who wants to give you radioactive
iodine
. I suspect it will be at the obscure end of the scale. [i]Clin Nucl Med. 2022 Mar 30. doi: 10.1097/RLU.0000000000004165. Online ahead of print.
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Just lost
Hi all, i was diasnosed with endo in 2013 at 18 after 3 years of back and forth, in that time ive had 4 laprascopies and patches removed. Ive been on the depo which stopped my periods for 9 years to make things a bit more tolerable, last month i got a period for the first time in 9 years which was very
Hi all, i was diasnosed with endo in 2013 at 18 after 3 years of back and forth, in that time ive had 4 laprascopies and patches removed. Ive been on the depo which stopped my periods for 9 years to make things a bit more tolerable, last month i got a period for the first time in 9 years which was very
Chifie
in
Endometriosis UK
2 years ago
Iodine Testing
Hi Can anyone recommend an
Iodine
test? I have read that a 24 hour loading test is the best and to also test for Bromide and Flouride as they can block absorption but I'm not sure where to get this done. Many thanks!
Hi Can anyone recommend an
Iodine
test? I have read that a 24 hour loading test is the best and to also test for Bromide and Flouride as they can block absorption but I'm not sure where to get this done. Many thanks!
Annieza
in
Thyroid UK
2 years ago
Thyroidectomy or Radioactive Iodine Treatment?
I used to lecture in radiation usage and safety and have concerns over the
Iodine
, especially as I also have a blood cancer and I have read about the affect on the bone marrow. The Endo seems to be pushing me that way but is that just re cost or is the RAI just easier and better?
I used to lecture in radiation usage and safety and have concerns over the
Iodine
, especially as I also have a blood cancer and I have read about the affect on the bone marrow. The Endo seems to be pushing me that way but is that just re cost or is the RAI just easier and better?
Hidden
in
Thyroid UK
2 years ago
Thyroid test results with a total thyroidectomy
Can anyone answer my question - I had overactive thyroid in my teens then in 20’s had radioactive
iodine
followed by a ‘partial’ thyroidectomy about 2 years later. I had cause to need an ultrasound on my throat about 30 years ago and this showed I had no thyroid tissue there at all.
Can anyone answer my question - I had overactive thyroid in my teens then in 20’s had radioactive
iodine
followed by a ‘partial’ thyroidectomy about 2 years later. I had cause to need an ultrasound on my throat about 30 years ago and this showed I had no thyroid tissue there at all.
Poppyred300
in
Thyroid UK
2 years ago
Iodized or non iodized salt in hypothyroid ?
In USA we get enough
iodine
from our food. Recently I saw a non-iodized Salt and purchased it thinking that people with thyroid should avoid
iodine
. Your thoughts please!
In USA we get enough
iodine
from our food. Recently I saw a non-iodized Salt and purchased it thinking that people with thyroid should avoid
iodine
. Your thoughts please!
Suzi_
in
Thyroid UK
2 years ago
Thyroidectomy
Radioactive
iodine
is not suitable for me so iv been told to think about completely removing my thyroid , I’m not keen on this but my endo says I cannot be on 15mg of my drug for life! Can anyone tell me there experience with this surgery ? Thank you in advance x
Radioactive
iodine
is not suitable for me so iv been told to think about completely removing my thyroid , I’m not keen on this but my endo says I cannot be on 15mg of my drug for life! Can anyone tell me there experience with this surgery ? Thank you in advance x
Busyy
in
Thyroid UK
2 years ago
Glucosamine
My joint pains have been really bad and getting worse I have been taking codeine and paracetamol, I can’t take any ibruprofen or other similar drugs as I am on warfarin, I was finding it difficult even to move at all, I have started to take glucosamine hoping it will help, just wondering if anyone else
My joint pains have been really bad and getting worse I have been taking codeine and paracetamol, I can’t take any ibruprofen or other similar drugs as I am on warfarin, I was finding it difficult even to move at all, I have started to take glucosamine hoping it will help, just wondering if anyone else
daisyd
in
Arthritis Action
2 years ago
stuck in a perpetual state of uncertainty
Hi all, not really a question but I just wondered if anyone else is in a similar paddlesds canoe, I was yDiagnosed with Nash for about 3years, also diabetic and acute back pain. Had the assessment last year, was Co sidered in need of a transplant (UKMELD score over 50) but due to high BMI not suitable
Hi all, not really a question but I just wondered if anyone else is in a similar paddlesds canoe, I was yDiagnosed with Nash for about 3years, also diabetic and acute back pain. Had the assessment last year, was Co sidered in need of a transplant (UKMELD score over 50) but due to high BMI not suitable
Rogerro
in
British Liver Trust
2 years ago
Massive anxiety flare just before period is about to start because I am soo worried about the pain.
So I have suffered with Endo and Adeno symptoms for like past 15/16 years and unfortunately am no stranger to being in pain because of it. However, over the last few months / periods, the pain has become soo much worse...which I didn't even think was possible. (I'm not sure if it is because of taking
So I have suffered with Endo and Adeno symptoms for like past 15/16 years and unfortunately am no stranger to being in pain because of it. However, over the last few months / periods, the pain has become soo much worse...which I didn't even think was possible. (I'm not sure if it is because of taking
JadeH92
in
Endometriosis UK
2 years ago
Reducing dose
10 years ago i had a large toxic nodule on my thyroid so was hyper active. I had RAI and so became hypo. Levo did nothing for me and still felt bad a d gained weight, tired etc, no diet worked. Started ndt (thiroyd) for years and e erything improved. My endo was not happy about this and since thiroyd
10 years ago i had a large toxic nodule on my thyroid so was hyper active. I had RAI and so became hypo. Levo did nothing for me and still felt bad a d gained weight, tired etc, no diet worked. Started ndt (thiroyd) for years and e erything improved. My endo was not happy about this and since thiroyd
thyroidnodules
in
Thyroid UK
2 years ago
Long term Carbimazole
I was diagnosed with Graves in December 2020, this caused AF so medicated for both successfully. Eventually down to 5 mg of Carbimazole and no other meds. Feeling good and then Tom by Endo, I would need to come off Carbimazole to see if I was in remission. Bloods on 5mg TSH 1.34 Bloods after 8 weeks
I was diagnosed with Graves in December 2020, this caused AF so medicated for both successfully. Eventually down to 5 mg of Carbimazole and no other meds. Feeling good and then Tom by Endo, I would need to come off Carbimazole to see if I was in remission. Bloods on 5mg TSH 1.34 Bloods after 8 weeks
Boaby
in
Thyroid UK
2 years ago
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