Search
Search
About
Log in
Join
Experiences with
Interferon
Posts
Communities
1,145 public posts
Filter results
hydroxy/ interferon treatment questions
Hello. I understand that as (currently) incurable disorders PV and ET require long term management via venesection, anti-platelet and cytoreductive drugs. Does this mean constant cytroreductive treatment or can there be breaks if a patient’s bloods respond sufficiently, with a return to the drugs when
Hello. I understand that as (currently) incurable disorders PV and ET require long term management via venesection, anti-platelet and cytoreductive drugs. Does this mean constant cytroreductive treatment or can there be breaks if a patient’s bloods respond sufficiently, with a return to the drugs when
RoundTheWorld
in
MPN Voice
5 months ago
VTarpey
Hi just wondering if anyone can advise me I'm on 90mg of
interferon
every 2 weeks since March this year my platelets are fluctuating between 850 and 1000 since then I was hoping by now they wud be dwn a bit more does anyone know if this is a slow process or wud I need to increase dosage I am Calr
Hi just wondering if anyone can advise me I'm on 90mg of
interferon
every 2 weeks since March this year my platelets are fluctuating between 850 and 1000 since then I was hoping by now they wud be dwn a bit more does anyone know if this is a slow process or wud I need to increase dosage I am Calr
VTAR24
in
MPN Voice
2 months ago
Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys
Interferon
and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool.
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys
Interferon
and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool.
LeoTravels
in
MPN Voice
5 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Interferon alpha
My doctor has suggested putting me on
Interferon
Alpha and sent me the leaflet guide from MPN voice. The side affects seem vast and in all honesty, quite scary.
My doctor has suggested putting me on
Interferon
Alpha and sent me the leaflet guide from MPN voice. The side affects seem vast and in all honesty, quite scary.
Carlalawoo
in
MPN Voice
7 months ago
Post ET MF Update
The Dr at Guys did say that once things were more stable they might consider
Interferon
. However, whenever we attempt to bring this up with the local Haematology Team they say it is not tolerated well in elderly patients and seem reluctant to discuss further.
The Dr at Guys did say that once things were more stable they might consider
Interferon
. However, whenever we attempt to bring this up with the local Haematology Team they say it is not tolerated well in elderly patients and seem reluctant to discuss further.
moongazer100
in
MPN Voice
1 month ago
does anyone out there have histamine intolerance?
hi I’ve just changed from hydroxicarbamide to
interferon
. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
hi I’ve just changed from hydroxicarbamide to
interferon
. Seems ok, fingers crossed, but I also have histamine intolerance amd the absence of Hydroxicarbamide seems to be allowing my mast cells to have a high old time churning out histamine. Has anyone else experienced this? Louise
Loubprv
Volunteer
in
MPN Voice
6 months ago
Muscle pain
I’m on
Interferon
(only 90ml/fortnight) but also statins, beta blockers and ace inhibitors for a heart condition. Thanks, Josh
I’m on
Interferon
(only 90ml/fortnight) but also statins, beta blockers and ace inhibitors for a heart condition. Thanks, Josh
Huginn
in
MPN Voice
3 months ago
Interferon impact on fertility
Does
interferon
have any side effects for those individuals trying to conceive? 2. If I came off it does that also have an impact on fertility?
Does
interferon
have any side effects for those individuals trying to conceive? 2. If I came off it does that also have an impact on fertility?
Biscuitlove
in
MPN Voice
5 months ago
Anagrelide success 😃
I thought I tolerated
interferon
well but now it’s out of my system I feel so much better 😃😃
I thought I tolerated
interferon
well but now it’s out of my system I feel so much better 😃😃
Maxamber
in
MPN Voice
6 months ago
Allele Burden JAK 2
I am now on 135mg
interferon
every 10 days. Yipeeeeeeeee Oh yes the symptoms are still there...
I am now on 135mg
interferon
every 10 days. Yipeeeeeeeee Oh yes the symptoms are still there...
shiftzz
in
MPN Voice
5 months ago
Interferon types, Old and New, what are the options?
"
Interferon
alfa (Intron® A, BESREMi® [alfa-2b], and Roferon®-A [alfa-2a]), and sustained-release preparations of these called Peg-Intron and Pegasys® [peginterferon alfa-2a])".
"
Interferon
alfa (Intron® A, BESREMi® [alfa-2b], and Roferon®-A [alfa-2a]), and sustained-release preparations of these called Peg-Intron and Pegasys® [peginterferon alfa-2a])".
EPguy
in
MPN Voice
11 days ago
Allele Burden
Doe PV or
Interferon
affect the liver?
Doe PV or
Interferon
affect the liver?
shiftzz
in
MPN Voice
7 months ago
Travelling with interferon/pegasys
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Sunnyhunny
in
MPN Voice
6 months ago
Interferon and the liver
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
dbus1417
in
MPN Voice
6 months ago
Interferon reaction
I started
interferon
back in August and it's going okay. I am having a reaction at the injection site. My skin is rash looking, bright red and dry. Is there anything that works?
I started
interferon
back in August and it's going okay. I am having a reaction at the injection site. My skin is rash looking, bright red and dry. Is there anything that works?
RuaSaoirse
in
MPN Voice
8 months ago
Treatment Change, question
I'm currently on both whilst still taking the hydroxycarbamide I am introducing the
interferon
at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good. My Consultant wants me then to go onto 90mg weekly injections, is this the norm? Best wishes, Brian
I'm currently on both whilst still taking the hydroxycarbamide I am introducing the
interferon
at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good. My Consultant wants me then to go onto 90mg weekly injections, is this the norm? Best wishes, Brian
Swim360
in
MPN Voice
6 months ago
PV fatigue
I have just started Pegasys
interferon
after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
I have just started Pegasys
interferon
after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
CherokeeBlue
in
MPN Voice
6 months ago
Interferon dose.
I started peg
interferon
on Jan 2nd this year. I seen a haemotologist, not the one that had prescribed it, on the 31st Jan. I was injecting 45mcg a week for them four weeks. My platelets showed no change so he immediately upped the dose to 90mcg a week.
I started peg
interferon
on Jan 2nd this year. I seen a haemotologist, not the one that had prescribed it, on the 31st Jan. I was injecting 45mcg a week for them four weeks. My platelets showed no change so he immediately upped the dose to 90mcg a week.
conno61
in
MPN Voice
8 months ago
Peg Interferon Journey
Just to encourage those starting on Peg
Interferon
to be patient & to be your own advocate on your treatment. I started on Peg 2 years ago after asking for it due to my intolerance of HU after my ET Jak2 diagnosis following a shoulder sports injury.
Just to encourage those starting on Peg
Interferon
to be patient & to be your own advocate on your treatment. I started on Peg 2 years ago after asking for it due to my intolerance of HU after my ET Jak2 diagnosis following a shoulder sports injury.
Exeter21
in
MPN Voice
7 months ago
supplements with essential thrombocyethemia
Hi I am back in hydroxi after suspected added issues to thyroid being on pegulated
interferon
for a number of years.
Hi I am back in hydroxi after suspected added issues to thyroid being on pegulated
interferon
for a number of years.
BeckyDing
in
MPN Voice
5 months ago
1
2
3
4
...
58
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
865 results
My MSAA Community
41 results
LUpus Patients Understanding and Support
32 results
View top 10 communities
Sort by
Most Relevant
Newest