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Interferon
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Allele Burden
Doe PV or
Interferon
affect the liver?
Doe PV or
Interferon
affect the liver?
shiftzz
in
MPN Voice
5 months ago
Keeping Pegasys injections cool and monitoring temp
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys
Interferon
and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool.
Hi, I have recently been diagnosed with Erdheim-Chester Disease after being treated for many years for an MPN, (ET) I have started on Pegasys
Interferon
and will be travelling by plane soon (yay) and am looking for advice to keep the injections cool.
LeoTravels
in
MPN Voice
2 months ago
Interferon reaction
I started
interferon
back in August and it's going okay. I am having a reaction at the injection site. My skin is rash looking, bright red and dry. Is there anything that works?
I started
interferon
back in August and it's going okay. I am having a reaction at the injection site. My skin is rash looking, bright red and dry. Is there anything that works?
RuaSaoirse
in
MPN Voice
5 months ago
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Anagrelide success 😃
I thought I tolerated
interferon
well but now it’s out of my system I feel so much better 😃😃
I thought I tolerated
interferon
well but now it’s out of my system I feel so much better 😃😃
Maxamber
in
MPN Voice
4 months ago
Interferon impact on fertility
Does
interferon
have any side effects for those individuals trying to conceive? 2. If I came off it does that also have an impact on fertility?
Does
interferon
have any side effects for those individuals trying to conceive? 2. If I came off it does that also have an impact on fertility?
Biscuitlove
in
MPN Voice
3 months ago
Minimising reaction at injection site?
Any top tips for managing localised reaction at
interferon
injection sites please? (raised red circles, about 4cm wide and itchy). Will dig out baggier clothes and inject higher next time but any other tips about how to minimise local reaction? Also - I'm taking 45mcg from a 90mcg syringe.
Any top tips for managing localised reaction at
interferon
injection sites please? (raised red circles, about 4cm wide and itchy). Will dig out baggier clothes and inject higher next time but any other tips about how to minimise local reaction? Also - I'm taking 45mcg from a 90mcg syringe.
RoundTheWorld
in
MPN Voice
1 month ago
Interferon dose.
I started peg
interferon
on Jan 2nd this year. I seen a haemotologist, not the one that had prescribed it, on the 31st Jan. I was injecting 45mcg a week for them four weeks. My platelets showed no change so he immediately upped the dose to 90mcg a week.
I started peg
interferon
on Jan 2nd this year. I seen a haemotologist, not the one that had prescribed it, on the 31st Jan. I was injecting 45mcg a week for them four weeks. My platelets showed no change so he immediately upped the dose to 90mcg a week.
conno61
in
MPN Voice
5 months ago
injection site-red patches
I changed to Pegasys
interferon
5 weeks ago and I seem to be coping with it quite well. I’ve had headaches daily since diagnosed in December 2023, these subsided and for the last 2 weeks I was headache free. However the last few days they have returned.
I changed to Pegasys
interferon
5 weeks ago and I seem to be coping with it quite well. I’ve had headaches daily since diagnosed in December 2023, these subsided and for the last 2 weeks I was headache free. However the last few days they have returned.
Greengolfer
in
MPN Voice
19 days ago
Splenomegaly and Interferon
Did anyone who has been treated with
Interferon
for PV or MF and got their allele burden down see any reduction in splenomegaly? And if so, to what extent?
Did anyone who has been treated with
Interferon
for PV or MF and got their allele burden down see any reduction in splenomegaly? And if so, to what extent?
Dovakin
in
MPN Voice
5 months ago
Allele Burden JAK 2
I am now on 135mg
interferon
every 10 days. Yipeeeeeeeee Oh yes the symptoms are still there...
I am now on 135mg
interferon
every 10 days. Yipeeeeeeeee Oh yes the symptoms are still there...
shiftzz
in
MPN Voice
3 months ago
Peg Interferon Journey
Just to encourage those starting on Peg
Interferon
to be patient & to be your own advocate on your treatment. I started on Peg 2 years ago after asking for it due to my intolerance of HU after my ET Jak2 diagnosis following a shoulder sports injury.
Just to encourage those starting on Peg
Interferon
to be patient & to be your own advocate on your treatment. I started on Peg 2 years ago after asking for it due to my intolerance of HU after my ET Jak2 diagnosis following a shoulder sports injury.
Exeter21
in
MPN Voice
5 months ago
Travelling with interferon/pegasys
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Sunnyhunny
in
MPN Voice
4 months ago
Peg Interferon
Hello everyone.I check into this site every day because your input has helped me on my journey with Jak2 pos. I have been on hydroxycarmide 500mg daily for 4yrs, along with clopidogrel, side effects, hair thinning, along with skin, nails and 20lbs weight gain. Platelets have remained between 450- 550
Hello everyone.I check into this site every day because your input has helped me on my journey with Jak2 pos. I have been on hydroxycarmide 500mg daily for 4yrs, along with clopidogrel, side effects, hair thinning, along with skin, nails and 20lbs weight gain. Platelets have remained between 450- 550
Charliemills
in
MPN Voice
6 months ago
interferon
Happy new year to all Now Christmas is over my next appointment is looming on January 5th. I am to discuss whether to start Peg . I have ET and have been on 500 hydroxycarbomide daily for over 3 years Although this brought my platelets down from over 1000 they have stayed around late 700s mid 800s
Happy new year to all Now Christmas is over my next appointment is looming on January 5th. I am to discuss whether to start Peg . I have ET and have been on 500 hydroxycarbomide daily for over 3 years Although this brought my platelets down from over 1000 they have stayed around late 700s mid 800s
jodary
in
MPN Voice
7 months ago
Interferon and the liver
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
dbus1417
in
MPN Voice
4 months ago
PV fatigue
I have just started Pegasys
interferon
after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
I have just started Pegasys
interferon
after failed treatments of phlebotomies and Hydroxyurea. My fatigue since diagnosis and treatments starting 2021 is all consuming. I don’t know how to deal or cope with the tiredness, lack of energy, and overall feeling unwell.
CherokeeBlue
in
MPN Voice
4 months ago
Treatment Change, question
I'm currently on both whilst still taking the hydroxycarbamide I am introducing the
interferon
at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good. My Consultant wants me then to go onto 90mg weekly injections, is this the norm? Best wishes, Brian
I'm currently on both whilst still taking the hydroxycarbamide I am introducing the
interferon
at 45mg every 2 weeks, for 8 weeks, I'm into my 7th week, so far so good. My Consultant wants me then to go onto 90mg weekly injections, is this the norm? Best wishes, Brian
Swim360
in
MPN Voice
3 months ago
Interferon
I’m collecting my
Interferon
therapy today after seeing my Specialist in Oxford (UK) yesterday. Recent platelet count is 506 and my BMB is showing no fibrosis. I’m feeling a little apprehensive but hopefully won’t have too many side effects. I also have to take Allopurinol for the first month.
I’m collecting my
Interferon
therapy today after seeing my Specialist in Oxford (UK) yesterday. Recent platelet count is 506 and my BMB is showing no fibrosis. I’m feeling a little apprehensive but hopefully won’t have too many side effects. I also have to take Allopurinol for the first month.
Carol0925
in
MPN Voice
7 months ago
Muscle pain
I’m on
Interferon
(only 90ml/fortnight) but also statins, beta blockers and ace inhibitors for a heart condition. Thanks, Josh
I’m on
Interferon
(only 90ml/fortnight) but also statins, beta blockers and ace inhibitors for a heart condition. Thanks, Josh
Huginn
in
MPN Voice
8 days ago
Still undecided about Inteferon
Also the fact that I already have a thyroid issue is putting me off
interferon
which I’m told can affect the thyroid . I just don’t know what I’m going to do .
Also the fact that I already have a thyroid issue is putting me off
interferon
which I’m told can affect the thyroid . I just don’t know what I’m going to do .
jodary
in
MPN Voice
3 months ago
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