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Image-guided radiation therapy (IGRT)
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Advice Please
Hi everyone. I have had 16 gynaecological operations starting at aged 13 and ending 23 years ago a day before my 40th birthday when I had an emergency hysterectomy where for some reason they left my cervix. Following my op they tried HRT but my BP shot up so I was taken off it. Urinary incontinence
Hi everyone. I have had 16 gynaecological operations starting at aged 13 and ending 23 years ago a day before my 40th birthday when I had an emergency hysterectomy where for some reason they left my cervix. Following my op they tried HRT but my BP shot up so I was taken off it. Urinary incontinence
CecilyParsley
in
Pelvic Pain Support Network
4 months ago
Experiencing possible neuropathy in my trunk
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
4tunate1
in
Advanced Prostate Cancer
4 months ago
Stopping Zoladex & HRT
I just wondered if anyone has had any negative experiences when stopping zoladex injections and HRT? I've been on zoladex for around 8 months now but my moods have become so extreme on them and I've still been bleeding severe on them I've decided to stop to see how I get on. I had my last injection
I just wondered if anyone has had any negative experiences when stopping zoladex injections and HRT? I've been on zoladex for around 8 months now but my moods have become so extreme on them and I've still been bleeding severe on them I've decided to stop to see how I get on. I had my last injection
x_b_x
in
Endometriosis UK
4 months ago
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Watching and waiting
My 78 year old husband was diagnosed with prostate cancer Gleason 8 two years ago. ( Urologist noticed a very slight rise in psa and located a tumor after dre. Biopsy showed cancerous cells in Only in three cores. Bone scan clean. Subsequently had 28 rounds of radiation and three rounds of CyberKnife
My 78 year old husband was diagnosed with prostate cancer Gleason 8 two years ago. ( Urologist noticed a very slight rise in psa and located a tumor after dre. Biopsy showed cancerous cells in Only in three cores. Bone scan clean. Subsequently had 28 rounds of radiation and three rounds of CyberKnife
Pastaking
in
Advanced Prostate Cancer
4 months ago
Starting Chemo in May via trial
Thanks to everyone for all of their great questions and converstions on this site. Check my bio for background. 2 months into ADT therapy after diagnosis in January. I am starting docetaxyl chemo via an NIH trial in May. M9241 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230972/. We are hopeful
Thanks to everyone for all of their great questions and converstions on this site. Check my bio for background. 2 months into ADT therapy after diagnosis in January. I am starting docetaxyl chemo via an NIH trial in May. M9241 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230972/. We are hopeful
4tunate1
in
Advanced Prostate Cancer
4 months ago
Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
4 months ago
How long should I continue with bicalutamide after radiotherapy?
I just completed 40 external beam IMRT treatments two weeks ago. I was Gleason 3 +4, negative bone and CT scans, and although my Decipher score was a disappointing 68, it forecast that with radiotherapy I have a 9% chance of metastasis in 10 years and a 12% chance of mortality in 15 years. Now age
I just completed 40 external beam IMRT treatments two weeks ago. I was Gleason 3 +4, negative bone and CT scans, and although my Decipher score was a disappointing 68, it forecast that with radiotherapy I have a 9% chance of metastasis in 10 years and a 12% chance of mortality in 15 years. Now age
Smarks42
in
Prostate Cancer Network
1 year ago
Effectiveness of ADT
Hii , I am here and posting on behalf of my father . He is 69 year old and is diagnosed with metastatic prostate cancer with mets to spinal cord . His PSA was 79.5 and Gleason 5+5. One month earlier doctors started hormone therapy (Lupron 22.5 mg along with Abiraterone and iron and calcium tablets
Hii , I am here and posting on behalf of my father . He is 69 year old and is diagnosed with metastatic prostate cancer with mets to spinal cord . His PSA was 79.5 and Gleason 5+5. One month earlier doctors started hormone therapy (Lupron 22.5 mg along with Abiraterone and iron and calcium tablets
jeetu_g27
in
Advanced Prostate Cancer
4 months ago
PGAD relief tips
Hi all, I am reaching out to see amy tips you may have for relief? Currently lasts 24 hours a day, worst is at night but never goes away. Its very distressing and I cried again today as am just so exhausted. Have seen a urogynacologist and am now trialling HRT patches (hysterectomy in 2018) plus estrogen
Hi all, I am reaching out to see amy tips you may have for relief? Currently lasts 24 hours a day, worst is at night but never goes away. Its very distressing and I cried again today as am just so exhausted. Have seen a urogynacologist and am now trialling HRT patches (hysterectomy in 2018) plus estrogen
Lolliesandcakes
in
Pelvic Pain Support Network
4 months ago
Care Home response
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Please can I thank everyone who sent a response to my original post. It is encouraging to hear from so many of you who have similar stories. My husband is responding well to the care home and the staff are lovely. I have had a lot of support from the health professionals , consultant, physio, speech
Wybert
in
PSP Association
9 months ago
Newly Diagnosed
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Tulile
in
Prostate Cancer Network
4 months ago
Bloating - Zoladex/Tibolone
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Bookish_Girl
in
Endometriosis UK
4 months ago
Extremely interesting....
The Swinging Pendulum in Treatment for Hypothyroidism: From (and Toward?) Combination Therapy - PMC https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6629976/
The Swinging Pendulum in Treatment for Hypothyroidism: From (and Toward?) Combination Therapy - PMC https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6629976/
Easylover
in
Thyroid UK
9 months ago
Update recent PSMA
Docs did it to me again with the usual bad news. Uptake in new lymph node locations in pelvis. the radiotherapy failed, and preclude more treatment on new nodal areas. (according to Docs.) So expect to add to ADT, abi or enza or darolutamide in a short while, with PSA going up on a fast double.
Docs did it to me again with the usual bad news. Uptake in new lymph node locations in pelvis. the radiotherapy failed, and preclude more treatment on new nodal areas. (according to Docs.) So expect to add to ADT, abi or enza or darolutamide in a short while, with PSA going up on a fast double.
kainasar
in
Advanced Prostate Cancer
4 months ago
Combination therapy T4 + T3
Hi, since 2 weeks I started to take 10 mcg T3/ 2 days on top of my daily levothyroxine. I remember my periodic cycle was 24 days instead of 28 days when TSH was rising before. Today I was surprised to get my period at d23?! I am confused again. Was expecting the opposite.
Hi, since 2 weeks I started to take 10 mcg T3/ 2 days on top of my daily levothyroxine. I remember my periodic cycle was 24 days instead of 28 days when TSH was rising before. Today I was surprised to get my period at d23?! I am confused again. Was expecting the opposite.
Balou23
in
Thyroid UK
9 months ago
CV and Bone Health when ADT is a treatment option.
Thought this provided a useful framework to guide discussion with my medical team when discussing whether or not and what to do about CV and bone health when starting on ADT. https://www.urotoday.com/conference-highlights/eau-2024/eau-2024-prostate-cancer/151136-eau-2024-synchronous-mhspc-what-are-the-treatment-options-and-what-are-the-goals-of-treatment-what-to-test-before-start-of-hormonal-treatment-and-what-to-monitor.html
Thought this provided a useful framework to guide discussion with my medical team when discussing whether or not and what to do about CV and bone health when starting on ADT. https://www.urotoday.com/conference-highlights/eau-2024/eau-2024-prostate-cancer/151136-eau-2024-synchronous-mhspc-what-are-the-treatment-options-and-what-are-the-goals-of-treatment-what-to-test-before-start-of-hormonal-treatment-and-what-to-monitor.html
Hawk56
in
Advanced Prostate Cancer
4 months ago
Latest thyroid test results
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Gecko22
in
Thyroid UK
4 months ago
Recording available for NoSilverBullet interview of Dr Wayne Markman, CEO of SYMBYX, on "Light therapy for Parkinson's".
Thank you to Dr Wayne Markman for this very detailed interview on the topic of "Light Therapy for Parkinson's". It was a fascinating presentation with an excellent Q&A afterwards. It is available now on our YouTube channel so please take a look: https://youtu.be/E9XSIzblucc?feature=shared It is also
Thank you to Dr Wayne Markman for this very detailed interview on the topic of "Light Therapy for Parkinson's". It was a fascinating presentation with an excellent Q&A afterwards. It is available now on our YouTube channel so please take a look: https://youtu.be/E9XSIzblucc?feature=shared It is also
Michel0220
in
Cure Parkinson's
9 months ago
Treatment options
I am 47 years old diagnosed with PC last month with Gleason score 9(5,4) and was advised ADT treatment with Bicalutamide and followed by Lupron 30 mg after two weeks. PSA was 77 in Jan and dropped to 23 after starting ADT treatment and already feeling better with much less urinary symptoms. I was advised
I am 47 years old diagnosed with PC last month with Gleason score 9(5,4) and was advised ADT treatment with Bicalutamide and followed by Lupron 30 mg after two weeks. PSA was 77 in Jan and dropped to 23 after starting ADT treatment and already feeling better with much less urinary symptoms. I was advised
mtechguy
in
Advanced Prostate Cancer
4 months ago
What is done in this case ? ADT not working
In may of 2011 the PSA and Biopsy showed that I had an agressive cancer with Gleason 8 so my prostate was extracted and after this I received radiotherapy. Since during the following 9 years my psa continued very low, I suspended checking it and last september I received the surprise that it had increased
In may of 2011 the PSA and Biopsy showed that I had an agressive cancer with Gleason 8 so my prostate was extracted and after this I received radiotherapy. Since during the following 9 years my psa continued very low, I suspended checking it and last september I received the surprise that it had increased
Alfy47
in
Prostate Cancer Network
4 months ago
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