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Interferon
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ET + Anagrelide
I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of
Interferon
. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats, headaches, fatigue, mood swings and dizziness.
I have ET+CALR, became resistant to Hydrea and couldn't tolerate the side effects of
Interferon
. Now that I'm on Anagrelide (0.5mg twice a day) my platelets are in the 600,000's and I seem to tolerate it ok. However I deal with rapid heartbeats, headaches, fatigue, mood swings and dizziness.
Zeppelin11
in
MPN Voice
1 month ago
Approved or Trials of RBC lowering drugs?
I have been losing the battle using
interferon
. I'm currently taking about 145mcg's of Pegasys and my neutrophils just dipped to .87 while my HCT is still in excess of 45. I've been at this dose for several months.
I have been losing the battle using
interferon
. I'm currently taking about 145mcg's of Pegasys and my neutrophils just dipped to .87 while my HCT is still in excess of 45. I've been at this dose for several months.
jon1972
in
MPN Voice
3 months ago
Interferon effects
I thought
interferon
achieves full potential in 48 weeks ? Or I misread and it meant 4 to 8 weeks ? Thank you
I thought
interferon
achieves full potential in 48 weeks ? Or I misread and it meant 4 to 8 weeks ? Thank you
kamiilos
in
MPN Voice
7 months ago
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potassium
and have had a ECG which also showed this I had another ECG last week waiting on results My Gp seems worried and did get a emergency appointment with haematologist who wasn’t worried said it’s because my platelets are high been between 700 800 recently gone down to 600 due to higher does of
interferon
and have had a ECG which also showed this I had another ECG last week waiting on results My Gp seems worried and did get a emergency appointment with haematologist who wasn’t worried said it’s because my platelets are high been between 700 800 recently gone down to 600 due to higher does of
interferon
Poppy6060
in
MPN Voice
18 days ago
Hyperthyroid update
I was put on carbi for 18months after which, nothing until after almost a year of
interferon
injections for ET ( MPN) in 2021. I had not realised before or even put two and two together.
I was put on carbi for 18months after which, nothing until after almost a year of
interferon
injections for ET ( MPN) in 2021. I had not realised before or even put two and two together.
LadyAbash
in
Thyroid UK
4 months ago
The time has come
I start taking peg
interferon
early January. I've not got the greatest haemotologist in the world and he's simply told me to pick up the prescription from the hospital pharmacy and go to 2a, whatever that is, and they will teach me how to administer it.
I start taking peg
interferon
early January. I've not got the greatest haemotologist in the world and he's simply told me to pick up the prescription from the hospital pharmacy and go to 2a, whatever that is, and they will teach me how to administer it.
conno61
in
MPN Voice
5 months ago
Help! anagrelide
I've an appointment tomorrow to decide on next treatment and there's lots of info on
interferon
but not for anagrelide. I've got AT jak2 plus seronegative arthritis and spinal nerve damage,so I take another cytoxic drug which reduces my immune system.
I've an appointment tomorrow to decide on next treatment and there's lots of info on
interferon
but not for anagrelide. I've got AT jak2 plus seronegative arthritis and spinal nerve damage,so I take another cytoxic drug which reduces my immune system.
Spanelmad
in
MPN Voice
5 months ago
Interferon and Hypothyroidism
What I am worried about is if on
interferon
and they are monitoring my thyroid and my result changes but is still in their range they will say it’s normal and I won’t be feeling well. And I wont know if it’s the
interferon
or my thyroid.
What I am worried about is if on
interferon
and they are monitoring my thyroid and my result changes but is still in their range they will say it’s normal and I won’t be feeling well. And I wont know if it’s the
interferon
or my thyroid.
jodary
in
MPN Voice
7 months ago
Bloods
no tiredness walk 6 mile a day just can't understand why I feel ok also how does everyone cope with taking
interferon
when travelling I am going to Florida in march from UK so will be interested in how you take it on the airline and what I need to take as in sharps box etc
no tiredness walk 6 mile a day just can't understand why I feel ok also how does everyone cope with taking
interferon
when travelling I am going to Florida in march from UK so will be interested in how you take it on the airline and what I need to take as in sharps box etc
ChillyAsh34
in
MPN Voice
6 months ago
Hydroxyurea Side Effects
Fortunately changed doctors, and put on
Interferon
. Thanks for any feedback. Howard
Fortunately changed doctors, and put on
Interferon
. Thanks for any feedback. Howard
hsdale3
in
MPN Voice
3 months ago
Pegasys - Medicare Payment Options and Dosing Schedule
Also since I see people on different dosing intertervals and I pay per dose apparently - wonderting if 45 every two weeks the same as 90 monthly for a drug like
interferon
(and can the body handle that). thanks
Also since I see people on different dosing intertervals and I pay per dose apparently - wonderting if 45 every two weeks the same as 90 monthly for a drug like
interferon
(and can the body handle that). thanks
gvibes
in
MPN Voice
3 months ago
Monday MRI
Besremi is just so close to beta
interferon
and my labs just got controlled. Just praying for no change and I can maybe breathe for awhile! Thanks for all the support!
Besremi is just so close to beta
interferon
and my labs just got controlled. Just praying for no change and I can maybe breathe for awhile! Thanks for all the support!
KLCTJC
in
MPN Voice
4 months ago
ET: Changing from HU to Jakafi or an Interferon treatment
Additionally does anyone know if it's possible to go from Jakafi to an
Interferon
(in case I don't tolerate Jakafi)? Many thanks in advance for details of any relevant experiences.
Additionally does anyone know if it's possible to go from Jakafi to an
Interferon
(in case I don't tolerate Jakafi)? Many thanks in advance for details of any relevant experiences.
Bodensee
in
MPN Voice
5 months ago
painkillers for toothache
I have ET and am on Pegasys
Interferon
. Hello My question is, I have very bad toothache and can’t see a dentist for a couple of weeks ! I want to take a painkiller stronger than paracetamol? Has anyone been in a similar situation and was able to take something stronger ?
I have ET and am on Pegasys
Interferon
. Hello My question is, I have very bad toothache and can’t see a dentist for a couple of weeks ! I want to take a painkiller stronger than paracetamol? Has anyone been in a similar situation and was able to take something stronger ?
Abrams
in
MPN Voice
6 months ago
Pegasys for MF transitioning from hydroxycarbamide
The hematologist was talking about introducing pegasys
interferon
injections, after her 3 bags of red cells and a ferinject. She is worried about losing her head of hair, as it's a bit thinner than it was, and she doesn't want to lose it.
The hematologist was talking about introducing pegasys
interferon
injections, after her 3 bags of red cells and a ferinject. She is worried about losing her head of hair, as it's a bit thinner than it was, and she doesn't want to lose it.
jointpain
in
MPN Voice
4 months ago
Pegasys starting dose for PMF
I have read that must begin with a lower dose of
interferon
because of the adverse effects. Now platelets have reached 1200 because the reduction of Hydrea. I am really worried how will I react at 135 Pegasys. Has anyone the same situation like me? My hem dr. is not a MPN specialist.
I have read that must begin with a lower dose of
interferon
because of the adverse effects. Now platelets have reached 1200 because the reduction of Hydrea. I am really worried how will I react at 135 Pegasys. Has anyone the same situation like me? My hem dr. is not a MPN specialist.
Goldie41
in
MPN Voice
5 months ago
Low hemoglobin but high erythrocytes count
I have polycythemia vera and was on
interferon
for almost a year but had to stop it due to mental health side effects. Since then, it's been 2 years, I only take asprin 100mg daily.
I have polycythemia vera and was on
interferon
for almost a year but had to stop it due to mental health side effects. Since then, it's been 2 years, I only take asprin 100mg daily.
DariBee
in
MPN Voice
4 months ago
New to MS group
Now the medication I wanted for my PV is alpha
interferon
, you will never find another autoimmune disease and cancer combo that is treated with
interferon
, weird! So, I convinced neurologist and oncologist to let me try it. My blood counts have now normalized after almost a year.
Now the medication I wanted for my PV is alpha
interferon
, you will never find another autoimmune disease and cancer combo that is treated with
interferon
, weird! So, I convinced neurologist and oncologist to let me try it. My blood counts have now normalized after almost a year.
KLCTJC
in
My MSAA Community
3 months ago
changing medication
I’ve been on
interferon
95mcg for a year but with horrid side effects, however kept my blood in line. haem consultant suggested I come off over Xmas fir 6 weeks and my results have shown changes in all blood counts.
I’ve been on
interferon
95mcg for a year but with horrid side effects, however kept my blood in line. haem consultant suggested I come off over Xmas fir 6 weeks and my results have shown changes in all blood counts.
Sanga
in
MPN Voice
4 months ago
ET CALR
on daily Aspirin and started law does Anagrelide 0.5 twice was doubled to 4 tablets daily and a month later 6 tablets daily , unfortunately my platelets are still rising was now it’s 940 and my hematologist decided to change my medicine to Hydroxyurea 500 mg 2 capsules beside 5 Anagrelide daily ,,
interferon
on daily Aspirin and started law does Anagrelide 0.5 twice was doubled to 4 tablets daily and a month later 6 tablets daily , unfortunately my platelets are still rising was now it’s 940 and my hematologist decided to change my medicine to Hydroxyurea 500 mg 2 capsules beside 5 Anagrelide daily ,,
interferon
Neghdar73
in
MPN Voice
3 months ago
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