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Interferon alfa-2a
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Need advice
Hello to all my MPN's. Last year in September I had a heart attack and had angioplasty and had three stints put in. I was also put on medication for heart and one of them is Clopidogrel. I am also on 75mg Aspirin and 135 mc Pegulated Interferon every three weeks. The reason for heart attack was not
Hello to all my MPN's. Last year in September I had a heart attack and had angioplasty and had three stints put in. I was also put on medication for heart and one of them is Clopidogrel. I am also on 75mg Aspirin and 135 mc Pegulated Interferon every three weeks. The reason for heart attack was not
light
in
MPN Voice
5 years ago
Pegasys Interferon side affects
Hi Everyone, Happy Monday Anyone here experienced issues with the skin on your palms peeling on Pegasys Interferon? Currently on 45mcg weekly injections and issue only seems to have started since I restarted the injections about 4/5 weeks ago? Thanks Ben
Hi Everyone, Happy Monday Anyone here experienced issues with the skin on your palms peeling on Pegasys Interferon? Currently on 45mcg weekly injections and issue only seems to have started since I restarted the injections about 4/5 weeks ago? Thanks Ben
Crofty7
in
MPN Voice
5 years ago
New to ms the first week of many weeks
New to Relapsing Remitting ms (RRms) its first week month decade. Everything is a learning experience. Mistakes will be made, I most certainly made mine. People will give “YOU” suggestions and make recommendations. They may appear reasonable but, this is an incurable progressive chronic condition
New to Relapsing Remitting ms (RRms) its first week month decade. Everything is a learning experience. Mistakes will be made, I most certainly made mine. People will give “YOU” suggestions and make recommendations. They may appear reasonable but, this is an incurable progressive chronic condition
RoyceNewton
in
My MSAA Community
5 years ago
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New Zealanders, brilliant news for interferon
Brilliant news to Roferon A users! Just enquired about the shortage and this was the reply from haematology department which takes effect by the end of this year. "I believe the drug company is due to stop manufacturing interferon alpha. However it is our understanding that a replacement product will
Brilliant news to Roferon A users! Just enquired about the shortage and this was the reply from haematology department which takes effect by the end of this year. "I believe the drug company is due to stop manufacturing interferon alpha. However it is our understanding that a replacement product will
fee13
in
MPN Voice
5 years ago
Interferon injections
Hello everyone.... saw my oncologist last week, I have been given another 3 weeks off of Hydroxycarbomide ( it’s shown it is that that is giving me mouth sores) it has been mentioned I could go onto interferon. I am nervous of injections, let alone giving it to myself 🥴 how easy is it, and does it hurt
Hello everyone.... saw my oncologist last week, I have been given another 3 weeks off of Hydroxycarbomide ( it’s shown it is that that is giving me mouth sores) it has been mentioned I could go onto interferon. I am nervous of injections, let alone giving it to myself 🥴 how easy is it, and does it hurt
Yvette49
in
MPN Voice
5 years ago
First experiences with Pegasys for Polythycemia Vera
I've had PV for about 10 years, managing it with phlebotomies and aspirin but I've been eager to try Pegasys and avoid HU. HU is a really old, pharmacokinetically poorly characterised drug which causes DNA damage (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5126785/, https://www.researchgate.net
I've had PV for about 10 years, managing it with phlebotomies and aspirin but I've been eager to try Pegasys and avoid HU. HU is a really old, pharmacokinetically poorly characterised drug which causes DNA damage (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5126785/, https://www.researchgate.net
pnArt
in
MPN Voice
5 years ago
Interferon shortage?
Hi I'm Jimango. Have been monitoring this forum for a few years but never needed to post, although I have replied to a few. I'm ET, Jak2 neg, since 2007. HU intolerant, anagralide ineffective on it's own, but very effective in combination with Interferon alpha 2a (roferon). Have just been told that
Hi I'm Jimango. Have been monitoring this forum for a few years but never needed to post, although I have replied to a few. I'm ET, Jak2 neg, since 2007. HU intolerant, anagralide ineffective on it's own, but very effective in combination with Interferon alpha 2a (roferon). Have just been told that
Jimango
in
MPN Voice
5 years ago
Understanding the Role of Polyautoimmunity in Rheumatic Diseases
Understanding the Role of Polyautoimmunity in Rheumatic Diseases Linda Peckel July 16, 2019 An estimated 5 percent of the world’s population is diagnosed with one of a group of heterogeneous autoimmune rheumatic diseases (ARDs) including systemic lupus erythematosus (SLE), rheumatoid arthritis (RA)
Understanding the Role of Polyautoimmunity in Rheumatic Diseases Linda Peckel July 16, 2019 An estimated 5 percent of the world’s population is diagnosed with one of a group of heterogeneous autoimmune rheumatic diseases (ARDs) including systemic lupus erythematosus (SLE), rheumatoid arthritis (RA)
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Vaccines FYI
[u]Vaccine Safety When You Have MS[/u] Which Ones Are Safe and Which Ones Are Not By Colleen Doherty, MD Updated June 25, 2019 Medically reviewed by Andy Miller, MD
https://www.verywellhealth.com/vaccine-safety-in-ms-4119468?utm_term=&utm_campaign=list_ms&utm_medium=email&utm_source=cn_nl&utm_content
[u]Vaccine Safety When You Have MS[/u] Which Ones Are Safe and Which Ones Are Not By Colleen Doherty, MD Updated June 25, 2019 Medically reviewed by Andy Miller, MD
https://www.verywellhealth.com/vaccine-safety-in-ms-4119468?utm_term=&utm_campaign=list_ms&utm_medium=email&utm_source=cn_nl&utm_content
sashaming1
in
My MSAA Community
5 years ago
Pv with mouth ulcers using peg interferon
I have had mouth ulcers over a month (white blister on right side of the tongue and marks inside cheek). Stopped peg interferon 45 dosage so my mouth can heal recently Last Tuesday suppose to be my day to inject myself. 4 weeks break. How long can it take to heal my mouth? Right now using cordyol toothpaste
I have had mouth ulcers over a month (white blister on right side of the tongue and marks inside cheek). Stopped peg interferon 45 dosage so my mouth can heal recently Last Tuesday suppose to be my day to inject myself. 4 weeks break. How long can it take to heal my mouth? Right now using cordyol toothpaste
Zar77
in
MPN Voice
5 years ago
ET since 2001, now anxious about changes in blood counts
Hello, I am new here. I was diagnosed with ET in 2001 and, with a few ups and downs, it has mostly been stable on Hydroxycarbamide, Anagrelide and Aspirin until now. At my last appointment, my haemaglobin had dropped to 96, platelets 109 and WBC in the 20s (but have been stable around that for a year
Hello, I am new here. I was diagnosed with ET in 2001 and, with a few ups and downs, it has mostly been stable on Hydroxycarbamide, Anagrelide and Aspirin until now. At my last appointment, my haemaglobin had dropped to 96, platelets 109 and WBC in the 20s (but have been stable around that for a year
Otterfield
in
MPN Voice
5 years ago
Essential Thrombocythemia - Recent Diagnosis Interferon
Hello All, I was recently diagnosed with ET and have Googled the subject extensively (as most would do) I felt quite confident with the knowledge I acquired until the reality of taking the proposed treatment sunk in. I have been told by my consultant that I will commence with Interferon in a few weeks
Hello All, I was recently diagnosed with ET and have Googled the subject extensively (as most would do) I felt quite confident with the knowledge I acquired until the reality of taking the proposed treatment sunk in. I have been told by my consultant that I will commence with Interferon in a few weeks
Threelions
in
MPN Voice
5 years ago
Ruxolitinib and aggressive squamous cell skin cancers.
Hi. Update as promised. I got in touch with my MPN specialist feeling rather desperate after having had the SCC on my cheek excised. I’d followed up the research that people here had pointed me to on the link between rux and aggressive SCCs and sent some on to him What I’d taken from the research
Hi. Update as promised. I got in touch with my MPN specialist feeling rather desperate after having had the SCC on my cheek excised. I’d followed up the research that people here had pointed me to on the link between rux and aggressive SCCs and sent some on to him What I’d taken from the research
Rachelthepotter
in
MPN Voice
5 years ago
Aches and pains....
I'm 44, JAK2+ with ET. I generally don't suffer from symptoms apart from frustrating fatigue and have had some thromboses. Now though, I have noticed severe stiffness and pain in my lower back. I'm like a very old lady. Heat treatment helps but I wonder if this is related to ET or just 'one of those
I'm 44, JAK2+ with ET. I generally don't suffer from symptoms apart from frustrating fatigue and have had some thromboses. Now though, I have noticed severe stiffness and pain in my lower back. I'm like a very old lady. Heat treatment helps but I wonder if this is related to ET or just 'one of those
Karol_Rua
in
MPN Voice
5 years ago
Have to decide between Hydroxycarbide or Interferon on July 4th? Cant i just keep having a Venesection every few months? I have ET
Can anyone help me chose ? I am 59yrs so have been told that I have a choice as Interferon used for younger people and Hydro used for older people, both have risks. I platelet count of 550 and really don't want to take any tablets or have injections as I have so much work to do and finish off and very
Can anyone help me chose ? I am 59yrs so have been told that I have a choice as Interferon used for younger people and Hydro used for older people, both have risks. I platelet count of 550 and really don't want to take any tablets or have injections as I have so much work to do and finish off and very
Hildrethbird
in
MPN Voice
5 years ago
Spa treatments
Hi quick question, I have et jak 2 on aspirin and interferon once a week 45mg. My husband bought me a spa stay in for my bday. Me and my friends booked full body massage. I just found out I can't have full body massage without doctors note. I was all ready to go in the treatment room. Iam so upset as
Hi quick question, I have et jak 2 on aspirin and interferon once a week 45mg. My husband bought me a spa stay in for my bday. Me and my friends booked full body massage. I just found out I can't have full body massage without doctors note. I was all ready to go in the treatment room. Iam so upset as
Elab
in
MPN Voice
5 years ago
Inteferon and remission?
I know there’s been a lot of research on the peg interferon being successful with complete molecular remission. It has been very exciting to read about this. I just had my hemo appointment today. I have been on the interferon for about eight months. 45 MCG weekly. Platelets down from 1.4 million to
I know there’s been a lot of research on the peg interferon being successful with complete molecular remission. It has been very exciting to read about this. I just had my hemo appointment today. I have been on the interferon for about eight months. 45 MCG weekly. Platelets down from 1.4 million to
Miriammusic
in
MPN Voice
5 years ago
Anybody taking interferon for ET ?
I was diagnosed with ET at the age of 37.Until now I have been taking 75 mg of aspirin and been having regular check ups.Yesterday had appointment and now my platelets are 1500-my haematologist want me to go back in 2 weeks time for more tests and depends on the results I will need to choose a treatment.Reading
I was diagnosed with ET at the age of 37.Until now I have been taking 75 mg of aspirin and been having regular check ups.Yesterday had appointment and now my platelets are 1500-my haematologist want me to go back in 2 weeks time for more tests and depends on the results I will need to choose a treatment.Reading
Welbi
in
MPN Voice
5 years ago
Dry cough
Hello I read a few days ago about someone having a breathing problems linked to Interferon. I was wondering what this felt like. I’m 3 months into taking Pegasys and have increased asthma symptoms at the moment. Information about anyone else’s experiences would be reassuring.
Hello I read a few days ago about someone having a breathing problems linked to Interferon. I was wondering what this felt like. I’m 3 months into taking Pegasys and have increased asthma symptoms at the moment. Information about anyone else’s experiences would be reassuring.
Charlieapple2018
in
MPN Voice
5 years ago
My story so far. Hi I’m new!
It’s been a rollercoaster of tests and procedures since being diagnosed with chronic hep b back in November 2018 at 37 years old. It looks like I wasn’t treated when my mother pregnant as my brother is positive but sister was treated. My diagnoses only came about as I thought it was gallbladder pain
It’s been a rollercoaster of tests and procedures since being diagnosed with chronic hep b back in November 2018 at 37 years old. It looks like I wasn’t treated when my mother pregnant as my brother is positive but sister was treated. My diagnoses only came about as I thought it was gallbladder pain
Steven_
in
British Liver Trust
5 years ago
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