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Interferon
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Pegasys starting dose for PMF
I have read that must begin with a lower dose of
interferon
because of the adverse effects. Now platelets have reached 1200 because the reduction of Hydrea. I am really worried how will I react at 135 Pegasys. Has anyone the same situation like me? My hem dr. is not a MPN specialist.
I have read that must begin with a lower dose of
interferon
because of the adverse effects. Now platelets have reached 1200 because the reduction of Hydrea. I am really worried how will I react at 135 Pegasys. Has anyone the same situation like me? My hem dr. is not a MPN specialist.
Goldie41
in
MPN Voice
6 months ago
changing medication
I’ve been on
interferon
95mcg for a year but with horrid side effects, however kept my blood in line. haem consultant suggested I come off over Xmas fir 6 weeks and my results have shown changes in all blood counts.
I’ve been on
interferon
95mcg for a year but with horrid side effects, however kept my blood in line. haem consultant suggested I come off over Xmas fir 6 weeks and my results have shown changes in all blood counts.
Sanga
in
MPN Voice
5 months ago
A weighty issue saga
I have thought about switching drugs, but doctors and specialists don't recommend a change to Peg
interferon
. I don't even know if it
could
help reducing my bloated belly. In the meantime I skip from one diet (+ daily exercise) to the next, because that's all I can do at this time.
I have thought about switching drugs, but doctors and specialists don't recommend a change to Peg
interferon
. I don't even know if it
could
help reducing my bloated belly. In the meantime I skip from one diet (+ daily exercise) to the next, because that's all I can do at this time.
Goosebumps52
in
MPN Voice
25 days ago
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AST, ALT high
Hi, while been on
Interferon
journey my AST and ALT rocketed up high to 64 for ast and 92 for alt.Is this change a concern ? How can I maintain liver enzymes ? I am on a low carb high fat diet but I am using all the healthy ingredients. Not sure if related.
Hi, while been on
Interferon
journey my AST and ALT rocketed up high to 64 for ast and 92 for alt.Is this change a concern ? How can I maintain liver enzymes ? I am on a low carb high fat diet but I am using all the healthy ingredients. Not sure if related.
kamiilos
in
MPN Voice
7 months ago
New member - Post ET MF (Australia)
In 2017, after recurring migraines and burning in my feet, I started on pegylated
interferon
. It worked well and lowered my platelets.
In 2017, after recurring migraines and burning in my feet, I started on pegylated
interferon
. It worked well and lowered my platelets.
Hatchie
in
MPN Voice
25 days ago
Coincidence or not?
Diagnosed ET May 2017, started on Hydroxycabamide June 2018 and switched to
Interferon
in May this year. Whilst I was taking Hydroxy I had no periods for around 4 years, since coming off it and starting
Interferon
my periods have come back with a vengeance!
Diagnosed ET May 2017, started on Hydroxycabamide June 2018 and switched to
Interferon
in May this year. Whilst I was taking Hydroxy I had no periods for around 4 years, since coming off it and starting
Interferon
my periods have come back with a vengeance!
beckyluck
in
MPN Voice
8 months ago
Big Question
I see Monarch mentioned on another thread that he knew of others who progressed when they stopped and had to go on higher doses of Peg
interferon
. I would not want that. Thank you all for being here.
I see Monarch mentioned on another thread that he knew of others who progressed when they stopped and had to go on higher doses of Peg
interferon
. I would not want that. Thank you all for being here.
Planti
in
MPN Voice
7 months ago
starting hydroxy as pathway to Rux
My platelets and white blood cells started shifting so my haem consultant put me on
interferon
which controlled my blood beautifully.
My platelets and white blood cells started shifting so my haem consultant put me on
interferon
which controlled my blood beautifully.
Sanga
in
MPN Voice
4 months ago
Switch from Besremi to Jakafi
I am curious regarding whether others here have switched to jakafi from
interferon
or have otherwise taken jakafi as a front line treatment for PV without MF and how it has worked for them. Another concern with jakafi is I’m not sure how long one can take it. Thanks
I am curious regarding whether others here have switched to jakafi from
interferon
or have otherwise taken jakafi as a front line treatment for PV without MF and how it has worked for them. Another concern with jakafi is I’m not sure how long one can take it. Thanks
mfh7
in
MPN Voice
30 days ago
Chest pains & hypertension due to Interferon or Hydrea?
I took
Interferon
for the very first time a few months ago and ended up in the hospital 48 hours later with very high blood pressure, chest pains and shortness of breath. We tried reducing the dose over the months that followed, but my body didn't tolerate it well. I had to go on Hydrea.
I took
Interferon
for the very first time a few months ago and ended up in the hospital 48 hours later with very high blood pressure, chest pains and shortness of breath. We tried reducing the dose over the months that followed, but my body didn't tolerate it well. I had to go on Hydrea.
JustKeepSw1mming
in
MPN Voice
5 months ago
Starting Interferon - advice please
I am just about to start on
interferon
, lowest dose fortnightly 45mcg. I am interested in knowing what people's experience with side effects has been and how quickly these might have settled down. Also how quickly you started to experience benefits from the treatment..
I am just about to start on
interferon
, lowest dose fortnightly 45mcg. I am interested in knowing what people's experience with side effects has been and how quickly these might have settled down. Also how quickly you started to experience benefits from the treatment..
Mrs_Average
in
MPN Voice
8 months ago
COVID and Pegylated Interferon
At my last Haematology appointment the Dr told me that
Interferon
helps strengthen the immune system. I have also read that
Interferon
has been given to some patients with COVID to help with their recovery. I therefore wonder if the latest upcoming booster vaccination is required.
At my last Haematology appointment the Dr told me that
Interferon
helps strengthen the immune system. I have also read that
Interferon
has been given to some patients with COVID to help with their recovery. I therefore wonder if the latest upcoming booster vaccination is required.
AnitaJ
in
MPN Voice
9 months ago
Trouble getting interferon?
We have talked about trying
interferon
, but my Dr is convinced that it is extremely hard if not impossible to get the drug right now. Has anyone else experienced a problem getting your hands on
interferon
? I live in North Idaho, so I'm not sure if our remoteness is part of the problem.
We have talked about trying
interferon
, but my Dr is convinced that it is extremely hard if not impossible to get the drug right now. Has anyone else experienced a problem getting your hands on
interferon
? I live in North Idaho, so I'm not sure if our remoteness is part of the problem.
Owl-fan
in
MPN Voice
8 months ago
PV and hypertension
In other news, I was here before Christmas talking about how my
interferon
journey was going (no visible movement in counts after many months) and my consultant asked me to take iron tablets as my MCV was getting too low and I had a few symptoms of low iron.
In other news, I was here before Christmas talking about how my
interferon
journey was going (no visible movement in counts after many months) and my consultant asked me to take iron tablets as my MCV was getting too low and I had a few symptoms of low iron.
Skyehope
in
MPN Voice
4 months ago
itching skin after showering
I’m on peg
interferon
90mg a week for the last 3 months and bloods are improving, this itching started only 2 weeks ago. Any suggestions much appreciated 😊
I’m on peg
interferon
90mg a week for the last 3 months and bloods are improving, this itching started only 2 weeks ago. Any suggestions much appreciated 😊
Deevie1
in
MPN Voice
7 months ago
AXSL1 gene mutation
Currently, Rux is took in combination with
interferon
. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although it is still quite large compared to normal people.
Currently, Rux is took in combination with
interferon
. From the biopsy and blood routine, I have now reversed to PV (Hemoglobin has significantly improved, and the size of spleen has also shrunk a lot, although it is still quite large compared to normal people.
merlisa
in
MPN Voice
2 months ago
Post ET MF - Advice Please
I would like other treatment options such as
Interferon
& Ruxolitinib to be addressed, and I would be grateful for any advice on how best to approach this. I am also considering asking if he can be referred to an MPN specialist. Thank you for any advice.
I would like other treatment options such as
Interferon
& Ruxolitinib to be addressed, and I would be grateful for any advice on how best to approach this. I am also considering asking if he can be referred to an MPN specialist. Thank you for any advice.
moongazer100
in
MPN Voice
3 months ago
Hu days update
Also has agreed for me to choose between anagrelide and
interferon
. Thank you to all of the MPN's your thoughts and questions have helped this newbie to conquer her fears of confronting the medical profession. 👍
Also has agreed for me to choose between anagrelide and
interferon
. Thank you to all of the MPN's your thoughts and questions have helped this newbie to conquer her fears of confronting the medical profession. 👍
Spanelmad
in
MPN Voice
7 months ago
Scientists devise novel strategy to seek and destroy leukemia stem cells
Type II
interferon
(IFNy), a substance produced by immune cells, disrupts the leukemia stem cells' ability to divide and spread cancer. However, IFNy also stimulates CD38, a protein that suppresses the immune cells' ability to mount a response against infection.
Type II
interferon
(IFNy), a substance produced by immune cells, disrupts the leukemia stem cells' ability to divide and spread cancer. However, IFNy also stimulates CD38, a protein that suppresses the immune cells' ability to mount a response against infection.
PhysAssist
in
MPN Voice
3 months ago
Osteoporosis and PV
(Unfortunately Peg
interferon
caused paraesthesia + after taking it for 18months,so I stopped this medication) I have been advised to take Alendronic acid for the osteoporosis.
(Unfortunately Peg
interferon
caused paraesthesia + after taking it for 18months,so I stopped this medication) I have been advised to take Alendronic acid for the osteoporosis.
Bobadog
in
MPN Voice
7 months ago
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