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Interferon alfa-2a
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Treatment with Tofacitinib Helps Relieve Arthritis and Rash Symptoms in Lupus Patients, Study Shows
SOURCE: lupusnewstoday.com/2019/05/31/tofacitinib-relieve-arthritis-skin-rash-symptoms-sle/ Ana Pena May 31, 2019 Treatment with Tofacitinib Helps Relieve Arthritis and Rash Symptoms in Lupus Patients, Study Shows Tofacitinib tablets, a medicine approved to treat rheumatoid and psoriatic arthritis, may
SOURCE: lupusnewstoday.com/2019/05/31/tofacitinib-relieve-arthritis-skin-rash-symptoms-sle/ Ana Pena May 31, 2019 Treatment with Tofacitinib Helps Relieve Arthritis and Rash Symptoms in Lupus Patients, Study Shows Tofacitinib tablets, a medicine approved to treat rheumatoid and psoriatic arthritis, may
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Et
I have ET for 10 years been on interferon 2b,been to hospital to pick meds up today and they said dont do 2b anymore,so my new med is interferon 2a any advice would be great ,does it do the same x
I have ET for 10 years been on interferon 2b,been to hospital to pick meds up today and they said dont do 2b anymore,so my new med is interferon 2a any advice would be great ,does it do the same x
Jbut
in
MPN Voice
5 years ago
Regular interferon vs pegylated interferon side effects.
Has anyone noticed an improvement in side effects swapping from regular to pegylated? My fatigue, weakness, exercise intolerance, hair loss etc is ruining my life and I wondered if the change would help with this. I've been on regular interferon for 1 1/2 years.
Has anyone noticed an improvement in side effects swapping from regular to pegylated? My fatigue, weakness, exercise intolerance, hair loss etc is ruining my life and I wondered if the change would help with this. I've been on regular interferon for 1 1/2 years.
fee13
in
MPN Voice
5 years ago
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It is not as hard as you think
No a diagnosis(DX) of Relapsing Remitting ms (RRms) is not a disaster or an impossible incurable life sentence. Let me correct myself. Yes, today in 2019 it is incurable, and likely will be for the next twenty or so years at the least, so I guess that could be a life sentence depending upon your
No a diagnosis(DX) of Relapsing Remitting ms (RRms) is not a disaster or an impossible incurable life sentence. Let me correct myself. Yes, today in 2019 it is incurable, and likely will be for the next twenty or so years at the least, so I guess that could be a life sentence depending upon your
RoyceNewton
in
My MSAA Community
5 years ago
‘Sharps’ Bin
Hi , Sorry to ask such a trivial question, but I was given a sharps bin when I started Interferon a couple of months ago, but not told exactly what to put in it. I know you knowledgeable people will have the answer. Do you put just the needles in it for disposal, or should the empty syringes go in as
Hi , Sorry to ask such a trivial question, but I was given a sharps bin when I started Interferon a couple of months ago, but not told exactly what to put in it. I know you knowledgeable people will have the answer. Do you put just the needles in it for disposal, or should the empty syringes go in as
swimswam
in
MPN Voice
5 years ago
recurrent infections
Hi was just wondering if anyone had any advice - I have for the last 2 years have had recurrent chest/ear infections always needs treatment with antibiotics. When I discussed with the haematologists they have said its unlikely to be down to ET worsening as my platelets remain the same. The platelets
Hi was just wondering if anyone had any advice - I have for the last 2 years have had recurrent chest/ear infections always needs treatment with antibiotics. When I discussed with the haematologists they have said its unlikely to be down to ET worsening as my platelets remain the same. The platelets
cheeks1
in
MPN Voice
5 years ago
Feeling rough - high BP?
Hi Sorry for the long post, I have MF, diagnosed January 2018 currently taking Pegasys Interferon (45mcg per week) and aspirin, for a while before Easter I had been feeling 'odd' - getting tired quickly, light headed etc. My hematology dept has a 24 hour helpline and they advised me to come in (on a
Hi Sorry for the long post, I have MF, diagnosed January 2018 currently taking Pegasys Interferon (45mcg per week) and aspirin, for a while before Easter I had been feeling 'odd' - getting tired quickly, light headed etc. My hematology dept has a 24 hour helpline and they advised me to come in (on a
Not2bad
in
MPN Voice
5 years ago
Pegasys interferon shortage
Hi, Had my monthly haematology check up the other day and my consultant advised that there is a manufacturing shortage of peg interferon at the moment so they couldn’t prescribe my normal 4 weeks supply. Has anyone else heard this or is it maybe just a Scotland thing? I’ve to go back on Friday as they
Hi, Had my monthly haematology check up the other day and my consultant advised that there is a manufacturing shortage of peg interferon at the moment so they couldn’t prescribe my normal 4 weeks supply. Has anyone else heard this or is it maybe just a Scotland thing? I’ve to go back on Friday as they
Spam1979
in
MPN Voice
5 years ago
Remission with peg interferon
I was wondering if people have had any success with remission using this drug for certain amount of years. Is there hope to reduce their burden even if is 56%.
I was wondering if people have had any success with remission using this drug for certain amount of years. Is there hope to reduce their burden even if is 56%.
Zar77
in
MPN Voice
5 years ago
Diagnosis with Polycythemia today
Today I went to see my Hematologist he said I have mpn Polycythemia. I had bloods taken shows my bloods are evaluating and everything else. My ct scan shows my spleen is fine and everything else is ok. He wants me to take Asprin. He wants me to decide treatment either Hydroxyurea or peg interferon treatment
Today I went to see my Hematologist he said I have mpn Polycythemia. I had bloods taken shows my bloods are evaluating and everything else. My ct scan shows my spleen is fine and everything else is ok. He wants me to take Asprin. He wants me to decide treatment either Hydroxyurea or peg interferon treatment
Zar77
in
MPN Voice
5 years ago
Interferon--does ones age make a difference?
I'm on Hydroxy and would like to try interferon. My hematologist has told me that she will apply to see if I can go on it (I'm in Canada) however she warned me that as I'm 74 I might have difficulties. She added that she has an older patient who has started on it and is not doing well. Has anyone
I'm on Hydroxy and would like to try interferon. My hematologist has told me that she will apply to see if I can go on it (I'm in Canada) however she warned me that as I'm 74 I might have difficulties. She added that she has an older patient who has started on it and is not doing well. Has anyone
jeanr
in
MPN Voice
5 years ago
Absolutely different experience entirely!
Hi all,I had my new appointment with a new haematologist at a new NHS authority yesterday and the contrast to when i was first diagnosed and my treatment in the last 11 years was unbelieveable. I was really never told a lot about the condition I have, etjak2, I had to find out everything for myself through
Hi all,I had my new appointment with a new haematologist at a new NHS authority yesterday and the contrast to when i was first diagnosed and my treatment in the last 11 years was unbelieveable. I was really never told a lot about the condition I have, etjak2, I had to find out everything for myself through
Tico
in
MPN Voice
5 years ago
Things that I do because , just because
Things that I do, just because I can. I passionately dislike needles and do everything that I can to avoid them. Though I did religiously take Interferon Beta 1b for a decade without stopping. Get a baseline reading of your blood levels. Any vitamins that “YOU” can think of, cholesterol, things
Things that I do, just because I can. I passionately dislike needles and do everything that I can to avoid them. Though I did religiously take Interferon Beta 1b for a decade without stopping. Get a baseline reading of your blood levels. Any vitamins that “YOU” can think of, cholesterol, things
RoyceNewton
in
My MSAA Community
5 years ago
Platelets 1200 - No Action to be taken?
ET Patient diagnosed 23 years ago, now age 46. Tried Hydroxy, Interferon, and other drugs, without long term success, due to side effects. Now in a situation where Platelet count is 1200 and potentially rising. Now only taking Aspirin. Feeling vulnerable as I am now being told no other options and should
ET Patient diagnosed 23 years ago, now age 46. Tried Hydroxy, Interferon, and other drugs, without long term success, due to side effects. Now in a situation where Platelet count is 1200 and potentially rising. Now only taking Aspirin. Feeling vulnerable as I am now being told no other options and should
Arb411
in
MPN Voice
5 years ago
Worried and need advice
Diagnosis: ET Age:41 Date: June 2018 Current platelet count: 1700, 000 Drug: Interferon ( Pegasys) started March 2019 My platelet count is currently climbing.5/1 each week, which is why I have started Interferon, and nobody knows why. I suspect stress levels at work and in life, but my Heamatologist
Diagnosis: ET Age:41 Date: June 2018 Current platelet count: 1700, 000 Drug: Interferon ( Pegasys) started March 2019 My platelet count is currently climbing.5/1 each week, which is why I have started Interferon, and nobody knows why. I suspect stress levels at work and in life, but my Heamatologist
Charlieapple2018
in
MPN Voice
5 years ago
Critical illness claim success!
This is a really big Thank you to those of you who inspired me to proceed with a claim. I was told on Friday that my claim was successful! As a first time Mum to a 6 month old this money will allow me to option to return to work on my terms. Being diagnosed with ET has been mind blowing especially after
This is a really big Thank you to those of you who inspired me to proceed with a claim. I was told on Friday that my claim was successful! As a first time Mum to a 6 month old this money will allow me to option to return to work on my terms. Being diagnosed with ET has been mind blowing especially after
JojoWonder
in
MPN Voice
5 years ago
Worth reading if considering Pegasys
Dr Silver is the Interferon guru, based of his long experience using Interferon as a first line treatment choice. Also he recommends INF/Pegasys at an early stage when patients still low risk. Most Hems tend to use HU as front line drug and won’t medicate for low risk patients https://www.onclive.com
Dr Silver is the Interferon guru, based of his long experience using Interferon as a first line treatment choice. Also he recommends INF/Pegasys at an early stage when patients still low risk. Most Hems tend to use HU as front line drug and won’t medicate for low risk patients https://www.onclive.com
Paul123456
in
MPN Voice
5 years ago
Pegasys struggles..any tips?
Hi All 48 and diagnosed with ET (mpl mutation) after a routine blood test 10+ years ago. Platelets average around the 720 mark and on daily aspirin until I had blood clots in my leg last year. Medication changed to interferon, initially 3miu twice a week, but now moved to pegasys weekly 135mig injections
Hi All 48 and diagnosed with ET (mpl mutation) after a routine blood test 10+ years ago. Platelets average around the 720 mark and on daily aspirin until I had blood clots in my leg last year. Medication changed to interferon, initially 3miu twice a week, but now moved to pegasys weekly 135mig injections
Crofty7
in
MPN Voice
5 years ago
Interferon and neuralgia?
For the past week I've had pain from neuralgia (pain and numbness across one side of my face) - I went to the GP and was told that it would probably 'settle down' in a couple of weeks. I hadn't been to the GP since my diagnosis so spent a bit of time catching him up on my treatment. The literature he
For the past week I've had pain from neuralgia (pain and numbness across one side of my face) - I went to the GP and was told that it would probably 'settle down' in a couple of weeks. I hadn't been to the GP since my diagnosis so spent a bit of time catching him up on my treatment. The literature he
Not2bad
in
MPN Voice
5 years ago
Goals goals goals
This is something that “YOU” without any shadow of a doubt want to consider. Our initial goal is achieved. Which Disease Modifying Therapy (DMT) That is the huge one and it is out of the way for now. Of course if after a month or more, “YOU” are still having terrible reactions then onto your second DMT
This is something that “YOU” without any shadow of a doubt want to consider. Our initial goal is achieved. Which Disease Modifying Therapy (DMT) That is the huge one and it is out of the way for now. Of course if after a month or more, “YOU” are still having terrible reactions then onto your second DMT
RoyceNewton
in
My MSAA Community
5 years ago
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