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Interferon
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PV fatigue
I have just started Pegasys
interferon
after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
I have just started Pegasys
interferon
after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
CherokeeBlue
in
MPN Voice
29 days ago
ET, platelets and stroke risk
I was diagnosed with ET three months ago and as I am high-risk (over 60, JAK-2 positive, another mutation and a couple of TIA episodes) I have been prescribed daily aspirin and weekly Peg-
interferon
.
I was diagnosed with ET three months ago and as I am high-risk (over 60, JAK-2 positive, another mutation and a couple of TIA episodes) I have been prescribed daily aspirin and weekly Peg-
interferon
.
Ginevra
in
MPN Voice
3 months ago
Treatment Change, question
I'm currently on both whilst still taking the hydroxycarbamide I am introducing the
interferon
at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good. My Consultant wants me then to go onto 90mg weekly injections, is this the norm? Best wishes, Brian
I'm currently on both whilst still taking the hydroxycarbamide I am introducing the
interferon
at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good. My Consultant wants me then to go onto 90mg weekly injections, is this the norm? Best wishes, Brian
Swim360
in
MPN Voice
21 days ago
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Pegasus - how long to work
For those taking it, I just wondered what your experience was when first taking Pegasus
Interferon
. I've had 15 doses of 90mg each week and my platelets are still high (last blood test as high as before I started
interferon
injections). Red and white also elevated. White only just though.
For those taking it, I just wondered what your experience was when first taking Pegasus
Interferon
. I've had 15 doses of 90mg each week and my platelets are still high (last blood test as high as before I started
interferon
injections). Red and white also elevated. White only just though.
Fivecatsandcounting
in
MPN Voice
4 months ago
Still undecided about Inteferon
Also the fact that I already have a thyroid issue is putting me off
interferon
which I’m told can affect the thyroid . I just don’t know what I’m going to do .
Also the fact that I already have a thyroid issue is putting me off
interferon
which I’m told can affect the thyroid . I just don’t know what I’m going to do .
jodary
in
MPN Voice
23 days ago
Beta-2 microglobulin
Hi,Has anyone experienced an increase in Beta-2 microglobulin value during the treatment with
interferon
? If yes, has been confirmed by MD that it is caused by
interferon
? Thank you in advance for your answers.
Hi,Has anyone experienced an increase in Beta-2 microglobulin value during the treatment with
interferon
? If yes, has been confirmed by MD that it is caused by
interferon
? Thank you in advance for your answers.
Dane12
in
MPN Voice
7 months ago
Best treatment for Post PV/MF ?
Ruxolitinib or
interferon
? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with 1 iron tablet on alternate days.
Ruxolitinib or
interferon
? I was diagnosed with pv in 2017. 2 years of hydroxy, then ruxolitinib at 20mg a day. A bmb in december showed progression to mf. Grade 2 fibrosis. The rux has recently been increased to 30mg a day along with 1 iron tablet on alternate days.
MCW22
in
MPN Voice
2 months ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking
interferon
for PV. Anyone any experience of this and whether certain oils interact with
interferon
? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking
interferon
for PV. Anyone any experience of this and whether certain oils interact with
interferon
? Many thanks
MazzaP74
in
Fight MPN
7 months ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking
interferon
for PV. Anyone any experience of this and whether certain oils interact with
interferon
? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking
interferon
for PV. Anyone any experience of this and whether certain oils interact with
interferon
? Many thanks
MazzaP74
in
MPN Voice
7 months ago
Probiotics.
Can anyone tell me if I can take probiotics with
interferon
. Hydroxy as left me with a gut problem, cannot make any sense of what I am reading on the internet. Lynn
Can anyone tell me if I can take probiotics with
interferon
. Hydroxy as left me with a gut problem, cannot make any sense of what I am reading on the internet. Lynn
lindyloulou
in
MPN Voice
5 months ago
Mithridate trial
I started peg
interferon
in feb 2023 and I have been on 135mg every week for about 4 months now . My recent Jak 2 allele burden blood test shown an increase from 20.83 % at diagnosis to 35.09% my bloods especially the HC is high and I keep needing venesection every 6 weeks .
I started peg
interferon
in feb 2023 and I have been on 135mg every week for about 4 months now . My recent Jak 2 allele burden blood test shown an increase from 20.83 % at diagnosis to 35.09% my bloods especially the HC is high and I keep needing venesection every 6 weeks .
Blonde25
in
MPN Voice
6 days ago
Bloods unstable
I've been told to increase my
interferon
from 90 micrograms to 135 micrograms and to take the higher dose every other week until I've used up my 90 microgram dose that I have left.
I've been told to increase my
interferon
from 90 micrograms to 135 micrograms and to take the higher dose every other week until I've used up my 90 microgram dose that I have left.
Blonde25
in
MPN Voice
6 months ago
Interferon effects
I thought
interferon
achieves full potential in 48 weeks ? Or I misread and it meant 4 to 8 weeks ? Thank you
I thought
interferon
achieves full potential in 48 weeks ? Or I misread and it meant 4 to 8 weeks ? Thank you
kamiilos
in
MPN Voice
6 months ago
Hyperthyroid update
I was put on carbi for 18months after which, nothing until after almost a year of
interferon
injections for ET ( MPN) in 2021. I had not realised before or even put two and two together.
I was put on carbi for 18months after which, nothing until after almost a year of
interferon
injections for ET ( MPN) in 2021. I had not realised before or even put two and two together.
LadyAbash
in
Thyroid UK
4 months ago
Interferon and Hypothyroidism
What I am worried about is if on
interferon
and they are monitoring my thyroid and my result changes but is still in their range they will say it’s normal and I won’t be feeling well. And I wont know if it’s the
interferon
or my thyroid.
What I am worried about is if on
interferon
and they are monitoring my thyroid and my result changes but is still in their range they will say it’s normal and I won’t be feeling well. And I wont know if it’s the
interferon
or my thyroid.
jodary
in
MPN Voice
6 months ago
Approved or Trials of RBC lowering drugs?
I have been losing the battle using
interferon
. I'm currently taking about 145mcg's of Pegasys and my neutrophils just dipped to .87 while my HCT is still in excess of 45. I've been at this dose for several months.
I have been losing the battle using
interferon
. I'm currently taking about 145mcg's of Pegasys and my neutrophils just dipped to .87 while my HCT is still in excess of 45. I've been at this dose for several months.
jon1972
in
MPN Voice
2 months ago
Bloods
no tiredness walk 6 mile a day just can't understand why I feel ok also how does everyone cope with taking
interferon
when travelling I am going to Florida in march from UK so will be interested in how you take it on the airline and what I need to take as in sharps box etc
no tiredness walk 6 mile a day just can't understand why I feel ok also how does everyone cope with taking
interferon
when travelling I am going to Florida in march from UK so will be interested in how you take it on the airline and what I need to take as in sharps box etc
ChillyAsh34
in
MPN Voice
6 months ago
Help! anagrelide
I've an appointment tomorrow to decide on next treatment and there's lots of info on
interferon
but not for anagrelide. I've got AT jak2 plus seronegative arthritis and spinal nerve damage,so I take another cytoxic drug which reduces my immune system.
I've an appointment tomorrow to decide on next treatment and there's lots of info on
interferon
but not for anagrelide. I've got AT jak2 plus seronegative arthritis and spinal nerve damage,so I take another cytoxic drug which reduces my immune system.
Spanelmad
in
MPN Voice
5 months ago
The time has come
I start taking peg
interferon
early January. I've not got the greatest haemotologist in the world and he's simply told me to pick up the prescription from the hospital pharmacy and go to 2a, whatever that is, and they will teach me how to administer it.
I start taking peg
interferon
early January. I've not got the greatest haemotologist in the world and he's simply told me to pick up the prescription from the hospital pharmacy and go to 2a, whatever that is, and they will teach me how to administer it.
conno61
in
MPN Voice
4 months ago
Starting dose for pegasys?
My illness is showing symptoms of masked PV and we are now starting pegasys
interferon
, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues.
My illness is showing symptoms of masked PV and we are now starting pegasys
interferon
, as i have had severe depression all my life and still as moderate im worried about the possibility of some risks in mental and other issues.
Ninete
in
MPN Voice
10 days ago
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