I was diagnosed with MS 23 years ago. I have had many Exacerbation 's & have used all the Injectable Medications over the years. I can't use Interferons anymore because it gave me Liver Disease. I have even done Novantrone Chemotherapy for 3 1/2 years & had 4 treatments of Tysabri when it first came out. Then I got a call at 9:00 pm from my Neurologist telling me to stop it immediately because of PML. I'm having an Exacerbation right now & I usually do IV Solumederol but after my first day I had a severe reaction to it so now I have to go to see an MS Specalist in Charleston but have to wait until October because he is so booked up. I walk with a cane & sometimes use a wheelchair.
Lady DI - I am new to this site . - My MSAA Community
Lady DI - I am new to this site .
Do not give up!!
Thre is a light of hope
What about Copaxone? It is not an interferon.
Lady Di, have you looked into Copaxone? You didn't mention it in your post. It is the one and far as I know only MS drug that is NOT an interferon medication. I have been on it for 10 yrs so far and other than minor local skin reactions which are rare, I so far haven't had any other major problems with it. Ask your current neurologist if he/she hasn't mentioned it which would surprise me if it were not suggested.
I'm sorry I didn't mention that I have been on Copaxone for about 8 years now, I'mdoing okay have had a few EXACERBATIONS.
Lady DI, that's tough. I wish you well expecially in this heat wave we going through on the east coast. Charleston is a great place for MS treatment but with that it makes it hard to get an appointment, but when you do they're great. Good luck and I wish you well. Keep us informed on how you doing.
Royjr,
I'm sorry I did forget to mention that I have been on Copaxone for about 8 years now. I was doing OK on it until I'mnow having this EXACERBATION. Thank you for the well wishes and I will keep you informed. Thanks again I appreciate it.
Good luck,I also use copaxone but hate the lumps left by them..π
Same thingwith me I get those lumps that sometimes last for months, but no big deal ! I can live with them.
When copaxone stopped working for me I tried Tsyabri but I was allergic so I went on Novantrone. Novantrone is a chemo you get every 3 months and that worked great but there is a lifetime amount you can take. I was off of it for about 6 years and now I am on Aubagio.
I never been on tried Aubagio .