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Interferon alfa-2a
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Anagrelid to Interferon and Hashimoto.
I’m seriously thinking of changing from Anagrelid to interferon. I’ve always had heart palpitations from Anagrelide. All doctors to date said no interferon (I have Hashimoto) and no HU ( I have inborn anaemia). When I tried it once, I had nasty neurological side effects. Now I found a new MPN
I’m seriously thinking of changing from Anagrelid to interferon. I’ve always had heart palpitations from Anagrelide. All doctors to date said no interferon (I have Hashimoto) and no HU ( I have inborn anaemia). When I tried it once, I had nasty neurological side effects. Now I found a new MPN
Anag
in
MPN Voice
2 years ago
Living with ET+CALR and new to the group…Hello Everyone
Currently on a high dose of Hydro (3 pills a day) and trying to keep consistent numbers. My platelets spiked up to the millions last month because we have been adjusting my dosage and it backfired. I’m currently in normal range but the high dose is daunting, especially because I’m only 38 years old.
Currently on a high dose of Hydro (3 pills a day) and trying to keep consistent numbers. My platelets spiked up to the millions last month because we have been adjusting my dosage and it backfired. I’m currently in normal range but the high dose is daunting, especially because I’m only 38 years old.
Zeppelin11
in
MPN Voice
2 years ago
Peg Interferon or HU
Hi everyone! Does anyone know if Interferon or HU is safer in the long run? I've done some readings and it seems like HU is more toxic and can lead to some cancers. While interferon is safe for pregnancy, i am assuming it is the safest meds of all. I have been on HU for 3 months and it gave me thick
Hi everyone! Does anyone know if Interferon or HU is safer in the long run? I've done some readings and it seems like HU is more toxic and can lead to some cancers. While interferon is safe for pregnancy, i am assuming it is the safest meds of all. I have been on HU for 3 months and it gave me thick
Timtams
in
MPN Voice
2 years ago
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2nd dose of interferon
l have awful flu like symptoms, headache and migraine a week following my first Pegasys injection also ceased Hydroxycarbamide on the same day. 2nd injection this Thursday. These symptoms are not uncommon apparently for Pegasys interferon but apart from paracetamol any other suggestions would be most
l have awful flu like symptoms, headache and migraine a week following my first Pegasys injection also ceased Hydroxycarbamide on the same day. 2nd injection this Thursday. These symptoms are not uncommon apparently for Pegasys interferon but apart from paracetamol any other suggestions would be most
Hidden
in
MPN Voice
2 years ago
Update of Mithradite Trial
I am now one year into the Mithradite trial and thought a good time for update. The Mithradite trial is a randomised trial of Ruxolitnib against best available therapy which is either Hydrea or Interferon. My background is diagnosed with ET three years at age 67 and prescribed Hydrea. The Hydrea
I am now one year into the Mithradite trial and thought a good time for update. The Mithradite trial is a randomised trial of Ruxolitnib against best available therapy which is either Hydrea or Interferon. My background is diagnosed with ET three years at age 67 and prescribed Hydrea. The Hydrea
JP1952
in
MPN Voice
2 years ago
Travel with Interferon
I have read posts regarding travel and transporting my drug whilst flying. I'm travelling from Heathrow to Sydney in December with a stopover in Malaysia. So far through my research I have found out I must not take the phials out of the box they come in and find some sort of container that with keep
I have read posts regarding travel and transporting my drug whilst flying. I'm travelling from Heathrow to Sydney in December with a stopover in Malaysia. So far through my research I have found out I must not take the phials out of the box they come in and find some sort of container that with keep
Abrams
in
MPN Voice
2 years ago
Interferon and thyroid
Is anyone on interferon who also has a thyroid condition ? I have been told by my consultant that they would not be happy with me trying interferon as I have an underactive thyroid and am on thyroxine. I am aware that interferon can affect the thyroid and they have to monitor it but if it is already
Is anyone on interferon who also has a thyroid condition ? I have been told by my consultant that they would not be happy with me trying interferon as I have an underactive thyroid and am on thyroxine. I am aware that interferon can affect the thyroid and they have to monitor it but if it is already
jodary
in
MPN Voice
2 years ago
Anagrelide
I know we all react very differently to meds can I ask those who take Anagrelide for et how they have found it. I can't take interferon currently on hu.
I know we all react very differently to meds can I ask those who take Anagrelide for et how they have found it. I can't take interferon currently on hu.
ciye
in
MPN Voice
2 years ago
Why do we use IFN-α vs IFN-β? Might IFN-β be preferred?
I've discussed IFN types before. Some interesting info here that INF-β might be better to reduce inflammation/progression. ---- A recent post noted that Interferon is used for MS disease. This is the other IFN type 1, IFN-β (vs our IFN-α). I checked into why the difference. It turns out there
I've discussed IFN types before. Some interesting info here that INF-β might be better to reduce inflammation/progression. ---- A recent post noted that Interferon is used for MS disease. This is the other IFN type 1, IFN-β (vs our IFN-α). I checked into why the difference. It turns out there
EPguy
in
MPN Voice
2 years ago
pegasys interferon injections & flu jab
Hello there, Just need some advice. I've been taking my interferon injections every Tues eve for a few months & am due a flu jab. I would imagine it's not good to have it same day as my injections.So should leave it for a few days?... ie:interferon injections Tue evening & flu jab on a friday?
Hello there, Just need some advice. I've been taking my interferon injections every Tues eve for a few months & am due a flu jab. I would imagine it's not good to have it same day as my injections.So should leave it for a few days?... ie:interferon injections Tue evening & flu jab on a friday?
keviekev
in
MPN Voice
2 years ago
Recent TSH Results
Hi All, It's been a while since I posted anything about myself. Since my last post maybe a year ago, my thyroid blood results have been very stable since deciding NOT to take the radioiodine option, I was offered. My latest results after being on 5mg carbimazole for 16 months has seen my: TSH rise
Hi All, It's been a while since I posted anything about myself. Since my last post maybe a year ago, my thyroid blood results have been very stable since deciding NOT to take the radioiodine option, I was offered. My latest results after being on 5mg carbimazole for 16 months has seen my: TSH rise
LadyAbash
in
Thyroid UK
2 years ago
Interferon transportation on flights
We are hoping to fly to Thailand next year, just been in contact with the airline regarding keeping the interferon refrigerated. They said no, doe to Health and safety. Any suggestions? Will a cool bag be good enough to keep cool for possibly up to 17 hours? Is there a small usb cool bag?
We are hoping to fly to Thailand next year, just been in contact with the airline regarding keeping the interferon refrigerated. They said no, doe to Health and safety. Any suggestions? Will a cool bag be good enough to keep cool for possibly up to 17 hours? Is there a small usb cool bag?
shiftzz
in
MPN Voice
2 years ago
Make claim for PIP Allowance
I have polycythemia vera have since 2019. I want to claim PIP not sure i am entitled to it. My family telling me i should be applying for this because of my condtion. I make sure my consultant knows i am feeling ok with the lowest dosage interferon every 2 weeks. I dont want to loose my treatment saying
I have polycythemia vera have since 2019. I want to claim PIP not sure i am entitled to it. My family telling me i should be applying for this because of my condtion. I make sure my consultant knows i am feeling ok with the lowest dosage interferon every 2 weeks. I dont want to loose my treatment saying
Taz777
in
MPN Voice
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
MPN Voice
2 years ago
Non driving gene mutation-ASXL1
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
I have MF with JAK2 V617F for 10 years, now is taking Ruxotinib and Interferon . Spleen contraction and blood control are good. Although I took a lot of hormones, at least my fibrosis degree has been reversed, and the mutation rate has also decreased a lot. But I was found I have a new bad prognosis
merlisa
in
Fight MPN
2 years ago
pain and numbness in finger tips
hi I wrote a couple of weeks ago re starting interferon. Thank you everyone for your helpful words. Will be starting end of October. I have another question. Over the last year I’ve been getting an intense pain and heat in my thumb , index and middle fingers preceded by numbness and/or tingling.
hi I wrote a couple of weeks ago re starting interferon. Thank you everyone for your helpful words. Will be starting end of October. I have another question. Over the last year I’ve been getting an intense pain and heat in my thumb , index and middle fingers preceded by numbness and/or tingling.
Sanga
in
MPN Voice
2 years ago
Interferon Alpha 2-a (PEG) vs 2-b,(Bes) exactly what's the diff?
I posted this image recently, but here it's in a new context. For those who are curious exactly how 2-a and 2-b IFNs differ (I posted inside another thread before but here's a new post on it): https://www.prospecbio.com/interferon-alpha-2a_human "The difference between IFNA2A and IFNA2B is in the
I posted this image recently, but here it's in a new context. For those who are curious exactly how 2-a and 2-b IFNs differ (I posted inside another thread before but here's a new post on it): https://www.prospecbio.com/interferon-alpha-2a_human "The difference between IFNA2A and IFNA2B is in the
EPguy
in
MPN Voice
2 years ago
ET normal range platelets.
sorry with late reply. My bloods Hb 139 wbc 9.28 Neut 2.9 Plt 299 With platelets being in normal range for a while there checking me for bone marrow transformation to myelofibrosis. I hope this is ruled out, will also have ultrasound,repeat JAK 2. A few weeks ago my consultant said its rare for
sorry with late reply. My bloods Hb 139 wbc 9.28 Neut 2.9 Plt 299 With platelets being in normal range for a while there checking me for bone marrow transformation to myelofibrosis. I hope this is ruled out, will also have ultrasound,repeat JAK 2. A few weeks ago my consultant said its rare for
Jbut
in
MPN Voice
2 years ago
[i][b]DxTerity Test to Guide SLE Therapy Now Available in All 50 US States[/b][/i]
Blood test measures the activity of four IFN-1-related genes
by Marisa Wexler, MS | September 19, 2022
[i]
[/i] [i]
DxTerity Diagnostics’ interferon-1 gene signature test, which can be used to help guide treatment decisions for people with systemic lupus erythematosus
Blood test measures the activity of four IFN-1-related genes
by Marisa Wexler, MS | September 19, 2022
[i]
[/i] [i]
DxTerity Diagnostics’ interferon-1 gene signature test, which can be used to help guide treatment decisions for people with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
starting on Interferon
hi everyone I’ve been diagnosed with PV 6 years ago and am 57. I live in Uk and have been managing blood levels with a baby aspirin and venesections. Last year my white blood has started consistently rising. My haematologist has suggested I go onto 45 mic Pegasus starting in October. She’s asked
hi everyone I’ve been diagnosed with PV 6 years ago and am 57. I live in Uk and have been managing blood levels with a baby aspirin and venesections. Last year my white blood has started consistently rising. My haematologist has suggested I go onto 45 mic Pegasus starting in October. She’s asked
Sanga
in
MPN Voice
2 years ago
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