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Vasculitis Awarenes Month
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
zoe69
Vasculitis UK
in
Vasculitis UK
18 days ago
Referred to private Endo - London; advice and recommendations please
Hi all, I have just been referred by the GP to an Endo. I was hoping that someone could privately DM me with recommendations for private endos in central London. I am also wondering whether I could be suffering from Hashimotos hyperthyroid flare ups: To recap; I have hashimotos, and had a hemithyroidectomy
Hi all, I have just been referred by the GP to an Endo. I was hoping that someone could privately DM me with recommendations for private endos in central London. I am also wondering whether I could be suffering from Hashimotos hyperthyroid flare ups: To recap; I have hashimotos, and had a hemithyroidectomy
RuthNelson
in
Thyroid UK
2 months ago
help please, liothyronine, Roma brand
please forgive how long winded this will be I’m spaced out and not with it at all. I only posted a few months ago and my T4 results were a little on the high side. I was on 200mcg of Levo and alternate day 225mcg. I’ve reduce this down to 200mcg over 5 days and two doses of 25mcg over 2 days. Example
please forgive how long winded this will be I’m spaced out and not with it at all. I only posted a few months ago and my T4 results were a little on the high side. I was on 200mcg of Levo and alternate day 225mcg. I’ve reduce this down to 200mcg over 5 days and two doses of 25mcg over 2 days. Example
Cheekycharlie1981
in
Thyroid UK
3 months ago
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Peak flow app with reminders
Can anyone recommend a peak flow recording app for iPhone that notifies you when it’s time to take a measurement? I’ve been using asthma md but it doesn’t have this feature and I keep forgetting to take my peak flow. Thanks in advance.
Can anyone recommend a peak flow recording app for iPhone that notifies you when it’s time to take a measurement? I’ve been using asthma md but it doesn’t have this feature and I keep forgetting to take my peak flow. Thanks in advance.
lucia_m
in
Asthma Community Forum
19 days ago
hypertension stage 2 plus enlarged heart - is this linked to underactive thyroid? Help appreciated please
I’ve been on levothyroxine since about 2005. Back up to 125 mg per day after 9 months on 100mg. Tsh was 6.9 and t4 16 when last tested in December . Although I asked for t3 to be tested no results. im waiting for an echocardiogram in March to look at my heart as its enlarged. I’m taking spirometer
I’ve been on levothyroxine since about 2005. Back up to 125 mg per day after 9 months on 100mg. Tsh was 6.9 and t4 16 when last tested in December . Although I asked for t3 to be tested no results. im waiting for an echocardiogram in March to look at my heart as its enlarged. I’m taking spirometer
Mumsie22
in
Thyroid UK
3 months ago
what else can cause this?
Hello i’ve posted on here before with my results (see at the end of this post) and the doctor has said I’ve got hyperthyroidism, referred me to endo (10 weeks waiting list) and tested for graves as my cousin and Nan both have it however I have had the results and they have come back as negative for it
Hello i’ve posted on here before with my results (see at the end of this post) and the doctor has said I’ve got hyperthyroidism, referred me to endo (10 weeks waiting list) and tested for graves as my cousin and Nan both have it however I have had the results and they have come back as negative for it
Lollipop93
in
Thyroid UK
3 months ago
Is it possible to obtain NDT without precription?
I got T3 for 20 years from a source abroad but that avenue is closed now. I'm trying to find and change to desiccated thyroid. Does anybody know where I could find it?
I got T3 for 20 years from a source abroad but that avenue is closed now. I'm trying to find and change to desiccated thyroid. Does anybody know where I could find it?
Rose
in
Thyroid UK
6 months ago
Really high TSH
Hi I had a recent blood test and my TSH has come back at 8.7, this is the highest I've ever had. The docs called me on Thursday and when I said I'm on 200mcg Levo they said they needed to get me in for a review. I'm going today at 10.30am. TSH attached T4 is 15.3 (11-22.6) T3 is 4.2 (3.5-6.5) Any
Hi I had a recent blood test and my TSH has come back at 8.7, this is the highest I've ever had. The docs called me on Thursday and when I said I'm on 200mcg Levo they said they needed to get me in for a review. I'm going today at 10.30am. TSH attached T4 is 15.3 (11-22.6) T3 is 4.2 (3.5-6.5) Any
Pumpkin04
in
Thyroid UK
2 months ago
getting better but anxiety over future
Hi, I was diagnosed with asthma last September after being in hospital for ten days with a bad exacerbation. All out of the blue. I was on oxygen for most of it and coughing up thick green stuff after a chest infection. Could hardly breathe and almost in ICU. After recovering from that I picked up more
Hi, I was diagnosed with asthma last September after being in hospital for ten days with a bad exacerbation. All out of the blue. I was on oxygen for most of it and coughing up thick green stuff after a chest infection. Could hardly breathe and almost in ICU. After recovering from that I picked up more
Particle32
in
Asthma Community Forum
21 days ago
cardiac thyroidology in the Uk?
Hello everyone I am new here. I am a super complex patient with couple of cardiac conditions incl. POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of anaemia. I am in the Uk now an ddo not have
Hello everyone I am new here. I am a super complex patient with couple of cardiac conditions incl. POTS dysautonomia and when i was living abroad was given T3 in small doses that helped me a bit as they said i had an underactive thyroid and a genetic tyoe of anaemia. I am in the Uk now an ddo not have
Potsiegal
in
Thyroid UK
6 months ago
NEW BLOODS - getting there, but need advice on a few things please!
[u]
TOP LINE SUMMARY:
[/u]
Changes:
Last 9 weeks, added 12.5 Levo to land on 75 Levo/10 T3 regiment.
Symptoms:
ON AVERAGE improving, feel more stable/less volatile, but still low overall.
Results:
Free Ts and Vit D did AMAZING in my recent bloods! [u]
ALL OBSERVATIONS
[u]
TOP LINE SUMMARY:
[/u]
Changes:
Last 9 weeks, added 12.5 Levo to land on 75 Levo/10 T3 regiment.
Symptoms:
ON AVERAGE improving, feel more stable/less volatile, but still low overall.
Results:
Free Ts and Vit D did AMAZING in my recent bloods! [u]
ALL OBSERVATIONS
FallingInReverse
in
Thyroid UK
1 month ago
Bleeding on 7dp5dt
Hi All, So I had a positive pregnancy test from 5dp5dt. My lines were getting darker and when checked this morning, it remained strong. I went to my clinic this morning for a HCG blood test and before I left, noted that there was a medium amount of pink / red blood. I spoke with the clinic nurse who
Hi All, So I had a positive pregnancy test from 5dp5dt. My lines were getting darker and when checked this morning, it remained strong. I went to my clinic this morning for a HCG blood test and before I left, noted that there was a medium amount of pink / red blood. I spoke with the clinic nurse who
lovetravelling
in
Fertility Network UK
3 months ago
Got to laugh.. (urgent referral to endo😂)
Firstly I saw gp on Nov 9th she told me I need to be seen by an endocrinologist as urgent referral, she also stopped my T3 medication saying "you will get the feferal before your T3 runs out" this is because of your last blood work (hypo) 😂.I explained I've got around 7/8 days supply left🙄 just got
Firstly I saw gp on Nov 9th she told me I need to be seen by an endocrinologist as urgent referral, she also stopped my T3 medication saying "you will get the feferal before your T3 runs out" this is because of your last blood work (hypo) 😂.I explained I've got around 7/8 days supply left🙄 just got
birkie
in
Thyroid UK
6 months ago
subclinical hyperthyroid after hemithyroidectomy
evening all 🙂 I had a hemithyroidectomy in 2021 due to a large benign tumour on the left side of my thyroid, the right side was biopsied but left due to being non cancerous even though there is 3cm nodule on there. I didn’t get put on any medication post surgery as bloods were all ok. Lately I’ve
evening all 🙂 I had a hemithyroidectomy in 2021 due to a large benign tumour on the left side of my thyroid, the right side was biopsied but left due to being non cancerous even though there is 3cm nodule on there. I didn’t get put on any medication post surgery as bloods were all ok. Lately I’ve
KCH651
in
Thyroid UK
3 months ago
PA/b12 and ferratin
Hi, extremely confused here, I have been seeing a neurology specialist for cluster headaches, my last appointment I mentioned that I'm mixing my words up and my RLS (restless leg syndrome is getting worse).He asked if I'd had my bloods done and who was overseeing care.. I am PA, B12 deficient, folate
Hi, extremely confused here, I have been seeing a neurology specialist for cluster headaches, my last appointment I mentioned that I'm mixing my words up and my RLS (restless leg syndrome is getting worse).He asked if I'd had my bloods done and who was overseeing care.. I am PA, B12 deficient, folate
Mammymonster
in
Pernicious Anaemia Society
6 months ago
Loosing the weight/Blood Results
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
Btsfan
in
Thyroid UK
9 months ago
Basal Cortisol Test Result
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
Floridafan
in
PMRGCAuk
4 months ago
what are optimal T3 and T4 levels?
Hello, i had my endocrinologist appt and she didn't seem particularly interested in my -low free T4 levels (several times they have been under range or at the very bottom of the range) -free T3 which last time it was checked was 3.89 in range 3.1-6.8 she has done more bloods, if they are the same
Hello, i had my endocrinologist appt and she didn't seem particularly interested in my -low free T4 levels (several times they have been under range or at the very bottom of the range) -free T3 which last time it was checked was 3.89 in range 3.1-6.8 she has done more bloods, if they are the same
Laundry
in
Thyroid UK
6 months ago
PSA going down, but ALP increasing
I'm 3 weeks into a clinical trial for ARV-766, an AR degrader. At 2 weeks, my PSA had dropped from 133 to 66! Bone pain is much less. All my liver numbers are fine, but alkaline phosphatase has gone from 199 when I started to 429 at two weeks and 519 at three weeks. Doc thinks may just be a surge, but
I'm 3 weeks into a clinical trial for ARV-766, an AR degrader. At 2 weeks, my PSA had dropped from 133 to 66! Bone pain is much less. All my liver numbers are fine, but alkaline phosphatase has gone from 199 when I started to 429 at two weeks and 519 at three weeks. Doc thinks may just be a surge, but
rsgdmd
in
Advanced Prostate Cancer
24 days ago
Thyroid bloods if anyone can have a peep?
Hi folks, so finally got my thyroid bloods back, any ideas? thank you so much x Anti-Thyroid Peroxidase Ab's 1.4 IU/mL range 0 - 8.9 Free T3 5.4 pmol/L Range 3.8 - 6.0 Free T4 14.4 pmol/L Range 7.9 - 14.4 TSH
Hi folks, so finally got my thyroid bloods back, any ideas? thank you so much x Anti-Thyroid Peroxidase Ab's 1.4 IU/mL range 0 - 8.9 Free T3 5.4 pmol/L Range 3.8 - 6.0 Free T4 14.4 pmol/L Range 7.9 - 14.4 TSH
madeline05
in
Thyroid UK
3 months ago
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