Hi All, I am 46 and have ET jak2+ . I was diag 6 years ago and my platelets have stayed around 600-700. Treatment has been low dose aspirin up to now. Unfortunately 3 months ago I had severe chest pain, went to my local A&E and had lots of tests. The blood results indicated potential pulmonary embolism so they put me straight onto blood thinners. 24 hours later they did a pulmonary angiogram to check for a clot In my lungs. They couldn't see anything. Saw my haem one week later and bloods were back to normal. After further investigation by cardiology the theory is that I most likely did have a clot but it was either too small to see or had broken up by the time the angiogram was done. Has anyone else had a similar experience?
We are now looking at treatment options. I'd be interested to hear your experiences of starting on hydroxy or interferon.
Many thanks, Lou X