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Besremi -Six Week Update
I had another CMP and CBC yesterday. Background: I got my first Besremi shot on January 28. I asked to start at 50 mcg. Second shot was 60 mcg and third was 70mcg. After six weeks, I'm thrilled to see changes in my counts: My WBC went from 15 to 10.8 (while it can fluctuate, it doesn't have a drop
I had another CMP and CBC yesterday. Background: I got my first Besremi shot on January 28. I asked to start at 50 mcg. Second shot was 60 mcg and third was 70mcg. After six weeks, I'm thrilled to see changes in my counts: My WBC went from 15 to 10.8 (while it can fluctuate, it doesn't have a drop
Elizka
in
MPN Voice
2 years ago
Blood test results, can anyone help?
I have been having multiple symptoms which i thought were due to the start of the menopause. A hormone test came back indicating this was not the case but my TSH was right on the limit of normality at 4.2. As my symptoms also match an under active thyroid I paid for a blood test and my TSH came back
I have been having multiple symptoms which i thought were due to the start of the menopause. A hormone test came back indicating this was not the case but my TSH was right on the limit of normality at 4.2. As my symptoms also match an under active thyroid I paid for a blood test and my TSH came back
Whirlygig
in
Thyroid UK
2 years ago
Can Ketone Esters provide Ketones without a Ketone diet?
Back in 2013, Dr. Mary Newport gave a Ted talk on her re-discovery of MCT oil (she'd been aware of it for several years). In short, it greatly helped her husband with AZ. More recently, Ketone Esters are said to be even more potent than MCT oil. This video is from Dr Newport's talk. I've started looking
Back in 2013, Dr. Mary Newport gave a Ted talk on her re-discovery of MCT oil (she'd been aware of it for several years). In short, it greatly helped her husband with AZ. More recently, Ketone Esters are said to be even more potent than MCT oil. This video is from Dr Newport's talk. I've started looking
JAS9
in
Cure Parkinson's
2 years ago
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I.B.S AND THE PROBLEMS.
Wearing special disposable pants, incontinence type disposable sheets underneath the main sheet and how do you regulate say
imodium
and peppermint oil capsules as either you get painful stomach cramps and a bloating sensation but it protects you if you go out or it does not work and then you are in
Wearing special disposable pants, incontinence type disposable sheets underneath the main sheet and how do you regulate say
imodium
and peppermint oil capsules as either you get painful stomach cramps and a bloating sensation but it protects you if you go out or it does not work and then you are in
milojenny6
in
IBS Network
2 years ago
Update and first time referral to a neph...
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Hi everyone, This is my second post. My first post, my husband had been leaking protein and was told it would go away. A year later, he still has it. Now he's being referred to a Nephrologist for the first time. Does anyone have any suggestions or tips on what to ask? He's not diabetic and his blood
Bananas2007
in
Kidney Disease
2 years ago
Diet & CKD
Good morning, I was wondering if anyone else has had this experience? I told my neph that I was limiting protein, sodium and foods bad for the kidneys. She said that limiting protein etc is old school and instructed me not to add salt to any food. I am at a stage 3b. I have been reading posts on this
Good morning, I was wondering if anyone else has had this experience? I told my neph that I was limiting protein, sodium and foods bad for the kidneys. She said that limiting protein etc is old school and instructed me not to add salt to any food. I am at a stage 3b. I have been reading posts on this
Hello67
in
Kidney Disease
2 years ago
Nervous about having blood work done
Hello, does anyone else feel like they are in panic mode knowing it is time to have blood work done. I am so afraid to see my numbers. I have been drinking my water and eating a mostly vegan diet (I eat no meat, no poultry, no processed foods, and watch my sodium very carefully). I will eat a piece
Hello, does anyone else feel like they are in panic mode knowing it is time to have blood work done. I am so afraid to see my numbers. I have been drinking my water and eating a mostly vegan diet (I eat no meat, no poultry, no processed foods, and watch my sodium very carefully). I will eat a piece
Yankees28
in
Kidney Disease
2 years ago
tremors shaking jerking
Hello psp family so my dad has psp, now is peg fed, and has urethral catheter. stopped talking, very rigid most of the time, sometimes he has these shaking episodes, they happen every other month, thank god they arent a regular thing, but recently it seems like it is happening more than before. His
Hello psp family so my dad has psp, now is peg fed, and has urethral catheter. stopped talking, very rigid most of the time, sometimes he has these shaking episodes, they happen every other month, thank god they arent a regular thing, but recently it seems like it is happening more than before. His
Mustafa128h
in
PSP Association
2 years ago
And another ER visit and hospital stay
Jeff went back in for chemo and his blood pressure had plummeted and he was running 102 + fever. They nixed chemo and sent him immediately to the ER. He was discharged yesterday, although we didn’t really get a lot of answers. His sodium is too low and he was advised to eat more salt. They almost didn
Jeff went back in for chemo and his blood pressure had plummeted and he was running 102 + fever. They nixed chemo and sent him immediately to the ER. He was discharged yesterday, although we didn’t really get a lot of answers. His sodium is too low and he was advised to eat more salt. They almost didn
Pancake_Lefse
in
Advanced Prostate Cancer
2 years ago
New user - Here's my ongoing issues
I am presently dealing with a 4th flare up which started 5 months ago and is being treated with Entocort/Olestyr/
Imodium
without success so far.
I am presently dealing with a 4th flare up which started 5 months ago and is being treated with Entocort/Olestyr/
Imodium
without success so far.
Mccamer
in
Crohn's and Colitis Support
2 years ago
Latest lab results, GFR increased
Hi everyone, just wanted to give an update about my latest lab results. My gfr is back up to 30 (previously 26) Bun 20 (prev. 24) and Creatinine is down to 2.13 (prev. 2.38) I am down 10.4lbs since December. Lifestyle changes I have made have been exercising 3-4 times a week, drinking more water daily
Hi everyone, just wanted to give an update about my latest lab results. My gfr is back up to 30 (previously 26) Bun 20 (prev. 24) and Creatinine is down to 2.13 (prev. 2.38) I am down 10.4lbs since December. Lifestyle changes I have made have been exercising 3-4 times a week, drinking more water daily
DMH200435
in
Kidney Disease
2 years ago
10 Foods High in Glutamate and Why You Should Avoid Them!
Glutamate is an amino acid that is produced in the body and also occurs naturally in many foods. Monosodium glutamate (MSG) is the sodium salt of glutamic acid and is a common food additive. MSG is made from fermented starch or sugar and is used to enhance the flavor of savory sauces, salad dressings
Glutamate is an amino acid that is produced in the body and also occurs naturally in many foods. Monosodium glutamate (MSG) is the sodium salt of glutamic acid and is a common food additive. MSG is made from fermented starch or sugar and is used to enhance the flavor of savory sauces, salad dressings
Kia17
in
Cure Parkinson's
2 years ago
Butyrate , TUDCA or UDCA : trials for PD, ALS, ALZ - Slows ALS decline
Sodium phenylbutyrate is a pharmaceutical form of butyrate. Similar non pharma butyrate is available. UDCA requires a prescription. TUDCA does not. Here I will be culminating information on how these compounds and studies relate. This is a continuation of my message that what benefits ALS and
Sodium phenylbutyrate is a pharmaceutical form of butyrate. Similar non pharma butyrate is available. UDCA requires a prescription. TUDCA does not. Here I will be culminating information on how these compounds and studies relate. This is a continuation of my message that what benefits ALS and
Hidden
in
Cure Parkinson's
2 years ago
Obstructed defecation syndrome
By this stage I was hardly leaving the house as I never knew when I would need the toilet and drugs like
imodium
made me severely constipated. 12 months ago I moved to a new area and paid to see a consultant who had a specialist interest in IBS.
By this stage I was hardly leaving the house as I never knew when I would need the toilet and drugs like
imodium
made me severely constipated. 12 months ago I moved to a new area and paid to see a consultant who had a specialist interest in IBS.
janke
in
IBS Network
3 years ago
Stop and/or contain diarrhea!
I suffered from diarrhea Friday-today and took
Imodium
every day -- sometimes several times. My bouts seem to be more unpredictable. I'm trying everything I know of (except pharmaceuticals.)
I suffered from diarrhea Friday-today and took
Imodium
every day -- sometimes several times. My bouts seem to be more unpredictable. I'm trying everything I know of (except pharmaceuticals.)
foodiewithIBS
in
IBS Network
3 years ago
Liothyronine News
As I often do, I have been checking the UK's MHRA website. https://products.mhra.gov.uk/ I have identified two changes to liothyronine licences. First, an
Accord
20 microgram tablet is now listed. Does not contain lactose, mannitol or acacia. Accord contains: [i]6.1 List of excipients[/i]
As I often do, I have been checking the UK's MHRA website. https://products.mhra.gov.uk/ I have identified two changes to liothyronine licences. First, an
Accord
20 microgram tablet is now listed. Does not contain lactose, mannitol or acacia. Accord contains: [i]6.1 List of excipients[/i]
helvella
Thyroid UK
in
Thyroid UK
2 years ago
GFR drop-potassium high
Just had labs and my GRF dropped from 15 to 10 & creatinine went from 3.16 to 4.67. Potassium level went up too over 5( critical value). I drink at least 64 oz of water a day and watch my potassium, salt & protein intake. Started adding in some plant based proteins. I also take sodium bicarb twice
Just had labs and my GRF dropped from 15 to 10 & creatinine went from 3.16 to 4.67. Potassium level went up too over 5( critical value). I drink at least 64 oz of water a day and watch my potassium, salt & protein intake. Started adding in some plant based proteins. I also take sodium bicarb twice
Hawaiilover
in
Kidney Disease
2 years ago
Nalcrom (sodium cromoglicate) Availability
Hi, Does anyone know what the latest information is on the availability of Nalcrom (sodium cromoglicate)? Our daughter has just been prescribed it for the first time, and despite what it says on the website I am being met with “Nalcrom has been discontinued and sodium cromoglicate is out of stock.”
Hi, Does anyone know what the latest information is on the availability of Nalcrom (sodium cromoglicate)? Our daughter has just been prescribed it for the first time, and despite what it says on the website I am being met with “Nalcrom has been discontinued and sodium cromoglicate is out of stock.”
PCAD
in
The UK Mastocytosis Support Group
2 years ago
ANYONE WITH LOW BLOOD PRESSURE ISSUES WHILE TAKING ACALABRUTINIB?
I started treatment with Acalabrutinib June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking Acalabrutinib. In October and November 2021 I had gallbladder issues and suspended treatment. I lost 20 lbs and
I started treatment with Acalabrutinib June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking Acalabrutinib. In October and November 2021 I had gallbladder issues and suspended treatment. I lost 20 lbs and
CADreamer
in
CLL Support
2 years ago
Latest blood test results, where do I start?!
Afternoon everyone, I posted recently and went away to get some more blood tests, I've now got the bulk of the recent results. I'm on the waitlist for a total thyroidectomy but until then I'm just trying to improve my symptoms (mainly lack of patience, irritability, low libido, fatigue, anxiety etc
Afternoon everyone, I posted recently and went away to get some more blood tests, I've now got the bulk of the recent results. I'm on the waitlist for a total thyroidectomy but until then I'm just trying to improve my symptoms (mainly lack of patience, irritability, low libido, fatigue, anxiety etc
CTun
in
Thyroid UK
2 years ago
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